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HSCT early in MS
This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was diagnosed with PPMS, received her transplant in the third year after diagnosis. The other, who was diagnosed with RRMS, got her transplant just twelve
This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was diagnosed with PPMS, received her transplant in the third year after diagnosis. The other, who was diagnosed with RRMS, got her transplant just twelve
BettysMom
in
My MSAA Community
7 months ago
Stem Cell transplant register search goes on…
Unfortunately my next appointment with Consultant has been delayed until early April as they are no further advanced in their search for matches on transplant register. The Nuclear medicine tests that I have just had will be added to MyChart which Addenbrookes uses to show appointments, test results
Unfortunately my next appointment with Consultant has been delayed until early April as they are no further advanced in their search for matches on transplant register. The Nuclear medicine tests that I have just had will be added to MyChart which Addenbrookes uses to show appointments, test results
LFCLove
in
MPN Voice
7 months ago
Update: re my "draining fluid" post
I recently about (4th August) posted on the above topic. I thought I was going into hospital to have fluid drained. To those that replied, sorry for the delay! I will be reading and responding over the next few days, but in the meantime, thanks to all of you, you are a great source of support and
I recently about (4th August) posted on the above topic. I thought I was going into hospital to have fluid drained. To those that replied, sorry for the delay! I will be reading and responding over the next few days, but in the meantime, thanks to all of you, you are a great source of support and
taar
in
British Liver Trust
1 year ago
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Glad to see more and more players are jumping into the stem cell therapy
A Phase 1/2a clinical trial evaluating TED-A9, a human stem cell-based therapy, in people with Parkinson’s disease has finished dosing with no safety concerns identified to date. Embryonic stem cell transplant showing safety in 12 patients The therapy, delivered as a cell transplant directly into
A Phase 1/2a clinical trial evaluating TED-A9, a human stem cell-based therapy, in people with Parkinson’s disease has finished dosing with no safety concerns identified to date. Embryonic stem cell transplant showing safety in 12 patients The therapy, delivered as a cell transplant directly into
Farooqji
in
Cure Parkinson's
7 months ago
Stem cell transplant
Hello, Has anyone woth AMN here ever had a stem cell transplant as a result of a diagnoses involving cerebral involvement? Please tell all! Is it a viable treatment option?
Hello, Has anyone woth AMN here ever had a stem cell transplant as a result of a diagnoses involving cerebral involvement? Please tell all! Is it a viable treatment option?
A7x1823eb
in
AMN EASIER
7 months ago
Heart Transplant
Good morning all, just wanted to know if any has or known some who has had a heart transplant. I have had a serious heart condition for 50 years and became seriously I’ll last year. I am now on the waiting list for a transplant since Jan 23. I suppose the question I’m asking is what it was like ? as
Good morning all, just wanted to know if any has or known some who has had a heart transplant. I have had a serious heart condition for 50 years and became seriously I’ll last year. I am now on the waiting list for a transplant since Jan 23. I suppose the question I’m asking is what it was like ? as
DW4019
in
British Heart Foundation
1 year ago
Has anyone had Covid post-transplant?
After much thought, I think it all stems from the onset of Covid, right about the time I had my
kidney
transplant
. I never experienced anxiety before.
After much thought, I think it all stems from the onset of Covid, right about the time I had my
kidney
transplant
. I never experienced anxiety before.
Djangosmom
in
Kidney Transplant
2 years ago
CTC MEANING
I entered the SPLASH trial in Spet 2022 and had my first treatment in Dec 2022. I had mets from PSMA scan aZhang at Moffitt. He thought I had responded rather well to the treaments and suggested I shoudl get a CTC (curculating tumor) test and as long as that was under 5 perhaps Provenge treatment. The
I entered the SPLASH trial in Spet 2022 and had my first treatment in Dec 2022. I had mets from PSMA scan aZhang at Moffitt. He thought I had responded rather well to the treaments and suggested I shoudl get a CTC (curculating tumor) test and as long as that was under 5 perhaps Provenge treatment. The
Joeym1040
in
Advanced Prostate Cancer
1 year ago
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis.
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
PhysAssist
in
MPN Voice
7 months ago
Just wanted to share my Primary Myelofibrosis journey so far…….
