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Kidney diseases in childhood
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Low PSA + high Gleason-FYI
I’ve just heard that this is a thing. Unfortunately it seems to affect my outcome. For instance, I had an initial PSA of 4.8 (4.6 after retesting), and I’m Gleason 9. Three of my doctors have mentioned it to me in passing (most recently today), which led me to Google it. https://www.ncbi.nlm.nih.gov
I’ve just heard that this is a thing. Unfortunately it seems to affect my outcome. For instance, I had an initial PSA of 4.8 (4.6 after retesting), and I’m Gleason 9. Three of my doctors have mentioned it to me in passing (most recently today), which led me to Google it. https://www.ncbi.nlm.nih.gov
Jpburns
in
Advanced Prostate Cancer
5 months ago
Selegiline side effects
Hi All. Due to drug shortages we've been unable to get rasagiline and had to swap to selegiline. Since the swap mum has had lots of unusual bleeding and the GP thinks it may be a side effect of the selegiline. Just wondered if anyone else has had similar problems and if so how did you resolve things?
Hi All. Due to drug shortages we've been unable to get rasagiline and had to swap to selegiline. Since the swap mum has had lots of unusual bleeding and the GP thinks it may be a side effect of the selegiline. Just wondered if anyone else has had similar problems and if so how did you resolve things?
Joluu
in
PSP Association
5 months ago
PSA went up after three treatments of chemotherapy
I have had 3 Chemotherapy treatments with Docataxel. before the first treatment PSA was 89. after the first treatment PSA was 73.31.. after the second treatment PSA was 52.82. after the third treatment, PSA was 73.31.. does it make sense to take another chemotherapy treatment since the PSA has risen
I have had 3 Chemotherapy treatments with Docataxel. before the first treatment PSA was 89. after the first treatment PSA was 73.31.. after the second treatment PSA was 52.82. after the third treatment, PSA was 73.31.. does it make sense to take another chemotherapy treatment since the PSA has risen
spolyu
in
Advanced Prostate Cancer
5 months ago
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It's Back!
This post should be good for newbies also. This should show you guys how long you can go!Anyways, 13 years ago I was diagnosed with PCA Gleason 7 PSA 44. With spread outside of prostate. Did 39 treatments off radiation and have been mostly on ADT for the duration except during COVID I took a break
This post should be good for newbies also. This should show you guys how long you can go!Anyways, 13 years ago I was diagnosed with PCA Gleason 7 PSA 44. With spread outside of prostate. Did 39 treatments off radiation and have been mostly on ADT for the duration except during COVID I took a break
Tjc1
in
Advanced Prostate Cancer
5 months ago
Doctors appointments Statutory Sick Pay etc
Hi everyone, I am hoping you are able to help me.
Do any of you know about getting time off for doctors appointments and procedures like egg retrieval/collection and embryo transfer? Were you able to get paid time off for these?
Also, in case you do the treatment abroad would you
Hi everyone, I am hoping you are able to help me.
Do any of you know about getting time off for doctors appointments and procedures like egg retrieval/collection and embryo transfer? Were you able to get paid time off for these?
Also, in case you do the treatment abroad would you
happyseal
in
Fertility Network UK
4 months ago
Melatonin, unsure of ivf clinics advice… help?!
after waiting weeks for my fertility clinic to answer my queries regarding taking -melatonin - DHEA -metformin - ubiquinol prior to my next fresh ivf cycle in 3 months, I’ve finally had a response today. They won’t prescribe metformin as I don’t have PCOS (fair enough.) They said given my
after waiting weeks for my fertility clinic to answer my queries regarding taking -melatonin - DHEA -metformin - ubiquinol prior to my next fresh ivf cycle in 3 months, I’ve finally had a response today. They won’t prescribe metformin as I don’t have PCOS (fair enough.) They said given my
Eat-sleep-ivf-repeat
in
Fertility Network UK
4 months ago
GP wanting to report high liver blood test results to DVLA
Hi. This is my first post and I would be grateful of any advice or your experience in relation to this. My husband has been a heavy drinker (evenings and weekends) for a number of years. Blood tests in October showed high levels re health of his liver (not sure of all of the names) and subsequently
Hi. This is my first post and I would be grateful of any advice or your experience in relation to this. My husband has been a heavy drinker (evenings and weekends) for a number of years. Blood tests in October showed high levels re health of his liver (not sure of all of the names) and subsequently
OfftowalktheCamino
in
British Liver Trust
5 months ago
Time off work for IVF?
