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Fatigue and Breathing issues
My 70 year old sister is dx. with Non-small cell AJCC stage1V lung cancer in 2018 - she had chemo/radiation initially - in remission, out of remission Dec 2021 and again this past year (2022) in December. She has been on monthly of Carboplatin/Keytruda. With the most recent reoccurrence she underwent
My 70 year old sister is dx. with Non-small cell AJCC stage1V lung cancer in 2018 - she had chemo/radiation initially - in remission, out of remission Dec 2021 and again this past year (2022) in December. She has been on monthly of Carboplatin/Keytruda. With the most recent reoccurrence she underwent
BRice914
in
Lung Cancer Support
1 year ago
HRT and MPN
Hi there,I've been recently diagnosed with Essential Thrombothycemia and Polythycemia Vera. I'm also Jak2 positive. I've just had my bonemarrow biopsy and will have those results in a few weeks time. My platelet levels are in the 600 mark and my red blood cell count is around 178. I have been on transdermal
Hi there,I've been recently diagnosed with Essential Thrombothycemia and Polythycemia Vera. I'm also Jak2 positive. I've just had my bonemarrow biopsy and will have those results in a few weeks time. My platelet levels are in the 600 mark and my red blood cell count is around 178. I have been on transdermal
YogaRonnie
in
MPN Voice
1 year ago
Had anyone is dealing or have dealt with lymphomedema in your scrotum
The scrotum had been swelled for a few weeks, I noticed after the last chemo was canceled due to not working. Did anyone get medication that helped to stop or reduce the swelling ? I did find underwear that has a pouch that does help but still a pain in the butt. Any suggestions will be appreciated and
The scrotum had been swelled for a few weeks, I noticed after the last chemo was canceled due to not working. Did anyone get medication that helped to stop or reduce the swelling ? I did find underwear that has a pouch that does help but still a pain in the butt. Any suggestions will be appreciated and
Muffin2019
in
Advanced Prostate Cancer
1 year ago
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New treatment after being dropped from Pluvicto.
I was dropped from LU177 treatment in late January and started my first round of Docetaxel/Carboplatin on 01/30. Lab results on 02/17 showed my platelet count to be very low so was denied the second round of chemo. We did see a significant drop in PSA from 758 to 611 on that lab. My next lab 03/17 showed
I was dropped from LU177 treatment in late January and started my first round of Docetaxel/Carboplatin on 01/30. Lab results on 02/17 showed my platelet count to be very low so was denied the second round of chemo. We did see a significant drop in PSA from 758 to 611 on that lab. My next lab 03/17 showed
docbulldog
in
Advanced Prostate Cancer
1 year ago
PSA after 4-5 months on Lupron (Scholz)?
Just watched a Scholz (PCRI) video posted last week about PSA. He said multiple times that PSA should reach a nadir of <0.1 after 4-5 months on 1st generation ADT and that if it didn't "[i]something's wrong, that is an unusual type of prostate cancer that has some hormone resistance and studies over
Just watched a Scholz (PCRI) video posted last week about PSA. He said multiple times that PSA should reach a nadir of <0.1 after 4-5 months on 1st generation ADT and that if it didn't "[i]something's wrong, that is an unusual type of prostate cancer that has some hormone resistance and studies over
Gl448
in
Advanced Prostate Cancer
1 year ago
CA 27.29 Blood Testing
Hi All, It's been about 3 years(2020) since I was diagnosed with HER2 + breast cancer. I had undergone a double mastectomy and a full year of chemo. During my twice a year check-ups (every 6 months) I was always given a Cancer Antigen( CA 27.29) blood test, but with this visit this test was not done
Hi All, It's been about 3 years(2020) since I was diagnosed with HER2 + breast cancer. I had undergone a double mastectomy and a full year of chemo. During my twice a year check-ups (every 6 months) I was always given a Cancer Antigen( CA 27.29) blood test, but with this visit this test was not done
Karina66
in
SHARE Breast Cancer Support
1 year ago
Diet & Fasting/Chemo
Hi all, new here, and diagnosed with Ovarian cancer. I had a huge tumor removed last week; now waiting for the biopsy results. A second surgery is planned to removed the womb, other ovary and lymph nodes, just in case of spread, though the surgeon is confident that he got the whole tumor out in one and
Hi all, new here, and diagnosed with Ovarian cancer. I had a huge tumor removed last week; now waiting for the biopsy results. A second surgery is planned to removed the womb, other ovary and lymph nodes, just in case of spread, though the surgeon is confident that he got the whole tumor out in one and
Hailun
in
My Ovacome
1 year ago
Hi ….from a newly dx’d comrade from the UK
I’m 56 and I’ve recently been dx’d with lobular ER+ breast cancer (2cm), go back to see consultant on Monday for MRI results. I have a lumpectomy & sentinel lymph node removal scheduled for the 28th March. Drs Initial plan was for removal, tamoxifen & chemo….but that may have changed since MRI
I’m 56 and I’ve recently been dx’d with lobular ER+ breast cancer (2cm), go back to see consultant on Monday for MRI results. I have a lumpectomy & sentinel lymph node removal scheduled for the 28th March. Drs Initial plan was for removal, tamoxifen & chemo….but that may have changed since MRI
Mistydeb01
in
My Breast Cancer Community
1 year ago
PSA slooooowly rising.
