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Leflunomide
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Rheumy helpline not replied to me 😢
They mentioned about adding in hydrocloquorine or
leflunomide
and said to ring up but still haven't heard anything. Think I'll just have to ring again. On top of all this, I've got several cysts on my scalp and one keeps getting infected.
They mentioned about adding in hydrocloquorine or
leflunomide
and said to ring up but still haven't heard anything. Think I'll just have to ring again. On top of all this, I've got several cysts on my scalp and one keeps getting infected.
Natbat87
in
NRAS
1 year ago
Norovirus and RA
I’ve not taken or kept down any of my meds but I think it will still be in my system (
leflunomide
and hydroxychloroquine) Any tips on dealing with this much appreciated
I’ve not taken or kept down any of my meds but I think it will still be in my system (
leflunomide
and hydroxychloroquine) Any tips on dealing with this much appreciated
Kati66
in
NRAS
7 months ago
Leflunomide and Shingrix vaccine (non live shingles vaccine)
Hello, Has anyone on
Leflunomide
(Arava) had the shingrix vaccine and if so, did they have to stop the
leflunomide
at all before and after? Interested to hear how many different bits of advice are out there from Rheumatologists.
Hello, Has anyone on
Leflunomide
(Arava) had the shingrix vaccine and if so, did they have to stop the
leflunomide
at all before and after? Interested to hear how many different bits of advice are out there from Rheumatologists.
Wannabeabago
in
NRAS
1 year ago
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Neutrophils Crash
I have been on 25mg Mtx with 5mg Prednisolone and folic acid daily - largely successfully for a couple of years. 10mg
Leflunomide
was added and since then I’ve had several issues.
I have been on 25mg Mtx with 5mg Prednisolone and folic acid daily - largely successfully for a couple of years. 10mg
Leflunomide
was added and since then I’ve had several issues.
Fiona0664
in
NRAS
1 year ago
Fragility score on Osteoscan and different meds.
I have been on
Leflunomide
for two months now. Tapering 1 mg month down to 13, no flare as yet. This is my letter re the scan. “It was a pleasure to see you today and to be able to offer a further REMS evaluation of your right hip and spine.
I have been on
Leflunomide
for two months now. Tapering 1 mg month down to 13, no flare as yet. This is my letter re the scan. “It was a pleasure to see you today and to be able to offer a further REMS evaluation of your right hip and spine.
Nightingales
in
PMRGCAuk
1 year ago
Leflunomide question
I have been on
Leflunomide
for over a month. No really issues. Then all the sudden when I eat I cramp in my torso like a food allergy and get the chills. Antihistamines don’t help. Probiotics either. Has anyone come across this.? Wonder why it would start now.?
I have been on
Leflunomide
for over a month. No really issues. Then all the sudden when I eat I cramp in my torso like a food allergy and get the chills. Antihistamines don’t help. Probiotics either. Has anyone come across this.? Wonder why it would start now.?
Nana-8
in
NRAS
1 year ago
Can't taper
2 and half yrs , it's a real nuisance every time I taper I end up back at 15mg as its the only dose that works my last taper got me down to 13mg for a month then really bad flare now back at 15mg for the last 2 weeks and feeling a bit better again been off work again rheumatologist wants me to try
leflunomide
2 and half yrs , it's a real nuisance every time I taper I end up back at 15mg as its the only dose that works my last taper got me down to 13mg for a month then really bad flare now back at 15mg for the last 2 weeks and feeling a bit better again been off work again rheumatologist wants me to try
leflunomide
Marko666
in
PMRGCAuk
1 year ago
What next?
So after trying MTX tablets, MTX Injections,
Leflunomide
and now sulfasalazine, that's either made me very poorly with side affects or with sulfasalazine not working, what's next? Going to call Rheumy nurse tomorrow. Totally fed up.
So after trying MTX tablets, MTX Injections,
Leflunomide
and now sulfasalazine, that's either made me very poorly with side affects or with sulfasalazine not working, what's next? Going to call Rheumy nurse tomorrow. Totally fed up.
Haz58
in
NRAS
1 year ago
Leflunomide
About to start
Leflunomide
for RA, not really looking forward to it, I must admit. Can anyone help with their experience of side effects please 😫 also benefits x
About to start
Leflunomide
for RA, not really looking forward to it, I must admit. Can anyone help with their experience of side effects please 😫 also benefits x
Djohnston1971
in
NRAS
1 year ago
Link between dry eyes and throat and PMRGCA? Any ideas?
• I have been prescribed methotrexate and then when that had extreme side-affects (coughing from deep in the chest through the night) I was prescribed
leflunomide
which compromised my liver.
• I have been prescribed methotrexate and then when that had extreme side-affects (coughing from deep in the chest through the night) I was prescribed
leflunomide
which compromised my liver.
allofaquandry
in
PMRGCAuk
1 year ago
Injections
Just a question,was wondering,if it is OK to have a injection,as got dentist Monday,have to have a filling.not on steroids,but am on
leflunomide
,been on these since August 2022.finished steroids March 2023..would like some advice please.thanks.
