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Lynch syndrome
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Update
I've finally come off ropinirole and am taking pregabalin150 mg only. It's not been easy. It's now 4 weeks since the last sliver of ropinirole and since then the symptoms have started to slowly creep back. I know from advice here that this is to be expected and the pregabalin dose can be increased. The
I've finally come off ropinirole and am taking pregabalin150 mg only. It's not been easy. It's now 4 weeks since the last sliver of ropinirole and since then the symptoms have started to slowly creep back. I know from advice here that this is to be expected and the pregabalin dose can be increased. The
Firenze1
in
Restless Legs Syndrome
11 months ago
getting off pramipexole
I’ve run into a RLP problem trying to get off pramipexole. I reduced the pramipexole from .5 mg to .375 mg. I’m into my 4 th week. I’ve increased the Gabapentin to 600 mg and having to use codine twice daily. I’m taking 5 mg of codine per dose. I’m still having from moderate to severe RLS pain. I need
I’ve run into a RLP problem trying to get off pramipexole. I reduced the pramipexole from .5 mg to .375 mg. I’m into my 4 th week. I’ve increased the Gabapentin to 600 mg and having to use codine twice daily. I’m taking 5 mg of codine per dose. I’m still having from moderate to severe RLS pain. I need
Moretravel1
in
Restless Legs Syndrome
11 months ago
Coming out of a very very long dark tunnel.
Those of you who have the patience to read my sometimes rambling posts will know that I was taking 6mg of Ropinirole a day and had been taking it for quite some time with Neupro patches before that anyway I finally went private to see a terrific Doctor Jose Thomas at the Spire Hospital in Cardiff who
Those of you who have the patience to read my sometimes rambling posts will know that I was taking 6mg of Ropinirole a day and had been taking it for quite some time with Neupro patches before that anyway I finally went private to see a terrific Doctor Jose Thomas at the Spire Hospital in Cardiff who
HipHop1972
in
Restless Legs Syndrome
11 months ago
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Augmentation- Report via Yellow Card Scheme
The MHRA is encouraging people to report adverse side effects via the Yellow Card Scheme. If you have suffered drug induced worsening on Ropinirole, Pramipexole or the Neupro patch, please report to help raise awareness among medical professionals. https://content.govdelivery.com/accounts/UKMHRA/bulletins
The MHRA is encouraging people to report adverse side effects via the Yellow Card Scheme. If you have suffered drug induced worsening on Ropinirole, Pramipexole or the Neupro patch, please report to help raise awareness among medical professionals. https://content.govdelivery.com/accounts/UKMHRA/bulletins
Joolsg
in
Restless Legs Syndrome
11 months ago
No more propafenone!!!! What???
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
frazeej
in
AF Association
11 months ago
Psilocybin
Dear friends: I recently read a post by someone who had a resolution of RLS after medically supervised use of psilocybin. After taking Mirapex, Gabapentin, OxyContin, Methadone, and Horizant, I am desperate for alternatives. The poster lives in CA as do I. I am unable to locate the post via searching
Dear friends: I recently read a post by someone who had a resolution of RLS after medically supervised use of psilocybin. After taking Mirapex, Gabapentin, OxyContin, Methadone, and Horizant, I am desperate for alternatives. The poster lives in CA as do I. I am unable to locate the post via searching
JustVisiting23
in
Restless Legs Syndrome
11 months ago
Side Effects - Ropinirole & Pramipexole
Hi all, I found that the generic Ropinirole gave me nausea but the commercial ReQuip didn't, now ReQuip is being manufactured under license for GSK and the "commercial" ReQuip is giving me nausea. I have thus switched to Pramipexole and I am currently 3 days into GLEPARK generic version, it is giving
Hi all, I found that the generic Ropinirole gave me nausea but the commercial ReQuip didn't, now ReQuip is being manufactured under license for GSK and the "commercial" ReQuip is giving me nausea. I have thus switched to Pramipexole and I am currently 3 days into GLEPARK generic version, it is giving
PaddyMac1
in
Restless Legs Syndrome
11 months ago
Newbie
Please forgive me if I am totally wrong as I have had zero sleep for two nights now. I was put on Pramipexole (i think that is what it is called) but when I needed to increase the dose to four a night I was unable to sleep due to insomnia, so two days ago I started taking Ropinirole which feels like
Please forgive me if I am totally wrong as I have had zero sleep for two nights now. I was put on Pramipexole (i think that is what it is called) but when I needed to increase the dose to four a night I was unable to sleep due to insomnia, so two days ago I started taking Ropinirole which feels like
Gardeninglover8
in
Restless Legs Syndrome
11 months ago
Mirena coil
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now 😤 I didn't see it come out. I have endometrium hyperplasia anyone else with this?
