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New on transplant list.
After years of slowly decreasing kidney function, I was recently listed for kidney transplant.
After years of slowly decreasing kidney function, I was recently listed for kidney transplant.
6V53
in
Kidney Transplant
2 years ago
IBS and Kidney Stones
Has anyone with IBS had to take Potassium Citrate mixture to try and prevent further production of Kidney Stones. It is known for upset Stomach and D. I have been prescribed this mixture and have been taking it for about a year now and seem to have much worse IBS D symtoms after a main meal. Just
Has anyone with IBS had to take Potassium Citrate mixture to try and prevent further production of Kidney Stones. It is known for upset Stomach and D. I have been prescribed this mixture and have been taking it for about a year now and seem to have much worse IBS D symtoms after a main meal. Just
Will1234
in
IBS Network
2 years ago
New Here, Stage 3b Kidney Disease with T1D, feeling down
My latest nephrology appointment this month involved future discussion of being placed on a transplant list, and looking at
kidney
failure
in my future. I don't know how to cope with how I'm feeling.
My latest nephrology appointment this month involved future discussion of being placed on a transplant list, and looking at
kidney
failure
in my future. I don't know how to cope with how I'm feeling.
DMH200435
in
Kidney Disease
2 years ago
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Using Albutrix
I have been using Albutrix for one month. Until I receive my next blood and 24-hour urine test results, I do not know how well it works. I have read the entire book, Stopping Kidney Disease by Lee Hull. It is excellent. I have started to read some of the referenced scientific articles, such as:
I have been using Albutrix for one month. Until I receive my next blood and 24-hour urine test results, I do not know how well it works. I have read the entire book, Stopping Kidney Disease by Lee Hull. It is excellent. I have started to read some of the referenced scientific articles, such as:
PaulSheldonFoote
in
Early CKD Support
2 years ago
Chronic itchiness
Hi, I am in heart, lung and
kidney
failure
following a first wave hospital acquired Covid-19 special treat. I spent almost 8 months in hospital and I suppose on the bright side I'm lucky I survived. My egfr is now mid teens.
Hi, I am in heart, lung and
kidney
failure
following a first wave hospital acquired Covid-19 special treat. I spent almost 8 months in hospital and I suppose on the bright side I'm lucky I survived. My egfr is now mid teens.
CarlosFandango
in
Kidney Transplant
3 years ago
See a Professional Respiritory doctor
Morning everyone, hope your all keeping as well as can be. Seems so many of you have never had a proper respiritory check up by a Professional. How can this be, how can people diagnose respiritory illness without it. I asked my respiritory nurse why I had never been referred to chest clinic and asked
Morning everyone, hope your all keeping as well as can be. Seems so many of you have never had a proper respiritory check up by a Professional. How can this be, how can people diagnose respiritory illness without it. I asked my respiritory nurse why I had never been referred to chest clinic and asked
purdeyspringer
in
Lung Conditions Community Forum
2 years ago
Don’t know how much more I can take!
Don’t know how much more I can take, Not Liver related just needed to talk to someone who’s not involved. As a few of you know my Hubby was diagnosed in December with cirrhosis after many months of uncertainty being told it could be serval different cancers. Then in January I get told I am heading for
Don’t know how much more I can take, Not Liver related just needed to talk to someone who’s not involved. As a few of you know my Hubby was diagnosed in December with cirrhosis after many months of uncertainty being told it could be serval different cancers. Then in January I get told I am heading for
Dobielove
in
British Liver Trust
2 years ago
The Kidney Project
https://www.youtube.com/watch?v=zZZyE67VU5o&t=2742s In this video it highlights the process and updates of implantable bioartificial kidney by The Kidney Project Summary -They managed to test a miniature device and have tested it on animals producing urine to show that it works and is safe. -They still
https://www.youtube.com/watch?v=zZZyE67VU5o&t=2742s In this video it highlights the process and updates of implantable bioartificial kidney by The Kidney Project Summary -They managed to test a miniature device and have tested it on animals producing urine to show that it works and is safe. -They still
Tony_Mimicted
in
Kidney Disease
2 years ago
Lupus Nephritis and Cyclophosphamide
Hi all, This is my first post here although I've been on this forum for a while. I'm 23 and got diagnosed with SLE and lupus nephritis a year ago in March. I've never had the nephritis treated until recently however. I take 400mg hydroxychloroquine (I should take 300mg based on weight though) and have
Hi all, This is my first post here although I've been on this forum for a while. I'm 23 and got diagnosed with SLE and lupus nephritis a year ago in March. I've never had the nephritis treated until recently however. I take 400mg hydroxychloroquine (I should take 300mg based on weight though) and have
CPower
in
LUPUS UK
2 years ago
Home blood testing
Hi, I am new to this forum so it is nice to meet you all. Just have a quick question, I have had an ultrasound and found to have a fatty liver (falls just inside acceptable apparently) and a simple cyst. I only found out this from the nurse as I had gone to see her about something else. My GP now
Hi, I am new to this forum so it is nice to meet you all. Just have a quick question, I have had an ultrasound and found to have a fatty liver (falls just inside acceptable apparently) and a simple cyst. I only found out this from the nurse as I had gone to see her about something else. My GP now
Lisell
in
British Liver Trust
2 years ago
To do KT or not?
