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disappointed with symptoms still after 2 surgeries :(
I’ve recently had 2 surgeries, one in January where they removed a small amount of endo and then a more complex surgery 4 weeks after with a specialist endo surgeon. I’m now 5 weeks post op and still suffering. I think my period might be due soon but not sure as the surgeries had messed things up a bit
I’ve recently had 2 surgeries, one in January where they removed a small amount of endo and then a more complex surgery 4 weeks after with a specialist endo surgeon. I’m now 5 weeks post op and still suffering. I think my period might be due soon but not sure as the surgeries had messed things up a bit
Emmaja_ne
in
Endometriosis UK
4 months ago
Chronic Illness Guess Who
Long story short, things have taken a drastic turn. I don't know if it's my Endo causing my health spiral, or a combination what pots or what the fuck going on. Even though the PoTs symptoms I've been experiencing have been going on since I was around 13 (i'm 28 now), in November 2023 they took a nosedive
Long story short, things have taken a drastic turn. I don't know if it's my Endo causing my health spiral, or a combination what pots or what the fuck going on. Even though the PoTs symptoms I've been experiencing have been going on since I was around 13 (i'm 28 now), in November 2023 they took a nosedive
Nemofudge
in
Endometriosis UK
4 months ago
problems possibly from my IUD
since having my
IUD
fitted nearly 3 years ago after my 3rd child I have suffered with thrush and BV re-occurring. it’s starting to get me down as there always seems to be something wrong and all the Drs do is fob me off a course of antibiotics here one pessary there and it never clears up!
since having my
IUD
fitted nearly 3 years ago after my 3rd child I have suffered with thrush and BV re-occurring. it’s starting to get me down as there always seems to be something wrong and all the Drs do is fob me off a course of antibiotics here one pessary there and it never clears up!
Mumofthree29
in
BASHH
1 year ago
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Mirena IUD
What’s everyone’s experience with the mirena coil? I have had mine for 4 months now and had it inserted whilst I was under for my lap. I have a new symptom of stinging pains and my cramps are unbearable?! Is it worth me sticking it out? My surgeon always says it is best to stick it as it hurts having
What’s everyone’s experience with the mirena coil? I have had mine for 4 months now and had it inserted whilst I was under for my lap. I have a new symptom of stinging pains and my cramps are unbearable?! Is it worth me sticking it out? My surgeon always says it is best to stick it as it hurts having
NeedEndoSupport
in
Endometriosis UK
1 year ago
Help with first steps
Hi. Firstly wow, this forum is amazing. After nearly 20 years of pain (am now 49) I have finally had a ‘vague’ diagnosis of deep endo following an MRI. The gynae consultant says that the scan shows adhesions fusing my ovaries and uterus but anything other than that would need further investigation
Hi. Firstly wow, this forum is amazing. After nearly 20 years of pain (am now 49) I have finally had a ‘vague’ diagnosis of deep endo following an MRI. The gynae consultant says that the scan shows adhesions fusing my ovaries and uterus but anything other than that would need further investigation
TandE
in
Endometriosis UK
4 months ago
What Now?
So I had my laparoscopy last May, confirmed endo, coil fitted. Pain returned after a few months. In November I was put on Zoladex injections with Tibilone HRT tablets, this helped the pain a lot and reduced it to a few times within the 3 month period of being on it. Now the last 2 weeks the pain has
So I had my laparoscopy last May, confirmed endo, coil fitted. Pain returned after a few months. In November I was put on Zoladex injections with Tibilone HRT tablets, this helped the pain a lot and reduced it to a few times within the 3 month period of being on it. Now the last 2 weeks the pain has
Mummaamber
in
Endometriosis UK
4 months ago
Conceiving
Morning everyone :) I am awaiting diagnostic laperoscopy and have just been informed that though I was expecting surgery between May and September, It will not be until April next year. My husband and I have made the decision to use this time to try and conceive. I currently have the coil, and the
Morning everyone :) I am awaiting diagnostic laperoscopy and have just been informed that though I was expecting surgery between May and September, It will not be until April next year. My husband and I have made the decision to use this time to try and conceive. I currently have the coil, and the
LUCY001
in
Endometriosis UK
4 months ago
Help!
