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Not Eating
Hi Everyone, I've not been on here for a while but could do with some advice. My partner has been in hospital twice over the last 3 years with alcoholic hepatitis (the second time his liver was failing but the steroids seemed to work) and he was back to normal. Almost a year on from his last hospital
Hi Everyone, I've not been on here for a while but could do with some advice. My partner has been in hospital twice over the last 3 years with alcoholic hepatitis (the second time his liver was failing but the steroids seemed to work) and he was back to normal. Almost a year on from his last hospital
MissS_Zebra9
in
British Liver Trust
5 months ago
Liver stent
Hi.im new here .my husband was diagnosed with cirrhosis Nash last year.. fluid gathers very quickly and every 3/4weeks he has it drained.doctor is talking about a liver stent.has anyone had this and had it been successful.thanks
Hi.im new here .my husband was diagnosed with cirrhosis Nash last year.. fluid gathers very quickly and every 3/4weeks he has it drained.doctor is talking about a liver stent.has anyone had this and had it been successful.thanks
Gweans
in
British Liver Trust
5 months ago
organizing
I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and Rare Liver Diseases Director, Kristin Hatcher, from the Global Liver Institute. She is trying to lobby for a routine liver panel to be part
I started organizing all my notes yesterday from the Summit. I will begin to share all of this with you today. One of the women I met was the Pediatrics and Rare Liver Diseases Director, Kristin Hatcher, from the Global Liver Institute. She is trying to lobby for a routine liver panel to be part
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
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blood test results for liver. Advice welcome please
maybe I don’t need to be on this page, but thought I’d put the question out there. Up until recently my husband’s blood test results have always been pretty good. But around the time he was diagnosed with chronic degenerative spinal disease, his liver results have gone a bit awry. However, at the
maybe I don’t need to be on this page, but thought I’d put the question out there. Up until recently my husband’s blood test results have always been pretty good. But around the time he was diagnosed with chronic degenerative spinal disease, his liver results have gone a bit awry. However, at the
Doraflora
in
British Liver Trust
6 months ago
Corrie15
Had liver transplant 8yrs ago, taking 1.5mg of adoport and mofetil am & pm but the doctors want me to put me on Envarus but don't know why, but they have said that my kidneys are not has good has they should. Any replies would be great.
Had liver transplant 8yrs ago, taking 1.5mg of adoport and mofetil am & pm but the doctors want me to put me on Envarus but don't know why, but they have said that my kidneys are not has good has they should. Any replies would be great.
Corriemay15
in
British Liver Trust
6 months ago
Following liver transplant, having kidney problems- any advice
I am now 66y old, and had a liver transplant in Sept 2022. First I was recovering well, then picked up CMV (cyto megalo virus(!)). Developing kidney problems, currently 21% kidney function, and creatinine of 230. Can anyone offer any thoughts, advice etc? Grateful for your input.
I am now 66y old, and had a liver transplant in Sept 2022. First I was recovering well, then picked up CMV (cyto megalo virus(!)). Developing kidney problems, currently 21% kidney function, and creatinine of 230. Can anyone offer any thoughts, advice etc? Grateful for your input.
taar
in
Kidney Transplant
6 months ago
Questions about Liver Transplantation
Hello everyone, The Blue Faery team is currently planning our next workshop, where we will discuss liver transplantation. Please feel free to submit your questions in the comments, and we will be sure to include them in our workshop! We will be posting more details about the upcoming workshop next
Hello everyone, The Blue Faery team is currently planning our next workshop, where we will discuss liver transplantation. Please feel free to submit your questions in the comments, and we will be sure to include them in our workshop! We will be posting more details about the upcoming workshop next
AllysonBlueFaery
Community Ambassador
in
Blue Faery Liver Cancer
6 months ago
Liver disease, mast cells and antihistamine
I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a treatment.. I wondered if anything was known about autoimmune liver diseases, mast cells and antihistamines. I found this 2017 research paper https://
I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a treatment.. I wondered if anything was known about autoimmune liver diseases, mast cells and antihistamines. I found this 2017 research paper https://
Readlots
in
PBC Foundation
6 months ago
Ttck1825
I had a liver transplant in 2016 now last few years health isn't going great, and Dr wants to change my adoport to envarus, but my story is long. But just for now does envarus stop bad headaches, cause weight gain. Plus suffer low sodium levels and type 3c diabetic. That's me for now
I had a liver transplant in 2016 now last few years health isn't going great, and Dr wants to change my adoport to envarus, but my story is long. But just for now does envarus stop bad headaches, cause weight gain. Plus suffer low sodium levels and type 3c diabetic. That's me for now
Corriemay15
in
British Liver Trust
6 months ago
Why am I being tested for Hep B?
I have had Budd Chiari for nearly 14 years, I have a shunt and luckily everything has been going fine since then. I have an app every 6 months for an ultrasound scan, then my outpatient app and bloods taken. I had an appointment yesterday and like normal I was in and out quite quickly as the scan showed
I have had Budd Chiari for nearly 14 years, I have a shunt and luckily everything has been going fine since then. I have an app every 6 months for an ultrasound scan, then my outpatient app and bloods taken. I had an appointment yesterday and like normal I was in and out quite quickly as the scan showed
Holsb
in
British Liver Trust
6 months ago
Lumps, bumps & hernias
I'm posting to find out if anyone else has similar issues to myself. I have cirrhosis, was diagnosed around 9 years ago, have no ascites or varices, but I do have portal vein hypertension and a grossly enlarged spleen. About a year ago I started noticing small veins on my stomach, I think they are called
I'm posting to find out if anyone else has similar issues to myself. I have cirrhosis, was diagnosed around 9 years ago, have no ascites or varices, but I do have portal vein hypertension and a grossly enlarged spleen. About a year ago I started noticing small veins on my stomach, I think they are called
tonicwater
in
British Liver Trust
6 months ago
Fibroscan result waiting time?