Hi. To cut it short, I have Stage IV Pca.At diagnosis (Nov.2020) my PSA was 66. Had a few sessions of chemo and Firmagon. That was insufficient after a 4-5 months so Xtandi (2 tablets - half dose) was added. My PSA went down to <0.10 for a couple of months. Then rose to 0.12 - the 0.14 and it's now
Hi. To cut it short, I have Stage IV Pca.At diagnosis (Nov.2020) my PSA was 66. Had a few sessions of chemo and Firmagon. That was insufficient after a 4-5 months so Xtandi (2 tablets - half dose) was added. My PSA went down to <0.10 for a couple of months. Then rose to 0.12 - the 0.14 and it's now
GreatDane1979
in
Advanced Prostate Cancer
1 year ago
Having pectus carinatum and PC would radiotherapy or chemotherapy affect the strength of the rib cage structure?
I have PC but also epilepsy which I have had for over fifty years, over 400 + seizures thus weakened my rib cage structure [affected by pectus carinatum/pigeon chest] over the years thus likely to refracture. I have had radiotherapy but would that or chemotherapy affect the bone strength of my rib cage
I have PC but also epilepsy which I have had for over fifty years, over 400 + seizures thus weakened my rib cage structure [affected by pectus carinatum/pigeon chest] over the years thus likely to refracture. I have had radiotherapy but would that or chemotherapy affect the bone strength of my rib cage
Adlon57
in
Advanced Prostate Cancer
1 year ago
Xtandi (enzalutamide) alone is superior to ADT alone at preventing metastases in "high-risk" recurrent men
"High-Risk"recurrence was defined as men who have had primary therapy (prostatectomy or radiation) but have had rising PSA but no detectable (on bone scan/CT) metastases yet and T≥150 ng/dl, and: • PSA doubling time ≤ 9 months, or • PSA≥ 1 ng/ml post-prostatectomy, or • PSA≥ nadir+2 ng/ml post-primary
"High-Risk"recurrence was defined as men who have had primary therapy (prostatectomy or radiation) but have had rising PSA but no detectable (on bone scan/CT) metastases yet and T≥150 ng/dl, and: • PSA doubling time ≤ 9 months, or • PSA≥ 1 ng/ml post-prostatectomy, or • PSA≥ nadir+2 ng/ml post-primary
Tall_Allen
in
Advanced Prostate Cancer
1 year ago
Hair loss
Hi ladies, can anyone advise on hair loss. Had my first chemo 2 weeks ago and yesterday and today my hair started falling out. The roots of my hair are so painful and my scalp feels so tender.Should I wash it? Or just buzz it off? TIA
Hi ladies, can anyone advise on hair loss. Had my first chemo 2 weeks ago and yesterday and today my hair started falling out. The roots of my hair are so painful and my scalp feels so tender.Should I wash it? Or just buzz it off? TIA
Hidden
in
My Ovacome
1 year ago
Low IgE...
I just got this result today... Even thouhh no lower limit shown, should I get worried for such a low IgE? Background: I am having monthly IVIG ingusion after 6 months of chemo due to low immunoglobulin levels... today gave blood sample ans waiting for the results..First time seeing IgE result...Previously
I just got this result today... Even thouhh no lower limit shown, should I get worried for such a low IgE? Background: I am having monthly IVIG ingusion after 6 months of chemo due to low immunoglobulin levels... today gave blood sample ans waiting for the results..First time seeing IgE result...Previously
eekibin
in
CLL Support
1 year ago
Off Abiraterone ?
