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Mast cell activation syndrome (MCAS)
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Restless legs
I haven't posted here for a while RLS has been over the years quite unbearable now I'm taking tramadol and Premaprexole and it has been a life saver I'm not saying I don't suffer at all but it is bearable I'm not walking round the bungalow all hours day or night I hope i can help someone else with this
I haven't posted here for a while RLS has been over the years quite unbearable now I'm taking tramadol and Premaprexole and it has been a life saver I'm not saying I don't suffer at all but it is bearable I'm not walking round the bungalow all hours day or night I hope i can help someone else with this
Piecrusl1
in
Restless Legs Syndrome
4 months ago
A Natural Approach to Calming Restless Legs
I want to share my personal experience in the hope that it might benefit someone else. I was prescribed Ropinirole 2mg slow-release and Pramipexole 0.18mg for restless leg syndrome, but they were not very effective. I had rough nights, and at least once or twice a week, I had to take Tramadol 50mg
I want to share my personal experience in the hope that it might benefit someone else. I was prescribed Ropinirole 2mg slow-release and Pramipexole 0.18mg for restless leg syndrome, but they were not very effective. I had rough nights, and at least once or twice a week, I had to take Tramadol 50mg
fazull0
in
Restless Legs Syndrome
4 months ago
Changing Medication
Hi I’m just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either
Hi I’m just looking for some advice on Targinact and just Oxycodone please. My neurologist wrote to my GP requesting that I be prescribed Targinact 10mg at night and 5mg mornings increasing if necessary by 5mg increments to maximum of 20mg twice a day, also changing the Venlafaxine I take to either
Felixstowe
in
Restless Legs Syndrome
4 months ago
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Help - kindling?
As described in my other posts, my dopamine agonist withdrawal is awful. I suffer from DAWS, and I've done several stays in an hospital neurology service, and they are doing their best to help me, but something is awfully wrong. I got out of the hospital the day after yesterday. Yesterday, I had a
As described in my other posts, my dopamine agonist withdrawal is awful. I suffer from DAWS, and I've done several stays in an hospital neurology service, and they are doing their best to help me, but something is awfully wrong. I got out of the hospital the day after yesterday. Yesterday, I had a
Mikatrap
in
Restless Legs Syndrome
4 months ago
My response to the AASM Guidelines For RLS
I am posting this in the hope that it helps in forming your own response and if you agree with some of them, including them in your own response might help them pay more attention to them. ---------------------------------------------------------------------------------------------------------------
I am posting this in the hope that it helps in forming your own response and if you agree with some of them, including them in your own response might help them pay more attention to them. ---------------------------------------------------------------------------------------------------------------
SueJohnson
in
Restless Legs Syndrome
4 months ago
Bench mark blood tests before switching to NDT
I would welcome any comments or advice on these results and on the process of switching from levothyroxine to NDT. Thank you! Hypothyroidism I have been taking levothyroxin 100 mg for over 30 years since my early 40s. (This is my only medication. Otherwise I keep healthy with yoga, regular exercise
I would welcome any comments or advice on these results and on the process of switching from levothyroxine to NDT. Thank you! Hypothyroidism I have been taking levothyroxin 100 mg for over 30 years since my early 40s. (This is my only medication. Otherwise I keep healthy with yoga, regular exercise
Hipp0cratix
in
Thyroid UK
3 months ago
How to interpret thyroid antibodies test ?
Hello , I do an annual private blood test with monitor my health and haven’t tested the antibodies for 4 years . I’ve been feeling really awful again , very achey and tired so want to check this aswell as after having 2 covid jabs and a booster in this time . Can anyone tell me how to interpret the
Hello , I do an annual private blood test with monitor my health and haven’t tested the antibodies for 4 years . I’ve been feeling really awful again , very achey and tired so want to check this aswell as after having 2 covid jabs and a booster in this time . Can anyone tell me how to interpret the
Blackpanther46
in
Thyroid UK
3 months ago
Lexapro and RLS
Has anyone with RLS started taking Lexapro for anxiety? If yes, did it have any affects on your RLS? My RLS is pretty well controlled at this time with minimal drugs (100 mg Gabapentin) after finally getting off Pramipexole. I also use Melatonin, Valarian Root, and CBN. But most helpful, I think,
Has anyone with RLS started taking Lexapro for anxiety? If yes, did it have any affects on your RLS? My RLS is pretty well controlled at this time with minimal drugs (100 mg Gabapentin) after finally getting off Pramipexole. I also use Melatonin, Valarian Root, and CBN. But most helpful, I think,
Crazilegs
in
Restless Legs Syndrome
4 months ago
Travelling with opioids
Hello everyone, Last May I flew to Chicago with gabapentin & low dose oxycodone in my hand luggage with prescription attached with no problems. In 2 weeks I will be flying to Phoenix, Arizona & now am on low dose buprenorphine instead of oxycodone. Has anyone had problems flying to the US carrying low
Hello everyone, Last May I flew to Chicago with gabapentin & low dose oxycodone in my hand luggage with prescription attached with no problems. In 2 weeks I will be flying to Phoenix, Arizona & now am on low dose buprenorphine instead of oxycodone. Has anyone had problems flying to the US carrying low
Simkin
in
Restless Legs Syndrome
5 months ago
Dipyridamole working great
I started taking gabapentin 900mg at bedtime 15 yrs ago, recently switched to 600mg at 9pm and midnight. Not much benefit. Probably developed a tolerance over the years. Started tramadol 50-100mg at bedtime a month ago, some relief but was concerned about addiction with long term use. Showed the dipyridamole
I started taking gabapentin 900mg at bedtime 15 yrs ago, recently switched to 600mg at 9pm and midnight. Not much benefit. Probably developed a tolerance over the years. Started tramadol 50-100mg at bedtime a month ago, some relief but was concerned about addiction with long term use. Showed the dipyridamole
joemomma
in
Restless Legs Syndrome
5 months ago
Any last advice before I embark on the battle to try Buprenorphine? Should I increase my pregabalin dose?
