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Mantle cell lymphoma (MCL)
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reducing
haven,t posted for long time, but been reading some of your reduction plans, i started at 40 mg, oct 2016, got down to 10 mg last spring, when i told my rheumy in august last yr about my 49 yr son diagnosed , with cancer, multiple myeloma, and that he would be having a stem cell transplant in januar
haven,t posted for long time, but been reading some of your reduction plans, i started at 40 mg, oct 2016, got down to 10 mg last spring, when i told my rheumy in august last yr about my 49 yr son diagnosed , with cancer, multiple myeloma, and that he would be having a stem cell transplant in januar
arvine
in
PMRGCAuk
6 years ago
CAR-T coming to OSU Medical Center
Hi All, Having just returned from my 12 week Clinical Trial monitoring I got the first tangible hints that CAR-T (Chimeric Antigen Receptor – T cell) therapy is to become a reality at the James hospital at OSU Medical Center for CLL. I heard over a year ago that it was in the planning but while I was
Hi All, Having just returned from my 12 week Clinical Trial monitoring I got the first tangible hints that CAR-T (Chimeric Antigen Receptor – T cell) therapy is to become a reality at the James hospital at OSU Medical Center for CLL. I heard over a year ago that it was in the planning but while I was
ThreeWs
in
CLL Support
6 years ago
CALR Type 1 & 2 Have Contrasting OS Outcomes
Hey everyone, As an update, since my last post (ASXL1 Mutation Detected), I recently came across some very useful articles concerning the CALR mutations & ASXL1 and their ability to be included as Prognostically significant, and naturally wanted to share those findings hopefully to the benefit of others
Hey everyone, As an update, since my last post (ASXL1 Mutation Detected), I recently came across some very useful articles concerning the CALR mutations & ASXL1 and their ability to be included as Prognostically significant, and naturally wanted to share those findings hopefully to the benefit of others
socrates_8
in
MPN Voice
6 years ago
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The History of BMT
BMTInfonet’s video on the history of bone marrow and stem cell transplant. I have always been aware of the Anthony Nolan registry but never knew just what a profound impact it had worldwide. https://www.bmtinfonet.org/transplant-article/what-blood-stem-cell-transplant
BMTInfonet’s video on the history of bone marrow and stem cell transplant. I have always been aware of the Anthony Nolan registry but never knew just what a profound impact it had worldwide. https://www.bmtinfonet.org/transplant-article/what-blood-stem-cell-transplant
MFBMT2011
in
MPN Voice
6 years ago
ADVISE ON HOW TO STOP STOMACH PAIN IN MY 5 YR SICKLE CELL CHILD
My boy is in great stomach pain.what can i do to have him relieved since its late here and i cant find there sickle cell clinic open.any prescriptions.i will be glad
My boy is in great stomach pain.what can i do to have him relieved since its late here and i cant find there sickle cell clinic open.any prescriptions.i will be glad
mosesmale
in
Sickle Cell Society
6 years ago
Myelofibrosis & Yransplant Symposium
Currently in Denver where Lesley, my better half, and I attended a two day Bone Marrow Transplant Symposium and met fellow survivors. Have pasted my MPNForum Facebook post here to share. Day one at the BMTinfonet symposium in Denver. A couple of hundred present but the Myelofibrosis break out group
Currently in Denver where Lesley, my better half, and I attended a two day Bone Marrow Transplant Symposium and met fellow survivors. Have pasted my MPNForum Facebook post here to share. Day one at the BMTinfonet symposium in Denver. A couple of hundred present but the Myelofibrosis break out group
MFBMT2011
in
MPN Voice
6 years ago
Hair
Does anyone eles have real dry hair. Mine has never been so blah. Tangles so easy. My sister has non hopkins lymphoma. She has lost her hair in chemotherapy and i have long hair i was going to get it cut for her. But its so dry.
