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Mast cell leukaemia
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CLL night sweats
Having horrible night sweats...have 3 fans going..on watch and wait..highest WBC 50,000..any relief for this?
Having horrible night sweats...have 3 fans going..on watch and wait..highest WBC 50,000..any relief for this?
truff4507
in
CLL Support
5 years ago
Good News
I have had the results of my bone marrow biopsy this week and my six months of FCR chemo have done the trick, I am now clear of any signs of cll cancer cells. This obviously is a great relief and although fatigue is still part of my life I am hoping for many years of being cancer free. I wish every single
I have had the results of my bone marrow biopsy this week and my six months of FCR chemo have done the trick, I am now clear of any signs of cll cancer cells. This obviously is a great relief and although fatigue is still part of my life I am hoping for many years of being cancer free. I wish every single
dandelup
in
CLL Support
5 years ago
Lab Visit
Hi all, For those of you who remember me say I was going to visit the Lab! I went this week - what a fantastic encouraging view I had on the research being done in the Southampton Research Department , work and research results which are shared backwards and forwards between Bournemouth, Canada, America
Hi all, For those of you who remember me say I was going to visit the Lab! I went this week - what a fantastic encouraging view I had on the research being done in the Southampton Research Department , work and research results which are shared backwards and forwards between Bournemouth, Canada, America
retired46
in
CLL Support
5 years ago
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Solamin - extract for sickle cell anaemia
Clinical Evaluation of SOLAMIN, was headed by Prof. H.A.B Coker, at Natural Medicine and Molecular Pharmaco-Biotechnology Laboratories – College of Medicine, University of Lagos, Nigeria, at the instance of former Minister of Health, Prof. Eyitayo Lambo, and released at Nigerian Institute of Medical
Clinical Evaluation of SOLAMIN, was headed by Prof. H.A.B Coker, at Natural Medicine and Molecular Pharmaco-Biotechnology Laboratories – College of Medicine, University of Lagos, Nigeria, at the instance of former Minister of Health, Prof. Eyitayo Lambo, and released at Nigerian Institute of Medical
Bman1
in
Sickle Cell Society
5 years ago
AXSL MUTATION
Hi Folks, I keep up to speed with the Forum, I don't often post, when I do, I have always had kind informative replies... I joined you folk last year in March, after ET Diagnosis.. Little did I know by May 18th, I would be diagnosed with MF Intermediate 1. After BMB which I'm so glad I had it, at least
Hi Folks, I keep up to speed with the Forum, I don't often post, when I do, I have always had kind informative replies... I joined you folk last year in March, after ET Diagnosis.. Little did I know by May 18th, I would be diagnosed with MF Intermediate 1. After BMB which I'm so glad I had it, at least
pontygirl
in
MPN Voice
5 years ago
Newbie ...
Hi, I've just joined this group. I was diagnosed with leukaemia in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular
Hi, I've just joined this group. I was diagnosed with leukaemia in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular
SomersetJo
in
British Heart Foundation
5 years ago
Recent diagnosis
Last November I was diagnosed with T cell large granulocytic leukaemia which was a bit of a shock as I have no real symptoms, perhaps I'm a bit tired but who, at 68 yrs, isn't. Anyway I'm on watch and wait which is good. Has anyone else got this? How are you? Can you tell me about your experience
Last November I was diagnosed with T cell large granulocytic leukaemia which was a bit of a shock as I have no real symptoms, perhaps I'm a bit tired but who, at 68 yrs, isn't. Anyway I'm on watch and wait which is good. Has anyone else got this? How are you? Can you tell me about your experience
GrannyTWest
in
CLL Support
5 years ago
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve.
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve. He refused stem cell transplant therapy after researching it, and instead started his own research. He was later treated for Graves’ disease which led him to LDN
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve. He refused stem cell transplant therapy after researching it, and instead started his own research. He was later treated for Graves’ disease which led him to LDN
liveurlife
Volunteer
in
LDN Research Trust
5 years ago
Update
Hi All, Thought it was about time I wrote with an update. Last year I wrote a few posts about my first transplant (MUD) to treat myelofibrosis. It failed to engraft so attempted a second transplant (HAPLO). Pleased to report that on Day 120 I am feeling good in myself and relatively healthy despite having
Hi All, Thought it was about time I wrote with an update. Last year I wrote a few posts about my first transplant (MUD) to treat myelofibrosis. It failed to engraft so attempted a second transplant (HAPLO). Pleased to report that on Day 120 I am feeling good in myself and relatively healthy despite having
Simon96
in
MPN Voice
5 years ago
Another possible MF ‘cure’ but very early stage....
