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Have you visited the Arrhythmia Alliance website?
If you are new to the Forum, or would like updated information relating to a new medication, a scheduled procedure? an information booklet? Make a donation? Register for our monthly patient e-newsletter or simply just find out more about the charity and how we can help you. Our website contains a
If you are new to the Forum, or would like updated information relating to a new medication, a scheduled procedure? an information booklet? Make a donation? Register for our monthly patient e-newsletter or simply just find out more about the charity and how we can help you. Our website contains a
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
6 months ago
Enter our poster competition for World Lupus Day 2024!
This year we're launching a poster competition for our 2024 World Lupus Day campaign. The theme of the poster will be centred around those who have been newly diagnosed with lupus to coincide with the launch of our new information video on World Lupus Day! For more information on what the poster needs
This year we're launching a poster competition for our 2024 World Lupus Day campaign. The theme of the poster will be centred around those who have been newly diagnosed with lupus to coincide with the launch of our new information video on World Lupus Day! For more information on what the poster needs
Debbie_kinsey
Administrator
in
LUPUS UK
6 months ago
Reminder 'Off Topic'
Good morning everyone, Just a gentle reminder if your topic does not relate directly to Rheumatoid Arthritis please can I ask you to make your post 'Off Topic'. Thank you for your support on the matter. Kind Regards Tim - Head of Services NRAS
Good morning everyone, Just a gentle reminder if your topic does not relate directly to Rheumatoid Arthritis please can I ask you to make your post 'Off Topic'. Thank you for your support on the matter. Kind Regards Tim - Head of Services NRAS
Hidden
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NRAS
6 months ago
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Abalation Fears
Hi All Today I went and seen my Electrophysiology specialist and have booked in for an ablation in 2 weeks time. I am quite anxious about this whole procedure. He advised me it would be a 70% success rate and mentioned he does not like quoting over this rate. 70% is based on having no more AF episodes
Hi All Today I went and seen my Electrophysiology specialist and have booked in for an ablation in 2 weeks time. I am quite anxious about this whole procedure. He advised me it would be a 70% success rate and mentioned he does not like quoting over this rate. 70% is based on having no more AF episodes
Murphy10
in
Atrial Fibrillation Support
6 months ago
Behcets + Personal Independence Payment (UK)
I have relatively mild behcets syndrome (frequent mouth ulcers, joint swelling are the main symptoms but there have been periods where i have been unable to walk) Has anyone UK based living with the disease been able to claim
Personal Independence Payment? I'm quite tired of having to pay for my
I have relatively mild behcets syndrome (frequent mouth ulcers, joint swelling are the main symptoms but there have been periods where i have been unable to walk) Has anyone UK based living with the disease been able to claim
Personal Independence Payment? I'm quite tired of having to pay for my
jaquarius
in
Behçet's UK
8 months ago
GCA-Lyme Disease Connection?
Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and then looks at it under the microscope while the patient is present -- and then comments on what has been seen. My wife had the classic signs
Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and then looks at it under the microscope while the patient is present -- and then comments on what has been seen. My wife had the classic signs
montebello
in
PMRGCAuk
8 months ago
AF and MAD
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
LoveRowing
in
Atrial Fibrillation Support
2 months ago
Recommendation for gloves and socks?
Hi Guys, Further to my Post on the Lupus forum (link below) can I ask for recommendations for suitable super warm gloves and socks please? I spent a fortune on some silver lined socks and gloves and found them to be absolutely useless. My M&S bought socks are better than the extortionate silver lined
Hi Guys, Further to my Post on the Lupus forum (link below) can I ask for recommendations for suitable super warm gloves and socks please? I spent a fortune on some silver lined socks and gloves and found them to be absolutely useless. My M&S bought socks are better than the extortionate silver lined
SurferGuy
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
Urso Calculator
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
PSA Rising Dx 06/2022 PSA 864.42 to 01/2023 <0.06 now no longer undetectable, I won’t see DR until next month, What will the Dr do?
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Shorehousejam
in
Advanced Prostate Cancer
8 months ago
Clarity Pharmaceuticals achieves recruitment target for phase II SAR-Bombesin prostate cancer trial
https://themarketherald.com.au/clarity-pharmaceuticals-achieves-recruitment-target-for-phase-ii-sar-bombesin-prostate-cancer-trial-2023-11-07/ for cancer expressing low PSA levels
https://themarketherald.com.au/clarity-pharmaceuticals-achieves-recruitment-target-for-phase-ii-sar-bombesin-prostate-cancer-trial-2023-11-07/ for cancer expressing low PSA levels
Maxone73
in
Advanced Prostate Cancer
8 months ago
any tests for Familial hypocholesterolemia?