Hi I'm 34 with endometriosis on the pelvis and also been told my ovaries are stuck to the back of my womb. I've had my tubes tied for 7 years(bad pregnancys) and gynaecologist has fitted a coil and started me on menapose injections and few other things to stop the bleeding (haven't worked) I'm on so
Hi I'm 34 with endometriosis on the pelvis and also been told my ovaries are stuck to the back of my womb. I've had my tubes tied for 7 years(bad pregnancys) and gynaecologist has fitted a coil and started me on menapose injections and few other things to stop the bleeding (haven't worked) I'm on so
Mammyof2gals
in
The Endometriosis Foundation
4 months ago
Help needed
Hi I'm 34 with endometriosis on the pelvis and also been told my ovaries are stuck to the back of my womb. I've had my tubes tied for 7 years(bad pregnancys) and gynaecologist has fitted a coil and started me on menapose injections and few other things to stop the bleeding (haven't worked) I'm on so
Hi I'm 34 with endometriosis on the pelvis and also been told my ovaries are stuck to the back of my womb. I've had my tubes tied for 7 years(bad pregnancys) and gynaecologist has fitted a coil and started me on menapose injections and few other things to stop the bleeding (haven't worked) I'm on so
Mammyof2gals
in
Endometriosis UK
4 months ago
ET and periods/menstruation
And i'm curious if anyone has found a way to better regulate their periods, because as i understand it MPN patients should not take hormonal pill/
IUD
because of clotting risk Thanks
And i'm curious if anyone has found a way to better regulate their periods, because as i understand it MPN patients should not take hormonal pill/
IUD
because of clotting risk Thanks
junebuggy
in
MPN Voice
1 year ago
Help please
I had endo surgery in 2016 after 10 years of pushing for a diagnosis. I was found to have extensive scaring at the front (across section scar) and endo going into my bowel. I've had urinary symptoms for years, although they've never looked into this. I was told I had DIE.After surgery I fell pregnant
I had endo surgery in 2016 after 10 years of pushing for a diagnosis. I was found to have extensive scaring at the front (across section scar) and endo going into my bowel. I've had urinary symptoms for years, although they've never looked into this. I was told I had DIE.After surgery I fell pregnant
thebird1
in
Endometriosis UK
4 months ago
Adenomyosis diagnosis journey
Hi Everyone, This is a long one but I hope it helps someone out there who may be on the same journey! From my first period when I was 11 I had long heavy painful periods, It would wipe me out, I was told that it was normal and that periods were painful and that as a young lady I needed to get on with
Hi Everyone, This is a long one but I hope it helps someone out there who may be on the same journey! From my first period when I was 11 I had long heavy painful periods, It would wipe me out, I was told that it was normal and that periods were painful and that as a young lady I needed to get on with
HolsBamboozledwomb
in
Endometriosis UK
4 months ago
Could I have endometriosis?
Hello, I am really struggling with symptoms at the moment and I still have no answers so would love some input from others who know what this is like. I have always had heavy painful periods since day 1, along with bowel and stomach issues. I remember being at school and being sent home because I was
Hello, I am really struggling with symptoms at the moment and I still have no answers so would love some input from others who know what this is like. I have always had heavy painful periods since day 1, along with bowel and stomach issues. I remember being at school and being sent home because I was
PennyCrowe
in
Endometriosis UK
4 months ago
1 year post op with continuing issues
Hi all,I'm coming up to having my year post lap appointment after having an extensive surgery last March. Bit of background: I have deep infiltrating endo which had formed on all my organs in my pelvis, my pelvis, ligaments, groin and down to my thighs. I had that removes, along with some ovarian cysts
Hi all,I'm coming up to having my year post lap appointment after having an extensive surgery last March. Bit of background: I have deep infiltrating endo which had formed on all my organs in my pelvis, my pelvis, ligaments, groin and down to my thighs. I had that removes, along with some ovarian cysts
Leanne102
in
Endometriosis UK
4 months ago
Advice request - going in circles with doctors
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Bookworm321123
in
Endometriosis UK
4 months ago
Adeno diagnosis...I think? Should I still have a lap???
Hi! If anyone has any experience of this or advice I'm all ears.....Following ultrasounds for pelvic pain that showed i had a bulky womb, small fibroids, plus a polyp at the top of my cervix, I had an MRI done. Just spoke to my gp who said MRI noted 'thickening of the junctional zone up to 11mm, with
Hi! If anyone has any experience of this or advice I'm all ears.....Following ultrasounds for pelvic pain that showed i had a bulky womb, small fibroids, plus a polyp at the top of my cervix, I had an MRI done. Just spoke to my gp who said MRI noted 'thickening of the junctional zone up to 11mm, with
PAPanda
in
Endometriosis UK
5 months ago
Advice on egg freezing and hysterectomy for severely heavy bleeding
Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to share their experiences. I'm looking at potentially freezing some of my eggs, as I have endometriomas. I'm still undecided as to whether I want children
Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to share their experiences. I'm looking at potentially freezing some of my eggs, as I have endometriomas. I'm still undecided as to whether I want children
GrouchoSparx
in
Endometriosis UK
5 months ago
Anyone had adhesions removed to then be told it isn’t endometriosis?
Hello, I am so confused and just need to know if anyone has been in the same situation/ advice on where to go next. Had my lap on the 28th dec and the nurse went through my lap notes. She said they had removed endo adhesions that had connected my left ovary to my bowel and that the surgeon would
Hello, I am so confused and just need to know if anyone has been in the same situation/ advice on where to go next. Had my lap on the 28th dec and the nurse went through my lap notes. She said they had removed endo adhesions that had connected my left ovary to my bowel and that the surgeon would
Tiff22
in
Endometriosis UK
5 months ago
IUD removal
I want to have my copper
IUD
removed and struggling to find much information about preparation for it. What are the general recommendations? Thanks
I want to have my copper
IUD
removed and struggling to find much information about preparation for it. What are the general recommendations? Thanks
Curly-C
in
BASHH
1 year ago
Fluctuating T4?
Hi all, Would really appreciate some advice on fluctuating free T4 levels - having had a dose increase from 50 to 75mg end of September 23, T4 finally went up to 16.7 (range 11.50 -22.7) in December - I know this still needs improvement and I still have the full range of symptoms but doctors wouldn't
Hi all, Would really appreciate some advice on fluctuating free T4 levels - having had a dose increase from 50 to 75mg end of September 23, T4 finally went up to 16.7 (range 11.50 -22.7) in December - I know this still needs improvement and I still have the full range of symptoms but doctors wouldn't
Thyroid16
in
Thyroid UK
5 months ago
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