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Experiences with
Levodopa / Carbidopa / Entacapone
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Had to fall back on Rx Sinemet for 2days&Mental focus poor
My shipment of natural sourced levodopa was a couple days later coming in than I anticipated and I had to fall back into using synthetic carbidopa/levodopa. I drove to a restaurant and place an order and then realized I didn’t have my wallet . I walked out to the car didn’t have keys in my pocket .
My shipment of natural sourced levodopa was a couple days later coming in than I anticipated and I had to fall back into using synthetic carbidopa/levodopa. I drove to a restaurant and place an order and then realized I didn’t have my wallet . I walked out to the car didn’t have keys in my pocket .
BUZZ1397
in
Cure Parkinson's
6 years ago
Tried most everything
. I have had RLS for over 12 years. In the beginning, I could walk around the house or elevate my legs on the couch and the movements would stop and I could sleep. Now I take Ropinirole (Requip),Carbidopa levodopa, and clonazepam. I suffer beyond belief but have found some relief in the Relaxis
. I have had RLS for over 12 years. In the beginning, I could walk around the house or elevate my legs on the couch and the movements would stop and I could sleep. Now I take Ropinirole (Requip),Carbidopa levodopa, and clonazepam. I suffer beyond belief but have found some relief in the Relaxis
tac2014
in
Restless Legs Syndrome
6 years ago
CBD--questions about Thiamine/B1 & Levodopa. . and what we could try?
Have any of you heard of the high-dose B-1/Thiamine treatment that people are talking about on the Parkinson's Board--there's a mention that the doctor directing it, Dr. Constantini in Italy has an even higher-dose protocol for treating CBD (scroll down--if my link works!--to #30). https://healthunlocked.com
Have any of you heard of the high-dose B-1/Thiamine treatment that people are talking about on the Parkinson's Board--there's a mention that the doctor directing it, Dr. Constantini in Italy has an even higher-dose protocol for treating CBD (scroll down--if my link works!--to #30). https://healthunlocked.com
LostinHeadSpace
in
PSP Association
6 years ago
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Dietary method for reducing fluctuations in PD (1987)
What are good updates to this 1987 study which is open access? Dietary method for reducing fluctuations in Parkinson's disease. Pincus JH, et al. Yale J Biol Med. 1987 Mar-Apr. Abstract. Motor fluctuations and non-response to carbidopa-levodopa (Sinemet) therapy are major problems in the long-term management
What are good updates to this 1987 study which is open access? Dietary method for reducing fluctuations in Parkinson's disease. Pincus JH, et al. Yale J Biol Med. 1987 Mar-Apr. Abstract. Motor fluctuations and non-response to carbidopa-levodopa (Sinemet) therapy are major problems in the long-term management
aspergerian
in
Cure Parkinson's
6 years ago
Email From Dr. Costantini June 14, 2018
Dr. Costantini sent this yesterday regarding Levodopa and Thiamine and their synergy together, but it was not translated correctly so I sent it back to him and he corrected it. This is his revised version: Dear Art, The doses of levodopa taken by the patients who write to me are very low. This (I think
Dr. Costantini sent this yesterday regarding Levodopa and Thiamine and their synergy together, but it was not translated correctly so I sent it back to him and he corrected it. This is his revised version: Dear Art, The doses of levodopa taken by the patients who write to me are very low. This (I think
Hidden
in
Cure Parkinson's
6 years ago
Here is what Dr. Costantini Prescribed based on my weight / height / meds... if anyone finds this helpful
I am 5'5" and weigh 120 lbs. Diagnosed 2 years I take Azilect: Here is Dr. C's Response "For now, do not change your treatment. Start taking 2 grams a day of thiamine hcl (1 for breakfast and 1 for lunch). Read the instructions carefully. In particular we will need the pull test now. If there is a need
I am 5'5" and weigh 120 lbs. Diagnosed 2 years I take Azilect: Here is Dr. C's Response "For now, do not change your treatment. Start taking 2 grams a day of thiamine hcl (1 for breakfast and 1 for lunch). Read the instructions carefully. In particular we will need the pull test now. If there is a need
