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Seeking feedback for a project
Hello everyone, I am working with a small team on a school project that we are very excited about. We are developing an app that will help people track food consumption and nutrients. The goal of this project is to provide Kidney Disease patients with a platform where they can organize and keep track
Hello everyone, I am working with a small team on a school project that we are very excited about. We are developing an app that will help people track food consumption and nutrients. The goal of this project is to provide Kidney Disease patients with a platform where they can organize and keep track
cl123
in
Kidney Disease
2 years ago
Sharing a recording of a Lung Cancer conference for patients
Hi everyone At the end of October, one of the leading cancer centres in the US held an online conference for cancer patients and carers. It was recorded and you can watch the sessions now. Its a brilliant opportunity to hear lots of specialist doctors talking about treatment options and new research
Hi everyone At the end of October, one of the leading cancer centres in the US held an online conference for cancer patients and carers. It was recorded and you can watch the sessions now. Its a brilliant opportunity to hear lots of specialist doctors talking about treatment options and new research
sassassas
in
The Roy Castle Lung Cancer Foundation
2 years ago
Alimta and Keytruda causing major fatigue
Hi all. I am so happy to report that after only four treatments of Carboplatin, Alimta, and Keytruda, my scans and blood work up showed tremendous improvement of NSCLC Stage IV — almost NED but I still have a long while to go. My brilliant oncologist is putting me on maintenance of Keytruda and Alimta
Hi all. I am so happy to report that after only four treatments of Carboplatin, Alimta, and Keytruda, my scans and blood work up showed tremendous improvement of NSCLC Stage IV — almost NED but I still have a long while to go. My brilliant oncologist is putting me on maintenance of Keytruda and Alimta
betsybpr
in
Lung Cancer Support
2 years ago
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Recurrence of lung cancer?
Hi all. I haven't been here for a while though I have been on other forum's because of the health problems I have been left with after the lung cancer misdiagnosis and subsequent ( but late ) Lobectomy! I had to go to the Dr. today for a few reasons but I have been having similar symptoms to the one's
Hi all. I haven't been here for a while though I have been on other forum's because of the health problems I have been left with after the lung cancer misdiagnosis and subsequent ( but late ) Lobectomy! I had to go to the Dr. today for a few reasons but I have been having similar symptoms to the one's
Danni54
in
Lung Cancer Support
2 years ago
Biopsy Results
Even though I've commented on other posts, this is my first. In July I coughed up blood, saw the GP who organised a chest x-ray. The GP called me an hour after the x-ray to tell me I had a 6cm shadow on my right lung and it could be cancer. After meeting a respiratory consultant, I had CT scan, PET scan
Even though I've commented on other posts, this is my first. In July I coughed up blood, saw the GP who organised a chest x-ray. The GP called me an hour after the x-ray to tell me I had a 6cm shadow on my right lung and it could be cancer. After meeting a respiratory consultant, I had CT scan, PET scan
Ianhick
in
The Roy Castle Lung Cancer Foundation
2 years ago
Post transplant
Hi after having a liver transplant did anyone suffer with their kidneys . Just seeking assurance ste is 1 month post transplant but kidneys are still struggling .
Hi after having a liver transplant did anyone suffer with their kidneys . Just seeking assurance ste is 1 month post transplant but kidneys are still struggling .
Lippy42
in
British Liver Trust
2 years ago
FDA Approves Imjudo and Imfinzi in Combination with Chemotherapy for Patients with NSCLC
On November 10th, 2022, the Food and Drug Administration (FDA) approved Imjudo (tremelimumab) in combination with Imfinzi (durvalumab) and platinum-based chemotherapy for treatment of non-small cell lung cancer where there are no changes in ALK or EGFR. The FDA based their approval on the results of
On November 10th, 2022, the Food and Drug Administration (FDA) approved Imjudo (tremelimumab) in combination with Imfinzi (durvalumab) and platinum-based chemotherapy for treatment of non-small cell lung cancer where there are no changes in ALK or EGFR. The FDA based their approval on the results of
Miranda_GO2
Partner
in
Lung Cancer Support
2 years ago
Travel insurance within the UK.
I'm travelling from Essex to Belfast next month and am looking for travel insurance. With belfast being in the UK I wonder if I actually need cover anyway. I am over 200 days post stem cell transplant and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering
I'm travelling from Essex to Belfast next month and am looking for travel insurance. With belfast being in the UK I wonder if I actually need cover anyway. I am over 200 days post stem cell transplant and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering
Kraskie1915
in
CLL Support
1 year ago
4 of 5 treatments for covid in immunocompromised being removed in NHS
mol.im/a/11447861 [i]"Four Covid drugs which have kept thousands of vulnerable Britons out of hospital were quietly removed last week, after the NHS spending watchdog pulled funding for them.[/i] [i]While the Covid vaccines and boosters provide strong protection against serious illness for most of
mol.im/a/11447861 [i]"Four Covid drugs which have kept thousands of vulnerable Britons out of hospital were quietly removed last week, after the NHS spending watchdog pulled funding for them.[/i] [i]While the Covid vaccines and boosters provide strong protection against serious illness for most of
Harvist
in
CLL Support
2 years ago
liver transplant
we got the call on November 14 at 11:30 pm And my husband had his liver transplant at 3 am The surgery took 6 hours then he stayed 3 days in ICU today he is in regular room . Alhamdulilah.
we got the call on November 14 at 11:30 pm And my husband had his liver transplant at 3 am The surgery took 6 hours then he stayed 3 days in ICU today he is in regular room . Alhamdulilah.
