Experiences with

Levodopa / Carbidopa / Entacapone

I was diagnosed with PD since 4 years and I take Mucuna capsules, Carbidopa Levodopa 4x daily and my neurologist recently added Entacapone to my regimen but nothing has helped this nasty symptom. Any suggestions will be appreciated. Maddie

I'm on carbidopa/levodopa, entacapone and amantadine (100 mg 3x/day). Do you find it causes swelling in the feet, lower legs and hands? If you came off the drug, what was the upside and the downside? How did you come off of it? I understand that you can't quit it abruptly. Thanks for reponses

Anyone taking Nourianz and Gocovori together with Carbidopa /Levodopa? I am following this regimen which has been largely benign. Just wanted to know if anyone else has experiences to share.

I have an appointment for my annual check-up on the 19th. Before my upcoming visit, I emailed my provider about augmentation and the pramipexole, but they have not answered other than a query about what 'augmentation' means. I have read a few articles the V.A. has on the V.A. website and, in my opinion

Diagnosed in 2022, late onset at age 75 with slight symptoms before. Slightly dragging my left foot and unable to run was alarming and led me to get checked out. A recommended DATSCAN REVEALED a Dopamine shortage but not severe. Very slight additional symptoms. Doc recommended a very low dose initially

Hi all..... So, I've been following the forum for years. I rarely post because I haven't had much to contribute. First off, let me express my most sincere thanks to all of the regular contributors that this forum has been blessed with. I could list them but you know who they are. I must mention

What do you do when carbidopa-levodopa "off" times get inconsistent, more frequent, or it seems the C/L didn't work at all? I get extremely uncomfortable, uncoordinated and so incredibly weak.Thank you!

Hello, I've been dealing with GCA since 2019 and was only diagnosed after losing sight in my left eye. I live in Indiana, USA, and could find no information, help or support. It seemed no one knew what it was. HU has been a blessing, and that group kept me sane and provided me with all the information

I'm still kind of processing this; just numb and flat. At my last visit, my neuro-ophthalmologist told me he wanted me to see my neurologist. I've been seeing one every six months. During my high school years, I had epileptic seizures and was on a low-maintenance dose of meds at the onset of GCA.

Hi all, I’m 7 years post diagnosis and about 5 years into Carbidopa Levodopa medication. I am fortunate that I don’t need c/l to sleep so I generally don’t take any meds after dinner. The final wear off lasts anywhere from 30 to 60 minutes when I experience more severe symptoms and dyskinesia (I don

I have been sick since 2016-saw 5 neurologists and 3 from major hospitals in San Francisco Bay Area. Neurologist #6 tried levodopa/carbidopa and got Parkinson’s diagnosis. 2019 diagnosed with MSA probably C. Released from neurologist and now in Hospice for pain management. Has anyone experienced pain

I have been suffering with RLS for nearly 45 years. I am now 75 and it is getting worse. I used to have several days between RLS attacks. Now I have one every night. I’ve been taking carbidopa/levodopa for 2 years. Helped so much but I believe augmentation is kicking in. Where before I had to

Earlier this month, the FDA approved Amneal Pharmaceuticals’ investigational agent IPX203, an oral formulation of carbidopa/levodopa (CD/LD) extended-release capsules, as a treatment for patients with Parkinson disease (PD). Marketed as Crexont, the therapy is an oral formulation CD/LD which includes

Hi Everyone Since my Mum came out of hospital she is noticing that she gets a ‘wearing off’ period before her next medication is due (about and hour before). The consultant doesn't want to up her dosage but I'm not really sure what the next steps are! It would be really good to hear from anyone that's

I have severe Restless Leg Syndrome and I don't know what to do anymore. I tell my MS doctor and all he does is put me on more pills and when I tell him that is not working, he ups the amount of pills I take. I feel like he is not listening to me. It is so bad, I have it just about every night and

My Wife is being treated for Parkinsons since Jan 2019.Previous to that, there were times when I could smell an odour from her even after getting ready for a night out. I've no idea if others could smell it but after receiving the co-careldopa tablets, the smell never occurred. I mentioned the odour

diagnosed in 2015, My symptoms are:illegible handwriting,, bradykinesia, left foot cannot keep a clog on,Can't rollover in bed, balance issues, poor fine motor skills, can’t fold laundry, can’t put money into a wallet or items in a bag, swallowing issues, speech slurring, extreme fatigue, depression

WWP was diagnosed about 5 and a half years ago after responding greatly to 3x 25/50 co-careldopa within 5 days.Having been diagnosed as such it was, for some reason increased to 3x 50/100 a day as the continous treatment. Any idea why the increase, when the smaller amount worked and as it is known,

My husband has Parkinsons - I am always researching as to what is new and what might be helpful besides using the gold standard - Levodopa/Carbidopa for Parkinsons which incidentally was developed in the 1960's. It's high time that there is new research and new drugs available for Parkinsons patients

Hi, I'm RJ, I'm new here, male in my 50s, had PD for 7 years. I joined because I have been wabting to increase my PD knowledge base, help others when I can, and occasionally ask questions when I'm clueless! My Movement Disorder doctor is on vacation and I noticed that I only have 1 Carbidopa/Levodopa