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polycystic liver disease
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
I wanted to find out if anyone else had experienced severe Polycystic Liver Disease. I had resection 12 years ago which was successful but my cysts have grown back more aggressively. I have been advised by specialist that they cannot de-roof as would space simply be filled by other cysts, resection
Sing2011
in
British Liver Trust
9 months ago
What does having a NEW KIDNEY feel like?
Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you
Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you
Imaanforever
in
Kidney Dialysis
9 months ago
Protein in my urine
Hi there! I am 6 months post kidney transplant. First I'd like to say that I was very blessed, I was approved and put on the list May 3, 2023 and I received my new kidney from a perfect match deceased donor June 13, 2023. My transplant team said that is very rare and very lucky. I have had some challenges
Hi there! I am 6 months post kidney transplant. First I'd like to say that I was very blessed, I was approved and put on the list May 3, 2023 and I received my new kidney from a perfect match deceased donor June 13, 2023. My transplant team said that is very rare and very lucky. I have had some challenges
SweetTexas75
in
Kidney Transplant
10 months ago
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Avodart and Flomax
Hello brothers. Is it safe to use Avodart and Flomax with advanced prostate cáncer? I am tired of getting up to pee 7 or 8 times a night.
Hello brothers. Is it safe to use Avodart and Flomax with advanced prostate cáncer? I am tired of getting up to pee 7 or 8 times a night.
CountryJoe
in
Advanced Prostate Cancer
10 months ago
filgotinib dosage
hi everyone, Feel a bit embarrassed with this post,as was so cock a hoop of results on filgotinib,telling all it was a miracle drug!It was and life was brilliant without pain.Because of age dr persey decreased from 200mg to 100 mg 4 weeks ago and pain has all come back.It was so good while it lasted
hi everyone, Feel a bit embarrassed with this post,as was so cock a hoop of results on filgotinib,telling all it was a miracle drug!It was and life was brilliant without pain.Because of age dr persey decreased from 200mg to 100 mg 4 weeks ago and pain has all come back.It was so good while it lasted
Doodlereggie
in
NRAS
10 months ago
Transplant Question
I’ve been wondering for awhile if kidney transplants are given once a person is past a certain age? I’m in the U.S. and I have a cousin who had severe liver disease. She was 75 & the state she lived in didn’t perform liver transplants on anyone over 68. I checked with my state, & liver transplants
I’ve been wondering for awhile if kidney transplants are given once a person is past a certain age? I’m in the U.S. and I have a cousin who had severe liver disease. She was 75 & the state she lived in didn’t perform liver transplants on anyone over 68. I checked with my state, & liver transplants
Halebopp
in
Kidney Disease
10 months ago
kidney stones
The doctor has said I could have kidney stones but because the pain is very mild it’s not an immediate concern as it’s the weekend. I should try and ride it out until my blood tests and scan next week unless it gets severe.
The doctor has said I could have kidney stones but because the pain is very mild it’s not an immediate concern as it’s the weekend. I should try and ride it out until my blood tests and scan next week unless it gets severe.
Kimbad1990
in
Early CKD Support
10 months ago
Not posted for a while
since coming off Ropinirole in October 2023 a lot has happened. I saw Doctor Jose Thomas at the Spire hospital in Cardiff South Wales before Christmas and completed his standard forms relating to RLS, sleep patterns mental state and so on. He wrote to my GP suggesting i commence a course of Pregabalin
since coming off Ropinirole in October 2023 a lot has happened. I saw Doctor Jose Thomas at the Spire hospital in Cardiff South Wales before Christmas and completed his standard forms relating to RLS, sleep patterns mental state and so on. He wrote to my GP suggesting i commence a course of Pregabalin
HipHop1972
in
Restless Legs Syndrome
7 months ago
Results for fatty kidney
Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer phew I’ve been so worried. They want me to have it checked every year for growth . Has any f my CLL folk been diagnosed with this condition?
Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer phew I’ve been so worried. They want me to have it checked every year for growth . Has any f my CLL folk been diagnosed with this condition?
Pekingese
in
CLL Support
10 months ago
Really bad stomach and bowel cramps
Dry mouth and and all over pain stomach cramps and bowel cramps 111 just playing piped music for 15 minutes I think it's the lactulose cause it really fatigued also nausea blood pressure 153/90 pulse rate 106 111 was no help really feel sick and dizzy and I'm really thirsty blood pressure is still sky
Dry mouth and and all over pain stomach cramps and bowel cramps 111 just playing piped music for 15 minutes I think it's the lactulose cause it really fatigued also nausea blood pressure 153/90 pulse rate 106 111 was no help really feel sick and dizzy and I'm really thirsty blood pressure is still sky
Sheliabee
in
British Liver Trust
10 months ago
Kidney transplant stage 4 20 percent kidney function but don't have symptoms.
