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Medium chain acyl dehydrogenase deficiency
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Rapid responses to daily subcutaneous B12 injections??
I was diagnosed with pernicious anemia and iron deficiency anemia 3 months ago. (I’ve had 2 iron infusions so those levels are better now.) The B12 injections are extraordinarily helpful. I’ve been getting them subcutaneously on a daily basis. (I can’t tell any difference between subcutaneous and intramuscular
I was diagnosed with pernicious anemia and iron deficiency anemia 3 months ago. (I’ve had 2 iron infusions so those levels are better now.) The B12 injections are extraordinarily helpful. I’ve been getting them subcutaneously on a daily basis. (I can’t tell any difference between subcutaneous and intramuscular
faithrenae
in
Pernicious Anaemia Society
2 years ago
Cystitis looming
I think I’m about to suffer from cystitis shortly if not already started. All the classic symptoms are beginning. I want to nip it in the bud. . Given it is nearly 5 pm onFriday, can anyone advise if it’s ok to take Cystocalm a Sodium citrate otc powder sachets whilst on Levo?... thanks
I think I’m about to suffer from cystitis shortly if not already started. All the classic symptoms are beginning. I want to nip it in the bud. . Given it is nearly 5 pm onFriday, can anyone advise if it’s ok to take Cystocalm a Sodium citrate otc powder sachets whilst on Levo?... thanks
App1
in
Thyroid UK
2 years ago
A couple of things...
Hi everyone... a question.. My ortho put me on a low dose of prednisone, (10mg) for 14 days. He said it wasn't processed through the kidneys. Is he right... anyone else on prednisone, any thoughts? Second is I found or refound a web site that has tons of recipes for healthy eating, categorized by
Hi everyone... a question.. My ortho put me on a low dose of prednisone, (10mg) for 14 days. He said it wasn't processed through the kidneys. Is he right... anyone else on prednisone, any thoughts? Second is I found or refound a web site that has tons of recipes for healthy eating, categorized by
jodaer
in
Kidney Disease
2 years ago
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Test Results after discussion on here
Hi folks, hot of the press so to speak and on the attached screenshot. The doctor's comments are below this message. They are not what I was expecting, especially as I inject B12 1mg only once a month, but data analysis works more than one way and unless I'm reading it wrongly, I can cancel out any sort
Hi folks, hot of the press so to speak and on the attached screenshot. The doctor's comments are below this message. They are not what I was expecting, especially as I inject B12 1mg only once a month, but data analysis works more than one way and unless I'm reading it wrongly, I can cancel out any sort
CyclingDog
in
Pernicious Anaemia Society
2 years ago
Very Low Heart Rate/Pulse only while on dialyi=sis!!??
I have been receiving hemodialysis in center for more than a year three times a week. In the last week, they were unable to com,plete my dialysis on three of four sessions because my heart rate dropped into the 30s. In one session last week, ni the middle of these aborted sessions, I had a normal heart
I have been receiving hemodialysis in center for more than a year three times a week. In the last week, they were unable to com,plete my dialysis on three of four sessions because my heart rate dropped into the 30s. In one session last week, ni the middle of these aborted sessions, I had a normal heart
MP11
in
Dialysis Support
2 years ago
Iron advice for my sister
Though you guys might be the best to ask. What is the best iron supplement going? My sister needed 2 iron infusions before surgery and could only get one due to poor veins. She needs an iron supplement and I said I would get it for her. I want her to have the one that will be most beneficial to her..
Though you guys might be the best to ask. What is the best iron supplement going? My sister needed 2 iron infusions before surgery and could only get one due to poor veins. She needs an iron supplement and I said I would get it for her. I want her to have the one that will be most beneficial to her..
Peppermints
in
Pernicious Anaemia Society
2 years ago
Diarrhea while weaning pred and on actemra
I have had diarrhea almost constantly for 2-3 weeks. Since I started on prednisone and actemra about a year ago, I have had it about once a week, but this is unusual. I don't feel sick in any other way--except for the cramping and discomfort from diarrhea. I am tapering my prednisone by 1/2 mg every
I have had diarrhea almost constantly for 2-3 weeks. Since I started on prednisone and actemra about a year ago, I have had it about once a week, but this is unusual. I don't feel sick in any other way--except for the cramping and discomfort from diarrhea. I am tapering my prednisone by 1/2 mg every
emmamom
in
PMRGCAuk
2 years ago
Short of breath at 3a?