My mirena coil came out anyone else this happened to? It only lasted two days and I had it under general anaesthesia. I'm annoyed now 😤 I didn't see it come out. I have endometrium hyperplasia anyone else with this?
Hidden
in
Endometriosis UK
10 months ago
Pramipexole RLS symptoms worse
Just started taking Pramipexole for RLS for the first night. Wow, didn’t know the symptoms would become totally overwhelming all over body too.is this normal, does it settle down? I have Fibromyalgia, which means I also take Duloxetine for the pain and am medication sensitive, but never thought it would
Just started taking Pramipexole for RLS for the first night. Wow, didn’t know the symptoms would become totally overwhelming all over body too.is this normal, does it settle down? I have Fibromyalgia, which means I also take Duloxetine for the pain and am medication sensitive, but never thought it would
Fra3021
in
Restless Legs Syndrome
11 months ago
Buprenorphine / Gloucestershire or nearish
Does anyone living in Gloucestershire Uk know of a Dr / Neurologist that is happy to prescribe Buprenorphine for Ropinirole withdrawal ? My Gp wont . Neurologist in Bath will but has ignored last 5 emails and found a neurologist in Wales who also wont . Grateful for any suggestions . Thanks in advance
Does anyone living in Gloucestershire Uk know of a Dr / Neurologist that is happy to prescribe Buprenorphine for Ropinirole withdrawal ? My Gp wont . Neurologist in Bath will but has ignored last 5 emails and found a neurologist in Wales who also wont . Grateful for any suggestions . Thanks in advance
Huntingleroy
in
Restless Legs Syndrome
11 months ago
RLS returned after taking Duloxetine
Had RLS for many years, associated with Fibromyalgia. Having taken Amitriptylene, Nortriptyline , Pregabalin for my Fibro, my RLS has been under control. Recently started taking Duloxetine to help my Fibro and my RLS has returned with a vengeance. I get very little sleep, as soon as my head hits pillow
Had RLS for many years, associated with Fibromyalgia. Having taken Amitriptylene, Nortriptyline , Pregabalin for my Fibro, my RLS has been under control. Recently started taking Duloxetine to help my Fibro and my RLS has returned with a vengeance. I get very little sleep, as soon as my head hits pillow
Fra3021
in
Restless Legs Syndrome
11 months ago
Haemolysis
Hi all. Sent for Monitor my Health blood test for TSH, T4+T3. Sent 1st thing Tues am. Only got a response Thurs pm to say test received. Could the delay by Royal Mail have resulted in Haemolysis? My first test in May went thru no probs, other than getting enough blood. This time, after all the tips I
Hi all. Sent for Monitor my Health blood test for TSH, T4+T3. Sent 1st thing Tues am. Only got a response Thurs pm to say test received. Could the delay by Royal Mail have resulted in Haemolysis? My first test in May went thru no probs, other than getting enough blood. This time, after all the tips I
Lottyplum
in
Thyroid UK
1 year ago
switching meds
I have really bad RLS. I took pramiprexole and had every side effect. I went through augmentation and went through horrible withdrawal. I did try gabapentin when I was on the DAs and felt super doped up in the morning. I ended up stopping taking it. After I got of the DAs I tried without meds hoping
I have really bad RLS. I took pramiprexole and had every side effect. I went through augmentation and went through horrible withdrawal. I did try gabapentin when I was on the DAs and felt super doped up in the morning. I ended up stopping taking it. After I got of the DAs I tried without meds hoping
senders
in
