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For Those Forum Members Taking B1 To Good Effect And Wondering What Other Health Benefit They May Be Getting From Their Use Of B1
Long before Dr. Costantini was using vitamin B1 in his patients with PD, vitamin B1 was already being used as a supplement to help maintain better health. Many on this forum who are using vitamin B1 to good effect, in terms of their PD symptoms, may be wondering what other health benefit B1 may hold
Long before Dr. Costantini was using vitamin B1 in his patients with PD, vitamin B1 was already being used as a supplement to help maintain better health. Many on this forum who are using vitamin B1 to good effect, in terms of their PD symptoms, may be wondering what other health benefit B1 may hold
chartist
in
Cure Parkinson's
12 days ago
advice about intravenous iron
I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise
I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise
Divii
in
Cure Parkinson's
13 days ago
advice about iron infusion
I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise
I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise
Divii
in
Pernicious Anaemia Society
13 days ago
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Some useful info (although most of member may already know)
Get support for Parkinson’s by focusing on fitness and nutrition. According to research or other evidence, the following self-care steps may be helpful. Discover coenzyme Q10 Slow the disease’s progression by taking 1,200 mg a day of this powerful nutrient Get support from C and E Help delay the
Get support for Parkinson’s by focusing on fitness and nutrition. According to research or other evidence, the following self-care steps may be helpful. Discover coenzyme Q10 Slow the disease’s progression by taking 1,200 mg a day of this powerful nutrient Get support from C and E Help delay the
Farooqji
in
Cure Parkinson's
14 days ago
Help with Math
What is the conversion rate for 1/2 tab of generic Sinemet 25/100 and Mucuna Pruriens (Now brand containing 15% standardized L-Dopa? 2 capsules per dose=120 mg L-Dopa. Thanks Thanks
What is the conversion rate for 1/2 tab of generic Sinemet 25/100 and Mucuna Pruriens (Now brand containing 15% standardized L-Dopa? 2 capsules per dose=120 mg L-Dopa. Thanks Thanks
j4dx
in
Cure Parkinson's
14 days ago
Low dhea-s in parkinsons patient with dementia
My father was diagnosed with Parkinsons and sudden onset of dementia following a bout of covid 19 2 years ago. He is not very responsive to levodopa after that and after several consults with neurologists have found no other solutions. Tam some tests based on PD panel by Laura Mischley, and gave him
My father was diagnosed with Parkinsons and sudden onset of dementia following a bout of covid 19 2 years ago. He is not very responsive to levodopa after that and after several consults with neurologists have found no other solutions. Tam some tests based on PD panel by Laura Mischley, and gave him
Cskhan
in
Cure Parkinson's
18 days ago
Carpidopa RX
Do many people JUST take carbidopa with mucuna for better results? I want to ask my MDS for a RX, but I was quoted today that 30 would cost $248! Since it’s an old generic, I thought it would be dirt cheap! I’m wondering if it’s worth it to help Mucuna cross the BBB for better efficacy. I’m just dipping
Do many people JUST take carbidopa with mucuna for better results? I want to ask my MDS for a RX, but I was quoted today that 30 would cost $248! Since it’s an old generic, I thought it would be dirt cheap! I’m wondering if it’s worth it to help Mucuna cross the BBB for better efficacy. I’m just dipping
Ob6842
in
Cure Parkinson's
6 months ago
Webinar on Atypical Parkinsonism from PCLA (Parkinson's Community Los Angeles)
Atypical Parkinsonisms (www.pcla.org) Date & Time
July 12 11am PST // GMT - 8
https://pcla.us13.list-manage.com/track/click?u=f98a2ddbff31f952712a71bf0&id=60a1a1735e&e=b75464422e Description from the advert : Atypical Parkinsonisms present with some of the signs and symptoms of Parkinson's
Atypical Parkinsonisms (www.pcla.org) Date & Time
July 12 11am PST // GMT - 8
https://pcla.us13.list-manage.com/track/click?u=f98a2ddbff31f952712a71bf0&id=60a1a1735e&e=b75464422e Description from the advert : Atypical Parkinsonisms present with some of the signs and symptoms of Parkinson's
pdpatient
in
Cure Parkinson's
20 days ago
Is it safe to use levodopa if I have glaucoma?
https://youtu.be/WwRhQOd0uBU?si=XZ58Ri197a7C0i8f
https://youtu.be/WwRhQOd0uBU?si=XZ58Ri197a7C0i8f
Thal
in
Cure Parkinson's
22 days ago
Parkinson- insomnia & increase in sexual urge
i am 50M and have been diagnosed with Parkinson’s some 2 years back. Taking pramipixole since then . My doctor has not yet started levodopa saying its effective for only 4-5 year so will give only when symptoms worsened. One symptom/ side effect which I have not read anywhere is the increase in urge
i am 50M and have been diagnosed with Parkinson’s some 2 years back. Taking pramipixole since then . My doctor has not yet started levodopa saying its effective for only 4-5 year so will give only when symptoms worsened. One symptom/ side effect which I have not read anywhere is the increase in urge
Iambest
in
Cure Parkinson's
24 days ago
How do you grow mucuna pruriens?