Hi, I'm at 3a gfr 51-57 with proteinuria at 700 on average. Lately I've had a lot of fullness in stomach area and short of breath, and bad body aches. Electrolytes are basically good though low on sodium 2-4 pts. sometimes. Magnes. good. Both neph doctor and GP keep saying it's not my kidney disease
Hi, I'm at 3a gfr 51-57 with proteinuria at 700 on average. Lately I've had a lot of fullness in stomach area and short of breath, and bad body aches. Electrolytes are basically good though low on sodium 2-4 pts. sometimes. Magnes. good. Both neph doctor and GP keep saying it's not my kidney disease
oceansplash
in
Kidney Disease
2 years ago
Iron Infusion
After years of RLS, several years of struggling on ropinerole, and the last 2 years on Neupro patches & Topiramate. Yesterday I was given my first Iron Infusion as a treatment option for RLS. There’s been lots of research by a Dr Earley at Johns Hopkins into an iron deficiency in the brain of RLS sufferers
After years of RLS, several years of struggling on ropinerole, and the last 2 years on Neupro patches & Topiramate. Yesterday I was given my first Iron Infusion as a treatment option for RLS. There’s been lots of research by a Dr Earley at Johns Hopkins into an iron deficiency in the brain of RLS sufferers
nosleep1969
in
Restless Legs Syndrome
2 years ago
Maybe found some clues in bottled water
I think I have worked out why some bottled water upsets my IBS (D) and some doesn't. All mineral water has some natural bicarbonate. The waters that seem okay for me, I noticed have lower bicarb levels, and the ones that can upset me have much higher levels. I also found out that sodium bicarbonate
I think I have worked out why some bottled water upsets my IBS (D) and some doesn't. All mineral water has some natural bicarbonate. The waters that seem okay for me, I noticed have lower bicarb levels, and the ones that can upset me have much higher levels. I also found out that sodium bicarbonate
Luisa22
in
IBS Network
2 years ago
Low Blood Sodium When On BTK Inhibitors
Wondering if anyone has developed low sodium levels while on Acalabrutinib, Ibrutinib, or Zanubrutinib. We are told to drink plenty of water while on these medications. My sodium levels have been dropping over the last few months. I know this can be caused by many things. Just wondering if the 40-
Wondering if anyone has developed low sodium levels while on Acalabrutinib, Ibrutinib, or Zanubrutinib. We are told to drink plenty of water while on these medications. My sodium levels have been dropping over the last few months. I know this can be caused by many things. Just wondering if the 40-
Davidcara
in
CLL Support
2 years ago
4 Year Old Stool Withholding
Hi there, my daughter is almost 4 and has stool withheld for around 2 years. She’s on laxido and a stimulant laxative. This has consumed our lives and I am absolutely miserable. My daughter is undergoing an autism assessment - speech and language delay being one of her traits amongst a fair few others
Hi there, my daughter is almost 4 and has stool withheld for around 2 years. She’s on laxido and a stimulant laxative. This has consumed our lives and I am absolutely miserable. My daughter is undergoing an autism assessment - speech and language delay being one of her traits amongst a fair few others
PinkPixiex
in
ERIC
2 years ago
blood group and being listed
my partner is at the very early stage of transplant assessment and today our transplant co-ordinator has told him that based on his current bloods and his blood group (A) she expects that if he were to be listed for transplant it would be a wait of weeks rather than months. He is actually not hugely
my partner is at the very early stage of transplant assessment and today our transplant co-ordinator has told him that based on his current bloods and his blood group (A) she expects that if he were to be listed for transplant it would be a wait of weeks rather than months. He is actually not hugely
Rshc
in
British Liver Trust
2 years ago
Heart rate over 100. Should I lower or up my Levo??
