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Experiences with
Levodopa / Carbidopa / Entacapone
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CBD oil/gumming Etc
Hello, now I know I'm pretty new to the group as my wife was diagnosed on 12th March but given a PSP diagnosis from 29th Jan but she's had the symptoms for a while now and not seen a Neurologist due to Covid (blah blah blah). But she's been on Co-careldopa and that didn't seem to help, she's now on Pregabilin
Hello, now I know I'm pretty new to the group as my wife was diagnosed on 12th March but given a PSP diagnosis from 29th Jan but she's had the symptoms for a while now and not seen a Neurologist due to Covid (blah blah blah). But she's been on Co-careldopa and that didn't seem to help, she's now on Pregabilin
Derek1uk
in
Multiple System Atrophy Trust
1 year ago
Help for FOG
My husband dx one year ago has rapidly progressed FOG and terrible balance. He falls several times weekly with only bruises thankfully. He never responded well with carbidopa and these are his main symptoms right now. I have purchased many adaptive devices ie walkers, canes, etc which he has not found
My husband dx one year ago has rapidly progressed FOG and terrible balance. He falls several times weekly with only bruises thankfully. He never responded well with carbidopa and these are his main symptoms right now. I have purchased many adaptive devices ie walkers, canes, etc which he has not found
Bonnie2022
in
Cure Parkinson's
1 year ago
Mucuna Please Read..do the homework
i have noticed there is a lot of confusion regarding Mucuna supplements and dosages. There are 2 good published studies (see below for links) showing wide discrepancies regarding how much actual Levodopa content is in the supplement. Due to it being a food supplement there is little testing and regulation
i have noticed there is a lot of confusion regarding Mucuna supplements and dosages. There are 2 good published studies (see below for links) showing wide discrepancies regarding how much actual Levodopa content is in the supplement. Due to it being a food supplement there is little testing and regulation
BuSurfer
in
Cure Parkinson's
11 months ago
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COMT inhibitors
Hubby is doing really well at the moment and I think one of the things that has helped has been the introduction of 1/2 a entacapone tablet taken at the same time as his madopar/ mucuna doses. According to his genetic report his COMT appeared to be one thing that was functioning normally so I was a
Hubby is doing really well at the moment and I think one of the things that has helped has been the introduction of 1/2 a entacapone tablet taken at the same time as his madopar/ mucuna doses. According to his genetic report his COMT appeared to be one thing that was functioning normally so I was a
LAJ12345
in
Cure Parkinson's
1 year ago
Started my grandmother on TTFD
I am my grandmother's primary care taker. I recently learned about HDT and decided to try it on her. Every morning I videotape her eating, which I will use to see if her condition gets better or worse over time. She is 87, having parkinson's for at least 25 years. In the last year her on-state dyskinesia
I am my grandmother's primary care taker. I recently learned about HDT and decided to try it on her. Every morning I videotape her eating, which I will use to see if her condition gets better or worse over time. She is 87, having parkinson's for at least 25 years. In the last year her on-state dyskinesia
philipmurray
in
Cure Parkinson's
11 months ago
Vistagen Receives Notice of Allowance for AV-101 Canadian Patent for Treatment of Dyskinesia Related to Levodopa
Vistagen Receives Notice of Allowance for AV-101 Canadian Patent for Treatment of Dyskinesia Related to Levodopa Therapy for Parkinson’s Disease Published preclinical data in widely used MPTP non-human primate model of Parkinson's disease show AV-101 reduced levodopa-induced dyskinesias without
Vistagen Receives Notice of Allowance for AV-101 Canadian Patent for Treatment of Dyskinesia Related to Levodopa Therapy for Parkinson’s Disease Published preclinical data in widely used MPTP non-human primate model of Parkinson's disease show AV-101 reduced levodopa-induced dyskinesias without
nednedned
in
Cure Parkinson's
11 months ago
What are ‘off’ periods – and how can they impact people with Parkinson’s disease?