Please can somebody tell me how long it takes to receive results for a fibroscan? I started this journey in November 2023 after asking for a general check-up at my GP surgery because of some non-liver related issues. I had no awareness at all that my liver could be damaged. After a few rounds of blood
Please can somebody tell me how long it takes to receive results for a fibroscan? I started this journey in November 2023 after asking for a general check-up at my GP surgery because of some non-liver related issues. I had no awareness at all that my liver could be damaged. After a few rounds of blood
Trotter2024
in
British Liver Trust
6 months ago
First Time With Aspergillosis
I had a liver transplant at age 17 due to a severe genetic mitochondrial liver disease. I've had a lot of complications since the. MRSA bacteremia, C.Diff, sepsis x4, Multiple GI bleeds, Lung disease Including COPD, chronic atelectasis, and now aspergillus. I also have a lot of other organ issues due
I had a liver transplant at age 17 due to a severe genetic mitochondrial liver disease. I've had a lot of complications since the. MRSA bacteremia, C.Diff, sepsis x4, Multiple GI bleeds, Lung disease Including COPD, chronic atelectasis, and now aspergillus. I also have a lot of other organ issues due
Diffuse_Confuse
in
Aspergillosis and Rare Fungal Infection Support
6 months ago
Help. Icu
Hi all I'm new here but I'm also lost and don't know what to do. My mom currently needs a liver transplant but she has pneumonia and they had her sedated now she's awake but won't listen to orders.
Hi all I'm new here but I'm also lost and don't know what to do. My mom currently needs a liver transplant but she has pneumonia and they had her sedated now she's awake but won't listen to orders.
Joccelyn
in
ICUsteps
6 months ago
Heart failure and Entresto anyone?
I have had AFib for 11 years did well on Multaq for the last 7 and all of a sudden it stopped working. Spent 4 days in the hospital and they told me I now have heart failure - cardiologist has recommended a pace and ablate in January and offered me Entresto but I hate to add new meds to my already mix
I have had AFib for 11 years did well on Multaq for the last 7 and all of a sudden it stopped working. Spent 4 days in the hospital and they told me I now have heart failure - cardiologist has recommended a pace and ablate in January and offered me Entresto but I hate to add new meds to my already mix
PamJN
in
Atrial Fibrillation Support
10 months ago
Throat tightness
Hello has anyone had tightness in throat like pressure feeling? I can breathe and swallow ok but it's so annoying. I've been suffering severe fatigue and feeling like my body is full of led my GP continues to take blood and did mention I have hyperthyroidism before Christmas but didn't give me any
Hello has anyone had tightness in throat like pressure feeling? I can breathe and swallow ok but it's so annoying. I've been suffering severe fatigue and feeling like my body is full of led my GP continues to take blood and did mention I have hyperthyroidism before Christmas but didn't give me any
Joylene123
in
Thyroid UK
8 months ago
Stage 4 fibrosis of the Liver
I contracted Hepatitis A in 2020, undiagnosed for 2 months. Six months later I was told I had NALD and last year I was sent for ultrasound scans and blood tests to check for cancer. In March this year, I was told I had Stage 4 Fibrosis of the liver. Does anyone know if this can be reversed, any treatments
I contracted Hepatitis A in 2020, undiagnosed for 2 months. Six months later I was told I had NALD and last year I was sent for ultrasound scans and blood tests to check for cancer. In March this year, I was told I had Stage 4 Fibrosis of the liver. Does anyone know if this can be reversed, any treatments
Wi-llow
in
British Liver Trust
6 months ago
ACR (Microalbumin/Creatinine Ratio)
My Urine’s ACR result is 8.4 mg/mmol. HbA1C is 8.5. I am very worried. Kindly advise or provide insights.
My Urine’s ACR result is 8.4 mg/mmol. HbA1C is 8.5. I am very worried. Kindly advise or provide insights.
Limeandlemon
in
Diabetes India
8 months ago
Living With Liver Disease
Good morning everyone! I'm speaking at this event on Saturday along with an HCC survivor. She received a liver transplant that saved her life. I would love to see you in person if you live in or near the Nashville area. The event is free and sponsored by the Mid-South Liver Alliance. Hope to see you
Good morning everyone! I'm speaking at this event on Saturday along with an HCC survivor. She received a liver transplant that saved her life. I would love to see you in person if you live in or near the Nashville area. The event is free and sponsored by the Mid-South Liver Alliance. Hope to see you
AndreaWilson_Founder
Caregiver
in
Blue Faery Liver Cancer
6 months ago
'Wednesday Word"
Since my question yesterday was concerning 'brain fog', I thought my word for today should be [u][i]
encephalopathy
[/i][/u] - here are specifics about the word This is a blanket term referring to any brain dysfunction. It can commonly be called 'brain fog'. However, [u][i]
encephalopathy
Since my question yesterday was concerning 'brain fog', I thought my word for today should be [u][i]
encephalopathy
[/i][/u] - here are specifics about the word This is a blanket term referring to any brain dysfunction. It can commonly be called 'brain fog'. However, [u][i]
encephalopathy
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
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