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Lynch syndrome
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Ropinirole vs Buprenorphine!
I had a phone call from 1 Dr. who told me that Ropinirole would cure my RLS and was annoyed that I wouldn't take them. He decided to get the head of the Surgery to phone me to try to put pressure on me ! I did say that the 10 mcg had helped me a little bit but I would like a stronger patch . A few day's
I had a phone call from 1 Dr. who told me that Ropinirole would cure my RLS and was annoyed that I wouldn't take them. He decided to get the head of the Surgery to phone me to try to put pressure on me ! I did say that the 10 mcg had helped me a little bit but I would like a stronger patch . A few day's
Danni54
in
Restless Legs Syndrome
9 months ago
RESTLESS LEGS SYN
hello everyone I first experienced RLS 40 years ago most GPs had no idea and prescribed sedatives which were totally wrong for this condition I have managed it through other things ie walking on cold floor massage and been successful 5O % of the time until recently and the symptoms have worsened …a
hello everyone I first experienced RLS 40 years ago most GPs had no idea and prescribed sedatives which were totally wrong for this condition I have managed it through other things ie walking on cold floor massage and been successful 5O % of the time until recently and the symptoms have worsened …a
2024legs
in
Restless Legs Syndrome
9 months ago
Low dose Naltrexone or Suboxone. I'm seeing my doctor this week. Which one is best
After many years of RLS and coping quite well. First the dreaded mirapexin and then tramadol nothing is working at the moment. I was on 0.09 mg mirapexin. Now I'm on 50mg tram. Even if I take 100mgs it's not working so I'm obviously augmenting. Even Kratom isn't helping. I made an appointment with my
After many years of RLS and coping quite well. First the dreaded mirapexin and then tramadol nothing is working at the moment. I was on 0.09 mg mirapexin. Now I'm on 50mg tram. Even if I take 100mgs it's not working so I'm obviously augmenting. Even Kratom isn't helping. I made an appointment with my
Coeso
in
Restless Legs Syndrome
9 months ago
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Sorbolene Lotion experience and my RLS
I was prescribed Sorbolene Lotion for my lower legs for dry skin - had very bad dry skin that was basically permanent. Anyway, I found that my restless legs disappeared after applying the cream. The cream is essentially just a moisturiser - says it has glycerine and vitamin E in it. I was applying it
I was prescribed Sorbolene Lotion for my lower legs for dry skin - had very bad dry skin that was basically permanent. Anyway, I found that my restless legs disappeared after applying the cream. The cream is essentially just a moisturiser - says it has glycerine and vitamin E in it. I was applying it
bernardnz
in
Restless Legs Syndrome
9 months ago
Restless leg syndrone
I am new on this forum and am suffering like hell with augmentation. I've had RLS slightly since I was 27 now 74. GP diagnosed cramp in those early days and told me to drink tonic water. Things got worse and saw a neurologist (at my expense) some 12 years ago and put me on Rotigotine patch 1mg. Things
I am new on this forum and am suffering like hell with augmentation. I've had RLS slightly since I was 27 now 74. GP diagnosed cramp in those early days and told me to drink tonic water. Things got worse and saw a neurologist (at my expense) some 12 years ago and put me on Rotigotine patch 1mg. Things
Marmot2
in
Restless Legs Syndrome
9 months ago
hcg test negative first FET @ 26 years old only one embryo
hello all if u have all been following my journey . It has been quite difficult , lost my baby at 21 weeks to fetal anomaly - no genetic conditions on my end or husbands end . It was a 3 day fresh transfer and worked first time we were so happy. it was a difficult time and had some hope in the
hello all if u have all been following my journey . It has been quite difficult , lost my baby at 21 weeks to fetal anomaly - no genetic conditions on my end or husbands end . It was a 3 day fresh transfer and worked first time we were so happy. it was a difficult time and had some hope in the
Hidden
in
Fertility Network UK
11 months ago
Sjogrens - Tooth Loss, Gum Disease
Hello, I'm new to this and hoping someone can help. I have Sjogrens and a couple of other autoimmune conditions. I experienced a dramatic deterioration with teeth and gums 2 years ago, dentist advised I would lose all my teeth within 6 months and because of the lack of saliva I could not get dentures
