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ACCEPTED INTO LOXO-305 CLINICAL TRIAL
LOXO-305 TRIAL UPDATE TWO MONTHS IN Hey everyone, I started this trial on 2/02/2020 at Memorial Sloan Kettering in NJ. After being diagnosed in 2009 with CLL, I have been through 3 prior treatments, FCR, Ibrutinib and Venclaxta. I had a 5 1/2 year remission with FCR, 3 with Ibrutinib,and about 18
LOXO-305 TRIAL UPDATE TWO MONTHS IN Hey everyone, I started this trial on 2/02/2020 at Memorial Sloan Kettering in NJ. After being diagnosed in 2009 with CLL, I have been through 3 prior treatments, FCR, Ibrutinib and Venclaxta. I had a 5 1/2 year remission with FCR, 3 with Ibrutinib,and about 18
steve5441
in
CLL Support
4 years ago
Coronavirus and returning back to work
I have Hairy Cell Leukaemia and have been recovering from chemotherapy treatment since 18th January. Apart from the fatigue i’ve been contemplating returning back to work, however i work in a busy office environment and am confused with the information i’m reading. Bloodwise now state anybody with blood
I have Hairy Cell Leukaemia and have been recovering from chemotherapy treatment since 18th January. Apart from the fatigue i’ve been contemplating returning back to work, however i work in a busy office environment and am confused with the information i’m reading. Bloodwise now state anybody with blood
TM1972
in
Leukaemia CARE
4 years ago
Social Distancing
This is an extract from the UK Government's Coronavirus website detailing who will have to take more stringent social distancing measures; 'People with cancers of the blood or bone marrow such as leukaemia who are at any stage of treatment' This seems to suggest that all of us MPN patients will fall
This is an extract from the UK Government's Coronavirus website detailing who will have to take more stringent social distancing measures; 'People with cancers of the blood or bone marrow such as leukaemia who are at any stage of treatment' This seems to suggest that all of us MPN patients will fall
Trueblue8
in
MPN Voice
4 years ago
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ET
I am worried i may have leukaemia and not et as symptoms are similar, but it is only my platelets that are raised other bloods seem ok .
I am worried i may have leukaemia and not et as symptoms are similar, but it is only my platelets that are raised other bloods seem ok .
glyndale
in
MPN Voice
4 years ago
CLL/SLL and bone pain was in both arms
Hello and hope everyone is doing well amongst this pandemic. I recently underwent a bone marrow biopsy. My doctor who is Dept Chair for LIVESTRONG with UT Mefical School Austin stated my cancer is Stage 0. Yeah! I do have questions regarding ongoing bone pain. He stated that he didn’t feel it was related
Hello and hope everyone is doing well amongst this pandemic. I recently underwent a bone marrow biopsy. My doctor who is Dept Chair for LIVESTRONG with UT Mefical School Austin stated my cancer is Stage 0. Yeah! I do have questions regarding ongoing bone pain. He stated that he didn’t feel it was related
annetxfan
in
CLL Support
4 years ago
CAR-NK Cells Make Their Debut in Hematologic Cancers with Promising results
In this study, 11 patients with CD19-positive chronic lymphocytic leukemia (CLL) or non-Hodgkin lymphoma received the modified cells, known as chimeric antigen receptor-NK (CAR-NK) cells. Seven of the patients experienced complete remission, while in 1 other patient, treatment reduced the aggressiveness
In this study, 11 patients with CD19-positive chronic lymphocytic leukemia (CLL) or non-Hodgkin lymphoma received the modified cells, known as chimeric antigen receptor-NK (CAR-NK) cells. Seven of the patients experienced complete remission, while in 1 other patient, treatment reduced the aggressiveness
Jm954
Administrator
in
CLL Support
4 years ago
Just a quick question
Hello all. I’m asking this on behalf of my mum. She has Alzheimer’s and around 10 years ago she was diagnosed with CLL, up till now she hasn’t had to have any treatment for her CLL. We are in the U.K. We are being told that if you fall under the very vulnerable group you must stay in isolation for 12
Hello all. I’m asking this on behalf of my mum. She has Alzheimer’s and around 10 years ago she was diagnosed with CLL, up till now she hasn’t had to have any treatment for her CLL. We are in the U.K. We are being told that if you fall under the very vulnerable group you must stay in isolation for 12
rustydog
in
CLL Support
4 years ago
New Study: Predicted Survival in Polycythemia Vera Patients
Anyone have any of these three mutations tested for? -- This study evaluated the impact of co-occurring mutations and clinical characteristics on prognosis in 85 patients with WHO-defined polycythemia vera (PV). Overall, 84 patients harbored a JAK2 V617F mutation. An additional mutation was identified
Anyone have any of these three mutations tested for? -- This study evaluated the impact of co-occurring mutations and clinical characteristics on prognosis in 85 patients with WHO-defined polycythemia vera (PV). Overall, 84 patients harbored a JAK2 V617F mutation. An additional mutation was identified
JT_Marlin
in
MPN Voice
4 years ago
Impaired Immune System???