Does anyone eles have real dry hair. Mine has never been so blah. Tangles so easy. My sister has non hopkins lymphoma. She has lost her hair in chemotherapy and i have long hair i was going to get it cut for her. But its so dry.
My-life
in
PBC Foundation
6 years ago
LLS Webinar: What’s on the Horizon for Chronic Lymphocytic Leukemia (CLL)?
Thursday, May 8, 2018, 12-130 PM. Details are available at www.LLS.org/programs Presented by: Matthew S. Davids, MD, MMSc Assistant Professor of Medicine, Harvard Medical School Director, Lymphoma BioBank Associate Director, CLL Center Dana-Farber Cancer Institute Boston, MA
Thursday, May 8, 2018, 12-130 PM. Details are available at www.LLS.org/programs Presented by: Matthew S. Davids, MD, MMSc Assistant Professor of Medicine, Harvard Medical School Director, Lymphoma BioBank Associate Director, CLL Center Dana-Farber Cancer Institute Boston, MA
wmay13241
in
CLL Support
6 years ago
Transplant Viability
I started showing visible signs of AMN when I was 21 and am currently experiencing a constant, stiff aching pain in my legs from mid thigh down. I was diagnosed last year and the amount of study into my condition by the various health care teams has been admirable. Before the disease started having a
I started showing visible signs of AMN when I was 21 and am currently experiencing a constant, stiff aching pain in my legs from mid thigh down. I was diagnosed last year and the amount of study into my condition by the various health care teams has been admirable. Before the disease started having a
Laird_Mac
in
AMN EASIER
6 years ago
Dapsone
Has anyone had any experience with dapsone. I had a rash possibly due to bactrim so i was changed to dapsone.
Has anyone had any experience with dapsone. I had a rash possibly due to bactrim so i was changed to dapsone.
lrcooke
in
CLL Support
6 years ago
Understanding Blood Test Results
This is a series of videos explaining the complete blood count. Part 1 deals with the white blood cells (WBC) particularly relevant to lymphoma patients: https://youtu.be/4DCCm5o92q8
This is a series of videos explaining the complete blood count. Part 1 deals with the white blood cells (WBC) particularly relevant to lymphoma patients: https://youtu.be/4DCCm5o92q8
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
6 years ago
Stem cell transplant?
Hi everyone, am glad to join this society of inspiring and strong people. I have been reading a lot of posts on here but no one seems to be talking about the only possible cure for this disease. So has anyone ever thought of having a transplant, especially for the little kids?
Hi everyone, am glad to join this society of inspiring and strong people. I have been reading a lot of posts on here but no one seems to be talking about the only possible cure for this disease. So has anyone ever thought of having a transplant, especially for the little kids?
Bellamie09
in
Sickle Cell Society
6 years ago
Hello from North Carolina USA
As of today, I have been officially diagnosed with ET following the results of my BMB and bloodwork. My name is Pam and I am a 62 year old woman who transplanted from Maine to North Carolina about two years ago -the weather is surely better here! My PCP originally suspected a problem when my platelets
As of today, I have been officially diagnosed with ET following the results of my BMB and bloodwork. My name is Pam and I am a 62 year old woman who transplanted from Maine to North Carolina about two years ago -the weather is surely better here! My PCP originally suspected a problem when my platelets
PamelaNC
in
MPN Voice
6 years ago
Sickle cell trait but leg pains
My daughter ( she’s 8) has sickle cell trait, never really has any problems but recently she complaining of leg and feet pain, she says it just comes and goes sometimes when she’s just walking? Could this be due to the sickled cells?
My daughter ( she’s 8) has sickle cell trait, never really has any problems but recently she complaining of leg and feet pain, she says it just comes and goes sometimes when she’s just walking? Could this be due to the sickled cells?
Staceyg
in
Sickle Cell Society
6 years ago
How do you know that you are in remission?