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
LFCLove
in
MPN Voice
7 months ago
Curious about Hyper-magnesium and hypothyroidism
Has anyone experienced hyper magnesium with hypothyroidism? Im curious because my mag levels (although not reliable) is on the higher side and Im just wondering about this. Link below that I was reading. https://www.merckmanuals.com/professional/endocrine-and-metabolic-disorders/electrolyte-disorders
Has anyone experienced hyper magnesium with hypothyroidism? Im curious because my mag levels (although not reliable) is on the higher side and Im just wondering about this. Link below that I was reading. https://www.merckmanuals.com/professional/endocrine-and-metabolic-disorders/electrolyte-disorders
Batty1
in
Thyroid UK
1 year ago
If it’s not one thing, it's another! Update
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Gulfstream_Maggie
in
Fibromyalgia Action UK
1 year ago
Blood clots in calf
Has anyone had issues with blood clots (superficial vein thrombosis) in their legs? In April I thought I’d just pulled a calf muscle but on the advice of my Pilates teacher (!) saw my GP who immediately prescribed blood-thinning medication and sent me off to the emergency hospital clinic the next
Has anyone had issues with blood clots (superficial vein thrombosis) in their legs? In April I thought I’d just pulled a calf muscle but on the advice of my Pilates teacher (!) saw my GP who immediately prescribed blood-thinning medication and sent me off to the emergency hospital clinic the next
Susiemac1321
in
NRAS
1 year ago
gobsmacked
I can't believe they won't prescribe Subutex to a suffering chronic pain sufferer, but freely give it out to drug addicts.......I'm just gobsmacked. There is a drug out there that could potentially stop me from jumping off a bridge but they won't give it to me. They look at me as if I'm a drug seeker
I can't believe they won't prescribe Subutex to a suffering chronic pain sufferer, but freely give it out to drug addicts.......I'm just gobsmacked. There is a drug out there that could potentially stop me from jumping off a bridge but they won't give it to me. They look at me as if I'm a drug seeker
Hidden
in
Restless Legs Syndrome
1 year ago
microscopic blood in urine.
Hi (sorry for a long one) I am a 34 year old Female and have recently had trouble with bowels and abdomen pain, so I saw my GP for that and while she wasn’t interested in that (put it down to IBS), she was very interested in the fact I have had Microscopic Haematuria in my Urine in the past. I was
Hi (sorry for a long one) I am a 34 year old Female and have recently had trouble with bowels and abdomen pain, so I saw my GP for that and while she wasn’t interested in that (put it down to IBS), she was very interested in the fact I have had Microscopic Haematuria in my Urine in the past. I was
Elliehca
in
Pelvic Pain Support Network
1 year ago
strange feeling
wondering if anyone can help for about 4 months now I have had a stitch like feeling that comes and goes in kidney area! I see doctor who said not to worry all seems fine 🤷♀️. So I made another appointment had bloods and kidney function was ok! Since then I still have the stitch feeling, have had UTI
wondering if anyone can help for about 4 months now I have had a stitch like feeling that comes and goes in kidney area! I see doctor who said not to worry all seems fine 🤷♀️. So I made another appointment had bloods and kidney function was ok! Since then I still have the stitch feeling, have had UTI
Readbecgar
in
Early CKD Support
1 year ago
Has anyone navigated Medicare while trying to get the TPIAT?
Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the
Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the
Skye_MC
Administrator
in
Chronic Pancreatitis Support
1 year ago
biochemical recurrence after RP. +post leukemia
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
junkwerc
in
Prostate Cancer Network
7 months ago
Bisoprolol problems
I'm sure I'm having real issues with Bisoprolol it doesn't control my af at all and causes my heart to go now go so low low I'm getting really worried it used to go down to 40bpm which was to low now it goes lower at times but now the lowest is 32bpm . I'm thinking of stopping it completely my gp
I'm sure I'm having real issues with Bisoprolol it doesn't control my af at all and causes my heart to go now go so low low I'm getting really worried it used to go down to 40bpm which was to low now it goes lower at times but now the lowest is 32bpm . I'm thinking of stopping it completely my gp
Corrie12
in
AF Association
1 year ago
Advice on blood test please
Hi everyone Just got these results back today A few elevated levels..one below Also elevated APTT 38.5 (26.9-34.5) below range GFR 74 (90-200) Any idea please ..feeling pretty rough x
Hi everyone Just got these results back today A few elevated levels..one below Also elevated APTT 38.5 (26.9-34.5) below range GFR 74 (90-200) Any idea please ..feeling pretty rough x
Lincsangel1
in
Pernicious Anaemia Society
1 year ago
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