Just a question,was wondering,if it is OK to have a injection,as got dentist Monday,have to have a filling.not on steroids,but am on
leflunomide
,been on these since August 2022.finished steroids March 2023..would like some advice please.thanks.
Flosy
in
PMRGCAuk
1 year ago
In a quandary!
I’m so reluctant to change meds, as I’ve been doing so well on the
leflunomide
, however I find the situation with my nails more distressing that anything these autoimmune problems give us.
I’m so reluctant to change meds, as I’ve been doing so well on the
leflunomide
, however I find the situation with my nails more distressing that anything these autoimmune problems give us.
Lizzery
in
PMRGCAuk
1 year ago
Leflunomide or Tocilizumab
Will there be a benefit in swapping
leflunomide
for Tocilizumab? Any advice very welcome. A discussion with the rheumatologist indicated that she was not a fan of Health unlocked and that I should follow her instructions to the letter!
Will there be a benefit in swapping
leflunomide
for Tocilizumab? Any advice very welcome. A discussion with the rheumatologist indicated that she was not a fan of Health unlocked and that I should follow her instructions to the letter!
Talyfan
in
PMRGCAuk
1 year ago
Leflunomide side effects
Just added
Leflunomide
v. low dose at present every other day. I'm itching everywhere even though I take antihistamine for hayfever. Worried the itching will increase as the dose is increased. Would appreciate any thoughts. Am about to contact Rheumy dept between bank holidays and strikes.
Just added
Leflunomide
v. low dose at present every other day. I'm itching everywhere even though I take antihistamine for hayfever. Worried the itching will increase as the dose is increased. Would appreciate any thoughts. Am about to contact Rheumy dept between bank holidays and strikes.
DenMum
in
NRAS
1 year ago
Pain in hands
Am on pred 6mg for PMRGCA along with
leflunomide
theical D and lansaprazole, and 50mg atenolol for AFib along with edoxoban. I had tried Angitil for a few weeks before being changed to atenolol. That made me feel dreadful but it was after that that I got this hand thing.
Am on pred 6mg for PMRGCA along with
leflunomide
theical D and lansaprazole, and 50mg atenolol for AFib along with edoxoban. I had tried Angitil for a few weeks before being changed to atenolol. That made me feel dreadful but it was after that that I got this hand thing.
Steal
in
PMRGCAuk
1 year ago
Liver problems
I'm in hospital atm, and consultant initially thought I had cholecystitis, but that doesn't appear to be the case although the presentation certainly looked that way.Theyve stopped my Mycophenolate as that may be causing the liver problem, but I've already tried Methotrexate and
Leflunomide
without
I'm in hospital atm, and consultant initially thought I had cholecystitis, but that doesn't appear to be the case although the presentation certainly looked that way.Theyve stopped my Mycophenolate as that may be causing the liver problem, but I've already tried Methotrexate and
Leflunomide
without
Phoebess
in
PMRGCAuk
1 year ago
missed the diagnosis?
Doc took me off MTX and wants me to start
leflunomide
. I have been doing research, neuropathy is a side effect and I already have neuropathy from BC chemo 9 years ago. PLUS my Rheumy is and has been rude and I am done with him. I am thinking I have PMR.
Doc took me off MTX and wants me to start
leflunomide
. I have been doing research, neuropathy is a side effect and I already have neuropathy from BC chemo 9 years ago. PLUS my Rheumy is and has been rude and I am done with him. I am thinking I have PMR.
BeachsideVia
in
NRAS
1 year ago
Best Arthur description I’ve read!
I’ve gone through 11 different medications so far, which has included methotrexate, hydroxychloroquine, sulfasalazine, prednisolone,
leflunomide
and imraldi. I am now on a biologic medication called Humira which I have to inject into my stomach or thigh fortnightly.
I’ve gone through 11 different medications so far, which has included methotrexate, hydroxychloroquine, sulfasalazine, prednisolone,
leflunomide
and imraldi. I am now on a biologic medication called Humira which I have to inject into my stomach or thigh fortnightly.
Llanberisman
in
NRAS
1 year ago
Vitamins.
Hi just wondering if I can take vitamins,as I have come off my steroids but still on
leflunomide
1 10mgs tablet a day.feeling good at moment,do get some aches and pains.just wondering about taking sleeping tablets as I don't sleep very well.just some advice please.thank you.
Hi just wondering if I can take vitamins,as I have come off my steroids but still on
leflunomide
1 10mgs tablet a day.feeling good at moment,do get some aches and pains.just wondering about taking sleeping tablets as I don't sleep very well.just some advice please.thank you.
Flosy
in
PMRGCAuk
1 year ago
unexplained bruising
doctor here but mine are shut today so cant call and im not overly worried just asking if anyone else has experienced it before i also know it may not actually be the
leflunomide
thats done it :) Thanks
doctor here but mine are shut today so cant call and im not overly worried just asking if anyone else has experienced it before i also know it may not actually be the
leflunomide
thats done it :) Thanks
emma88
in
NRAS
1 year ago
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