“The ‘off’ state can kick in when levodopa is eliminated from our body – and people begin to express motor symptoms that are related to the low amount of dopamine going to the brain.” Other types include partial ‘on’ or dose failure: “Sometimes, a dose of medication may provide incomplete relief of
“The ‘off’ state can kick in when levodopa is eliminated from our body – and people begin to express motor symptoms that are related to the low amount of dopamine going to the brain.” Other types include partial ‘on’ or dose failure: “Sometimes, a dose of medication may provide incomplete relief of
Farooqji
in
Cure Parkinson's
11 months ago
Journey of Confusion
My wife's journey of confusion started on the 29th Jan 2023 when FINALLY she was diagnosed with Atypical Parkinsonism - Likely Progressive Supranuclear Palsy, this was the day our world ended at 51yrs old........ No age I'm led to believe. We had been waiting to see a Neurologist since 2021 when we
My wife's journey of confusion started on the 29th Jan 2023 when FINALLY she was diagnosed with Atypical Parkinsonism - Likely Progressive Supranuclear Palsy, this was the day our world ended at 51yrs old........ No age I'm led to believe. We had been waiting to see a Neurologist since 2021 when we
Derek1uk
in
Multiple System Atrophy Trust
1 year ago
PD and B1
I have had PD Symptoms for 7 years but only diagnosed three years ago. I am taking carbidopa/levodopa for three years now. I have read ”Parkinson’s and the B1 therapy“ on Amazon and am evaluating my next steps. At my last visit to the Neurologist, she mentioned something that could put the cabidopa
I have had PD Symptoms for 7 years but only diagnosed three years ago. I am taking carbidopa/levodopa for three years now. I have read ”Parkinson’s and the B1 therapy“ on Amazon and am evaluating my next steps. At my last visit to the Neurologist, she mentioned something that could put the cabidopa
Hidden
in
Cure Parkinson's
1 year ago
Medication Wearing Off
My meds 1.5 levodopa 3 times a day, 8 am noon 4pm Recently they kick in 50 min, 2 hours on. The last hour is wear off... I freeze, rigid, slow during this time. I get frozen usually sitting during this period and can only get relief from walking. Also having insomnia only sleeping 1 or 2 hours every
My meds 1.5 levodopa 3 times a day, 8 am noon 4pm Recently they kick in 50 min, 2 hours on. The last hour is wear off... I freeze, rigid, slow during this time. I get frozen usually sitting during this period and can only get relief from walking. Also having insomnia only sleeping 1 or 2 hours every
Auro1
in
Cure Parkinson's
1 year ago
Levodopa Phobia
https://youtu.be/FMIwfhFXOZM
https://youtu.be/FMIwfhFXOZM
Thal
in
Cure Parkinson's
1 year ago
Zandopa and insomnia?
Has anyone found that zandopa causes insomnia, more so than prescription carbidopa levodopa or other forms of Mucuna?I have only tried zandopa a few times, but it seems that both times I had some wicked insomnia. Yesterday I took a small amount of xandopa at 7:00 p.m. and then tried to go to bed around
Has anyone found that zandopa causes insomnia, more so than prescription carbidopa levodopa or other forms of Mucuna?I have only tried zandopa a few times, but it seems that both times I had some wicked insomnia. Yesterday I took a small amount of xandopa at 7:00 p.m. and then tried to go to bed around
Fireside15
in
Cure Parkinson's
1 year ago
Severe RLS for 40 years
I am a 75 year old woman who has experienced RLS since the late 1970's. I have been prescribed Requip until it didnt work, Pramipexole (Mirapex) up to 4 mg daily and worked great until augmentation. Since then I have been on Klonopin, Pregablin (Lyrica) Carbidopa/Levidopa, medicinal Marijuana vape pen
I am a 75 year old woman who has experienced RLS since the late 1970's. I have been prescribed Requip until it didnt work, Pramipexole (Mirapex) up to 4 mg daily and worked great until augmentation. Since then I have been on Klonopin, Pregablin (Lyrica) Carbidopa/Levidopa, medicinal Marijuana vape pen
Happygrandmother
in
Restless Legs Syndrome
1 year ago
Closer to checkmate to Parkinson's (1): what Dr. Phillipson says.
Usual medication:
carbidopa
/
levodopa
(750 mg/d), pramipexole (300 mg/d),
entacapone
(600 mg/d), amitriptyline (25 mg/d). Supplements: melatonin (0.2-0.8 mg at night), a-lipoic acid (200 mg/d), acetyl-l-carnitine (250 mg/d), CoQ (maintenance dose 200-400 mg/d) and vitamin E (400 IU/d).
