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Leflunomide
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Never ending flare
Hi, I've been on
leflunomide
and due to it not working very well they added in methotrexate. It worked amazingly and my esr went from 70 down to 25! I felt on top of the world for a few months, I was in remission!
Hi, I've been on
leflunomide
and due to it not working very well they added in methotrexate. It worked amazingly and my esr went from 70 down to 25! I felt on top of the world for a few months, I was in remission!
Dreamer85
in
Beyond Psoriasis
6 years ago
Diagnosed with RA 12 years ago - on Prednisone & Benapali 7 weeks ago. Please read Post. Has this happened to anyone else? What should I do?
I was then put on
Leflunomide
. Which worked great, but I started loosing weight - which I didn't mind ;) but then my blood pressure started going through the roof so they took me off them I was left for a while waiting for a Drs appointment leaving me relying on various pain medication.
I was then put on
Leflunomide
. Which worked great, but I started loosing weight - which I didn't mind ;) but then my blood pressure started going through the roof so they took me off them I was left for a while waiting for a Drs appointment leaving me relying on various pain medication.
annie0261
in
NRAS
6 years ago
I'm new here and I have a question
Now my Rheumy wants me on
Leflunomide
, 20 mg. She thinks it wil lessen the side effects. I have to take it together with the other medication for at least 6 weeks - then I can stop the MTX. I'm rather afraid of yet another medicine.
Now my Rheumy wants me on
Leflunomide
, 20 mg. She thinks it wil lessen the side effects. I have to take it together with the other medication for at least 6 weeks - then I can stop the MTX. I'm rather afraid of yet another medicine.
Francien
in
PMRGCAuk
6 years ago
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Best Painkillers?
I am struggling with pain at the moment having been put on
Leflunomide
to try with my Abatercept and after 2 months taken off the Lef due to horrendous side effects I am having a huge flare up!
I am struggling with pain at the moment having been put on
Leflunomide
to try with my Abatercept and after 2 months taken off the Lef due to horrendous side effects I am having a huge flare up!
sjhewitt42
in
NRAS
6 years ago
Newbie
Hi everyone, was looking for information on
Leflunomide
and hair loss and came across this site.
Hi everyone, was looking for information on
Leflunomide
and hair loss and came across this site.
Paisley58
in
NRAS
6 years ago
knee replacements with RA
I am now just started taking arava(
leflunomide
10mg.along with 2 5mg prednisone in the morning. Prednisone for 2 weeks than taper down to one. Anyway, I have appt with orthopedic today to see about getting both knees replaced.
I am now just started taking arava(
leflunomide
10mg.along with 2 5mg prednisone in the morning. Prednisone for 2 weeks than taper down to one. Anyway, I have appt with orthopedic today to see about getting both knees replaced.
mickeysmom34472
in
NRAS
6 years ago
Leflunomide
Hi I’ve had real bad headaches on
Leflunomide
went for my check up my blood pressure is normally 120/70 there about today it’s was 190/110 , as anyone else encounter these issues and if so what happened, this is about my 6th drug I’m not doing well on any of them,nurse ask me could I manage on steroid
Hi I’ve had real bad headaches on
Leflunomide
went for my check up my blood pressure is normally 120/70 there about today it’s was 190/110 , as anyone else encounter these issues and if so what happened, this is about my 6th drug I’m not doing well on any of them,nurse ask me could I manage on steroid
Vonnie10
in
NRAS
6 years ago
Cyclizine to combat nausea from Leflunomide?
Hi all, So I started LEF 5 weeks ago.. still feel dreadful with nausea, headaches and dizziness. I feel like I’m constantly hungover! When I had my abatercept infusion last week the nurse got me a prescription for Cyclizine to try and combat the nausea. I have been off work now for over a week as I feel
Hi all, So I started LEF 5 weeks ago.. still feel dreadful with nausea, headaches and dizziness. I feel like I’m constantly hungover! When I had my abatercept infusion last week the nurse got me a prescription for Cyclizine to try and combat the nausea. I have been off work now for over a week as I feel
sjhewitt42
in
NRAS
6 years ago
Experience of meds?
I had been taking methotrexate tablets for my RA but it wasn't suiting me and my consultant has asked me to consider
Leflunomide
or Sulfasalazine. I have the hospital info leaflets on them, but I am interested to hear any personal experience feedback re these drugs. I hope some people can help.
I had been taking methotrexate tablets for my RA but it wasn't suiting me and my consultant has asked me to consider
Leflunomide
or Sulfasalazine. I have the hospital info leaflets on them, but I am interested to hear any personal experience feedback re these drugs. I hope some people can help.
Barbara_Stark
in
NRAS
6 years ago
Covered in confusion!
Leflunomide
didn’t work for me and I refused Methotrexate so I don’t know what she is considering. I had also asked to have a DEXA scan instead of my infusion of Zolendronic Acid. I asked for this because by strange coincidence my husband also has PMR but only in his shoulders.
Leflunomide
didn’t work for me and I refused Methotrexate so I don’t know what she is considering. I had also asked to have a DEXA scan instead of my infusion of Zolendronic Acid. I asked for this because by strange coincidence my husband also has PMR but only in his shoulders.
