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Mast cell activation syndrome (MCAS)
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Bone marrow transplant number 2
BONE MARROW TRANS PLANT PART TWO! So its a go At MSGH to receiver a bone marrow transplant early this January! Thank god my sister is a match and we are a go a. A scary go at that. Meaning all that is involved with procedure! I am having this pro procedure done 2000 miles away from home base. So this
BONE MARROW TRANS PLANT PART TWO! So its a go At MSGH to receiver a bone marrow transplant early this January! Thank god my sister is a match and we are a go a. A scary go at that. Meaning all that is involved with procedure! I am having this pro procedure done 2000 miles away from home base. So this
Seifert_09
in
AMN EASIER
5 years ago
Help with a mystery needed
In August I went went to a neurologist who tested my b12 levels because of neurological symptoms. I requested the test because in 2012 when I was trying to get pregnant a naturopathic dr found that my b12 levels were 350... at the time I had no symptoms. I remember her talking about intrinsic factor
In August I went went to a neurologist who tested my b12 levels because of neurological symptoms. I requested the test because in 2012 when I was trying to get pregnant a naturopathic dr found that my b12 levels were 350... at the time I had no symptoms. I remember her talking about intrinsic factor
CW12
in
Pernicious Anaemia Society
5 years ago
What next on this awful rollercoaster
Interesting to read the post just put up on Levodopa (Co-Careldopa) I have just been prescribed 1to 2 nightly12.5 mg. I argumented on ropinerole almost a year ago and have been on pregabalin but there is a good chance that this has caused me to lose my peripheral vision. I have just weened of that
Interesting to read the post just put up on Levodopa (Co-Careldopa) I have just been prescribed 1to 2 nightly12.5 mg. I argumented on ropinerole almost a year ago and have been on pregabalin but there is a good chance that this has caused me to lose my peripheral vision. I have just weened of that
Operabab
in
Restless Legs Syndrome
5 years ago
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New Blood Results
NEW RESULTSOn 50 Thyrovanz since last bloods 22 weeks ago Prior to blood tests I stopped B12 10 days prior and iron, Vit D, k2 5days prior. Last thyrovanz does was 18 hours prior to bloods TSH 5.27 (0.27-4.2) Free T3 4.23 (3.1-6.8 ) Free T4 12.8 (12-22) Reverse T3 19 (10-24) FT3:rT3 14.49 (>15) Thyroglobulin
NEW RESULTSOn 50 Thyrovanz since last bloods 22 weeks ago Prior to blood tests I stopped B12 10 days prior and iron, Vit D, k2 5days prior. Last thyrovanz does was 18 hours prior to bloods TSH 5.27 (0.27-4.2) Free T3 4.23 (3.1-6.8 ) Free T4 12.8 (12-22) Reverse T3 19 (10-24) FT3:rT3 14.49 (>15) Thyroglobulin
Yellow113
in
Thyroid UK
5 years ago
BP meds interference?
