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Leflunomide
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Leflunomide and Neutropaenia
Following on from recent post Im about to start wash out for
Leflunomide
. Have had to stop meds due to low neutrophils (0.7). RA nurse has said to have low tolerance for contacting GP or 111 if I feel more ill than I already do and to avoid people who are ill and maintain good hygiene.
Following on from recent post Im about to start wash out for
Leflunomide
. Have had to stop meds due to low neutrophils (0.7). RA nurse has said to have low tolerance for contacting GP or 111 if I feel more ill than I already do and to avoid people who are ill and maintain good hygiene.
Beelady
in
NRAS
6 years ago
Gold injections...
Hi guys, anyone have experience of Gold injections, seems the next thing I'm being offered as failed on Sulfasalazine
Leflunomide
and Hydroxychloroquine not doing much so far! Thanks M x
Hi guys, anyone have experience of Gold injections, seems the next thing I'm being offered as failed on Sulfasalazine
Leflunomide
and Hydroxychloroquine not doing much so far! Thanks M x
marie66
in
NRAS
6 years ago
Pulmonary Issues with RA
My current Rheumatologist took me off everything except prednisone and substituted Mtx with
Leflunomide
. I would have bad flare ups in wrists or shoulder once or twice a month but learned to live with it.
My current Rheumatologist took me off everything except prednisone and substituted Mtx with
Leflunomide
. I would have bad flare ups in wrists or shoulder once or twice a month but learned to live with it.
pupadup
in
NRAS
6 years ago
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Flare in ankles/swelling won't resolve. Anybody have suggestions to help ankles and swelling ?
Been on humira and
leflunomide
, prednisone and changed diet but still have swelling in ankles. I don't want to increase prednisone hope it resolves any suggestions, or experiences ?
Been on humira and
leflunomide
, prednisone and changed diet but still have swelling in ankles. I don't want to increase prednisone hope it resolves any suggestions, or experiences ?
ragurl
in
NRAS
6 years ago
Leflunomide and thin hair
Hi all Im taking
leflunomide
20 mg and have noticed hair has gone limp and thin also nails gone brittle and splitting. Can l take folic acid daily to help with this.
Hi all Im taking
leflunomide
20 mg and have noticed hair has gone limp and thin also nails gone brittle and splitting. Can l take folic acid daily to help with this.
Legley
in
NRAS
6 years ago
CAROTID ARTERY BRUITS
He’s referring me for scan of carotid arteries now before starting Actemra after a trial of
Leflunomide
- (it didn’t do much except make my hair fall out by the handful)! Has anyone else dealt with carotid artery issues/narrowing caused by gca inflammation and not plaque?
He’s referring me for scan of carotid arteries now before starting Actemra after a trial of
Leflunomide
- (it didn’t do much except make my hair fall out by the handful)! Has anyone else dealt with carotid artery issues/narrowing caused by gca inflammation and not plaque?
Hev1964
in
PMRGCAuk
6 years ago
Neutropaenia anyone?
Does this mean that its likely I wont be able to continue with
Leflunomide
? Only my options are getting smaller. Biologics are the next step I think but as I had cancer previously they are concerned re the additional risk this poses with biologics.
Does this mean that its likely I wont be able to continue with
Leflunomide
? Only my options are getting smaller. Biologics are the next step I think but as I had cancer previously they are concerned re the additional risk this poses with biologics.
Beelady
in
NRAS
6 years ago
Leflunomide & Methotrexate
Would be interested to hear if anyone else on this mix and how have you got on with the
Leflunomide
...thanks
Would be interested to hear if anyone else on this mix and how have you got on with the
Leflunomide
...thanks
Buntybear
in
NRAS
6 years ago
Severe reaction to Cimzia . Next step immunology.
Hello everyone, I have RA and tried the DMARDS , reacting badly to hydroxychloroquine, sulfasalazine and methotrexate being ineffective on its own and now on
leflunomide
. My lovely consultant ( who is brillliant ) then decided that biological were the way forward.
Hello everyone, I have RA and tried the DMARDS , reacting badly to hydroxychloroquine, sulfasalazine and methotrexate being ineffective on its own and now on
leflunomide
. My lovely consultant ( who is brillliant ) then decided that biological were the way forward.
Balletmum71
in
NRAS
6 years ago
Husband in denial
Hi All, My hubby was diagnosed with RA 3 years ago, although the consultant jumped on it with methotrexate and
leflunomide
(think that is the name/spelling) he continues to do things he should not, like drink alcohol and smoke.
Hi All, My hubby was diagnosed with RA 3 years ago, although the consultant jumped on it with methotrexate and
leflunomide
(think that is the name/spelling) he continues to do things he should not, like drink alcohol and smoke.