I'd be really grateful for any thoughts on remaining treatment options before I start waging war with my GP practice to try Buprenorphine. I took my last ropinirole tablet in May 2023 (after augmentation after 11 years), and have since been taking 300mg pregabalin (150mg at 8pm, 150mg at 10.30pm), together
I'd be really grateful for any thoughts on remaining treatment options before I start waging war with my GP practice to try Buprenorphine. I took my last ropinirole tablet in May 2023 (after augmentation after 11 years), and have since been taking 300mg pregabalin (150mg at 8pm, 150mg at 10.30pm), together
Claire_lc
in
Restless Legs Syndrome
5 months ago
Getting No Help and feeling desperate
I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me to do another sleep study. I have been using kratom for years but now it's not really working for me and am close to packing it all in. I live
I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me to do another sleep study. I have been using kratom for years but now it's not really working for me and am close to packing it all in. I live
Jezee
in
Restless Legs Syndrome
5 months ago
Looking for some guidance please
Hello I have been following the group for a number of months and have learned a lot about my condition, so thankyou to everyone here. I am now reaching out for guidance and help as I have been struggling a lot over the last couple of year or so. As background/history, I am a 65 year male and live
Hello I have been following the group for a number of months and have learned a lot about my condition, so thankyou to everyone here. I am now reaching out for guidance and help as I have been struggling a lot over the last couple of year or so. As background/history, I am a 65 year male and live
Bikerguy1
in
Restless Legs Syndrome
5 months ago
Sleep apnea and PMR
Over the last year my sleep has been poor, and finally I had an overnight sleep study, which revealed severe apnea. I'm pretty sure this is new to me and I did some reading. Apparently there is a nasty connection between apnea and PMR (and RA). One source: "The co-existence of sleep apnoea in rheumatic
Over the last year my sleep has been poor, and finally I had an overnight sleep study, which revealed severe apnea. I'm pretty sure this is new to me and I did some reading. Apparently there is a nasty connection between apnea and PMR (and RA). One source: "The co-existence of sleep apnoea in rheumatic
papadapadoo
in
PMRGCAuk
5 months ago
Help please
Hello could someone look at my recent blood test please.Since my last post(I know it's been 2 years)I had scan, because of high ferritin which came back clear. All blood tests normal. GP says it's not thyroid! Been having symptoms of hyper and hypo, March I kept having metalic taste GP said it's burning
Hello could someone look at my recent blood test please.Since my last post(I know it's been 2 years)I had scan, because of high ferritin which came back clear. All blood tests normal. GP says it's not thyroid! Been having symptoms of hyper and hypo, March I kept having metalic taste GP said it's burning
mollyjo
in
Thyroid UK
3 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
5 months ago
Suboxone works!
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
Happygrandmother
in
Restless Legs Syndrome
5 months ago
help: suboxone
Hello, there’s good news and bad news. The good news is that I haven’t had RLS for months. The bad news is since taking Suboxone I’ve developed the most insane muscle pain I can barely function. To get out of bed I barely have the strength to roll my body, and even lifting my leg up, causes an immense
Hello, there’s good news and bad news. The good news is that I haven’t had RLS for months. The bad news is since taking Suboxone I’ve developed the most insane muscle pain I can barely function. To get out of bed I barely have the strength to roll my body, and even lifting my leg up, causes an immense
Marlayna67
in
Restless Legs Syndrome
5 months ago
gabapentin with buprenorphine
I’ve been off Pramipexole and on buprenorphine for 3 1/2 months. I’d like to try gabapentin again to see if I can wean off the buprenorphine (RLS has been good but the side effects are a minor hassle). I see from prior comments that it generally takes 3 weeks for gabapentin to take effect, and the
I’ve been off Pramipexole and on buprenorphine for 3 1/2 months. I’d like to try gabapentin again to see if I can wean off the buprenorphine (RLS has been good but the side effects are a minor hassle). I see from prior comments that it generally takes 3 weeks for gabapentin to take effect, and the
707twitcher
in
Restless Legs Syndrome
5 months ago
Chakra mat
HiI've recently joined this forum and am interested that the Chakra mat (also known as the 'bed of nails') is not referred to (perhaps I have missed it?). I've had RLS since childhood, progressively worse through my life, worse with pregnancies, then much worse in my 50s. In desperation I searched the
HiI've recently joined this forum and am interested that the Chakra mat (also known as the 'bed of nails') is not referred to (perhaps I have missed it?). I've had RLS since childhood, progressively worse through my life, worse with pregnancies, then much worse in my 50s. In desperation I searched the
Annie1963
in
Restless Legs Syndrome
5 months ago
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