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Experiences with
Leflunomide
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choosing an alternative to Actemra
She is now offering me three choices of alternative drugs - Mycophenolate, Azathioprine and
Leflunomide
. Reading the leaflets, they look very similar. How to decide and how to uncover the lesser known/advertised side effects?
She is now offering me three choices of alternative drugs - Mycophenolate, Azathioprine and
Leflunomide
. Reading the leaflets, they look very similar. How to decide and how to uncover the lesser known/advertised side effects?
Japsquar
in
PMRGCAuk
7 months ago
NASH & yellow diarrhea
I then started on
leflunomide
for my rheumatoid arthritis around a month ago, and my ALT shot up to 100. I've been stopped the drug for about 2 weeks now but since then I've been getting really yellow diarrhea (sorry for TMI)! I'm going 4-5 times per day!
I then started on
leflunomide
for my rheumatoid arthritis around a month ago, and my ALT shot up to 100. I've been stopped the drug for about 2 weeks now but since then I've been getting really yellow diarrhea (sorry for TMI)! I'm going 4-5 times per day!
Natbat87
in
British Liver Trust
9 months ago
perimenopause, hormones & RA flare..
currently on
Leflunomide
but is not really working, but having done 12 months on MTX which affected my MH really badly, and wiped me out, I was switched (albeit it worked for pain) I’ve akways been sensitive to hormone fluctuations and suffered with pms.. but think am now entering Peri-menopause.
currently on
Leflunomide
but is not really working, but having done 12 months on MTX which affected my MH really badly, and wiped me out, I was switched (albeit it worked for pain) I’ve akways been sensitive to hormone fluctuations and suffered with pms.. but think am now entering Peri-menopause.
Sapphire1701
in
NRAS
7 months ago
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Flare or reaction to Leflunomide Dmard
Hello everyone, I've had diagnosis of PMR & GCA since 2012 (@45) on maintenance steroids and HYXQ since. Rheumatologist did hand ultrasound scan to see if possible RA . Was surprised when told I had, as I hadn't really had probs with hands . She suggested I had and to take MTX and have had a reaction
Hello everyone, I've had diagnosis of PMR & GCA since 2012 (@45) on maintenance steroids and HYXQ since. Rheumatologist did hand ultrasound scan to see if possible RA . Was surprised when told I had, as I hadn't really had probs with hands . She suggested I had and to take MTX and have had a reaction
Warrior4JC
in
NRAS
10 months ago
Changing meds.
And if
Leflunomide
isn’t working for me is it going to be another 12 weeks before we see if that works as the tell me at the clinic all RA medications do? Don’t think I could stand it.
And if
Leflunomide
isn’t working for me is it going to be another 12 weeks before we see if that works as the tell me at the clinic all RA medications do? Don’t think I could stand it.
Sprite60A
in
NRAS
1 year ago
short on leflunomide
Looks like I'm going to be short on
leflunomide
as there was a mix up with my prescription. Waiting to hear back from my doc, but was wondering if this is something that I could skip for a day or two. Any advice? Anyone else been in the same situation? Thanks
Looks like I'm going to be short on
leflunomide
as there was a mix up with my prescription. Waiting to hear back from my doc, but was wondering if this is something that I could skip for a day or two. Any advice? Anyone else been in the same situation? Thanks
winfong
in
PMRGCAuk
1 year ago
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest
It also led to a complete response rate much higher than IV cyclophosphamide alone or low-dose
leflunomide
. There were no significant differences between the treatments regarding the partial remission of kidney disease.
It also led to a complete response rate much higher than IV cyclophosphamide alone or low-dose
leflunomide
. There were no significant differences between the treatments regarding the partial remission of kidney disease.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
8 months ago
Side effects of Leflunomide?
So he has added
Leflunomide
on top, since April 2023. It seems to be doing the trick and I haven't had any flares since but there are a couple of side effects which I wondered were common: Increase in small sebatious cysts particulalry on my face.
So he has added
Leflunomide
on top, since April 2023. It seems to be doing the trick and I haven't had any flares since but there are a couple of side effects which I wondered were common: Increase in small sebatious cysts particulalry on my face.
DenMum
in
NRAS
1 year ago
Low blood sugar
I am stuck on 12mg pred and going start
leflunomide
in a week or so after my covid jab.
I am stuck on 12mg pred and going start
leflunomide
in a week or so after my covid jab.
RachelJDH
in
PMRGCAuk
10 months ago
Normal cortisol levels
This didn't work so the rheumatologist prescribed
leflunomide
which again didn't work. He wanted to put me on a biologic which I was to inject at home, the name of this began with T. The diagnosis of PMR never felt right.
This didn't work so the rheumatologist prescribed
leflunomide
which again didn't work. He wanted to put me on a biologic which I was to inject at home, the name of this began with T. The diagnosis of PMR never felt right.