Usual medication:
carbidopa
/
levodopa
(750 mg/d), pramipexole (300 mg/d),
entacapone
(600 mg/d), amitriptyline (25 mg/d). Supplements: melatonin (0.2-0.8 mg at night), a-lipoic acid (200 mg/d), acetyl-l-carnitine (250 mg/d), CoQ (maintenance dose 200-400 mg/d) and vitamin E (400 IU/d).
parkinsonshereandnow
in
Cure Parkinson's
1 year ago
I have been offered Entacapone. I would appreciate hearing your own thoughts and experiences.
I am doing pretty well 7 years post dx, but my neurologist wants to add Entacapone to my 4x Levodopa per day regime to shorten my downtime, and I am uncertain whether it’s the way I want to go. Probably my own prejudice against taking too much and my probably mistaken belief that this drug is more for
I am doing pretty well 7 years post dx, but my neurologist wants to add Entacapone to my 4x Levodopa per day regime to shorten my downtime, and I am uncertain whether it’s the way I want to go. Probably my own prejudice against taking too much and my probably mistaken belief that this drug is more for
Buckholt
in
Cure Parkinson's
1 year ago
nerve damage affecting PD?
Bad SI joint seems more of a PD trigger than levodopa at the moment. Any comments?
Bad SI joint seems more of a PD trigger than levodopa at the moment. Any comments?
dkdc
in
Cure Parkinson's
1 year ago
spasms
I have been having very severe spasm and pain in both of my legs the past two nights, the worst I have experienced to date. I am on muscle relaxants and tramadol for pain and carbidopa/levodopa for Pakinson like symptoms, none of which helped 2 nights ago and I ended up falling hitting my back and
I have been having very severe spasm and pain in both of my legs the past two nights, the worst I have experienced to date. I am on muscle relaxants and tramadol for pain and carbidopa/levodopa for Pakinson like symptoms, none of which helped 2 nights ago and I ended up falling hitting my back and
horseandwolf
in
PSP Association
1 year ago
Opicapone helps prolong plasma levodopa levels in patients with Parkinson’s
- Once-daily opicapone 50 mg with carbidopa/levodopa helped achieve and maintain plasma concentrations of levodopa in patients with PD.- Maximum COMT inhibition was nearly 85% at day 14. - Adding once-daily opicapone 50 mg to carbidopa/levodopa therapy helped achieve and maintain plasma concentrations
- Once-daily opicapone 50 mg with carbidopa/levodopa helped achieve and maintain plasma concentrations of levodopa in patients with PD.- Maximum COMT inhibition was nearly 85% at day 14. - Adding once-daily opicapone 50 mg to carbidopa/levodopa therapy helped achieve and maintain plasma concentrations
Farooqji
in
Cure Parkinson's
1 year ago
Patent: Levodopa fractionated dose composition and use
https://patents.google.com/patent/US11439613B2/en There is provided a convenient new treatment of Parkinson disease by a frequent administration of optimal levodopa doses mimicking a continuous intravenous or infusion treatment, thus mitigating motor complications; and a new carbidopa/levodopa pharmaceutical
https://patents.google.com/patent/US11439613B2/en There is provided a convenient new treatment of Parkinson disease by a frequent administration of optimal levodopa doses mimicking a continuous intravenous or infusion treatment, thus mitigating motor complications; and a new carbidopa/levodopa pharmaceutical
Hidden
in
Cure Parkinson's
1 year ago
‘Supplementing’ supplements with whole-foods.
Before Parkinson’s symptoms came into my husband’s life, we generally tried to get all our nutrients from the food we ate (and had to supplement B12, D, and omega 3 because of a plant-based diet). Since following sites like this, we have added more B vitamins (B complex, B1, more B12), and magnesium
Before Parkinson’s symptoms came into my husband’s life, we generally tried to get all our nutrients from the food we ate (and had to supplement B12, D, and omega 3 because of a plant-based diet). Since following sites like this, we have added more B vitamins (B complex, B1, more B12), and magnesium
Ashti
in
Cure Parkinson's
1 year ago
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