I'm taking Losartan Potasium, Lerconidipine and Atenolol for very high blood pressure, and cannot have the surgery I need until it's normal. I've been taking Dihydrocodeine for severe, full body RLS for nearly 20 years, but recently, the bed-time dose I take around 12.30am is only lasting for about two
I'm taking Losartan Potasium, Lerconidipine and Atenolol for very high blood pressure, and cannot have the surgery I need until it's normal. I've been taking Dihydrocodeine for severe, full body RLS for nearly 20 years, but recently, the bed-time dose I take around 12.30am is only lasting for about two
lorrinet
in
Restless Legs Syndrome
5 years ago
A cautionary tale
A cautionary tale for those of us who have used or are using opiates for pain. I have several autoimmune diseases. I’ve survived leukemia with two bone marrow transplants. I have latent effects from the chemo that manifest themselves in all kinds of ways. I have herniated discs at C5-C6 and L5-
A cautionary tale for those of us who have used or are using opiates for pain. I have several autoimmune diseases. I’ve survived leukemia with two bone marrow transplants. I have latent effects from the chemo that manifest themselves in all kinds of ways. I have herniated discs at C5-C6 and L5-
Nitrobunny
in
PMRGCAuk
5 years ago
Levodopa
Hi I have just been given via tel message a prescription for levodopa 25mg but not told if I should take it along with my pramipexole. I have just been told to take 1 tablets at night hopefully it will help my insomnia
Hi I have just been given via tel message a prescription for levodopa 25mg but not told if I should take it along with my pramipexole. I have just been told to take 1 tablets at night hopefully it will help my insomnia
Hoochybaby
in
Restless Legs Syndrome
5 years ago
Does L-Tyrosine also cause augmentation
I have recently come off an OTC L-Dopa supplement because it was causing augmentation. I'm trying to get my dopamine levels to restore naturally and am wondering whether I should take L-Tyrosine (which is the amino acid building block for L-Dopa, found in eggs, cheese, meat, etc). I would be doing so
I have recently come off an OTC L-Dopa supplement because it was causing augmentation. I'm trying to get my dopamine levels to restore naturally and am wondering whether I should take L-Tyrosine (which is the amino acid building block for L-Dopa, found in eggs, cheese, meat, etc). I would be doing so
RoDomHarr
in
Restless Legs Syndrome
5 years ago
The Winter issue of Leukaemia Matters will soon be landing at your door or in your inbox!
[i]Hello,[/i] [i]Welcome to the Winter issue of our magazine![/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for Leukaemia Care as we celebrated our [/i][i]50th anniversary. We spent much of the year working harder than ever to [/i][i]provide support and advice to those
[i]Hello,[/i] [i]Welcome to the Winter issue of our magazine![/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for Leukaemia Care as we celebrated our [/i][i]50th anniversary. We spent much of the year working harder than ever to [/i][i]provide support and advice to those
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
5 years ago
Headache and GCA
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4173245/ The article is entitled
Giant cell arteritis or tension-type headache?: A differential diagnostic dilemma
and details the presentation of an elderly lady who appeared to have a tension headache - but it was in fact GCA. It is probably a reference
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4173245/ The article is entitled
Giant cell arteritis or tension-type headache?: A differential diagnostic dilemma
and details the presentation of an elderly lady who appeared to have a tension headache - but it was in fact GCA. It is probably a reference
LilyBark
in
PMRGCAuk
5 years ago
Hello I have had RLS for a long time, pretty severe, have been on ropinirole worked good ,Gabepentin, not very good, Neupro, good leaves bu
Carbidopa Levodopa Hello I have had RLS for a long time, pretty severe, have been on ropinirole worked good ,Gabepentin, not very good,
Carbidopa Levodopa Hello I have had RLS for a long time, pretty severe, have been on ropinirole worked good ,Gabepentin, not very good,
Elijah5
in
Restless Legs Syndrome
5 years ago
Opiate use and sleep.
This is a link to a study/ warning of the dangers of opiate use. Related to sleep quality and breathing problems. It is not a major problem for the low doses used for refractory rls. It is really interesting that it recognises the use of opiates for rls and the distinction between that and the much higher
This is a link to a study/ warning of the dangers of opiate use. Related to sleep quality and breathing problems. It is not a major problem for the low doses used for refractory rls. It is really interesting that it recognises the use of opiates for rls and the distinction between that and the much higher
Madlegs1
in
Restless Legs Syndrome
5 years ago
DIL vs SLE - Anti Histone Antibody