p-oui
in
Cure Parkinson's
6 years ago
DR. COSTANTINI & DR. COLANGELI ANSWER 58 FREQUENTLY ASKED QUESTIONS (FAQs) ABOUT HDT / THIAMINE / B1 PROTOCOL / Email : carapetata@libero.it
Very briefly, If anyone has asked questions of Dr. Costantini and have gotten a reply concerning his thiamine/ B1 protocol, please add them to this list if you think they are relevant! Art ::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::
Very briefly, If anyone has asked questions of Dr. Costantini and have gotten a reply concerning his thiamine/ B1 protocol, please add them to this list if you think they are relevant! Art ::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::
Hidden
in
Cure Parkinson's
6 years ago
Frequent urination, every 20 minutes
Out of nowhere, starting last night at bedtime, my husband started needing to urinate multiple times an hour! Like 2-3 times EVERY hour, sometimes almost too urgent to make it. So he's been up for more than 36 hours, it continued during the day. We called the neurologist to ask if this was a CBD/Parkinson's
Out of nowhere, starting last night at bedtime, my husband started needing to urinate multiple times an hour! Like 2-3 times EVERY hour, sometimes almost too urgent to make it. So he's been up for more than 36 hours, it continued during the day. We called the neurologist to ask if this was a CBD/Parkinson's
LostinHeadSpace
in
PSP Association
6 years ago
did you know that l-dopa was a nutrient??!?!
http://www.raysahelian.com/parkinson.html worth the read, very comprehensive
http://www.raysahelian.com/parkinson.html worth the read, very comprehensive
dopedope
in
Cure Parkinson's
6 years ago
how do I substitute L-dopa for, say, swanson vitamins or supplements for siminet? i take 4 daily tablets carbi/levo 25-100mg tab act?
I cannot figure it out and was hoping to be pharmaceutical-free.
I cannot figure it out and was hoping to be pharmaceutical-free.
Nippermcc
in
Cure Parkinson's
6 years ago
Is anyone out there taking mucuna dopa along with prescirbed Levadopa?
I was thinking of enhancing my prescribed Levodopa whit mucuna .. is this a good/bad idea?
I was thinking of enhancing my prescribed Levodopa whit mucuna .. is this a good/bad idea?
Xabojuro2
in
Cure Parkinson's
6 years ago
Is carbidopa killing Parkinsons patients at an alarming rate?
(Photo shows Alex and his wife Alexis) In 2014, Dr. Marty Hinz et al published an open-access paper, "The Parkinson disease death rate: carbidopa and vitamin B6," https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4211847/ in which they put forward a sensational claim that from 1978-2011, the death rate of
(Photo shows Alex and his wife Alexis) In 2014, Dr. Marty Hinz et al published an open-access paper, "The Parkinson disease death rate: carbidopa and vitamin B6," https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4211847/ in which they put forward a sensational claim that from 1978-2011, the death rate of
lempa_nik
in
Cure Parkinson's
6 years ago
Relationship Between Levodopa and Dyskinesias and How Thiamine Can Help
I think the main concern for everybody with PD is to know the truth about relationship between long-term use of Levodopa and Dyskinesias and how Thiamine protocol can help. Dr Costantini has told me that people who are taking Sinemet with Thiamine WILL NOT develop Dyskinesia even in long-term use. I
I think the main concern for everybody with PD is to know the truth about relationship between long-term use of Levodopa and Dyskinesias and how Thiamine protocol can help. Dr Costantini has told me that people who are taking Sinemet with Thiamine WILL NOT develop Dyskinesia even in long-term use. I
Kia17
in
Cure Parkinson's
6 years ago
Mucuna Pruriens is a life saver
I just wanted to share our experience with the natural supplement Mucuna Pruriens - L Dopa .. My husband has not yet been diagnosed with PD as he is waiting to see the movement specialist in Aug 2018..He suffers with hand arm tremors , at first was right arm and now is both but the right being worse
I just wanted to share our experience with the natural supplement Mucuna Pruriens - L Dopa .. My husband has not yet been diagnosed with PD as he is waiting to see the movement specialist in Aug 2018..He suffers with hand arm tremors , at first was right arm and now is both but the right being worse