Wilts-girl
in
PMRGCAuk
6 years ago
New rheummy and med changes
I already failed on Sulfa and
leflunomide
. Currently changing antisickness drug due to guidelines on long term use of Domperidone so gutted as it worked fairly well - I was nauseous but not vomiting all the time!
I already failed on Sulfa and
leflunomide
. Currently changing antisickness drug due to guidelines on long term use of Domperidone so gutted as it worked fairly well - I was nauseous but not vomiting all the time!
marie66
in
NRAS
6 years ago
Leflunomide
I’m on
Leflunomide
started yesterday I’ve pains in my stomach I think it’s a side effect anyone else who is on this have a issue with pain in tummy ?
I’m on
Leflunomide
started yesterday I’ve pains in my stomach I think it’s a side effect anyone else who is on this have a issue with pain in tummy ?
Vonnie10
in
NRAS
6 years ago
Anyone else have no support or help at home?
Now in Abatercept infusions and started
Leflunomide
2 weeks ago. I feel like I have a permanent hangover and my joints are so sore. I have 3 boys and a virtually full time job but have no help from my husband with the boys or the house.
Now in Abatercept infusions and started
Leflunomide
2 weeks ago. I feel like I have a permanent hangover and my joints are so sore. I have 3 boys and a virtually full time job but have no help from my husband with the boys or the house.
sjhewitt42
in
NRAS
6 years ago
UPDATE on Sacroiliac pain and leflunomide
Thanks to all those who replied to my earlier post re SACROILIAC pain and
LEFLUNOMIDE
side effects.. I am glad to report my back has healed and I have stopped the
leflunomide
. RA nurse said my back pain is NOT related to RA but was sympathetic and agreed I should stop
leflunomide
.
Thanks to all those who replied to my earlier post re SACROILIAC pain and
LEFLUNOMIDE
side effects.. I am glad to report my back has healed and I have stopped the
leflunomide
. RA nurse said my back pain is NOT related to RA but was sympathetic and agreed I should stop
leflunomide
.
lesliebird
in
NRAS
6 years ago
Rheumatoid Arthritis & Discoid Lupus ...
As the DLE diagnosis was a surprise my Rheumy has had a load of blood taken with a view to putting me on hydroxycholoroquine and removing
Leflunomide
.
As the DLE diagnosis was a surprise my Rheumy has had a load of blood taken with a view to putting me on hydroxycholoroquine and removing
Leflunomide
.
RachelD1972
in
LUPUS UK
6 years ago
Xeljanz and knee pain
I was on Humira and
leflunomide
which was working great, but due to mouth ulcers doctor switched me to Xeljanz. After 5 weeks still experiencing severe knee pain, fatigue and sore throat. Just added
leflunomide
back 1 week.
I was on Humira and
leflunomide
which was working great, but due to mouth ulcers doctor switched me to Xeljanz. After 5 weeks still experiencing severe knee pain, fatigue and sore throat. Just added
leflunomide
back 1 week.
ragurl
in
NRAS
6 years ago
Introducing myself
Currently taking
Leflunomide
, have had not good times in methotrexate in the past. Probably going to have sulfasalazine added into the mix soon. I would be interested to hear how others do on this mix?
Currently taking
Leflunomide
, have had not good times in methotrexate in the past. Probably going to have sulfasalazine added into the mix soon. I would be interested to hear how others do on this mix?
Bx12
in
NRAS
6 years ago
Horrible Rash
I’ve been on Arava (
Leflunomide
) for over 8 months. The only major side effect was my hands being terrible itchy.Two months ago my doctor started me Cimzia injections also. I was briefly exposed to the sun 2 1/2 weeks ago.
I’ve been on Arava (
Leflunomide
) for over 8 months. The only major side effect was my hands being terrible itchy.Two months ago my doctor started me Cimzia injections also. I was briefly exposed to the sun 2 1/2 weeks ago.
Lincroft242
in
NRAS
6 years ago
RA and Sacroiliac Pain
So my Rheumy doc suggested adding in
Leflunomide
(20mg), (currently on 25mg MTX injection, hydroxy, folic acid, thyroxine, vitamin D)..... Holy sh-t!!!! my body does not like
LEFLUNOMIDE
I became quite unwell immediately upon starting it but could not quite put my finger on it.
So my Rheumy doc suggested adding in
Leflunomide
(20mg), (currently on 25mg MTX injection, hydroxy, folic acid, thyroxine, vitamin D)..... Holy sh-t!!!! my body does not like
LEFLUNOMIDE
I became quite unwell immediately upon starting it but could not quite put my finger on it.
lesliebird
in
NRAS
6 years ago
Baricitinib - Starting next month. Olumiant.
Hello, Saw Rheumatology Consultant Thursday - Says switching from Sulfalasazine 2 ,000 and
Leflunomide
20 mgs per day, to Baricitinib next month, due to current tablets no longer effective. ( I've felt highly unwell - been to GP X 2 - blood tests all normal, except raised inflammation level ).
Hello, Saw Rheumatology Consultant Thursday - Says switching from Sulfalasazine 2 ,000 and
Leflunomide
20 mgs per day, to Baricitinib next month, due to current tablets no longer effective. ( I've felt highly unwell - been to GP X 2 - blood tests all normal, except raised inflammation level ).
weymouth321
in
NRAS
6 years ago
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