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Juvenile idiopathic arthritis
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I'm confused
My doctor sent me for blood tests to check for rheumatoid arthritis,he said the test came back negative but my other blood test showed inflammation.He said he would get in touch with rheumatology and get back to me.The doctors receptionist rang me yesterday and said my doctor is going to ring me on Wednesday
My doctor sent me for blood tests to check for rheumatoid arthritis,he said the test came back negative but my other blood test showed inflammation.He said he would get in touch with rheumatology and get back to me.The doctors receptionist rang me yesterday and said my doctor is going to ring me on Wednesday
Kels1974
in
Pain Concern
5 years ago
GPA under control but still get joint pain
I have GPA which is under control but I still get joint pain. My rheumatologist has scanned my joints & says its not inflammatory so is unrelated to the gpa. She says it's osteoarthritis. I'm not so sure. Has anyone else experienced this & can I still have joint pain related to vasculitis if my bloods
I have GPA which is under control but I still get joint pain. My rheumatologist has scanned my joints & says its not inflammatory so is unrelated to the gpa. She says it's osteoarthritis. I'm not so sure. Has anyone else experienced this & can I still have joint pain related to vasculitis if my bloods
rwl89t1967
in
Vasculitis UK
5 years ago
Reducing tocilizumab injections
I was told to try to take my tocilizumab injections every 4 weeks but struggled so much I have taken this last one after 3 weeks, before that 3 1/2 weeks twice. Does anyone have any experience of reducing the injections. I am feeling increasingly ill, sweating, extreme tiredness - signs the GCA is back
I was told to try to take my tocilizumab injections every 4 weeks but struggled so much I have taken this last one after 3 weeks, before that 3 1/2 weeks twice. Does anyone have any experience of reducing the injections. I am feeling increasingly ill, sweating, extreme tiredness - signs the GCA is back
christine2715
in
PMRGCAuk
5 years ago
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Humira?
I don't really know if I'm finished with PMR, since I still have a lot of pain. But the dr. thinks this pain is now mostly fibromyalgia with osteoarthritis, too. I have a feeling she is right now, but I still take the prednisone 25mg and feel like I need it. But probably I don't, since it isn't helping
I don't really know if I'm finished with PMR, since I still have a lot of pain. But the dr. thinks this pain is now mostly fibromyalgia with osteoarthritis, too. I have a feeling she is right now, but I still take the prednisone 25mg and feel like I need it. But probably I don't, since it isn't helping
Trevgrrl
in
PMRGCAuk
5 years ago
First dose of Humira yesterday, now a question
I am concerned for my 20 year old daughter who was diagnosed with RA a few months ago. Initially she was put on Methotrexate & steroids. She had trouble with Methotrexate (caused shortness of breath) and had to stop it. Then started on Sulfasalazine and her RA symptoms actually worsened & she was
I am concerned for my 20 year old daughter who was diagnosed with RA a few months ago. Initially she was put on Methotrexate & steroids. She had trouble with Methotrexate (caused shortness of breath) and had to stop it. Then started on Sulfasalazine and her RA symptoms actually worsened & she was
arkies
in
NRAS
5 years ago
Has anyone with knee arthritis got on well with an e-bike?
Hello all, About two years ago I bought a bike to ride on weekends etc, but the osteoarthritis in my knees really flared. I got my positioning checked at bike shop which helped but I find the bike very hard on my knees. I have been seeing more e-bikes around but know they are expensive and wanted to
Hello all, About two years ago I bought a bike to ride on weekends etc, but the osteoarthritis in my knees really flared. I got my positioning checked at bike shop which helped but I find the bike very hard on my knees. I have been seeing more e-bikes around but know they are expensive and wanted to
Stillsmiling_Just
in
Arthritis Action
5 years ago
Week 4 R1 Tomorrow...eek!