Hello, I'm new to this and hoping someone can help. I have Sjogrens and a couple of other autoimmune conditions. I experienced a dramatic deterioration with teeth and gums 2 years ago, dentist advised I would lose all my teeth within 6 months and because of the lack of saliva I could not get dentures
Crystal68
in
LUPUS UK
11 months ago
hopful2
I saw Dr Scott Cooper this morning and I am hopeful that he will help me. He was familiar with augmentation and was very thorough is his examination. He has ordered a full iron panel and checking B12 and magnesium levels. In all he is doing 3 panels. He is also doing nerve conductivity test. He said
I saw Dr Scott Cooper this morning and I am hopeful that he will help me. He was familiar with augmentation and was very thorough is his examination. He has ordered a full iron panel and checking B12 and magnesium levels. In all he is doing 3 panels. He is also doing nerve conductivity test. He said
6236
in
Restless Legs Syndrome
9 months ago
Conundrum Gastrin
Hi everyone, does anyone have advice when trying to increase weight when diagnosed with Intestinal Metaplasia and Hyperplasia. I have been doing some research regarding the damage that Gastrin can do when it doesn't switch off (NET's tumours) because of low stomach acid and as the Gastrin is activated
Hi everyone, does anyone have advice when trying to increase weight when diagnosed with Intestinal Metaplasia and Hyperplasia. I have been doing some research regarding the damage that Gastrin can do when it doesn't switch off (NET's tumours) because of low stomach acid and as the Gastrin is activated
Helliborous
in
Pernicious Anaemia Society
7 months ago
Phenelzine
it worked for me incredibly well. No restless legs going on2 years. Phenelzine is a maoMao inhibitor with the differencethaydifference that it only raises dopamine in the central nervous central system. LIfe changer for me, but make you talk to a drDr, so many medicines can interact.
it worked for me incredibly well. No restless legs going on2 years. Phenelzine is a maoMao inhibitor with the differencethaydifference that it only raises dopamine in the central nervous central system. LIfe changer for me, but make you talk to a drDr, so many medicines can interact.
toobs1234
in
Restless Legs Syndrome
9 months ago
UK Hospitals-Dopamine Agonists
I just had an appointment with a head pharmacist at St George's hospital in Tooting, London about my next MS drug treatment.We somehow got onto the subject of RLS and he surprised me by actually knowing about the disease and that dopamine agonists are bad news. He said that St George's do NOT prescribe
I just had an appointment with a head pharmacist at St George's hospital in Tooting, London about my next MS drug treatment.We somehow got onto the subject of RLS and he surprised me by actually knowing about the disease and that dopamine agonists are bad news. He said that St George's do NOT prescribe
Joolsg
in
Restless Legs Syndrome
9 months ago
The answer I received from my concern about the treatments on the RLS Foundation website
My email to Karla Dzienkowski, who is Executive Director of the Restless Legs Syndrome Foundation: Recently a post on the forum indicated that Dr. John Winkleman has set up a site for health professionals to learn about RLS at rlscurbside.org/resources/. Naturally I went out there and was quite disturbed
My email to Karla Dzienkowski, who is Executive Director of the Restless Legs Syndrome Foundation: Recently a post on the forum indicated that Dr. John Winkleman has set up a site for health professionals to learn about RLS at rlscurbside.org/resources/. Naturally I went out there and was quite disturbed
SueJohnson
in
Restless Legs Syndrome
9 months ago
Duloxetine - restless legs
Hi, I am on Duloxetine 60 mg and Trazadone 100 mg. Since going on the Duloxetine my RLS seems to be worse. I don’t really want to give it up right now as I have only been on it 3 weeks and since I have tried several anti-depressants I want to give this one a fair go. The Trazadone helps me sleep a
Hi, I am on Duloxetine 60 mg and Trazadone 100 mg. Since going on the Duloxetine my RLS seems to be worse. I don’t really want to give it up right now as I have only been on it 3 weeks and since I have tried several anti-depressants I want to give this one a fair go. The Trazadone helps me sleep a
Chamie
in
Restless Legs Syndrome
9 months ago
