Search
Search
About
Log in
Join
Experiences with
Lynch syndrome
Posts
Communities
3,404 public posts
Filter results
Bfp at home many times, but extreme low beta hcg blood test and was worried much doubt from dr but then boom! 6 to 2000's
OK so had many urine bfps since day 4 past fresh double transfer, then went for bloods, and only had a reading of 6.3 everyone at fertility clinic said not good and likely not a viable pregnancy, i couldnt believe it i felt so sad etc as thought what they told me, and also how can we believe the home
OK so had many urine bfps since day 4 past fresh double transfer, then went for bloods, and only had a reading of 6.3 everyone at fertility clinic said not good and likely not a viable pregnancy, i couldnt believe it i felt so sad etc as thought what they told me, and also how can we believe the home
Flutterbby
in
Fertility Network UK
11 months ago
Teva - short supply
Happy New Year everyone , Is anyone else finding it difficult to get 100mcg and 50 mcg Teva Levothyroxine ? I had a thyroidectomy 6 years ago and have been really well on this medication. I changed to Accent because independent pharmacist unable to source Teva . I was really unwell for 7 days on Accent
Happy New Year everyone , Is anyone else finding it difficult to get 100mcg and 50 mcg Teva Levothyroxine ? I had a thyroidectomy 6 years ago and have been really well on this medication. I changed to Accent because independent pharmacist unable to source Teva . I was really unwell for 7 days on Accent
CheerfulCharlie
in
Thyroid UK
9 months ago
Suboxone's side effects
Hi, I have been taking Suboxone for almost two and half months now without too much undesirable effects, but lately all of a sudden my blood pressure goes up to 170 systole after I take Suboxone and I also experience heart palpitation. My blood pressure usually ranges from 110 systole so I am not sure
Hi, I have been taking Suboxone for almost two and half months now without too much undesirable effects, but lately all of a sudden my blood pressure goes up to 170 systole after I take Suboxone and I also experience heart palpitation. My blood pressure usually ranges from 110 systole so I am not sure
halperinchen
in
Restless Legs Syndrome
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
My hcg bloods are extremely low (6.34)
Can anyone provide reassurance things will be OK if any ladies have had or know of anyone who has had very low beta hcg results? It was 6.34 today @ 3 weeks. But that's very bad. 😔they will retest Friday, feeling sad, o\s.
Can anyone provide reassurance things will be OK if any ladies have had or know of anyone who has had very low beta hcg results? It was 6.34 today @ 3 weeks. But that's very bad. 😔they will retest Friday, feeling sad, o\s.
Flutterbby
in
Fertility Network UK
11 months ago
SERTRALINE VERSUS TRAZODONE
I have been weaning myself off Sertraline and am now down from 75mg to 25mg daily. It has at times, been a torturous process. I was recommended by Sue to try Trazodone instead of Sertraline so that was why I began weaning off it. However, on reading the leaflet for Trazodone the side effects are quite
I have been weaning myself off Sertraline and am now down from 75mg to 25mg daily. It has at times, been a torturous process. I was recommended by Sue to try Trazodone instead of Sertraline so that was why I began weaning off it. However, on reading the leaflet for Trazodone the side effects are quite
Lettucenotforget
in
Restless Legs Syndrome
9 months ago
My profile
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
BillCapita
in
PMRGCAuk
9 months ago
Hello, nasal congestion every morning (&night if slow to go to sleep) as a result of ropinirole - anyone similar? How to fix
So, I developed rls suddenly, in the middle of one of the covid lockdowns. While it appears impossible to fully identify the cause, I suffer from hydrocephalus, so have had about 4 neurosurgical procedures. It is apparently common with those with my condition. It took about 4 nights to fully remove my
So, I developed rls suddenly, in the middle of one of the covid lockdowns. While it appears impossible to fully identify the cause, I suffer from hydrocephalus, so have had about 4 neurosurgical procedures. It is apparently common with those with my condition. It took about 4 nights to fully remove my
Sniffly
in
Restless Legs Syndrome
9 months ago
buprenorphine dose
I’m in the US, and just started a Suboxone Rx two weeks ago at dosage of 2/.5. I’d like to get lower dosage if I can, but I don’t see any US companies advertising the .2/.05 tablets that you have in UK. I’ve found that using 1/4 strip every other day works fine for me. I assume the long half-life
I’m in the US, and just started a Suboxone Rx two weeks ago at dosage of 2/.5. I’d like to get lower dosage if I can, but I don’t see any US companies advertising the .2/.05 tablets that you have in UK. I’ve found that using 1/4 strip every other day works fine for me. I assume the long half-life
707twitcher
in
Restless Legs Syndrome
9 months ago
New RLS member
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
Ddski5
in
Restless Legs Syndrome
9 months ago
Switched from Methadone at 10 mg to Buprenorphine 10 mcg
Good Morning, As of June 2023, I began with 5 mg of methadone, and gradually increased it to 20 mg by August. I reported to the forum in early November, a transformation occurred, with the leg spasms virtually gone, caused by RLS at night. I began tapering off, and reduced it to 7.5 mg and have remained
Good Morning, As of June 2023, I began with 5 mg of methadone, and gradually increased it to 20 mg by August. I reported to the forum in early November, a transformation occurred, with the leg spasms virtually gone, caused by RLS at night. I began tapering off, and reduced it to 7.5 mg and have remained
vikkitennis
in
Restless Legs Syndrome
9 months ago
Neupro Patch Weaning
I’ve read most of the forum’s input regarding Neupro Patches and relayed the information to the physician. He has decided to optimize the Gabapentin dose and discontinue the patch. A bit of history…….. the patch was started 12/19/23…10 days ago. Prior to that, ropinirole was weaning off (dose on
I’ve read most of the forum’s input regarding Neupro Patches and relayed the information to the physician. He has decided to optimize the Gabapentin dose and discontinue the patch. A bit of history…….. the patch was started 12/19/23…10 days ago. Prior to that, ropinirole was weaning off (dose on
Busunsc713
in
Restless Legs Syndrome
9 months ago
Escape from Augmentation
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
davchar23
in
Restless Legs Syndrome
9 months ago
Hydrocodone to Tramadol?