Diagnosed CLL a little less than 2 years ago, stage 0. I have no symptoms other than my blood work and slightly anemic. So my question is, does the CLL automatically make me at risk for "impaired immune system"? I keep seeing information about COVID-19 and people with impaired immune systems.
Diagnosed CLL a little less than 2 years ago, stage 0. I have no symptoms other than my blood work and slightly anemic. So my question is, does the CLL automatically make me at risk for "impaired immune system"? I keep seeing information about COVID-19 and people with impaired immune systems.
Faith50
in
CLL Support
4 years ago
Richter's Syndrome - Possible relapse
Hello friends. I noticed a lump under the right jaw the size of an olive. Start noticing it two weeks ago. It is hard and painful to the touch. My neck hurts and I feel that I have fallen asleep. My family doctor sent me an antibiotic in case it was an infection. As you know, I have Ricthert and they
Hello friends. I noticed a lump under the right jaw the size of an olive. Start noticing it two weeks ago. It is hard and painful to the touch. My neck hurts and I feel that I have fallen asleep. My family doctor sent me an antibiotic in case it was an infection. As you know, I have Ricthert and they
Priss69
in
CLL Support
4 years ago
Blood test or Not?
Blood test or Not??? Due for another blood work up in the next week already have contacted Dr waiting for response! I’ve been on imbrutinib 420mg 1x daily for 11 months and wbc is down to 11,400 feeling great but truly concerned about contracting covid 19 @ the local quest office. I’m a very hard stick
Blood test or Not??? Due for another blood work up in the next week already have contacted Dr waiting for response! I’ve been on imbrutinib 420mg 1x daily for 11 months and wbc is down to 11,400 feeling great but truly concerned about contracting covid 19 @ the local quest office. I’m a very hard stick
haposwald
in
CLL Support
4 years ago
Which fish have the best Vitamin D to Mercury Ratio?
About half of the world's population is deficient in Vitamin D, and fish and sun (without sunscreen) are the best natural sources. So if you don't get much sun, you might want to regularly eat fish because Vitamin D deficiencies have been correlated with at least one kind of cancer and with other health
About half of the world's population is deficient in Vitamin D, and fish and sun (without sunscreen) are the best natural sources. So if you don't get much sun, you might want to regularly eat fish because Vitamin D deficiencies have been correlated with at least one kind of cancer and with other health
HowardR
in
CLL Support
4 years ago
Sickle cell and endometriosis
Hi, I have been recently diagnosed with endometriosis and I have been slightly worried.... is there anyone in here that has sickle cell and endometriosis.... I have sickle cell trait from both of my parents. Thank you in advance for your answers and time.
Hi, I have been recently diagnosed with endometriosis and I have been slightly worried.... is there anyone in here that has sickle cell and endometriosis.... I have sickle cell trait from both of my parents. Thank you in advance for your answers and time.
Gabyp
in
Sickle Cell Society
4 years ago
A HUGE THANK YOU 🤗 TO ALL !!! ADMINISTRATION, DOCTORS AND ALIKE. THANK YOU TO ALL OUR WONDERFUL CLL COMMUNITY🤗❤!!!