hi there, Asking for hubby 54 who runs twice a week, plays table tennis, walks 40 mins a day, healthy diet (although we are looking at sugars, fats and the various debates), has done dry January due to a dodgy bilirubin result which corrected in 4 weeks not drinking. Cholesterol blood tests from
hi there, Asking for hubby 54 who runs twice a week, plays table tennis, walks 40 mins a day, healthy diet (although we are looking at sugars, fats and the various debates), has done dry January due to a dodgy bilirubin result which corrected in 4 weeks not drinking. Cholesterol blood tests from
Regenallotment
in
Cholesterol Support
6 months ago
I'm struggling with pain and fatigue but feel my rheumatologist will not permit me to have my mabthera infusion
It look 5 long years to diagnose my rheumatoid until everything seemed to go. My consultant at the time apologised- I think I was sero- negative.. but then it showed up and I finally got treatment. I have tried various combination of drugs and was finally put on mabthera. My new rheumatologist says
It look 5 long years to diagnose my rheumatoid until everything seemed to go. My consultant at the time apologised- I think I was sero- negative.. but then it showed up and I finally got treatment. I have tried various combination of drugs and was finally put on mabthera. My new rheumatologist says
Ardea
in
NRAS
6 months ago
GENERALLY! Is there a correct sleeping position, right recovery position, left recovery position, back, high back support, v pillow, etc?
On an ordinary mattress, sleeping on one side, especially if overweight [now slightly👌], night after night, could it cause damage to internal organs, liver, stomach, heart, lungs etc. I have had back surgery [25 years ago], broken [fragile] clavicle right shoulder, broken skull, broken rib cage structure
On an ordinary mattress, sleeping on one side, especially if overweight [now slightly👌], night after night, could it cause damage to internal organs, liver, stomach, heart, lungs etc. I have had back surgery [25 years ago], broken [fragile] clavicle right shoulder, broken skull, broken rib cage structure
Adlon57
in
Healthy Evidence
8 months ago
Thinking of taking an ADT vacation
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
John347
in
Advanced Prostate Cancer
8 months ago
shortness of breath subsequent to zoledronic acid infusion
Because of GI problems, bisphosphonate tablets are not an option for me, so I have gone down the infusion path. I had my first infusion on December 28th, and experienced about three days of bad muscle pain, which then resolved itself. It was a couple of weeks later that I noticed that my ankles were
Because of GI problems, bisphosphonate tablets are not an option for me, so I have gone down the infusion path. I had my first infusion on December 28th, and experienced about three days of bad muscle pain, which then resolved itself. It was a couple of weeks later that I noticed that my ankles were
Angel_doll
in
PMRGCAuk
6 months ago
Monitor for Afib
Hi all,Having gone into permanent Afib after a covid infection with no previous history I've had a cardioversion whist on amiodarone. As far as I'm aware I'm still in sinus rhythm and now off amiodarone (thank goodness). I'm on the waiting list for an ablation. My question is it worth getting some kind
Hi all,Having gone into permanent Afib after a covid infection with no previous history I've had a cardioversion whist on amiodarone. As far as I'm aware I'm still in sinus rhythm and now off amiodarone (thank goodness). I'm on the waiting list for an ablation. My question is it worth getting some kind
JoDogBlue
in
Atrial Fibrillation Support
6 months ago
Portable air purifier for outdoor exercise with allergic asthma
It is the peak of spring allergy season here, as well as other great stuff like air pollution. So I just wanted to share the results of today's testing of my wearable air purifier for asthma. I am lucky to have wooded hills out of my door, so I do not have to scare people while walking there. The device
It is the peak of spring allergy season here, as well as other great stuff like air pollution. So I just wanted to share the results of today's testing of my wearable air purifier for asthma. I am lucky to have wooded hills out of my door, so I do not have to scare people while walking there. The device
runcyclexcski
in
Asthma Community Forum
2 months ago
afib and chest infection
hi. My afib has been steady for around 3 months (ie no episodes). My HR runs around 52-60. I’ve started with a chest infection yesterday (can remember feeling like this for a long time) I checked my afib via Apple Watch and although it says I’m in sinus rhythm my HR is low to mid 90’s. Could this
hi. My afib has been steady for around 3 months (ie no episodes). My HR runs around 52-60. I’ve started with a chest infection yesterday (can remember feeling like this for a long time) I checked my afib via Apple Watch and although it says I’m in sinus rhythm my HR is low to mid 90’s. Could this
macymoo007
in
AF Association
6 months ago
Heart Pain
I wonder if somebody can assist with a question. I'm a 46 year old with a minor mitral valve prolapse. Possible sinus nerve damage on the lower ventricle but minor. I'm not on medication. There is no known 'major' issue or treatment plan suggested by cardiologist. I am very fit with low heart beat. Have
I wonder if somebody can assist with a question. I'm a 46 year old with a minor mitral valve prolapse. Possible sinus nerve damage on the lower ventricle but minor. I'm not on medication. There is no known 'major' issue or treatment plan suggested by cardiologist. I am very fit with low heart beat. Have
MathewHerbert
in
Atrial Fibrillation Support
2 months ago
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