When I started chemo Abiraterone was discontinued. A recent post suggested that lowering T is even more important if castrate resistant. So why was Abiraterone discontinued? I have an infusion and appointment with substitute MO tomorrow and will try to remember to ask this but would like the opinion
When I started chemo Abiraterone was discontinued. A recent post suggested that lowering T is even more important if castrate resistant. So why was Abiraterone discontinued? I have an infusion and appointment with substitute MO tomorrow and will try to remember to ask this but would like the opinion
spencoid2
in
Advanced Prostate Cancer
1 year ago
Chemotherapy with Etoposide and Cisplatin
Has anyone on here had Chemo with these 2 drugs? Just wondering how you’re getting on in feeling normal? I’m 5 years post chemo and my entire body hurts from head to foot. Doctor is looking at possible Lupus but ANA test is negative. I have joint pain, muscle pain, basically pain anywhere and everywhere
Has anyone on here had Chemo with these 2 drugs? Just wondering how you’re getting on in feeling normal? I’m 5 years post chemo and my entire body hurts from head to foot. Doctor is looking at possible Lupus but ANA test is negative. I have joint pain, muscle pain, basically pain anywhere and everywhere
rareoldme
in
My Ovacome
1 year ago
Injections after Caelyx
Hi All. Well I’ve just had my first infusion of Caelyx. I’ve been told I done need to inject Filgrastim. I asked the chemo nurse to check and she said no injections. Has anyone else had Caelyx with no filgrastim afterwards? Thank you. Gill X
Hi All. Well I’ve just had my first infusion of Caelyx. I’ve been told I done need to inject Filgrastim. I asked the chemo nurse to check and she said no injections. Has anyone else had Caelyx with no filgrastim afterwards? Thank you. Gill X
Guilane
in
My Ovacome
1 year ago
Mr. Spouse 21 is on rewind: Stable again!
The prompt says: "Tell Your Story." Well, it's my husband's story almost identical to 5 months ago, 3 months before that, and multiple months before that, so I'm repeating the posting from 5 months ago below. He's stable again with nearly identical numbers. ALP 38, PSA 0.10. He was a Gleason 9 now in
The prompt says: "Tell Your Story." Well, it's my husband's story almost identical to 5 months ago, 3 months before that, and multiple months before that, so I'm repeating the posting from 5 months ago below. He's stable again with nearly identical numbers. ALP 38, PSA 0.10. He was a Gleason 9 now in
spouse21
in
Advanced Prostate Cancer
1 year ago
Seeking advice from Lynparza, Rubraca or Zejula patients.
Hello all, I'm here in search of some guidance as this is my 1-year mark since I began maintenance treatment with Lynparza. About 2 years ago I was diagnosed with ovarian high grade mullerian carcinoma - stage 3b. After a left oophorectomy, I began a regimen of 6 rounds of the combo Taxol/Carboplatin
Hello all, I'm here in search of some guidance as this is my 1-year mark since I began maintenance treatment with Lynparza. About 2 years ago I was diagnosed with ovarian high grade mullerian carcinoma - stage 3b. After a left oophorectomy, I began a regimen of 6 rounds of the combo Taxol/Carboplatin
TinaTina2020
in
SHARE Ovarian Cancer Support
1 year ago
Next Step?
I have been treated for more than 10 years (except for 3 vacations during the first 5 years) and for the most part have been on Lupron and Zytiga. Starting 2 years ago my PSA starting rising from below .05 (MSKCC doesn't measure anything lower than that) up to about .32 over the course of a year. At
I have been treated for more than 10 years (except for 3 vacations during the first 5 years) and for the most part have been on Lupron and Zytiga. Starting 2 years ago my PSA starting rising from below .05 (MSKCC doesn't measure anything lower than that) up to about .32 over the course of a year. At
jfoesq
in
Advanced Prostate Cancer
1 year ago
Post Xofigo, where do we go from here?
I've finished all 6 rounds of Xofigo in December. My ALP dropped to the lowest in 2 years, bone scans have shown stable but active disease, MRI the same. However my PSA has bounced around from the mid 40"s to 70 and the last 2 jumping to 124 and 144 respectively.I've been told that the PSA jump following
I've finished all 6 rounds of Xofigo in December. My ALP dropped to the lowest in 2 years, bone scans have shown stable but active disease, MRI the same. However my PSA has bounced around from the mid 40"s to 70 and the last 2 jumping to 124 and 144 respectively.I've been told that the PSA jump following
Kentucky1
in
Advanced Prostate Cancer
1 year ago
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