Wk 4 tomorrow. Bit nervous as had a week off being an XR rebel but now back to it! Pleased to have got this far again though as have uncontrolled rheumatoid arthritis so its been an even bigger challenge this rime round. Can someone point me towards page on warm down exercises please. Had them before
Wk 4 tomorrow. Bit nervous as had a week off being an XR rebel but now back to it! Pleased to have got this far again though as have uncontrolled rheumatoid arthritis so its been an even bigger challenge this rime round. Can someone point me towards page on warm down exercises please. Had them before
Beelady
Graduate
in
Couch to 5K
5 years ago
Inflammatory Arthritis, with PMR/GCA
Well, I did something that was stupid. I vacuumed and mopped my entire 2nd floor last Saturday. I moved furniture. I tried to store a large item under the bed, and when it got stuck I tugged real hard to get it back out. Later that evening I developed level 10 paint, blood pressure shot up, and went
Well, I did something that was stupid. I vacuumed and mopped my entire 2nd floor last Saturday. I moved furniture. I tried to store a large item under the bed, and when it got stuck I tugged real hard to get it back out. Later that evening I developed level 10 paint, blood pressure shot up, and went
phebamom
in
PMRGCAuk
5 years ago
Frogmore House & Garden Open Day in support of NRAS | 30th May 2019
By purchasing a ticket, you will also be helping to raise funds and awareness of those living with Rheumatoid
Arthritis
(RA) and
Juvenile
Idiopathic
Arthritis
(JIA). For further information and to purchase your tickets visit www.nras.org.uk/frogmore2019
By purchasing a ticket, you will also be helping to raise funds and awareness of those living with Rheumatoid
Arthritis
(RA) and
Juvenile
Idiopathic
Arthritis
(JIA). For further information and to purchase your tickets visit www.nras.org.uk/frogmore2019
Hidden
NRAS
in
NRAS
5 years ago
Normal blood test results mean poor DAS28 score & no biologic. In pain and treatment ineffective
Hello I am a new member experiencing severe problems with my NHS treatment for rheumatoid arthritis which is currently ineffective. I am currently taking hydroxychloroquine sulphate, sulfasalazine, prednisolone, methotrexat and folic acid. I have been taken methotrexat for four months, initially I
Hello I am a new member experiencing severe problems with my NHS treatment for rheumatoid arthritis which is currently ineffective. I am currently taking hydroxychloroquine sulphate, sulfasalazine, prednisolone, methotrexat and folic acid. I have been taken methotrexat for four months, initially I
ma73jon
in
NRAS
5 years ago
Update on: Off MTX. What comes next?
Saw my rheumy yesterday. If I have a flare, I go back to see her right away otherwise in three months. My bloodwork came back good. She does not feel I have PMR but she said it may be osteoarthritis rather than rheumatoid arthritis. My bloodwork is not definitive but it is definitely autoimmune according
Saw my rheumy yesterday. If I have a flare, I go back to see her right away otherwise in three months. My bloodwork came back good. She does not feel I have PMR but she said it may be osteoarthritis rather than rheumatoid arthritis. My bloodwork is not definitive but it is definitely autoimmune according
BonnieT
in
NRAS
5 years ago
Reduced Pred from 10 to 8 mg
I reduced from 10mg and have been on 8mg prednisone for 21 days. Just started feeling a little pain in my shoulders, could it be inflammation building back up or my osteoarthritis? I thought after 21 days I would be ok on 8mg.
I reduced from 10mg and have been on 8mg prednisone for 21 days. Just started feeling a little pain in my shoulders, could it be inflammation building back up or my osteoarthritis? I thought after 21 days I would be ok on 8mg.
Sadie1024
in
PMRGCAuk
5 years ago
RA Research - is there any?
I woke up this morning and was immediately annoyed!! I was thinking about something someone said in a post yesterday.. it wasn't the comment that annoyed me but the sad truth behind it - which was basically that if you have cancer there's a chance you may be cured but not if you have RA. This echoes
I woke up this morning and was immediately annoyed!! I was thinking about something someone said in a post yesterday.. it wasn't the comment that annoyed me but the sad truth behind it - which was basically that if you have cancer there's a chance you may be cured but not if you have RA. This echoes
Dobcross1
in
NRAS
5 years ago
Osteoarthritis
What can I do if my doctor won't give me a electric wheelchair or mobily scooter.I am 57.and cover by a sick note .My doctor says I need full knee replacement on both knees.i have osteoarthritis all over.My walking is my exercise. But I can't walk much due to pain and stiffness. Now I'm pre diabetics
What can I do if my doctor won't give me a electric wheelchair or mobily scooter.I am 57.and cover by a sick note .My doctor says I need full knee replacement on both knees.i have osteoarthritis all over.My walking is my exercise. But I can't walk much due to pain and stiffness. Now I'm pre diabetics
pamela62
in
Arthritis Action
5 years ago
Pain in knees, elbow and joints w/o arthritis?