katz2017
in
Cure Parkinson's
6 years ago
Thiamine and Dr Costantini, what we know and don't know
Sorry this is so long, it is meant to be a summary, but there’s a lot to say. There is now a wealth of information on the discovery by the Italian neurologist Dr Antonio Costantini that high dose Thiamine can be used to treat a range of neurological diseases including Parkinson’s disease. In Dr Costantini
Sorry this is so long, it is meant to be a summary, but there’s a lot to say. There is now a wealth of information on the discovery by the Italian neurologist Dr Antonio Costantini that high dose Thiamine can be used to treat a range of neurological diseases including Parkinson’s disease. In Dr Costantini
wriga
in
Cure Parkinson's
6 years ago
More Correspondence with Dr Costantini
Yesterday I wrote to Dr Costantini explaining my situation : age 76, 80 kg, newly diagnosed, mild temor etc. I have just started very low dose of Ropinirole. I asked him about dosage etc. I also explained that I am a retired research chemist with some very modest knowledge in biochemistry and would like
Yesterday I wrote to Dr Costantini explaining my situation : age 76, 80 kg, newly diagnosed, mild temor etc. I have just started very low dose of Ropinirole. I asked him about dosage etc. I also explained that I am a retired research chemist with some very modest knowledge in biochemistry and would like
wriga
in
Cure Parkinson's
6 years ago
SIDE EFFECTS
I have read in several different sources that levodopa /carbidopa side effects are/could be severe. Am wondering what everyone's take is. I read somewhere that the med is good for 5 years and then causes all sorts of issues. My DR prescribed it last Feb but I have yet to start it and are controlling
I have read in several different sources that levodopa /carbidopa side effects are/could be severe. Am wondering what everyone's take is. I read somewhere that the med is good for 5 years and then causes all sorts of issues. My DR prescribed it last Feb but I have yet to start it and are controlling
ranger6970
in
Cure Parkinson's
6 years ago
My correspondence with Dr Cosentini
Sharing this in case it can be helpful to anyone. I wrote to Dr Cosentini for advice on Thiamine dosage this morning. He responded in about an hour! Here it is: Dear Dr Cosentini and company, Hello from the United States! First, thank you for all that you do for people with Parkinsons Disease! I also
Sharing this in case it can be helpful to anyone. I wrote to Dr Cosentini for advice on Thiamine dosage this morning. He responded in about an hour! Here it is: Dear Dr Cosentini and company, Hello from the United States! First, thank you for all that you do for people with Parkinsons Disease! I also
bassofspades
in
Cure Parkinson's
6 years ago
Can NOW's Dopa Mucuna substitute for Carb/Levo 25-100MG-100MG Tab? Concerned about Sinemet's future effects ...
First I want to thank the members here for the warm welcome to the group. It means a lot with everyone friendly & smart. Second: my partner and I prefer a natural product over a chemical one, are concerned about Sinemet's future effect on me, etc. We were hoping to substitute Carb/Levo 25mg-100mg tab
First I want to thank the members here for the warm welcome to the group. It means a lot with everyone friendly & smart. Second: my partner and I prefer a natural product over a chemical one, are concerned about Sinemet's future effect on me, etc. We were hoping to substitute Carb/Levo 25mg-100mg tab
Nippermcc
in
Cure Parkinson's
6 years ago
How to treat increased level of homocysteine while on levodopa treatment
Normally doctors recommend treating with high dose of B12, B6 and Folate. Unfortunately one or more of these vitamins shortens the metabolism time for Levodopa thereby increasing the off period. How do we fix the problem ? --Shankar
Normally doctors recommend treating with high dose of B12, B6 and Folate. Unfortunately one or more of these vitamins shortens the metabolism time for Levodopa thereby increasing the off period. How do we fix the problem ? --Shankar
sankar003
in
Cure Parkinson's
6 years ago
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