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KRAS G13D
Hi All, I'm a recently diagnosed Stage IV 4B NSCLC patient (24 years old) with the KRAS G13D genetic mutation identified in my genetic screening. I've been in 2 rounds of chemo with Cisplatin + Pexemetred with plans to add Keytruda to round 3 and 4. However, my cancer is not responding to my 2nd rounds
Hi All, I'm a recently diagnosed Stage IV 4B NSCLC patient (24 years old) with the KRAS G13D genetic mutation identified in my genetic screening. I've been in 2 rounds of chemo with Cisplatin + Pexemetred with plans to add Keytruda to round 3 and 4. However, my cancer is not responding to my 2nd rounds
CuteLabrador123
in
Lung Cancer Support
2 years ago
Has anyone had Covid post-transplant?
I am finding my anxiety about Covid is impacting the quality of my life. I have periods of generalized anxiety where EVERYTHING scares me: from Global Warming to the drought in the western states to my husband dying and leaving me alone. After much thought, I think it all stems from the onset of Covid
I am finding my anxiety about Covid is impacting the quality of my life. I have periods of generalized anxiety where EVERYTHING scares me: from Global Warming to the drought in the western states to my husband dying and leaving me alone. After much thought, I think it all stems from the onset of Covid
Djangosmom
in
Kidney Transplant
1 year ago
Long story but about to have transplant assessment but really suffering with ascities, odeama and looking for advice re drains
Hi, My husband is going in for a liver transplant assessment next week. He has been very ill with cirrhosis for many years but the past 3 years he has been admitted to hospital with Hepatic Encephalopathy on several occasions and has been continuously jaundiced for over a year now, his quality of
Hi, My husband is going in for a liver transplant assessment next week. He has been very ill with cirrhosis for many years but the past 3 years he has been admitted to hospital with Hepatic Encephalopathy on several occasions and has been continuously jaundiced for over a year now, his quality of
Elvishaslefttheroom
in
British Liver Trust
1 year ago
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Anyone with gastroparesis?
Hi all. I have gastroparesis (slow emptying of the stomach). This started when I went into failure in fall 2021, and just after my first and only bout of diverticulitis. I am now even wondering if what I had was that. Anyway, I received a kidney transplant in August 2022 and am doing well except for
Hi all. I have gastroparesis (slow emptying of the stomach). This started when I went into failure in fall 2021, and just after my first and only bout of diverticulitis. I am now even wondering if what I had was that. Anyway, I received a kidney transplant in August 2022 and am doing well except for
Hidden
in
Kidney Transplant
1 year ago
Fact of the day 2nd January
A very fitting fact for you today 1968 Christiaan Barnard performs the world's second heart transplant on Philip Blaiberg
A very fitting fact for you today 1968 Christiaan Barnard performs the world's second heart transplant on Philip Blaiberg
Valentina98
in
British Heart Foundation
1 year ago
Life beyond Myelofibrosis
I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was
I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was
Scaredy_cat
in
MPN Voice
1 year ago
Coughing up blood and CT scan results
Hello, I'm new here. I'm wondering if anyone can advise me if possible. I've been coughing up some blood and bloody mucus over the last couple of months. Went to the GP and they referred me on the 2 week pathway. I had a chest x-ray last week which came back clear. I had a chest CT scan yesterday and
Hello, I'm new here. I'm wondering if anyone can advise me if possible. I've been coughing up some blood and bloody mucus over the last couple of months. Went to the GP and they referred me on the 2 week pathway. I had a chest x-ray last week which came back clear. I had a chest CT scan yesterday and
Col178
in
The Roy Castle Lung Cancer Foundation
2 years ago
2023, time to connect?
Hello all just sharing some information. We will be restarting some new support sessions run by our lovely facilitators in the New Year. In 2022 we have run programmes of six sessions held fortnightly on topics such as: - Managing during treatment - Managing with a mutation driven lung cancer -
Hello all just sharing some information. We will be restarting some new support sessions run by our lovely facilitators in the New Year. In 2022 we have run programmes of six sessions held fortnightly on topics such as: - Managing during treatment - Managing with a mutation driven lung cancer -
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
2 years ago
introducing myself...
