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Help with test results
Hello is there anyone in the uk (or anywhere) tell me what a creatinine level of 244 mol/L means - I cannot interpret it - also a serum urea level of 16.1 mmol/L means. I know they are both above limit but even if I could convert to the American system I would find it easier. Also the uti hasn't gone
Hello is there anyone in the uk (or anywhere) tell me what a creatinine level of 244 mol/L means - I cannot interpret it - also a serum urea level of 16.1 mmol/L means. I know they are both above limit but even if I could convert to the American system I would find it easier. Also the uti hasn't gone
fartikins
in
Early CKD Support
2 years ago
Ureteral stricture after transplant with no success after attempting stent and ballooning
Hello:) I just had my third kidney transplant in December. I had multiple pre transplant day long meetings to decide the best option for me having a third transplant and it was decided my fiance would donate and we would do paired exchange as a live donor and planned transplant would be for the best
Hello:) I just had my third kidney transplant in December. I had multiple pre transplant day long meetings to decide the best option for me having a third transplant and it was decided my fiance would donate and we would do paired exchange as a live donor and planned transplant would be for the best
Calebzztop
in
Kidney Transplant
2 years ago
Problems with kidneys.
Hi I keep finding blood in urine. So went to see a doctor who referred me to Urology for camera that I had inserted in my bladder.I do suffer from endometriosis they said nothing wrong with bladder but have enlarged kidney. Need to go for ct scan which was 2 weeks ago. Still waiting for results said
Hi I keep finding blood in urine. So went to see a doctor who referred me to Urology for camera that I had inserted in my bladder.I do suffer from endometriosis they said nothing wrong with bladder but have enlarged kidney. Need to go for ct scan which was 2 weeks ago. Still waiting for results said
Lionscales
in
Endometriosis UK
2 years ago
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Stopping Prednisone
I had my kidney transplant 2-1/2 years ago and my lab tests are consistently good. I'm taking everolimus, mycophenolic acid and prednisone. The prednisone is causing weight gain, diabetes and, possibly, hair loss. I tapered down to 5 mg of prednisone over two years ago. I'm now wondering whether I can
I had my kidney transplant 2-1/2 years ago and my lab tests are consistently good. I'm taking everolimus, mycophenolic acid and prednisone. The prednisone is causing weight gain, diabetes and, possibly, hair loss. I tapered down to 5 mg of prednisone over two years ago. I'm now wondering whether I can
peregrin
in
Kidney Transplant
2 years ago
I don't like PD
I have been doing PD dialysis for 5 days and I don't like it because of the cramping is this unusual? I feel like I want to go back to doing hemodialysis in the center. The only thing I do like is PD is not four hours period. Any advice?
I have been doing PD dialysis for 5 days and I don't like it because of the cramping is this unusual? I feel like I want to go back to doing hemodialysis in the center. The only thing I do like is PD is not four hours period. Any advice?
Quita55
in
Kidney Dialysis
2 years ago
Help with diagnosing gut issues that suddenly started 18 months ago - Related to sub-optimal B12?
Hi - this is a repost from IBS Network community. I saw posts on here that lower than optimal B12 could be the cause of my gut issues, which dont' seem to be IBD/IBS as calprotectin is low. Any advice - let me know! I'm new to this community and hoping to get some guidance on my gut issues. The heaviness
Hi - this is a repost from IBS Network community. I saw posts on here that lower than optimal B12 could be the cause of my gut issues, which dont' seem to be IBD/IBS as calprotectin is low. Any advice - let me know! I'm new to this community and hoping to get some guidance on my gut issues. The heaviness
ak_83
in
Pernicious Anaemia Society
2 years ago
Help with diagnosing gut issues that suddenly started 18 months ago
I'm new to this community and hoping to get some guidance on my gut issues. The heaviness, bloating and slow digestion started suddenly 18 months ago and I'm failing to get a diagnosis with my gastroenterologist. I would be very grateful if anyone could provide an insight into what this could be or at
I'm new to this community and hoping to get some guidance on my gut issues. The heaviness, bloating and slow digestion started suddenly 18 months ago and I'm failing to get a diagnosis with my gastroenterologist. I would be very grateful if anyone could provide an insight into what this could be or at
ak_83
in
IBS Network
2 years ago
Hot Topics In Kidney Health: How kidney disease affects your mental health
People with kidney disease face mental health struggles such as depression or anxiety, which often goes overlooked or undertreated. We spoke with a mentor and mentee from NKF Peers to discuss the importance of talking to someone who knows what you've been through. Listen today: https://bit.ly/3gznxpZ
People with kidney disease face mental health struggles such as depression or anxiety, which often goes overlooked or undertreated. We spoke with a mentor and mentee from NKF Peers to discuss the importance of talking to someone who knows what you've been through. Listen today: https://bit.ly/3gznxpZ
JackieJ_NKF
Partner
in
Kidney Dialysis
2 years ago
First day of dialysis
HI Everyone. Im a newbie to the dialysis thread. Just about to start my first dialysis today. Gfr is at 6% but apart from fatigue, I feel fine. I am an absolute bag of nerves. I have been to the dialysis unit for an induction but that seems to have made me more anxious. I cant believe the day, I have
HI Everyone. Im a newbie to the dialysis thread. Just about to start my first dialysis today. Gfr is at 6% but apart from fatigue, I feel fine. I am an absolute bag of nerves. I have been to the dialysis unit for an induction but that seems to have made me more anxious. I cant believe the day, I have
Ziggydoodah
in
Kidney Dialysis
2 years ago
Rollercoaster 🎢 again!
