Advice needed please - Retrognathia and jaw... - Changing Faces

Changing Faces

3,313 members748 posts

Advice needed please - Retrognathia and jaw surgery

Arkyfox profile image
3 Replies

I'm looking for advice please. I'm 37 with Juvenile Arthritis and I need both of my jaw joints replaced. Has anyone else here had this surgery please and can you give me any advice? How long do they last?

I've also been diagnosed recently with retrognathia even though its a problem I've had for years. The surgeon is talking about moving my top jaw to help with sleep apnoea, I am more nervous about this than the jaw joint replacements 😕

Many thanks

Written by
Arkyfox profile image
Arkyfox
To view profiles and participate in discussions please or .
Read more about...
3 Replies
SamChangingFaces profile image
SamChangingFacesPartner

Hello Arkyfox. Welcome the the Changing Faces Community and thank you for posting your thoughts on here. It sounds like you've got a lot coming up in terms of treatment and understandably you're feeling a bit nervous about it all. Could you say a bit more about what you are worrying about?

Crystal246 profile image
Crystal246

Hey 😁. I had my top jaw removed due to having cancer there and to be honest it was fine. Other then having my face looking unusual and having a little dip to it in place of where the jaw could be I can still swollow and stuff.

(but because my face was swollen for 2 weeks I couldn't eat or drink and had to have a feeding tube) but the end result is worth it.

THIS took me about 12 hours I think? Because they had to remove it, put screws and plates in and put the muscle from my back on my cheek, but I'm aware this is entirely different situation.

Are they talking about replacing and putting things in place?

4mum profile image
4mum

Hi Arkyfox :) I’ve had my top jaw moved up and forward due to severely misaligned jaws. This is a big surgery (moving the top jaw)

In my case it was the cause of my facial disfigurement and led to years of surgeons trying to surgically undo their misjudgment/mistake. If I had my time over I would never have done it, and the results have lead to years of ptsd, anxiety and confidence issues. Having said that however, my friend went through this operation with no complications and had a great result. She did find it an invasive operation though. I guess it’s a case of weighing up pros and cons and what’s right for you. I’m sorry I don’t know how long jaw joints last but I’d imagine they would be near lifetime x

Not what you're looking for?

You may also like...

A botched rhinoplasty and ways forward

Hi everyone, I've read a few of the posts on botched rhinoplasties and I've actually never heard...
Mo_Kaitaro profile image

Alopecia sucks :D

Hi all, I'm new here and I don't really know how to start but... I'll give it a go. I'm a young...

Rosacea

Hi, I'm new to this forum and just wanted to write a post about my experience with Rosacea . . . ....

Acne most of my life :(

I started getting acne when I was about 10 and now 24 my face hasn't been clear since then, I was...
Emsky profile image

Rosacea

For a few years now I have been suffering with bad skin. The doctors weren't sure what it was and...

Moderation team

See all

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.