I wanted to share a try I'm undertaking as an alternative to buying a jar of mucuna pruriens through Amazon, which by the way I never considered as a former Sinemet user. Instead, I've decided to grow the beans myself and witness their growth firsthand. It has no medical purpose for me since I no longer
I wanted to share a try I'm undertaking as an alternative to buying a jar of mucuna pruriens through Amazon, which by the way I never considered as a former Sinemet user. Instead, I've decided to grow the beans myself and witness their growth firsthand. It has no medical purpose for me since I no longer
Esperanto
in
Cure Parkinson's
25 days ago
Rethinking Parkinson’s Disease: could dopamine reduction therapy have clinical utility. (The article)
The replies in Michel0220's contribution regarding Jonathan Sackner Bernstein's theory on dopamine restriction naturally pertain to the video. However, I am missing the scientific basis for this. It can be found in JSB’s recent article in the Journal of Neurology. While it is somewhat understandable,
The replies in Michel0220's contribution regarding Jonathan Sackner Bernstein's theory on dopamine restriction naturally pertain to the video. However, I am missing the scientific basis for this. It can be found in JSB’s recent article in the Journal of Neurology. While it is somewhat understandable,
Esperanto
in
Cure Parkinson's
25 days ago
I just read a post I had gotten to from a link in another past and can’t find it now
I am really losing it. I was teasing a post this morning that had a link to a PSC I believe that was written almost like a fairy tale (Once upon a time). It mentioned Chinese medicine and the premise that too much levodopa could be toxic. Is anyone familiar with this link?
I am really losing it. I was teasing a post this morning that had a link to a PSC I believe that was written almost like a fairy tale (Once upon a time). It mentioned Chinese medicine and the premise that too much levodopa could be toxic. Is anyone familiar with this link?
Jmellano
in
Cure Parkinson's
28 days ago
levodopa and augmentation
I have had RLS for over 10 years and controlling symptoms with oxycodone. I have also been diagnosed with Parkinson’s disease and prescribed Levodopa. Can someone please confirm whether or not this is a dopamine agonist like Pramipexole. If so does it also lead to augmentation?
I have had RLS for over 10 years and controlling symptoms with oxycodone. I have also been diagnosed with Parkinson’s disease and prescribed Levodopa. Can someone please confirm whether or not this is a dopamine agonist like Pramipexole. If so does it also lead to augmentation?
Covenant1962
in
Restless Legs Syndrome
29 days ago
Solving Restless Legs
Medscape have a report issued on June 14th on some new interesting research It is entitled; Solving Restless Legs: Largest Genetic Study to Date May Help and is written by Lisa Marshall and published in Medscape June 14, 2024 I think it is worth our while to know something about it so for
Medscape have a report issued on June 14th on some new interesting research It is entitled; Solving Restless Legs: Largest Genetic Study to Date May Help and is written by Lisa Marshall and published in Medscape June 14, 2024 I think it is worth our while to know something about it so for
thorp
in
Restless Legs Syndrome
1 month ago
Effective medication for dystonia as first symptom?
Hi there, I am in my 30s and experience "exercise-induced" foot dystonia as first symptom to Parkinson's. It has gotten to a point that I cannot walk or exercise for longer than a few minutes before my foot starts to act up. Botulinetoxine works a bit but not enough as new muscles seem to act up when
Hi there, I am in my 30s and experience "exercise-induced" foot dystonia as first symptom to Parkinson's. It has gotten to a point that I cannot walk or exercise for longer than a few minutes before my foot starts to act up. Botulinetoxine works a bit but not enough as new muscles seem to act up when
BlockRuys
in
Cure Parkinson's
1 month ago
Opicapone
Hello everyone, I was wondering if anyone has taken Opicapone 50 mg and if they have experienced any side effects. I have tried both 50 mg and 25 mg but overdosed with both and ended up in A&E, where I had a terrible stay but that is a separate story. When it was prescribed to me I was not made aware
Hello everyone, I was wondering if anyone has taken Opicapone 50 mg and if they have experienced any side effects. I have tried both 50 mg and 25 mg but overdosed with both and ended up in A&E, where I had a terrible stay but that is a separate story. When it was prescribed to me I was not made aware
Daisies22
in
Cure Parkinson's
1 month ago
Too much levodopa?
Other than dyskinesias what clues have people received that tell them that their dosage is too high?
Other than dyskinesias what clues have people received that tell them that their dosage is too high?
puretone
in
Cure Parkinson's
1 month ago
spending lote of money
Hello everybody. My father, who has a PSP, still maintains some independence. He undergoes physiotherapy twice a week and is taking levodopa. Lately he has been spending a lot of money, every day. Someone with similar experience? How to deal with this situation?
Hello everybody. My father, who has a PSP, still maintains some independence. He undergoes physiotherapy twice a week and is taking levodopa. Lately he has been spending a lot of money, every day. Someone with similar experience? How to deal with this situation?
angy24
in
PSP Association
1 month ago
Parkinson's Arm Pain Mystery Solved: Overuse Injury Due to Tremor. Update - What is Helping
I've suffered increasing tremor over the last few months and along with that, increasing arm pain. I could find no medical references for Parkinson’s and arm pain, and the diagnostic materials on arm pain did not contain anything that fit. Be all that as it may, this matter is not hard to understand
I've suffered increasing tremor over the last few months and along with that, increasing arm pain. I could find no medical references for Parkinson’s and arm pain, and the diagnostic materials on arm pain did not contain anything that fit. Be all that as it may, this matter is not hard to understand
park_bear
in
Cure Parkinson's
1 month ago
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