Hi everyone I hope everyone is doing well . Well it's been 22 years years with my kidney transplant and unfortunately I'm already at stage 4 20 percent kidney function. I have was hoping that this second time going to the dr my percent will be a little higher but no 😔. I'm so worried and scare I don't
Hi everyone I hope everyone is doing well . Well it's been 22 years years with my kidney transplant and unfortunately I'm already at stage 4 20 percent kidney function. I have was hoping that this second time going to the dr my percent will be a little higher but no 😔. I'm so worried and scare I don't
jennifer24
in
Kidney Transplant
10 months ago
What Treatment - Or No Treatment Advice?
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
Nordman
in
Advanced Prostate Cancer
10 months ago
Celiac and CKD
I am wondering if anyone here has celiac? I have stage 4 kidney disease and celiac. I’m tired all the time to the point that I am not exercising like I should. I need procrit shots weekly just to keep my iron levels at the bare minimum. I’m not particularly interested in eating which may make the situation
I am wondering if anyone here has celiac? I have stage 4 kidney disease and celiac. I’m tired all the time to the point that I am not exercising like I should. I need procrit shots weekly just to keep my iron levels at the bare minimum. I’m not particularly interested in eating which may make the situation
ZenPDX
in
Kidney Dialysis
10 months ago
6 years post tah bso awaiting surgery for extensive adhesions and endo .
I thought I'd seen the back of the gyne ward . Absolutely sick of living in pain . Had a MRI that confirmed adhesions were causing all my organs to fuse together . I can't walk most days . My bowel ,bladder , vaginal vault all stuck . Constant kidney pain . Just arghhhhh.
I thought I'd seen the back of the gyne ward . Absolutely sick of living in pain . Had a MRI that confirmed adhesions were causing all my organs to fuse together . I can't walk most days . My bowel ,bladder , vaginal vault all stuck . Constant kidney pain . Just arghhhhh.
endoaftertahbso
in
Endometriosis UK
10 months ago
OK - got another question -
Again, I'm 7 months post kidney transplant. My GFR is all over the place. Just. checked today and it is the lowest it has been since 2 months ago. During this first year of transplant, is that normal. Has anyone else experienced this? If you have, what did you do to raise it. I try to eat healthy
Again, I'm 7 months post kidney transplant. My GFR is all over the place. Just. checked today and it is the lowest it has been since 2 months ago. During this first year of transplant, is that normal. Has anyone else experienced this? If you have, what did you do to raise it. I try to eat healthy
Tankjsl
in
Kidney Transplant
10 months ago
GI issues post transplant
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
Tankjsl
in
Kidney Transplant
10 months ago
Finally passed a kt/v test
Ok, so after 11 months, I finally passed my kt/v test with a score of 1.82, which my nurse said is passing for PD patients. Initially I was on 8 hours, 4 exchanges of 1800ml per night. When I failed the first test, then they moved me to 2000ml per exchange, then 10 hours of 5 exchanges of 2000ml, then
Ok, so after 11 months, I finally passed my kt/v test with a score of 1.82, which my nurse said is passing for PD patients. Initially I was on 8 hours, 4 exchanges of 1800ml per night. When I failed the first test, then they moved me to 2000ml per exchange, then 10 hours of 5 exchanges of 2000ml, then
RonZone
in
Kidney Dialysis
10 months ago
tips on covid and newborn
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
Chantysal
in
Pregnancy and Parenting Support
10 months ago
Haemophilus influenzae
When I get a chest infection it is alway with the HIB bacteria, usually Doxycycline taken for two weeks rids it ,this time two weeks of Doxycycline plus another two weeks of Amoxicillin still hasn't gone had results of sputum test yesterday saying I've still got Hib.My gp has given me another two weeks
When I get a chest infection it is alway with the HIB bacteria, usually Doxycycline taken for two weeks rids it ,this time two weeks of Doxycycline plus another two weeks of Amoxicillin still hasn't gone had results of sputum test yesterday saying I've still got Hib.My gp has given me another two weeks
Alice70
in
Lung Conditions Community Forum
10 months ago
An Eventful January
I like to keep the NHS busy. My January itinerary as its stands, although more can be added yet. Week 1 - Respiratory Chest Consultant, following a CT Scan on 29/12 I had an appt with the Consultant a few days later. As I expected the scan showed that I had a Pleural Effusion/Pneumonia (fluid) in both
I like to keep the NHS busy. My January itinerary as its stands, although more can be added yet. Week 1 - Respiratory Chest Consultant, following a CT Scan on 29/12 I had an appt with the Consultant a few days later. As I expected the scan showed that I had a Pleural Effusion/Pneumonia (fluid) in both
Hidden
in
British Heart Foundation
8 months ago
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