Annieosb
in
Arthritis Action
6 years ago
Blue badge
I’ve had RA for 3 years , it’s been quite a journey , having tried the usual meds I’m now on Rituximab infusions every 6 months and
leflunomide
daily .I’ve had shingles and just to add to the list I broke my ankle in April this year .I had pins and needles in my leg , stood up and fell .Ive read thta
I’ve had RA for 3 years , it’s been quite a journey , having tried the usual meds I’m now on Rituximab infusions every 6 months and
leflunomide
daily .I’ve had shingles and just to add to the list I broke my ankle in April this year .I had pins and needles in my leg , stood up and fell .Ive read thta
Fifi2
in
NRAS
6 years ago
Leflunomide and folic acid
I was taking Mtx but I'm gonna change to
leflunomide
. My question is Do I have to keep taking folic acid too? Isn't a problem taking
leflunomide
and folic acid every day? And it's normal to change 12.5mg of Mtx a week to 20mg of
leflunomide
a day?
I was taking Mtx but I'm gonna change to
leflunomide
. My question is Do I have to keep taking folic acid too? Isn't a problem taking
leflunomide
and folic acid every day? And it's normal to change 12.5mg of Mtx a week to 20mg of
leflunomide
a day?
tiffmnz
in
NRAS
6 years ago
New here 🙋🏼♀️
I take Hydroxychloroquine,
leflunomide
, prednisolone, DHEA, Celebrex the usual mix plus warfarin for APS. When dysphagia became severe the rheumatologist acted. It takes a couple of bounces to stand up and i need a crutch or stick for balance.
I take Hydroxychloroquine,
leflunomide
, prednisolone, DHEA, Celebrex the usual mix plus warfarin for APS. When dysphagia became severe the rheumatologist acted. It takes a couple of bounces to stand up and i need a crutch or stick for balance.
Penelope-Mary
in
Myositis UK
6 years ago
Leflunomide
I wasn't on this medication for long due to the side effects. I do have a problem with side effects on a lot of medications. I am seeing my rhumey this Wednesday My last appointment was 3 months ago and I advised her then I felt Orencia injections were not working as well as I thought they should.
I wasn't on this medication for long due to the side effects. I do have a problem with side effects on a lot of medications. I am seeing my rhumey this Wednesday My last appointment was 3 months ago and I advised her then I felt Orencia injections were not working as well as I thought they should.
Angels-delight
in
NRAS
6 years ago
Help with leflunomide
Until the I have stopped taking
leflunomide
. Anyone else experienced this and if so how long does it take to wear off?
Until the I have stopped taking
leflunomide
. Anyone else experienced this and if so how long does it take to wear off?
Cally55
in
PMRGCAuk
6 years ago
Leflunomide and Increased Fatigue or just tge RA?
Hi there, after not getting on with Mtx or Sulph, Ive been takibg Hydroxy since April and started Lef 3 weeks ago. Ive not noticed any real side effects but I do feel my fatigue is getting worse and worse again and wondering if this the Lef building up or simply tge RA fatigue. Its becoming quite debilitating
Hi there, after not getting on with Mtx or Sulph, Ive been takibg Hydroxy since April and started Lef 3 weeks ago. Ive not noticed any real side effects but I do feel my fatigue is getting worse and worse again and wondering if this the Lef building up or simply tge RA fatigue. Its becoming quite debilitating
Beelady
in
NRAS
6 years ago
Leflunomide
Hi Guys, I know this has been asked over and other again but how did you fare on
Leflunomide
? how was your weight? how was your stomach?
Hi Guys, I know this has been asked over and other again but how did you fare on
Leflunomide
? how was your weight? how was your stomach?
VeronicaF
in
NRAS
6 years ago
Pain meds
At the moment I'm only on pain relief for my RA because methotrexate,
leflunomide
and sulphasalazine affected my liver. I went 9 months without meds last year then on and off, at the moment I'm now about 2 months without and it's awful, enough to make a saint swear.
At the moment I'm only on pain relief for my RA because methotrexate,
leflunomide
and sulphasalazine affected my liver. I went 9 months without meds last year then on and off, at the moment I'm now about 2 months without and it's awful, enough to make a saint swear.
Ginger46
in
NRAS
6 years ago
Leflunomide is there any hair loss with this drug
still asking questions about this drug did you have hair loss? and how was your weight? thank you
still asking questions about this drug did you have hair loss? and how was your weight? thank you
VeronicaF
in
NRAS
6 years ago
Never ending flare!
Hi, I've been on
leflunomide
and due to it not working very well they added in methotrexate. It worked amazingly and my esr went from 70 down to 25! I felt on top of the world for a few months, I was in remission!
Hi, I've been on
leflunomide
and due to it not working very well they added in methotrexate. It worked amazingly and my esr went from 70 down to 25! I felt on top of the world for a few months, I was in remission!
Dreamer85
in
NRAS
6 years ago
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