Had my 1st meeting about starting chemo today so was happy to get a step closer! The oncologist told me that I'm still stage 3a hgs but they had read in 1 letter that a lymph was flagged up next to my heart!! 1st I've heard this as I'd had womb biopsy cervix and guided ct on lymph plus ct scan 6weeks
Had my 1st meeting about starting chemo today so was happy to get a step closer! The oncologist told me that I'm still stage 3a hgs but they had read in 1 letter that a lymph was flagged up next to my heart!! 1st I've heard this as I'd had womb biopsy cervix and guided ct on lymph plus ct scan 6weeks
Newbery3
in
My Ovacome
2 years ago
Cholera vaccine & Healthy Traveler bias?
New update on the cholera vaccine topic from the Karolinska Institutet. Sweden, [1] Cutting to the chase: "We showed that administration of cholera vaccine after prostate cancer diagnosis is associated with a significant reduction in mortality (HR 0.46 ...) even after adjusting for all known confounders
New update on the cholera vaccine topic from the Karolinska Institutet. Sweden, [1] Cutting to the chase: "We showed that administration of cholera vaccine after prostate cancer diagnosis is associated with a significant reduction in mortality (HR 0.46 ...) even after adjusting for all known confounders
pjoshea13
in
Advanced Prostate Cancer
2 years ago
Adjust Crown, Mood Roller Coaster Begin
I meet with my nephrologist this week. Always nerve wrecking. The highs and lows of all of this are definitely a roller coaster and I know I still haven't fully gotten on. I'm waiting on the day when my nephrologist says I have to start dialysis. My fistula seems to be doing well, vibrating away. Why
I meet with my nephrologist this week. Always nerve wrecking. The highs and lows of all of this are definitely a roller coaster and I know I still haven't fully gotten on. I'm waiting on the day when my nephrologist says I have to start dialysis. My fistula seems to be doing well, vibrating away. Why
HipHopQueen
in
Kidney Dialysis
2 years ago
Looking for other mommas!
My son received a kidney transplant in February. Since then he has had such terrible awful behavior, and I am more than burned out. Any other mommas out there with any experience/advice!?
My son received a kidney transplant in February. Since then he has had such terrible awful behavior, and I am more than burned out. Any other mommas out there with any experience/advice!?
Kdown212
in
Kidney Transplant
2 years ago
Sad Times 😞
We lost our beautiful Brodie Bear two weeks ago. I haven’t posted about it because we have been trying to keep busy but we are truly heartbroken. He was only off his food for a few days then violently sick over the Easter weekend and we took him to the emergency vets. To our horror he was in kidney failure
We lost our beautiful Brodie Bear two weeks ago. I haven’t posted about it because we have been trying to keep busy but we are truly heartbroken. He was only off his food for a few days then violently sick over the Easter weekend and we took him to the emergency vets. To our horror he was in kidney failure
CecilyParsley
in
LUPUS UK
2 years ago
Mischley's diet and raw dairy?
Hi everyone! Have any of you been following Dr Laurie Mischley's diet recommendations, which include as the number 1 thing to do, to eliminate dairy? Has this helped you? I am wondering if it's not the dairy itself but what the cows are fed, other practices and how the milk is processed in conventional
Hi everyone! Have any of you been following Dr Laurie Mischley's diet recommendations, which include as the number 1 thing to do, to eliminate dairy? Has this helped you? I am wondering if it's not the dairy itself but what the cows are fed, other practices and how the milk is processed in conventional
PDFree
in
Cure Parkinson's
2 years ago
Prednisolone, can it be down to 3/4 of 5mg?
Hi! So I'm kidney transplant patient on my 11th year. I have some hormonal issues and my doctor said I should reduce my Prednisolone from 1 tab morning of 5mg to 3/4 of tab. I'm hesitating. What's your experience? (Normal scheme for me: 1 tab Prednisolone at morning, 1mg Prograf morning and evening,
Hi! So I'm kidney transplant patient on my 11th year. I have some hormonal issues and my doctor said I should reduce my Prednisolone from 1 tab morning of 5mg to 3/4 of tab. I'm hesitating. What's your experience? (Normal scheme for me: 1 tab Prednisolone at morning, 1mg Prograf morning and evening,
Lily2019
in
Kidney Transplant
2 years ago
Pd home changing to cycler severe edema.
I am currently on pd home dialysis. I felt as if it had stopped working and my Dr recently confirmed this. I have severe lower calf edema. It’s red spotty, itchy and dry and very tight. I am starting the cycler on Monday. Has anyone else had manual exchanges stop giving them proper fluid removal?
I am currently on pd home dialysis. I felt as if it had stopped working and my Dr recently confirmed this. I have severe lower calf edema. It’s red spotty, itchy and dry and very tight. I am starting the cycler on Monday. Has anyone else had manual exchanges stop giving them proper fluid removal?
LeslieK
in
Kidney Dialysis
2 years ago
Transplant Waitlist Survey
If you have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information would affect potential recipients' decision to either accept
If you have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information would affect potential recipients' decision to either accept
KelliC_NKF
in
Kidney Transplant
2 years ago
Transplant Waitlist Survey
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information
KelliC_NKF
in
Kidney Dialysis
2 years ago
Transplant Waitlist Survey
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what
KelliC_NKF
in
Kidney Disease
2 years ago
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