Side effects of Leflunomide?: Having been on Sarilumab... - NRAS

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Side effects of Leflunomide?

DenMum profile image
8 Replies

Having been on Sarilumab since March 2022, the effects started to wane and my Rheumy thinks I have developed antibodies to it. So he has added Leflunomide on top, since April 2023. It seems to be doing the trick and I haven't had any flares since but there are a couple of side effects which I wondered were common:

Increase in small sebatious cysts particulalry on my face.

Redness and increased sensitivity on the ends of my fingers and toes - which my Rheumy doesn't think is related even though the timing coincides.

Just wondered whether anyone else has experienced the same.

Thanks

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DenMum
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8 Replies
ruth_p profile image
ruth_p

I didn’t have any side effects from leflunomide. Sorry that’s probably not helpful. It does lower your immune system though which could cause more spots.

Bookworm55 profile image
Bookworm55 in reply toruth_p

I didn’t have any side effects but no positive effects either! I’m still on 10mg Leflunomide along with sulfasalazine but my rheumatologist has added a biosimilar which seems to be helping me a lot so far.

DenMum profile image
DenMum in reply toruth_p

Thanks so much for replying. Glad to know that there seem to be few major side effects and once again I am reminded how different we all are.

DenMum profile image
DenMum in reply toruth_p

Thanks Ruth. Hope you are well.

bpeal1 profile image
bpeal1

I’ve not had any side effects from Leflunomide either. However, we are all different and react differently to different medications.

DenMum profile image
DenMum in reply tobpeal1

Thanks bpeal1. You are right. We are all so different.

SheilaT3271 profile image
SheilaT3271

I was put on Leflunomide last year in addition to Etanercept that I was already on but I took myself off it when I realised it had been suppressing my appetite and had lost quite a bit of weight that I can’t afford to lose. Didn’t have any other side affects.

DenMum profile image
DenMum in reply toSheilaT3271

Thanks for your response. I hope things have settled with other meds. We are all so different aren't we.

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