intraventricular meningioma

[ScooberDoo]

just diagnosed with a meningioma, located in the ‘atrium’? of my right ventricle. Three options given, 1 recommended RST. How was it 4 u?

[Clayden]

Although my meningioma is different it is a shock to the system to learn you have a brain tumour, I hope you are well on your way to recovery. I was diagnosed with right front lobe Atypical meningioma aggression on the 25th of may this year as it was large and growing fast I was operated on 6 days later for full gross total resection I was in hospital for 30 days I still suffer severe headaches and bad pressure on area tumour was removed and neck pain and have had 3 full on seizures since operation the doctor upped my medication from 2000mg of keppra daily to 3000mg and 100 mg of vimpat and I haven’t had a seizure since I have an mri coming up the end of September this year but because of severe headaches snd pressure I am in on Tuesday to get a repeat scan I just have feeling it’s coming back because of symptoms but hopefully I am wrong and it is still effects from operation either way I will get some peace known if it is or not

[ScooberDoo in reply to Clayden]

Hi Clayden, thanks for your reply. Yours is different but it’s still great to know there are others… by now, you’ve had your latest scan due to the headaches. I hope🤞🏼 it’s just headaches and that at least you have an answer and reason. 🤞🏼.?wishing you ALL the best!

[ScooberDoo in reply to Clayden]

my meningioma is atypical, grade 1 or possibly 2. But they said it was slow growing and benign. Yours sounds like I didn’t think meningiomas acted that way. Thank you for sharing.

[ScooberDoo in reply to Clayden]

Clayden, I’ve been thinking of you and hoping for good news for your peace and piece of mind. Take care, good luck and thank you for reaching out to me when I was so lost. I still haven’t heard from anyone who had a meningioma and just had the gamma knife, SRS, surgery. Hoping to hear from others. All the best to you. Cheers, Clayden.

[Naz74]

Morning everyone I had the gamma knife done about 8 years ago but know the whole of my right side has gone no feeling at all & have very bad headaches & feeling tired all the time my memory is going also dose anyone have any of these problems