Hi I was wondering if someone had any advice on whether or not I should lower or up my Levo dose? I had upped from 100mg to 112.5 mg beginning of June, but my heart-rate just keeps going over 100bpm when I’m not doing anything. I’m still tired and feel as if I just can’t be bothered. I’ve been sitting
Hi I was wondering if someone had any advice on whether or not I should lower or up my Levo dose? I had upped from 100mg to 112.5 mg beginning of June, but my heart-rate just keeps going over 100bpm when I’m not doing anything. I’m still tired and feel as if I just can’t be bothered. I’ve been sitting
HappyBadger
in
Thyroid UK
2 years ago
TSH high end, B12 deficiency, perimenopausal starting HRT soon.. what's what with all the bloods please?
Hi, to give the full picture I posted this on the b12 site but looking for your thoughts on the thyroid part of it please ... Prior to having covid in Dec 2020, I was physically fit and healthy. Started Sertraline in Nov 2017 for severe pmt. Gave birth in Oct 2018, was induced with hormones and given
Hi, to give the full picture I posted this on the b12 site but looking for your thoughts on the thyroid part of it please ... Prior to having covid in Dec 2020, I was physically fit and healthy. Started Sertraline in Nov 2017 for severe pmt. Gave birth in Oct 2018, was induced with hormones and given
B12-118
in
Thyroid UK
2 years ago
Help!
Hi all. I am new to the website and forum. I have experienced RLS on and off over the years (I'm 49) but the symptoms have only lasted a few weeks at the most. However, for the last three months I have been unable to sleep much before 3am which is when my legs decide to settle down and let me rest. I
Hi all. I am new to the website and forum. I have experienced RLS on and off over the years (I'm 49) but the symptoms have only lasted a few weeks at the most. However, for the last three months I have been unable to sleep much before 3am which is when my legs decide to settle down and let me rest. I
Lilybeans
in
Restless Legs Syndrome
2 years ago
Drs phone call and advice on buying the right supplements please
Hi all, so i went to my drs surgery today to see if the dr had put any notes on my file as to whether i was going to get a phone call after my blood test results and the receptionist said that nothing urgent came back in the results and the dr would ring me next thursday to discuss a couple of things
Hi all, so i went to my drs surgery today to see if the dr had put any notes on my file as to whether i was going to get a phone call after my blood test results and the receptionist said that nothing urgent came back in the results and the dr would ring me next thursday to discuss a couple of things
catpurple7
in
Thyroid UK
2 years ago
Advice on latest lab please?
Just wondering if you could give advice on my last bloods? I feel ok, not swelling, but can not loose weight at all. I stop feel always cold, but my heart rate increase to 85/min I used NDT 3 years, was great, but the factory was closed, and I can not buy anymore lacto free NDT (without prescription)
Just wondering if you could give advice on my last bloods? I feel ok, not swelling, but can not loose weight at all. I stop feel always cold, but my heart rate increase to 85/min I used NDT 3 years, was great, but the factory was closed, and I can not buy anymore lacto free NDT (without prescription)
BC99
in
Thyroid UK
2 years ago
2nd bloodtest in 2 weeks.
hi all, i posted my latest blood test results a few weeks ago and on seasidesusies advice i had another bloodtest done at my drs to test for iron levels, i took a list of what needed to be tested and was assured by the nurse that it was all being tested. These were taken on wednesday fasted at 8.30am
hi all, i posted my latest blood test results a few weeks ago and on seasidesusies advice i had another bloodtest done at my drs to test for iron levels, i took a list of what needed to be tested and was assured by the nurse that it was all being tested. These were taken on wednesday fasted at 8.30am
catpurple7
in
Thyroid UK
2 years ago
Iron infusions
I have Restless Leg Syndrome, and also low iron (without anemia). However, I'm not able to take iron supplements as they're upsetting to my GI tract. My doctor is recommending an Iron infusion (this is putting iron directly into the bloodstream to avoid the GI tract). I've heard that this works for
I have Restless Leg Syndrome, and also low iron (without anemia). However, I'm not able to take iron supplements as they're upsetting to my GI tract. My doctor is recommending an Iron infusion (this is putting iron directly into the bloodstream to avoid the GI tract). I've heard that this works for
Laura9594
in
Restless Legs Syndrome
2 years ago
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