Hi, We've just got our dates for our first cycle of IVF. We'll be freezing the eggs after collection due to PCOS. My work are very supportive and flexible, so will accommodate me going to the appointments and working when I can, but my question is would it be better to book the whole couple of weeks
Hi, We've just got our dates for our first cycle of IVF. We'll be freezing the eggs after collection due to PCOS. My work are very supportive and flexible, so will accommodate me going to the appointments and working when I can, but my question is would it be better to book the whole couple of weeks
SquishyBean
in
Fertility Network UK
4 months ago
Flu and Covid vaccine
I was diagnosed with lupus in March this year. I dont know if I should take the flu and covid vaccine. I am scared it will make my lupus worse. Has anyone here take the vaccine?
I was diagnosed with lupus in March this year. I dont know if I should take the flu and covid vaccine. I am scared it will make my lupus worse. Has anyone here take the vaccine?
kali9
in
LUPUS UK
7 months ago
change of meds
Been having a bad year. Ive been unwell since July and was eventually hospitalised with double pneumonia in September. My rheumatologist treated me for a lupus flare as I had been in a similar situation years previous when first diagnosed with lupus. The dose of steroids did the trick and I was sent
Been having a bad year. Ive been unwell since July and was eventually hospitalised with double pneumonia in September. My rheumatologist treated me for a lupus flare as I had been in a similar situation years previous when first diagnosed with lupus. The dose of steroids did the trick and I was sent
mitty
in
LUPUS UK
7 months ago
Barry
Hi, stage 4 prostate cancer 9 months in on anti testerone injections degatelix psa level has risen from 77 to 323, what are my chances?
Hi, stage 4 prostate cancer 9 months in on anti testerone injections degatelix psa level has risen from 77 to 323, what are my chances?
littlemount
in
Advanced Prostate Cancer
5 months ago
Sex before IVF
Hi everyone, I'm booked in for IVF with egg collection planned for the end of March. This will be my first IVF cycle, been TTC coming up to 4 years in August. I've never been pregnant/never had a positive test. We have a details appointment next week so I called my clinic asking about the appointment
Hi everyone, I'm booked in for IVF with egg collection planned for the end of March. This will be my first IVF cycle, been TTC coming up to 4 years in August. I've never been pregnant/never had a positive test. We have a details appointment next week so I called my clinic asking about the appointment
Hopeful_88
in
Fertility Network UK
4 months ago
advice re 0.02 reading
Hi everyone my first ever psa age 53 no symptoms 3.1 jan 2022 mri pri 3 hard prostate Gleason 3+3 no other scans mri did not detect the size of tumour l was told to go on active surveillance My brain said no ,choice given to me was remove prostate or brachytherapy l had operation in May 2022 all good
Hi everyone my first ever psa age 53 no symptoms 3.1 jan 2022 mri pri 3 hard prostate Gleason 3+3 no other scans mri did not detect the size of tumour l was told to go on active surveillance My brain said no ,choice given to me was remove prostate or brachytherapy l had operation in May 2022 all good
Ffghytrrg
in
Advanced Prostate Cancer
5 months ago
Agonists vs. antagonists (the latter not to be confused with a character in a novel!)
