Haematology appointment this morning 🤔 first one since I stopped all the HU and Ruxolitinib. Interesting to see what my bloods are today. My platelets had previously come down to 540 so time will tell........ I get so nervous on appointment days - like a cat on a hot tin roof
Haemo appointment: Haematology appointment this... - MPN Voice
Haemo appointment
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Morning Tina
Appointment was at normal clinic as still waiting for second opinion.
Platelets have risen to 848 😩
Sorry to hear that Graham.
Just been looking over your old posts. Maybe a referral to the hospital haematology department where Tina has been referred might be worth considering.
What was the reason for stopping HU and Ruxo?
So the second opinion came around and yesterday I found myself heading to the QE in Birmingham. A huge hospital (or rather hospitals). I went very early as I was told parking is a nightmare but found a spot straightaway which is Sod's law so had a bit of a wait. The consultant was very understanding of my situation and listened to everything I had to say. I will be having a new BMB on the 14th of this month and a stomach scan . New bloods were also done but not sure on how my platelets are now as he couldn't access Worcesters system but my own doctor had done some a month ago and they had shot up to 931 😩 we had a discussion about Pegasus which is hopeful but will be starting 500mg HU as from today to stop the rise whilst he re investigates and comes up with a diagnosis. I am once again feeling positive for the future 😊