Mysa1981
in
PBC Foundation
2 years ago
Kidney biopsy for elevated creatinine
My 68 yr old husband had a kidney transplant 7 weeks ago. We are at the hospital now getting a biopsy due to his rising creatinine levels. I have been so worried that his body is rejecting the new kidney, but after reading these informative posts, I am hopeful and less nervous.
My 68 yr old husband had a kidney transplant 7 weeks ago. We are at the hospital now getting a biopsy due to his rising creatinine levels. I have been so worried that his body is rejecting the new kidney, but after reading these informative posts, I am hopeful and less nervous.
sukki2022
in
Kidney Disease
2 years ago
APPROVED FOR KIDNEY TRANSPLANT BUT NEED A DONOR...HOW DO I GET MY STORY OUT? So scared about dialysis before getting a kidney.
Hi Sweet Friends.... hope everyone is hanging in there and doing well. I was approved for transplant at Mayo and am so grateful. My dear husbandand wanted to give me on of his kidneys but during his testing they found dangerously low platelets and found he has idiopathic ITP. After 2 hospitalizations
Hi Sweet Friends.... hope everyone is hanging in there and doing well. I was approved for transplant at Mayo and am so grateful. My dear husbandand wanted to give me on of his kidneys but during his testing they found dangerously low platelets and found he has idiopathic ITP. After 2 hospitalizations
Highgfr
in
Kidney Disease
2 years ago
Have you been diagnosed with KRAS or NTRK+ lung cancer?
Hello We are looking for people who have been diagnosed with KRAS or NTRK tumours to get involved and share their experiences. If you would like to share how your diagnosis and treatment has affected please let me know and I will follow up with a private message, best wishes Lorraine @Roy Castle
Hello We are looking for people who have been diagnosed with KRAS or NTRK tumours to get involved and share their experiences. If you would like to share how your diagnosis and treatment has affected please let me know and I will follow up with a private message, best wishes Lorraine @Roy Castle
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
2 years ago
Post Liver Transplant
I am worried about how my hands, body and voice always shaky and is been 5 weeks after my operation. I get dizzy when I am standing at one place for long. I would like to know from someone who has been in my position if I honestly will go back to being the same. Like going gym, lifting weight, playing
I am worried about how my hands, body and voice always shaky and is been 5 weeks after my operation. I get dizzy when I am standing at one place for long. I would like to know from someone who has been in my position if I honestly will go back to being the same. Like going gym, lifting weight, playing
Kamx
in
British Liver Trust
2 years ago
Hot Topic: Breaking Down New Medicare Coverage for Immunosuppressive Drugs
The Medicare coverage for immunosuppressive drugs for kidney transplant patients has recently been expanded. But what does this new benefit cover and who is eligible? Tune in to our latest podcast episode to learn more. https://www.podbean.com/ew/pb-gbqrp-12f3a86
The Medicare coverage for immunosuppressive drugs for kidney transplant patients has recently been expanded. But what does this new benefit cover and who is eligible? Tune in to our latest podcast episode to learn more. https://www.podbean.com/ew/pb-gbqrp-12f3a86
JackieJ_NKF
Partner
in
Kidney Transplant
2 years ago
12years
it’s has been 12 yrs since I was diagnosed with with stage 4 lung cancer I’ve have surgery 2 lots of chemo, immunotherapy, and radiotherapy It has been over 3 years since my radiotheyand I now have 3 monthly ct scans and all is stable I’m under the care of Christie’s in Manchester and would like
it’s has been 12 yrs since I was diagnosed with with stage 4 lung cancer I’ve have surgery 2 lots of chemo, immunotherapy, and radiotherapy It has been over 3 years since my radiotheyand I now have 3 monthly ct scans and all is stable I’m under the care of Christie’s in Manchester and would like
Liampaul03
in
The Roy Castle Lung Cancer Foundation
2 years ago
You are what you breath - but what you breath varies...
[i]MY reason for writing this is one or two people liked my answers about the strange world of breathing. I am not a clinician, nor a scientist so beware taking me literally. However some things are self-evident dear Watson. [/i] We breath in a mixture of oxygen (20%) , nitrogen (79%) and a tiny amount
[i]MY reason for writing this is one or two people liked my answers about the strange world of breathing. I am not a clinician, nor a scientist so beware taking me literally. However some things are self-evident dear Watson. [/i] We breath in a mixture of oxygen (20%) , nitrogen (79%) and a tiny amount
Timberman
in
Lung Conditions Community Forum
1 year ago
REFERRED
does any one know how quick it is to get to see liver transplant team at QE hospital after being referred be liver DR at hospital
does any one know how quick it is to get to see liver transplant team at QE hospital after being referred be liver DR at hospital
lonmallin50
in
British Liver Trust
2 years ago
Psych evaluation
Hi! This is for those of you who are either on the liver transplant list or who have had a transplant. What I'd like to know is whether you were given a psychological evaluation or a one-to-one conversion with a trained therapist as to how to deal with serious organ rejection should it occur.
Hi! This is for those of you who are either on the liver transplant list or who have had a transplant. What I'd like to know is whether you were given a psychological evaluation or a one-to-one conversion with a trained therapist as to how to deal with serious organ rejection should it occur.
Bikafella
in
British Liver Trust
2 years ago
Creatinine climbing, change in bp meds
My husband had his kidney transplant 14 years ago. His creatinine started climbing in sept and is now 4.66. He has swelling in his legs and feet He was taken off of Losartin and placed on hydralazine. He also takes amlodipine and atenolol. He also takes simvistatin. Do any of you have any problems
My husband had his kidney transplant 14 years ago. His creatinine started climbing in sept and is now 4.66. He has swelling in his legs and feet He was taken off of Losartin and placed on hydralazine. He also takes amlodipine and atenolol. He also takes simvistatin. Do any of you have any problems
dvassey
in
Kidney Disease
2 years ago
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