Restless Legs Syndrome
1 year ago
40 years of RLS
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
Trish8433
in
Restless Legs Syndrome
1 year ago
New research: Aripiprazole, a Novel Option in the Management of Restless Legs Syndrome (2023)
A new paper reporting a small case series of 4 patients who got relief from low dose aripiprazole (abilify ) after augmentation that was resistant to other treatment. https://pubmed.ncbi.nlm.nih.gov/37818170/ Does anyone have any experience with aripiprazole? I took it long ago, before I was even
A new paper reporting a small case series of 4 patients who got relief from low dose aripiprazole (abilify ) after augmentation that was resistant to other treatment. https://pubmed.ncbi.nlm.nih.gov/37818170/ Does anyone have any experience with aripiprazole? I took it long ago, before I was even
Avart
in
Restless Legs Syndrome
1 year ago
coming off Pramipexole
my doctor has ordered me the amount of Pramipexole he wants me to take to stop completely Pramipexole. Right now .75 mg of Pramipexole at night, with Gabapentin 300 mg. He wants me to cut out a 1/3 of my Pramipexole weekly over 3 weeks and said he may would increase the Gabapentin as needed which will
my doctor has ordered me the amount of Pramipexole he wants me to take to stop completely Pramipexole. Right now .75 mg of Pramipexole at night, with Gabapentin 300 mg. He wants me to cut out a 1/3 of my Pramipexole weekly over 3 weeks and said he may would increase the Gabapentin as needed which will
Moretravel1
in
Restless Legs Syndrome
1 year ago
help left with the word autism
my grandson before he finished school is 8 and my son has been told he may be autistic. And then well nothing . Hes now developing tics and unusual facial movements . My son and my grandsons mother went to see the gp for advice on how to support my grandson. He told them to just keep an eye on him ??
my grandson before he finished school is 8 and my son has been told he may be autistic. And then well nothing . Hes now developing tics and unusual facial movements . My son and my grandsons mother went to see the gp for advice on how to support my grandson. He told them to just keep an eye on him ??
Noidea1812
in
Autism Support
1 year ago
HCG level blip?
Hello I’m wondering if anyone can ease my anxiety at all. My HCG levels have been as follows: 12dp3dt- 580 13dp3dt - 847 15dp3dt- 1761 18dp3dt - 5463 20dp3t - 9075 My clinic have said they’re generally looking good but I didn’t double between 18dpt and 20dpt and so they’ve put me back on a steroid
Hello I’m wondering if anyone can ease my anxiety at all. My HCG levels have been as follows: 12dp3dt- 580 13dp3dt - 847 15dp3dt- 1761 18dp3dt - 5463 20dp3t - 9075 My clinic have said they’re generally looking good but I didn’t double between 18dpt and 20dpt and so they’ve put me back on a steroid
Siothew12
in
Fertility Network UK
1 year ago
Supplements to reduce glutamate
I was inspired by Widebody's comments on taurine and glycine to look into supplements that reduce glutamate. I found the following on an autism website that I cannot vouch for, but here is the list: (those of us taking gabapentin, pregabalin, horizont are taking medicine that is reducing brain glutamate
I was inspired by Widebody's comments on taurine and glycine to look into supplements that reduce glutamate. I found the following on an autism website that I cannot vouch for, but here is the list: (those of us taking gabapentin, pregabalin, horizont are taking medicine that is reducing brain glutamate
wantokporo
in
Restless Legs Syndrome
1 year ago
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