Hi everyone, Been awhile since I posted so blessings to you all! I'm posting this in the hopes someone has some knowledge of this topic or knows someone who could answer some questions in more depth than I can find online. As some of you know, I have a bit of a weird storyline that led to my diagnosis
Hi everyone, Been awhile since I posted so blessings to you all! I'm posting this in the hopes someone has some knowledge of this topic or knows someone who could answer some questions in more depth than I can find online. As some of you know, I have a bit of a weird storyline that led to my diagnosis
katidid
in
LUPUS UK
5 years ago
GCA
Hi, another newbie. Had mild pain in temples for around 8 days and been to hospital for bloods. They think could be GCA and have prescribed 50mg steroid which I will get to tomorrow. Biopsy is TBC Bit scared to be honest. I’m 46yr male usually fit and healthy? Any feedback would be greatly appreciated
Hi, another newbie. Had mild pain in temples for around 8 days and been to hospital for bloods. They think could be GCA and have prescribed 50mg steroid which I will get to tomorrow. Biopsy is TBC Bit scared to be honest. I’m 46yr male usually fit and healthy? Any feedback would be greatly appreciated
Jc554
in
PMRGCAuk
5 years ago
Molybdenum
Hi, I was recently diagnosed as extremely deficient in B12, extremely high MMA and homecysteine. (highest MMA he has on record) The bio-chemist I am working with (lifelong research with B12 and B vitamins in general) insists that I need to get Molybdenum on board before effectively supplementing with
Hi, I was recently diagnosed as extremely deficient in B12, extremely high MMA and homecysteine. (highest MMA he has on record) The bio-chemist I am working with (lifelong research with B12 and B vitamins in general) insists that I need to get Molybdenum on board before effectively supplementing with
EiCa
in
Pernicious Anaemia Society
5 years ago
Detective Work
After having repeated exacerbations, my consultant has discovered from sputem sampleas that I am suffering from "entrerobacter" and "pseudomonas". She has prescribed Ciproflaxin for the latter and in the meantime is arranging for me to have nebulised Gentamycin, the other drug Tazocin can only be administered
After having repeated exacerbations, my consultant has discovered from sputem sampleas that I am suffering from "entrerobacter" and "pseudomonas". She has prescribed Ciproflaxin for the latter and in the meantime is arranging for me to have nebulised Gentamycin, the other drug Tazocin can only be administered
Bobfirmin
in
Lung Conditions Community Forum
5 years ago
RLS
Hi .. this site is the best, thank you My question is: I am now completely off sifrol, having weened down from 0.75, withdrawal was horrendous 🥴 I am now taking tramadol to help with this how long before sifrol is completely out of your body? I want to get down to baseline to see if I can do without
Hi .. this site is the best, thank you My question is: I am now completely off sifrol, having weened down from 0.75, withdrawal was horrendous 🥴 I am now taking tramadol to help with this how long before sifrol is completely out of your body? I want to get down to baseline to see if I can do without
Ladro
in
Restless Legs Syndrome
5 years ago
Plaquenil and dry mouth
Plaquenil is helping some of my lupus and mctd symptoms, but it seemed to trigger dry mouth. I need to have glass of water to sip on in the middle of the night. Has anybody else experienced this side effect of plaquenil? Or could it possibly be Sjögrens?
Plaquenil is helping some of my lupus and mctd symptoms, but it seemed to trigger dry mouth. I need to have glass of water to sip on in the middle of the night. Has anybody else experienced this side effect of plaquenil? Or could it possibly be Sjögrens?
loopy4me
in
LUPUS UK
5 years ago
More help please
I have posted here several times and have had wonderful help. Now I need more please. I have been trying to get back to more sleep , having gone through hell getting off the dopamine agonists. It is over 3 months since I began withdrawal, which took 6 weeks to be totally clear. Currently I am on Gabapentin
I have posted here several times and have had wonderful help. Now I need more please. I have been trying to get back to more sleep , having gone through hell getting off the dopamine agonists. It is over 3 months since I began withdrawal, which took 6 weeks to be totally clear. Currently I am on Gabapentin
wairoa36
in
Restless Legs Syndrome
5 years ago
Desperate for sleep.
I have taken pramipexole for a few years and life was wonderful then over a year ago the restless legs started again with a vengeance I was only taking one at night after being on the maximum for a while even on one at night it was working for a long time now here I am at 2-30am sitting up going mad
I have taken pramipexole for a few years and life was wonderful then over a year ago the restless legs started again with a vengeance I was only taking one at night after being on the maximum for a while even on one at night it was working for a long time now here I am at 2-30am sitting up going mad
Nevermind61
in
Restless Legs Syndrome
5 years ago
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