Thank You!!! For keeping myself informed, as to the latest information, and research with this devastating Corona Virus!😷. Aside from TV, Radio, Newspaper !!! The CLL Support Community is " The Bomb" 😇 as they say.!!! Unfortunately, I had to inform my two clients( an elderly lady with Lymphedema and
Thank You!!! For keeping myself informed, as to the latest information, and research with this devastating Corona Virus!😷. Aside from TV, Radio, Newspaper !!! The CLL Support Community is " The Bomb" 😇 as they say.!!! Unfortunately, I had to inform my two clients( an elderly lady with Lymphedema and
debdetermine58
in
CLL Support
4 years ago
walter49
I was diagnosed with CLL in 2013 and have been on W &W since then, with no intervention. I have half-yearly blood checks and my blood results have, apart from a blip a couple of years ago when I had a bone marrow specimen taken, been, according to my consultant, nearly as good as ‘a normal’ person’s
I was diagnosed with CLL in 2013 and have been on W &W since then, with no intervention. I have half-yearly blood checks and my blood results have, apart from a blip a couple of years ago when I had a bone marrow specimen taken, been, according to my consultant, nearly as good as ‘a normal’ person’s
Walter49
in
CLL Support
4 years ago
Cll UK conflicting advice
Ok as I understand it the UK government has asked us with cll on chemo or inhibitors or stem cell ,BMT to self isolate for 12:weeks and have seen this as advice given in bloodwise . But thought I would phone my own hospital James Paget and my consultant secretary to see what there advice is and they
Ok as I understand it the UK government has asked us with cll on chemo or inhibitors or stem cell ,BMT to self isolate for 12:weeks and have seen this as advice given in bloodwise . But thought I would phone my own hospital James Paget and my consultant secretary to see what there advice is and they
cartwheels
in
CLL Support
4 years ago
Blurred vision - alternatives to Tocilizumab
One of our PMRGCAuk members has sent the following question: "My mother has GCA which unfortunately resulted in 50% sight loss across both eyes. She has been on Tocilizumab for about 8 months now, and her steroids have been gradually reduced to now nil. Initially, she was happy to be off the steroids
One of our PMRGCAuk members has sent the following question: "My mother has GCA which unfortunately resulted in 50% sight loss across both eyes. She has been on Tocilizumab for about 8 months now, and her steroids have been gradually reduced to now nil. Initially, she was happy to be off the steroids
Skinnyjonny
in
PMRGCAuk
4 years ago
Melatonin against platelets?
Dear all, Since I was given melatonin not for sleep, but to detox, I’ve been much better. I looked up effect of melatonin on platelets and I was shocked to find that melatonin caused platelet apoptosis (death). There are studies proving this. Here is info: https://www.sciencedirect.com/science/article
Dear all, Since I was given melatonin not for sleep, but to detox, I’ve been much better. I looked up effect of melatonin on platelets and I was shocked to find that melatonin caused platelet apoptosis (death). There are studies proving this. Here is info: https://www.sciencedirect.com/science/article
Anag
in
MPN Voice
4 years ago
Mpn
A bit confused abnormal bmb all other tests ok though platelets still raised. Am about to start HYDROXYCARBAMIDE. After reading links people have suggested it says the drug is used to treat chronic leukaemia.Have i got leukaemia?.
A bit confused abnormal bmb all other tests ok though platelets still raised. Am about to start HYDROXYCARBAMIDE. After reading links people have suggested it says the drug is used to treat chronic leukaemia.Have i got leukaemia?.
glyndale
in
MPN Voice
4 years ago
Tagresso Treatment
Anyone being treated with Tagresso? I have EGFR mutation and am on the drug as first line of defense. I was a non smoker and diagnosed at stage four. The cancer is in my right lung and was on my vernacular vertebrae. At the five week scan the cancer on my back was gone and the tumors had 50% shrinkage
Anyone being treated with Tagresso? I have EGFR mutation and am on the drug as first line of defense. I was a non smoker and diagnosed at stage four. The cancer is in my right lung and was on my vernacular vertebrae. At the five week scan the cancer on my back was gone and the tumors had 50% shrinkage
celesteDeS
in
Lung Conditions Community Forum
4 years ago
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