Bargin_ninja
in
PMRGCAuk
10 months ago
Highly elevated ESR and CRP but no symptoms of a flare
I'm currently on 5mg prednisolone and 20mg of
leflunomide
(for almost 3 years). I have no other health issues. I work full time and am very lucky to be able to maintain the same active level of fitness pre-PMR.
I'm currently on 5mg prednisolone and 20mg of
leflunomide
(for almost 3 years). I have no other health issues. I work full time and am very lucky to be able to maintain the same active level of fitness pre-PMR.
Travisdecember
in
PMRGCAuk
9 months ago
3rd Rheumy says I no longer have PMR but Rheumatoid Arthritis from X-rays and blood tests and prescribed Leflunomide
does this stuff work? The side effects for liver damage potential looks scary to me, someone that once was misdiagnosed with liver cancer and sent to Cleveland for transplant. Yes, fatty liver at age 59. Don’t drink or smoke. Pre diabetic/diabetic Also, does PMR segway into rheumatoid arthritis?
does this stuff work? The side effects for liver damage potential looks scary to me, someone that once was misdiagnosed with liver cancer and sent to Cleveland for transplant. Yes, fatty liver at age 59. Don’t drink or smoke. Pre diabetic/diabetic Also, does PMR segway into rheumatoid arthritis?
EngineerMatthew
in
PMRGCAuk
9 months ago
Leflunomide and peripheral neuropathy
I would like to know if it's reversible (Rheumi has agreed to me stopping
leflunomide
for 6 weeks for other reasons), and if not, whether anything can be done to restore normal function. Any ideas?
I would like to know if it's reversible (Rheumi has agreed to me stopping
leflunomide
for 6 weeks for other reasons), and if not, whether anything can be done to restore normal function. Any ideas?
Steal
in
PMRGCAuk
1 year ago
Leflunomide and tapering. Update on flare this Summer
The result (as well as really boosting my mood, the meetings with her are so valuable) is that I am to increase the
Leflunomide
back to 20mg once I'm fully recovered from covid.
The result (as well as really boosting my mood, the meetings with her are so valuable) is that I am to increase the
Leflunomide
back to 20mg once I'm fully recovered from covid.
PastelsinArt
in
PMRGCAuk
11 months ago
change to leflunomide
Hi can anyone give any advice on changing to this drug.. not keen on side effects I have Sle, on Warfarin now think rheumatoid arthritis!
Hi can anyone give any advice on changing to this drug.. not keen on side effects I have Sle, on Warfarin now think rheumatoid arthritis!
gco34
in
Vasculitis UK
1 year ago
Leflunomide
Does anybody take this. It is a possibility as I did not get on with methotrexate. Your thoughts would be appreciated. Thank you.
Does anybody take this. It is a possibility as I did not get on with methotrexate. Your thoughts would be appreciated. Thank you.
RachelJDH
in
PMRGCAuk
1 year ago
HUMIRA
I've taken mtx,
leflunomide
and sulfasalzine for my RA, but none of them has worked for me. I've experienced mild side effects from all of them, excepting 20 mg of mtx which gave me bruises all over my legs (was put off it 2 months later). I am a bit nervous Humira's side effects.
I've taken mtx,
leflunomide
and sulfasalzine for my RA, but none of them has worked for me. I've experienced mild side effects from all of them, excepting 20 mg of mtx which gave me bruises all over my legs (was put off it 2 months later). I am a bit nervous Humira's side effects.
cosana
in
NRAS
1 year ago
Shingrix vaccine for immunosuppressed people aged 50+
/day) in the previous 3 months ●
certain combination therapies at individual doses lower than stated above, including those on ≥7.5mg prednisolone per day in combination with other immunosuppressants (other than hydroxychloroquine or sulfasalazine) and those receiving methotrexate (any dose) with
/day) in the previous 3 months ●
certain combination therapies at individual doses lower than stated above, including those on ≥7.5mg prednisolone per day in combination with other immunosuppressants (other than hydroxychloroquine or sulfasalazine) and those receiving methotrexate (any dose) with
Sharitone
in
PMRGCAuk
10 months ago
Reprise for Leflunomide
I am trying
leflunomide
again after a gap of about 9 years and lots of cancer treatment in between. Last time I got pulled off it by an officious CNS because of my spiky blood pressure. So this time I am ready for that but hoping that it will be otherwise side effect free…as before.
I am trying
leflunomide
again after a gap of about 9 years and lots of cancer treatment in between. Last time I got pulled off it by an officious CNS because of my spiky blood pressure. So this time I am ready for that but hoping that it will be otherwise side effect free…as before.
Lyndy
in
NRAS
1 year ago
mtx & leflunomide verses mtx and hydroxy
Hi one of my nurses has said I could try
leflunomide
instead of hydroxychloroquine. I wondered if many people are using
leflunomide
and if it was any good, better or worse than hydroxychloroquine ?
Hi one of my nurses has said I could try
leflunomide
instead of hydroxychloroquine. I wondered if many people are using
leflunomide
and if it was any good, better or worse than hydroxychloroquine ?
lindyloo2018
in
NRAS
1 year ago
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