To those of you that has had a kidney transplant, do you think it is worth to do it, given all the possible complications and the high risk of developing cancer by taking immunosuppressants ? I am contemplating on undergoing pre- emptive KT but with of these possibilities , I am so nervous. Thanks
To those of you that has had a kidney transplant, do you think it is worth to do it, given all the possible complications and the high risk of developing cancer by taking immunosuppressants ? I am contemplating on undergoing pre- emptive KT but with of these possibilities , I am so nervous. Thanks
Dina0210
in
Kidney Disease
2 years ago
New here
Hi, I was diagnosed with Primary Peritoneal Cancer stage 4b Sept 2020 my Ca125 was 1640. I also had 2 drains for fluid in the abdomen. After 3 rounds of carboTaxol I responded well enough for debulking surgery on Xmas eve. This was successful and in Feb 2021 my scan showed NED, was then put on a maintenance
Hi, I was diagnosed with Primary Peritoneal Cancer stage 4b Sept 2020 my Ca125 was 1640. I also had 2 drains for fluid in the abdomen. After 3 rounds of carboTaxol I responded well enough for debulking surgery on Xmas eve. This was successful and in Feb 2021 my scan showed NED, was then put on a maintenance
Ab59
in
My Ovacome
2 years ago
Post AF ablation
Hello, My 65 year old father, who suffers from heart failure and AF, underwent his first AF ablation 3 days ago. Doctors didnt really tell us what to expect during the recovery period so seeing my dad struggle that much is very difficult for me. 3 days post op, he is still coughing a lot, has a headache
Hello, My 65 year old father, who suffers from heart failure and AF, underwent his first AF ablation 3 days ago. Doctors didnt really tell us what to expect during the recovery period so seeing my dad struggle that much is very difficult for me. 3 days post op, he is still coughing a lot, has a headache
Salbie
in
AF Association
3 years ago
Change of Plan?
When my PSA took off in 2021 following an APC diagnosis in the January, SBRT to 3rd rib and T1 failing to prevent new mets (6 to spine on PSMA PET scan) I was referred to an MO for systemic treatment. He recommended SOC as: Degarelix Chemo Abiraterone RO said she would consider radiation therapy to
When my PSA took off in 2021 following an APC diagnosis in the January, SBRT to 3rd rib and T1 failing to prevent new mets (6 to spine on PSMA PET scan) I was referred to an MO for systemic treatment. He recommended SOC as: Degarelix Chemo Abiraterone RO said she would consider radiation therapy to
Brysonal
in
Advanced Prostate Cancer
2 years ago
The Queens first steps inside the Dialysis Center
Hi everyone. I went to dialysis education yesterday. It was the very first time I went inside a building I have past a million times knowing it was where people got dialysis. Going in I felt a wealth of emotions none greater than sadness. It felt suffocating and surreal to be honest. Me and my mom
Hi everyone. I went to dialysis education yesterday. It was the very first time I went inside a building I have past a million times knowing it was where people got dialysis. Going in I felt a wealth of emotions none greater than sadness. It felt suffocating and surreal to be honest. Me and my mom
HipHopQueen
in
Kidney Dialysis
2 years ago
Severe, 45-minute long leg cramps
When I'm falling asleep, I get terrible leg cramps where both the extending and the contracting leg muscles freeze for about 45 min. until my muscles "remember" where they belong. And then and only then I can put my foot on the floor. I'm scheduled for a kidney transplant and hoping that the cramps will
When I'm falling asleep, I get terrible leg cramps where both the extending and the contracting leg muscles freeze for about 45 min. until my muscles "remember" where they belong. And then and only then I can put my foot on the floor. I'm scheduled for a kidney transplant and hoping that the cramps will
PurpleKatisha
in
Kidney Disease
2 years ago
Prednisolone
Has anyone managed to come off Prednisolone 8 yrs after transplant and just manage on Tacrolimus alone?
Has anyone managed to come off Prednisolone 8 yrs after transplant and just manage on Tacrolimus alone?
Tracy1654
in
Kidney Transplant Patient Support
2 years ago
Covid safety rules to stop !
Had enough now ! feel like myself as RA Imunecompromised and my husband severe Immunecompromised Kidney transplant will never get our life back or be safe ! Boris knows there are still vulnerable and exstremely vulnerable people they are a disgrace and act as if everyone is ok !!!
Had enough now ! feel like myself as RA Imunecompromised and my husband severe Immunecompromised Kidney transplant will never get our life back or be safe ! Boris knows there are still vulnerable and exstremely vulnerable people they are a disgrace and act as if everyone is ok !!!
trace58
in
NRAS
2 years ago
Any young people on here?
Just wondering if there’s any young people on here with liver cirrhosis & have had liver failure and ascites, I was taken into hospital 4 months ago with jaundice, liver
failure
kidney
failure
and ascites witch was causing a fluid build up in my lungs and stomach (my stomach was unbelievably big) and
Just wondering if there’s any young people on here with liver cirrhosis & have had liver failure and ascites, I was taken into hospital 4 months ago with jaundice, liver
failure
kidney
failure
and ascites witch was causing a fluid build up in my lungs and stomach (my stomach was unbelievably big) and
Hidden
in
British Liver Trust
3 years ago
What to do when dad gets home from hospital
My dad 79 and a veteran, just started kidney dialysis in the hospital. I live an hour and I am hoping they can setup rides to dialysis when he gets home. I am worried about his new diet plan. Because of my health I can only get there once a week. Any tips are appreciated. I am new to this, and I am
My dad 79 and a veteran, just started kidney dialysis in the hospital. I live an hour and I am hoping they can setup rides to dialysis when he gets home. I am worried about his new diet plan. Because of my health I can only get there once a week. Any tips are appreciated. I am new to this, and I am
dadinfo
in
Kidney Dialysis
2 years ago
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