CVID and aseptic meningitis - ITP Support Assoc...

ITP Support Association

4,122 members2,097 posts

CVID and aseptic meningitis

Lyndee profile image
3 Replies

I have been getting infusions of ivig for 16+ years. May have contracted Aseptic meningitis after last treatment. Anyone know of or experienced similar

Written by
Lyndee profile image
Lyndee
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Morgan profile image
Morgan

Hi I experienced this on my first infusion so will not be having this agsin.was quite ill for a few days. Hope you are ok now x

NickyD profile image
NickyD

Hi Lyndee

I have had asceptic meningitis with ivig. It was on my third course of treatment and I also had a retinal bleed. I had not had a bad reaction to it previously. Then about a year later, after many failed attempts with other drugs at levelling off my count, the hospital was going to put me back on ivig until it was pointed out to them that I had had a serious reaction to it previously. Luckily I was not given it again. NickyD

PKScott profile image
PKScott

I respond well to IVIG and had 11 infusion just a year and half ago with our first child. I showed your post to my husband for we had been discussing having a second child and IVIG would be our go to ITP. now a little more weary.

Not what you're looking for?

You may also like...

ITP and Chemo

Hi I have just joined the group - I have had ITP for over ten years - I have a pretty stable...

Itp and MGUS

I have suffered with itp for 7 years now I have had lots of tests done now I have MGUS with itp...

MMF and ITP

Hi everyone, I got diagnosed with ITP in August 2014, never even new what a platelet was before I...

ITP and Alcohol?

Before I was diagnosed, I went out and bought a bunch of seasonal pumpkin beers to try. I haven't...

Diet and ITP

I seem to experience long term remission as a result of diet effects. I was in a position to get...