Experiences with
Joint hypermobility syndromeSymptoms of joint hypermobility syndrome
You or your child may have joint hypermobility syndrome if you:
- often get tired, even after rest
- keep getting pain and stiffness in your joints or muscles
- keep getting sprains and strains
- keep dislocating your joints (they "pop out")
- have poor balance or co-ordination
- have thin, stretchy skin
- have bladder or bowel problems
Some people with joint hypermobility syndrome do not have symptoms.
- you think you or your child have joint hypermobility syndrome
What happens at your GP appointment
The GP will usually test for joint hypermobility syndrome by checking the flexibility of your joints using a test called the Beighton scoring system.
They may also refer you for a blood test or X-ray to help rule out any other conditions, like arthritis.
Treating joint hypermobility syndrome
There's no cure for joint hypermobility syndrome.
The main treatment is improving muscle strength and fitness so your joints are better protected.
A GP may refer you to a physiotherapist, occupational therapist or podiatrist for specialist advice.
You can also pay for these services privately.
These physical therapies can help to:
- reduce pain and the risk of dislocations
- improve muscle strength and fitness
- improve your posture and balance
Paracetamol and anti-inflammatory painkillers (like ibuprofen, which comes as tablets, gels and sprays) may help to ease pain.
Speak to a pharmacist about the best painkiller for you.
A GP may be able to prescribe stronger painkillers.
If you're in severe pain, a GP may be able to refer you to a pain clinic to help you cope with pain.
To help ease joint pain and stiffness, you can:
- have warm baths
- use hot water bottles
- use heat-rub cream
Joint care you can do yourself
If you have joint hypermobility syndrome, there are things you can do to improve joint and muscle strength and reduce strain.
gentle exercise – start with low-impact exercise like swimming or cycling if you've not been active before (not doing any exercise can make your symptoms worse)
maintain a healthy weight
wear supportive shoes
wear special insoles (orthotics) in your shoes if a podiatrist has recommended them
do not overextend your joints just because you can
do not do repetitive exercises or activities – take regular breaks (called pacing)
What causes joint hypermobility syndrome
Joint hypermobility syndrome can run in families and it cannot be prevented.
Usually, the joints are loose and stretchy because the ligaments that should make them stronger and support them are weak.
The weakness is because the collagen that strengthens the ligaments is different from other people's.
Most experts agree that joint hypermobility syndrome is part of a spectrum of hypermobility disorders which includes Ehlers-Danlos syndrome.
SymptomsDiagnosisMedical treatmentsSelf-careCausesSymptoms of joint hypermobility syndrome include joint pain and stiffness, and regularly getting sprains or dislocating your joints.
Joint hypermobility syndrome is diagnosed by testing how flexible your joints are using a test called the Beighton scoring system.
Treatment for joint hypermobility syndrome usually involves exercises to help protect your joints and painkillers if they're needed.
You can care for your joints by doing regular gentle exercise, and avoiding repetitive activity or overextending your joints.
Joint hypermobility syndrome can run in families. It's caused by weakness in the ligaments that hold your joints together.
Related links
HealthUnlocked contains information from NHS Digital, licensed under the current version of the Open Government Licence