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a Stem Cell Transplant at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same? looking forward to hearing
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a Stem Cell Transplant at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same? looking forward to hearing
jmcasbar
in
Leukaemia Support
1 year ago
Meningioma diagnoses
My GP called me today about my MRI results and I have been told they think it’s a Meningioma tumour in my frontal lobe. Didn’t even ask the size as was in shock. But my only symptom is Pulsatile tinnitus. Apparently my scans are going to be reviewed by the team on 23rd December and I should then
My GP called me today about my MRI results and I have been told they think it’s a Meningioma tumour in my frontal lobe. Didn’t even ask the size as was in shock. But my only symptom is Pulsatile tinnitus. Apparently my scans are going to be reviewed by the team on 23rd December and I should then
Becky130777
in
Meningioma Support
2 years ago
NEW FDA approval/indication for injection that can now be given during lung surgery to detect cancer
Last week the FDA approved a new indication for an injection that was already approved for ovarian cancer. The injection is call Cytalux and is given before lung surgery. With the use of this injection, during surgery an infrared light is used to make it cancer easier to detect and remove. Read more
Last week the FDA approved a new indication for an injection that was already approved for ovarian cancer. The injection is call Cytalux and is given before lung surgery. With the use of this injection, during surgery an infrared light is used to make it cancer easier to detect and remove. Read more
Miranda_GO2
Partner
in
Lung Cancer Support
2 years ago
Staph infection from IV
Hi team I was recently diagnosed with a staph infection / cellulitis from the IV from a hospital stay. I am on antibiotics now but am concerned due to being a kidney transplant recipient . Has anyone had this before?
Hi team I was recently diagnosed with a staph infection / cellulitis from the IV from a hospital stay. I am on antibiotics now but am concerned due to being a kidney transplant recipient . Has anyone had this before?
Beachvibe
in
Kidney Transplant Patient Support
2 years ago
New drug approved for those with KRAS G-12C
On December 12th, 2022, the Food and Drug Administration (FDA) approved Krazati (adagrasib) for treatment of non-small cell lung cancer (nsclc) where there is a KRAS G12C mutation. This approval is for patients who have received at least one line of prior treatment such as chemotherapy. The FDA based
On December 12th, 2022, the Food and Drug Administration (FDA) approved Krazati (adagrasib) for treatment of non-small cell lung cancer (nsclc) where there is a KRAS G12C mutation. This approval is for patients who have received at least one line of prior treatment such as chemotherapy. The FDA based
Miranda_GO2
Partner
in
Lung Cancer Support
2 years ago
Scared
I’ve been feeling a bit rubbish very tired ,had some tests showing elevated ALT ranging between 47 and 76 this year also raised ferritin around 300 . Diagnosed by this and a fibroscan showed f4 fibrosis /early Cirrosis and fatty liver disease . Awaiting full bloods but I know 30 years ago they saw
I’ve been feeling a bit rubbish very tired ,had some tests showing elevated ALT ranging between 47 and 76 this year also raised ferritin around 300 . Diagnosed by this and a fibroscan showed f4 fibrosis /early Cirrosis and fatty liver disease . Awaiting full bloods but I know 30 years ago they saw
Kikidee08
in
British Liver Trust
2 years ago
Kidney Transplant
Hi Could I please have a chat to a male doctor, or specialist, about that after effects of the operation. I had several years ago
Hi Could I please have a chat to a male doctor, or specialist, about that after effects of the operation. I had several years ago
AS52
in
Kidney Disease
2 years ago
I Feel like I should be grateful to be on the waiting list for a new liver. But I really don’t feel grateful to towards the kind doctors.
I hate the way I feel about the thought of a new liver transplant. I have made it know to doctors about my feeling towards a new liver transplant. I feel great at the moment and I only on one type of tablet a day. For my liver condition. After I have a new liver transplant I will be on 27 different
I hate the way I feel about the thought of a new liver transplant. I have made it know to doctors about my feeling towards a new liver transplant. I feel great at the moment and I only on one type of tablet a day. For my liver condition. After I have a new liver transplant I will be on 27 different
LucyBarrett
in
British Liver Trust
2 years ago
I really don’t want a liver transplant but do not know how to get of the list for good.
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
LucyBarrett
in
British Liver Trust
2 years ago
What do you do and what support do you get if you really don’t want a liver transplant
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
LucyBarrett
in
British Liver Trust
2 years ago
5 Presents that Make Life with a Kidney Transplant Easier
If you know someone who recently received a kidney transplant, you don't need us to tell you how exciting and life-changing this event is. It's completely natural to want to celebrate the surgery, but you may not know how to do so. To learn more, visit: https://www.kidney.org/newsletter/5-presents-make-life-kidney-transplant-easier
If you know someone who recently received a kidney transplant, you don't need us to tell you how exciting and life-changing this event is. It's completely natural to want to celebrate the surgery, but you may not know how to do so. To learn more, visit: https://www.kidney.org/newsletter/5-presents-make-life-kidney-transplant-easier
JackieJ_NKF
Partner
in
Kidney Transplant
2 years ago
Covid Tests for Vulnerable People
Dear All, I am repeating on this Forum, a 'Post' I put on the Kidney Transplant forum, regarding Covid Test Availability. Essentially these Test ARE 'Still Available' to Vulnerable People. Solid Organ Transplant recipients, like myself, automatically 'qualify'- as might many 'others' on here. You can
Dear All, I am repeating on this Forum, a 'Post' I put on the Kidney Transplant forum, regarding Covid Test Availability. Essentially these Test ARE 'Still Available' to Vulnerable People. Solid Organ Transplant recipients, like myself, automatically 'qualify'- as might many 'others' on here. You can
AndrewT
in
Vasculitis UK
2 years ago
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