I know I am sarcoid but arthritis has been ruled out--so why do I have increasing pain in my wrist, knees, finger joints and ankles. I am also currently on MTX--can it actually cause these kinds of symptoms? I was also on a heavy dose of prednisone for months. Thanks guys.
I know I am sarcoid but arthritis has been ruled out--so why do I have increasing pain in my wrist, knees, finger joints and ankles. I am also currently on MTX--can it actually cause these kinds of symptoms? I was also on a heavy dose of prednisone for months. Thanks guys.
OneLove2019
in
LUPUS UK
5 years ago
Danielle Bryant. 28 years with RA
Hi Folks. Try a little read of this...... https://www.everydayhealth.com/rheumatoid-arthritis/treatment/ra-make-strength-training-easier/?fbclid=IwAR0WIv4vHBWOEoty4JOKU57gZ4zwALCtE5r0SvNRrIiBNktb4k56nqiU54Y Don't forget to also check out MakeItCount4Dani. :-) All the best, Reg. EQF 4
Hi Folks. Try a little read of this...... https://www.everydayhealth.com/rheumatoid-arthritis/treatment/ra-make-strength-training-easier/?fbclid=IwAR0WIv4vHBWOEoty4JOKU57gZ4zwALCtE5r0SvNRrIiBNktb4k56nqiU54Y Don't forget to also check out MakeItCount4Dani. :-) All the best, Reg. EQF 4
Reg1
in
Arthritis Action
5 years ago
Fibromyalgia diagnosis ruled out almost immediately
Hi there, I went to see a Rheumatologist a couple of weeks ago (with private med. insurance) and she sent me for two lots of blood tests and many scans. She suspected Rheumatoid Arthritis... She said that in order to be tested for Fibromyalgia your widespread pains should be 'explained' by other causes
Hi there, I went to see a Rheumatologist a couple of weeks ago (with private med. insurance) and she sent me for two lots of blood tests and many scans. She suspected Rheumatoid Arthritis... She said that in order to be tested for Fibromyalgia your widespread pains should be 'explained' by other causes
regina79
in
Fibromyalgia Action UK
5 years ago
Recommendation for private rheumatologist
Hi, this is my first post as I've just joined. I have just spent a week in hospital as my elbow hasn't been able to straighten for 4 weeks and I became crippled in pain. I was seen by the orthopaedic team who diagnosed me with bursitis and cellulitis. I am concerned that I have rheumatoid arthritis
Hi, this is my first post as I've just joined. I have just spent a week in hospital as my elbow hasn't been able to straighten for 4 weeks and I became crippled in pain. I was seen by the orthopaedic team who diagnosed me with bursitis and cellulitis. I am concerned that I have rheumatoid arthritis
treeplant
in
NRAS
5 years ago
Cannabis oil for Rheumatoid Arthritis// Back pain
Cannabis oil for Rheumatoid Arthritis // Back pain I have had a flare up now for 10days usually it can be medicated to suppress most of pain but my back has been so painful nothing is helping. I am going to try The cannabis oil from health shop as a last resort. Has anyone had good results from this
Cannabis oil for Rheumatoid Arthritis // Back pain I have had a flare up now for 10days usually it can be medicated to suppress most of pain but my back has been so painful nothing is helping. I am going to try The cannabis oil from health shop as a last resort. Has anyone had good results from this
MagicalMarjieXx
in
NRAS
5 years ago
Update on my Wife
Hey everybody, Hope you're having a good day. I used to post here a lot but haven't been back for a while. I probably won't hang around for long because everytime I post here I get run out by the angry mob, but I just wanted to give you guys a quick update on my wife. My Wife was diagnosed with Sero-Positive
Hey everybody, Hope you're having a good day. I used to post here a lot but haven't been back for a while. I probably won't hang around for long because everytime I post here I get run out by the angry mob, but I just wanted to give you guys a quick update on my wife. My Wife was diagnosed with Sero-Positive
Allsopp
in
NRAS
5 years ago
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