The problem with Buprenorphine, BTBD9 and serotonin syndrome
This is for those of you who are really struggling with the remedies for RLS. Apologies for not referencing all my research but I’ve been completely wiped out for weeks now. However I wanted to share some insights I’ve had recently and hope it inspires thoughts and research. Adenosine is a chemical
This is for those of you who are really struggling with the remedies for RLS. Apologies for not referencing all my research but I’ve been completely wiped out for weeks now. However I wanted to share some insights I’ve had recently and hope it inspires thoughts and research. Adenosine is a chemical
Typicallygaslit
in
Restless Legs Syndrome
9 months ago
extra fluid 24 weeks
hi all, I had a private scan yesterday, baby is active on scan and can feel movement not all day at the moment, I'm 24+4 but the sonographer put the fluid index is 39 and stayed in scan report this is polyhydramnios, has any one had this? I'm booking my gtt in so I'm aware it could be due to that, they
hi all, I had a private scan yesterday, baby is active on scan and can feel movement not all day at the moment, I'm 24+4 but the sonographer put the fluid index is 39 and stayed in scan report this is polyhydramnios, has any one had this? I'm booking my gtt in so I'm aware it could be due to that, they
AngelMum1
in
Pregnancy and Parenting Support
11 months ago
Manometry studies
Hello, I am just wondering if anyone as had these studies and what I should expect,I think he said he is requesting the 24 hr test as well.I have looked on line to see what’s involved but was wondering if anyone who as gone through this test could tell me what it’s like? My Gastroenterologist as requested
Hello, I am just wondering if anyone as had these studies and what I should expect,I think he said he is requesting the 24 hr test as well.I have looked on line to see what’s involved but was wondering if anyone who as gone through this test could tell me what it’s like? My Gastroenterologist as requested
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
11 months ago
Medical cannabis for RLS/PLMD
Has anybody tried and had good results with Medical Cannabis for RLS/PLMD. Looking at this in case Buprenorphine does not work. So far on 0.4 sublingual tablet, severe side effects during day and not working at night now!! Worked for first 3 nights. Beginning to think that husband cannot take any prescribed
Has anybody tried and had good results with Medical Cannabis for RLS/PLMD. Looking at this in case Buprenorphine does not work. So far on 0.4 sublingual tablet, severe side effects during day and not working at night now!! Worked for first 3 nights. Beginning to think that husband cannot take any prescribed
Ephemera
in
Restless Legs Syndrome
9 months ago
Dry Eyes
Are dry eyes a symptom of Fibromyalgia, I was diagnosed with fibromyalgia last year. I have been suffering with dry eyes for about 2 weeks.
Are dry eyes a symptom of Fibromyalgia, I was diagnosed with fibromyalgia last year. I have been suffering with dry eyes for about 2 weeks.
Mark1973
in
Fibromyalgia Action UK
9 months ago
Restless leg syndrome
I have been taking 1 or 2 mg ropinorole for about 5 years. It worked sometimes, my Doctor started giving me 5/325 hydrocodone which has helped me ALOT. It seems if I walk a lot or have a lot of stress my legs get bad at night. At least I know that I will make it through the night. I also take trazadone
I have been taking 1 or 2 mg ropinorole for about 5 years. It worked sometimes, my Doctor started giving me 5/325 hydrocodone which has helped me ALOT. It seems if I walk a lot or have a lot of stress my legs get bad at night. At least I know that I will make it through the night. I also take trazadone
Lynnygrl
in
Restless Legs Syndrome
9 months ago
pregabalin vs buprenorphine
I’ve been off pramipexole for a bit over two weeks. I had a fairly easy transition off it thanks to buprenorphine and cannabis, along with pointers picked up here about iron supplements, diet, etc. I started pregabalin but stopped taking it after 10 days or so because of the comments about it not fully
I’ve been off pramipexole for a bit over two weeks. I had a fairly easy transition off it thanks to buprenorphine and cannabis, along with pointers picked up here about iron supplements, diet, etc. I started pregabalin but stopped taking it after 10 days or so because of the comments about it not fully
707twitcher
in
Restless Legs Syndrome
9 months ago
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