https://www.apnews.com/Business%20Wire/569c6623ad784538ba40be42a99f087a “This clinical trial will evaluate the ability of AVID200 to achieve the disease-modifying outcomes of reversing bone marrow fibrosis and restoring normal hematopoiesis. Preclinical data demonstrate that selective neutralization
https://www.apnews.com/Business%20Wire/569c6623ad784538ba40be42a99f087a “This clinical trial will evaluate the ability of AVID200 to achieve the disease-modifying outcomes of reversing bone marrow fibrosis and restoring normal hematopoiesis. Preclinical data demonstrate that selective neutralization
Paul123456
in
MPN Voice
5 years ago
10 months post Stem Cell Transplant
It's been a long time since I last posted on here! 10 months ago I was lucky enough to receive donor cells from a 10/10 match. It's been a rollercoaster ride but looking back, I've been very lucky as it has been nowhere near as bad as I had read it could be. Yes there have been some challenges, felt
It's been a long time since I last posted on here! 10 months ago I was lucky enough to receive donor cells from a 10/10 match. It's been a rollercoaster ride but looking back, I've been very lucky as it has been nowhere near as bad as I had read it could be. Yes there have been some challenges, felt
KAS8
in
CLL Support
5 years ago
Haemo appointment
Haematology appointment this morning 🤔 first one since I stopped all the HU and Ruxolitinib. Interesting to see what my bloods are today. My platelets had previously come down to 540 so time will tell........ I get so nervous on appointment days - like a cat on a hot tin roof
Haematology appointment this morning 🤔 first one since I stopped all the HU and Ruxolitinib. Interesting to see what my bloods are today. My platelets had previously come down to 540 so time will tell........ I get so nervous on appointment days - like a cat on a hot tin roof
Graham7694
in
MPN Voice
5 years ago
Low RDW-CV
Hi everyone! Got my CBC result yesterday with the following results: WBC Count- 8400 RBC Count- 3.91 Hemoglobin- 13.4 Hematocrit- 40.3 Platelet Count- H 469000 MCV- H 103.0 MCH- H 34.3 MCHC- 33.2 RDW-CV- L 10.7 Neutrophils- 51.4 Lymphocytes- 39.7 Monocytes- 7.3 Eosinophils- L 1.6 Basophils- 0.0 I'm disturbed
Hi everyone! Got my CBC result yesterday with the following results: WBC Count- 8400 RBC Count- 3.91 Hemoglobin- 13.4 Hematocrit- 40.3 Platelet Count- H 469000 MCV- H 103.0 MCH- H 34.3 MCHC- 33.2 RDW-CV- L 10.7 Neutrophils- 51.4 Lymphocytes- 39.7 Monocytes- 7.3 Eosinophils- L 1.6 Basophils- 0.0 I'm disturbed
Yona
in
MPN Voice
5 years ago
What does a normal karyotype means in ET?
I have my BMB results and my heamatologist told me that i have normal karyotype, and no fibrosis. I have mild ET and she didnt mentioned anything about mutations. All this was short conversation from the telephone,just to let me know the results,cause she knew i was very stressed about it. I will meet
I have my BMB results and my heamatologist told me that i have normal karyotype, and no fibrosis. I have mild ET and she didnt mentioned anything about mutations. All this was short conversation from the telephone,just to let me know the results,cause she knew i was very stressed about it. I will meet
Aneliv9
in
MPN Voice
5 years ago
Update on Possible Richter Transformation
At the recommendation of one our members I called UPENN and asked to speak with a covering hematologist. I received a call fairly quickly, explained the situation and the physician was able to get into my patient portal, read the report and compare it to my 2011node biopsy. He does not think it’s Richters
At the recommendation of one our members I called UPENN and asked to speak with a covering hematologist. I received a call fairly quickly, explained the situation and the physician was able to get into my patient portal, read the report and compare it to my 2011node biopsy. He does not think it’s Richters
ReneeSusan
in
CLL Support
5 years ago
CLL and sugar
I have had CLL ten years. After eating more food with sugar than usual during holidays, night sweats were horrible. After completely cutting refined sugar from my diet, the sweats have stopped completely.
I have had CLL ten years. After eating more food with sugar than usual during holidays, night sweats were horrible. After completely cutting refined sugar from my diet, the sweats have stopped completely.
Lthgj
in
CLL Support
5 years ago
CLL Remission
I have been in remission for just over 5 years since finishing treatment in 2014 of FCR. Lately my lymphocytes and WBC are going up double in about 2-3 months so my Hemotologist had me do blood work for possible relapse . So now I wonder what the results will show . These test like molecular take long
I have been in remission for just over 5 years since finishing treatment in 2014 of FCR. Lately my lymphocytes and WBC are going up double in about 2-3 months so my Hemotologist had me do blood work for possible relapse . So now I wonder what the results will show . These test like molecular take long
Kmegood
in
CLL Support
5 years ago
Are you 11qATM CLL too ? what treatment works best? Please reply ASAP
My wife who loves me put me on this site to get details from others suffering from CLL. One week diagnosed i have an 11qATM deletion heterozygote and a absolute monoclonal lymoh count of 12,000. My reds and platelets good . No splenomegaly but nodes “waxing and waning” all over. Plus a rash to pollen
My wife who loves me put me on this site to get details from others suffering from CLL. One week diagnosed i have an 11qATM deletion heterozygote and a absolute monoclonal lymoh count of 12,000. My reds and platelets good . No splenomegaly but nodes “waxing and waning” all over. Plus a rash to pollen
LovecuresCLL
in
CLL Support
5 years ago
IF, H pylori, parietal cell antibody, vitamin b12 deficiency
Hi All, I am new to this group. I am miss diagnosed of not having any issues with various blood tests. I have PA diagnosed my self and cyanocobalamin and hydroxobalamin doesn’t work. Lot of neurological symptoms body shaking and what not. Only methycobalamin works and that too only from particular brand
Hi All, I am new to this group. I am miss diagnosed of not having any issues with various blood tests. I have PA diagnosed my self and cyanocobalamin and hydroxobalamin doesn’t work. Lot of neurological symptoms body shaking and what not. Only methycobalamin works and that too only from particular brand
Thulasi1
in
Pernicious Anaemia Society
5 years ago
ED after Leukaemia (CML)
New to this. Anyone part of this group had Leukaemia and bone marrow transplant and suffered ED?
New to this. Anyone part of this group had Leukaemia and bone marrow transplant and suffered ED?
Cryptogamia
in
Erectile Dysfunction Support
5 years ago
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