Hi, I had a stem cell transplant in feb 2016 which has been successful although I did suffer from very severe gut gvhd and to some extent skin gvhd which left me hospitalised at Kings for 5 months. I’ve been out of hospital for just over a year now and have been receiving chemo as a preventative measure
Hi, I had a stem cell transplant in feb 2016 which has been successful although I did suffer from very severe gut gvhd and to some extent skin gvhd which left me hospitalised at Kings for 5 months. I’ve been out of hospital for just over a year now and have been receiving chemo as a preventative measure
StarryRoo
in
Leukaemia Support
6 years ago
Second Opinion CLL
Just a side note to all my Unlocked friends. My first Oncologist tested me (bone Marrow sample and blood test) and told me I had stage 2 lymphoma. This was a fairly well respected doctor and I had no reason to doubt her. My wife kept pestering me to get a second opinion which I finally gave into and
Just a side note to all my Unlocked friends. My first Oncologist tested me (bone Marrow sample and blood test) and told me I had stage 2 lymphoma. This was a fairly well respected doctor and I had no reason to doubt her. My wife kept pestering me to get a second opinion which I finally gave into and
barger1951
in
CLL Support
6 years ago
Dexamethasone steroids and bendamustine chemotherapy
Me partner has follicular low grade non Hodgkin's lymphoma and has also had an aggressive form last year which was treated with chemotherapy and stem cell treatment . He has just been told the lymphoma is active again and has been feeling unwell since January. He has been given 4mg daily dose of dexamethasone
Me partner has follicular low grade non Hodgkin's lymphoma and has also had an aggressive form last year which was treated with chemotherapy and stem cell treatment . He has just been told the lymphoma is active again and has been feeling unwell since January. He has been given 4mg daily dose of dexamethasone
clova
in
Non Hodgkin's Lymphoma Friends
6 years ago
CLL and Myeloma anyone?
I've had CLL with no treatment for 11 years but recently broke my collarbone and xray and CT scan revealed multiple myeloma. Treatment for myeloma started 4 days ago and the plan is to have stem cell transplant in 3-4 months. Anyone in the same boat and could stem cell transplant also help the CLL.
I've had CLL with no treatment for 11 years but recently broke my collarbone and xray and CT scan revealed multiple myeloma. Treatment for myeloma started 4 days ago and the plan is to have stem cell transplant in 3-4 months. Anyone in the same boat and could stem cell transplant also help the CLL.
Hidden
in
CLL Support
6 years ago
I’m unclear what to think of my diagnosis
I’m new here and not clear about the diagnosis given on my Flow Cytometry, which classified me with atypical CLL,
Mantle
Cell
Lymphoma
, and Marginal Zone Lymphoma. Nothing was detected on my CLL FISH panel or the Malt1 FISH probe. My onc staged me at between 0-1 and I’m on W&W.
I’m new here and not clear about the diagnosis given on my Flow Cytometry, which classified me with atypical CLL,
Mantle
Cell
Lymphoma
, and Marginal Zone Lymphoma. Nothing was detected on my CLL FISH panel or the Malt1 FISH probe. My onc staged me at between 0-1 and I’m on W&W.
Blondielocks65
in
CLL America Support
6 years ago
Does neuroblastoma can be responsible for OMS (Obsoclonus- myoclonus syndrome
My sister is a breast cancer survivor and she has 19 months old girl child. Now from last one week we came to know that the girl child is suffering from Obsoclonus- myoclonus syndrome (OMS). her CT Abdomen reports shows one low attenuation soft tissue mass lesion on right adrenal gland. Can it be a Neuroblastoma
My sister is a breast cancer survivor and she has 19 months old girl child. Now from last one week we came to know that the girl child is suffering from Obsoclonus- myoclonus syndrome (OMS). her CT Abdomen reports shows one low attenuation soft tissue mass lesion on right adrenal gland. Can it be a Neuroblastoma
anantprakashpatidar
in
Breast Cancer India
6 years ago
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