I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer antagonists drugs, degarelix ( U.S. brand, Firmagon) and relugolix (U.S. brand, Orgovyx). I started ADT exactly 8 years ago this month and during my off-and-on
I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer antagonists drugs, degarelix ( U.S. brand, Firmagon) and relugolix (U.S. brand, Orgovyx). I started ADT exactly 8 years ago this month and during my off-and-on
bluesnjazz
in
Advanced Prostate Cancer
5 months ago
an introduction...
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation.
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation.
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
PSA rising 10 weeks after Orgovyx Holiday
PCA diagnosed 2018, PSA 6.7, GS 9 (lesions in both lobes of gland, no evidence of metastases), EBRT + Firmagon ADT treatment, ended spring 2019, PSA nadir <0.02 Nov 2019 before rising again. BCR 2022-2023, Pylarify PSMA, Nov 2022 and March 2023 indicates intense uptake areas visible again in the
PCA diagnosed 2018, PSA 6.7, GS 9 (lesions in both lobes of gland, no evidence of metastases), EBRT + Firmagon ADT treatment, ended spring 2019, PSA nadir <0.02 Nov 2019 before rising again. BCR 2022-2023, Pylarify PSMA, Nov 2022 and March 2023 indicates intense uptake areas visible again in the
ac61418
in
Advanced Prostate Cancer
5 months ago
PGT testing or not
Hi everyone, I have failed in 3 ivf cycles. Last one I had 4 eggs retrieved, 3 fertilised and only 1 made it to blastocyst and we sent it to PGT testing. It came out 100% aneploid. Now, I have started another cycle and NY doctor suggested to continue without PGT testing. Doctor said that we don't have
Hi everyone, I have failed in 3 ivf cycles. Last one I had 4 eggs retrieved, 3 fertilised and only 1 made it to blastocyst and we sent it to PGT testing. It came out 100% aneploid. Now, I have started another cycle and NY doctor suggested to continue without PGT testing. Doctor said that we don't have
ET54AA
in
Fertility Network UK
4 months ago
Am i catastrophizing over my results
Hi. I’m a little confused over my situation.After Cyberknife treatment and two years on ADT with a constant PSA of 0.02 post treatment .My PSA started to rise and at 4.1 approximately I had a PSMA scan my second .i also had one 3 years previous to that and both were clear . My MO has me back on ADT
Hi. I’m a little confused over my situation.After Cyberknife treatment and two years on ADT with a constant PSA of 0.02 post treatment .My PSA started to rise and at 4.1 approximately I had a PSMA scan my second .i also had one 3 years previous to that and both were clear . My MO has me back on ADT
Walliam
in
Advanced Prostate Cancer
5 months ago
11dp3dt - positive - but now clinic say OTD should be 14dp3dt - a little panicked!
Hello fellow warriors, Took our test this morning and we can’t quite believe it - we have seen our first ever positive at 11dp3dt. (TTC 3+, 3rd round of IVF, low fertilisation rates, no blasts.) I emailed the clinic to confirm and book in the viability scan only to be informed that OTD should actually
Hello fellow warriors, Took our test this morning and we can’t quite believe it - we have seen our first ever positive at 11dp3dt. (TTC 3+, 3rd round of IVF, low fertilisation rates, no blasts.) I emailed the clinic to confirm and book in the viability scan only to be informed that OTD should actually
Aansey
in
Fertility Network UK
4 months ago
Fresh Transfer - A week ago today. Today is hard. Two week wait.
Today is hard. It's so hard not knowing and symptom spotting all the way. I don't feel able to make plans for anything....its like limbo! I keep thinking it would have to be some kind of miracle if this works first fresh embryo transfer, early blastocyst, no PGTA testing. I'm holiding hope but I feel
Today is hard. It's so hard not knowing and symptom spotting all the way. I don't feel able to make plans for anything....its like limbo! I keep thinking it would have to be some kind of miracle if this works first fresh embryo transfer, early blastocyst, no PGTA testing. I'm holiding hope but I feel
Cuppppatea
in
Fertility Network UK
4 months ago
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