So the USA ran out of Hydrocodone 10/325 due to DEA putting limits on annual production. My last fill was 11-6-23. Luckily I had saved up 90 units for emergency (proof I'm not abusing) but that ran out yesterday. I asked my doc to prescribe tramadol hcl 50mg to get by until production resumes. Started
So the USA ran out of Hydrocodone 10/325 due to DEA putting limits on annual production. My last fill was 11-6-23. Luckily I had saved up 90 units for emergency (proof I'm not abusing) but that ran out yesterday. I asked my doc to prescribe tramadol hcl 50mg to get by until production resumes. Started
billy_in_slo
in
Restless Legs Syndrome
9 months ago
hot flushes
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
Freshairfiend
in
PMRGCAuk
9 months ago
Longest bout of RLS 13 days of no sleep
I’m exhausted! I twitch and full body movements every night until 3AM then wake up at 6. On top of the RLS, I have now developed an upper respiratory infection. I was prescribed cough syrup with phenegran and it made me have the worst ever attack. I have called the doctor and he gave me gabapentin and
I’m exhausted! I twitch and full body movements every night until 3AM then wake up at 6. On top of the RLS, I have now developed an upper respiratory infection. I was prescribed cough syrup with phenegran and it made me have the worst ever attack. I have called the doctor and he gave me gabapentin and
Bulldogmom2003
in
Restless Legs Syndrome
9 months ago
Therapulse - Do I really need to scale up slowly the way the maker says to?
I've had RLS for decades & currently take Horizant, methadone, and a small amount of Mirapex (I ran into trouble when I tried to drop the Mirapex completely so my specialist suggested leaving a small amount in for now). To help further lower my med doses, or to help with handling flareups without increasing
I've had RLS for decades & currently take Horizant, methadone, and a small amount of Mirapex (I ran into trouble when I tried to drop the Mirapex completely so my specialist suggested leaving a small amount in for now). To help further lower my med doses, or to help with handling flareups without increasing
UsableThought
in
Restless Legs Syndrome
9 months ago
VIDEO NOW AVAILABLE from our recent Webinar: "Understanding Lynch Syndrome"
Lynch
syndrome
can be linked to uterine cancer, as well as other cancers. Learn more from leading
Lynch
syndrome
expert, Heather Hampel, as she discusses genetic testing, hereditary cancer risk, prevention, and the latest updates for
Lynch
syndrome
care.
Lynch
syndrome
can be linked to uterine cancer, as well as other cancers. Learn more from leading
Lynch
syndrome
expert, Heather Hampel, as she discusses genetic testing, hereditary cancer risk, prevention, and the latest updates for
Lynch
syndrome
care.
Kitty_SHARE
Partner
in
SHARE Uterine Cancer Support
2 years ago
RLS regimen for occasional big flare-ups?
I’m in the process of switching from Pramipexole to Pregabalin. To help ease the transition - Just got a Rx today for buprenorphine/naloxone (2/.5mg); I intend to cut the strips into fourths. Assuming all goes well with the rest of the transition, I’m wondering what people do to manage flare-ups?
I’m in the process of switching from Pramipexole to Pregabalin. To help ease the transition - Just got a Rx today for buprenorphine/naloxone (2/.5mg); I intend to cut the strips into fourths. Assuming all goes well with the rest of the transition, I’m wondering what people do to manage flare-ups?
707twitcher
in
Restless Legs Syndrome
9 months ago
what to do? Take .25mg Pramipexole and 7.5mg zopiclone for 2 or 3 nights? Or not?
Cannabis isnt effective atm so I need a 5 day break. Being sleep deprived from RL and insomnia just now is awful. I can't see my doctor to discuss methadone till after New Year. What to do? Doctor prescribed .25mg Pramipexole to try, but I'm too worried about augmentation to take these. BUT....I'm exhausted
Cannabis isnt effective atm so I need a 5 day break. Being sleep deprived from RL and insomnia just now is awful. I can't see my doctor to discuss methadone till after New Year. What to do? Doctor prescribed .25mg Pramipexole to try, but I'm too worried about augmentation to take these. BUT....I'm exhausted
Rayme
in
Restless Legs Syndrome
9 months ago
Hydrocodone?
My doctor is prescribing hydrocodone for help with my restless legs during plane flights, in addition to my regular meds, ropinirole and pregabalin. Has anyone had experience with this? Thank you.
My doctor is prescribing hydrocodone for help with my restless legs during plane flights, in addition to my regular meds, ropinirole and pregabalin. Has anyone had experience with this? Thank you.
MountainWanderer
in
Restless Legs Syndrome
9 months ago
1
...
15
16
17
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1497 results
Fertility Network UK
360 results
PMRGCAuk
137 results
View top 10 communities
Sort by
Most Relevant
Newest