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One year stem cell transplant anniversary
This week a year ago I received my donor's stem cells. For those of you not following my posts, it was hard going in the early months but by late June things were looking a lot better both mentally and physically and my hair started its return.. My platelets were one of the slowest things to recover
This week a year ago I received my donor's stem cells. For those of you not following my posts, it was hard going in the early months but by late June things were looking a lot better both mentally and physically and my hair started its return.. My platelets were one of the slowest things to recover
Scaredy_cat
in
MPN Voice
3 months ago
have you had trouble getting approved for stem cell transplant?
I have had a wild ride last year beginning with a sudden decline in weight from 240 lbs - 165 lbs. accompanying the weight loss has also been an alarming increase in fatigue, cognitive ability, pain in my arms and legs, some times to the point where I can hardly feel my legs not to mention the
I have had a wild ride last year beginning with a sudden decline in weight from 240 lbs - 165 lbs. accompanying the weight loss has also been an alarming increase in fatigue, cognitive ability, pain in my arms and legs, some times to the point where I can hardly feel my legs not to mention the
Plasmapool
in
MPN Voice
4 months ago
Time flies... when you're having babies!
Afternoon all, Apologies for the radio silence for the best part of six months. I never intended to leave it this long before updating you all but life (and a certain little miss) got in the way! Cassie Jean Jackson came kicking and screaming in to the world at 8.28 am on Monday 16th October last
Afternoon all, Apologies for the radio silence for the best part of six months. I never intended to leave it this long before updating you all but life (and a certain little miss) got in the way! Cassie Jean Jackson came kicking and screaming in to the world at 8.28 am on Monday 16th October last
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
3 months ago
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information about liver transplants/liver cancer
https://l.facebook.com/l.php?u=AT1q4nZnRGFEk9DREjCfOr32vqyD8L1g6K0RcC_EDbD4oCwtB3eulAZZduYdqnytaPjLXB9ZdFhw53LtO0m0MZWIG09DGKjSAU58KK3Gx6FqL1ztOVQvumdzQlbjfVPHGO8tFD2m0oK5VyAVEzzJoUzd2pJDkD8m4nCGQIsZDX8eZvxWwFuOeOlBzlzmIDXByapbNibWWnHsiBDPCpdlit3QCvc3HXSgyaugkx8LKnX9JUKbsPscdDYOai6FkVHhe7jUsezWDdM0phZl2Gas6b6w_e9YfCqvk9s_pVzncIu2r7Dt7s1gfemxBPiIXaHYEiuPp0OwY
https://l.facebook.com/l.php?u=AT1q4nZnRGFEk9DREjCfOr32vqyD8L1g6K0RcC_EDbD4oCwtB3eulAZZduYdqnytaPjLXB9ZdFhw53LtO0m0MZWIG09DGKjSAU58KK3Gx6FqL1ztOVQvumdzQlbjfVPHGO8tFD2m0oK5VyAVEzzJoUzd2pJDkD8m4nCGQIsZDX8eZvxWwFuOeOlBzlzmIDXByapbNibWWnHsiBDPCpdlit3QCvc3HXSgyaugkx8LKnX9JUKbsPscdDYOai6FkVHhe7jUsezWDdM0phZl2Gas6b6w_e9YfCqvk9s_pVzncIu2r7Dt7s1gfemxBPiIXaHYEiuPp0OwY
DonnaBoll
Administrator
in
PBC Foundation
2 days ago
Chronic Liver Disease Post Transplant
Hi, I had a liver transplant in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease. To say
Hi, I had a liver transplant in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease. To say
Dawnejoy
in
British Liver Trust
5 days ago
interesting encounter
my spouse was at Costco recently and after shopping ate at the food court. Shared a table with another couple. They got to talking. Turns out the man had PBC! He had a liver transplant 23 years ago. Been doing Ok. They gave my spouse their phone numbers since I wasn’t there. Nice thing is he goes
my spouse was at Costco recently and after shopping ate at the food court. Shared a table with another couple. They got to talking. Turns out the man had PBC! He had a liver transplant 23 years ago. Been doing Ok. They gave my spouse their phone numbers since I wasn’t there. Nice thing is he goes
CeeCee101
in
PBC Foundation
8 days ago
Aspergillus post lung transplant.
Hi all, Haven’t been in touch for a while now but mercifully still here. Lungaversary last month which I can only describe as a stormy recovery. Trichosporon infection In clamshell wound delayed discharge by 4 weeks. 1 month in ICU with terrifying hallucinations which still haunt me today. Sternum
Hi all, Haven’t been in touch for a while now but mercifully still here. Lungaversary last month which I can only describe as a stormy recovery. Trichosporon infection In clamshell wound delayed discharge by 4 weeks. 1 month in ICU with terrifying hallucinations which still haunt me today. Sternum
Mrbojangles
in
Lung Conditions Community Forum
10 days ago
Sturnum pain
Hi I'm new to this site my name is James was wondering if any one can help with a question ,I had a really traumatic time 2 years ago when I underwent Ablasion surgery followed by bivad surgery and then heart transplant, For the last 2 years my sternum has been so painful and continues to be so, I have
Hi I'm new to this site my name is James was wondering if any one can help with a question ,I had a really traumatic time 2 years ago when I underwent Ablasion surgery followed by bivad surgery and then heart transplant, For the last 2 years my sternum has been so painful and continues to be so, I have
REDWINE123
in
British Heart Foundation
16 days ago
Corrie15
Had liver transplant 8yrs ago, taking 1.5mg of adoport and mofetil am & pm but the doctors want me to put me on Envarus but don't know why, but they have said that my kidneys are not has good has they should. Any replies would be great.
Had liver transplant 8yrs ago, taking 1.5mg of adoport and mofetil am & pm but the doctors want me to put me on Envarus but don't know why, but they have said that my kidneys are not has good has they should. Any replies would be great.
Ttck1825
in
British Liver Trust
17 days ago
Following liver transplant, having kidney problems- any advice
I am now 66y old, and had a liver transplant in Sept 2022. First I was recovering well, then picked up CMV (cyto megalo virus(!)). Developing kidney problems, currently 21% kidney function, and creatinine of 230. Can anyone offer any thoughts, advice etc? Grateful for your input.
I am now 66y old, and had a liver transplant in Sept 2022. First I was recovering well, then picked up CMV (cyto megalo virus(!)). Developing kidney problems, currently 21% kidney function, and creatinine of 230. Can anyone offer any thoughts, advice etc? Grateful for your input.
taar
in
Kidney Transplant
17 days ago
Questions about Liver Transplantation
Hello everyone, The Blue Faery team is currently planning our next workshop, where we will discuss liver transplantation. Please feel free to submit your questions in the comments, and we will be sure to include them in our workshop! We will be posting more details about the upcoming workshop next
Hello everyone, The Blue Faery team is currently planning our next workshop, where we will discuss liver transplantation. Please feel free to submit your questions in the comments, and we will be sure to include them in our workshop! We will be posting more details about the upcoming workshop next
AllysonBlueFaery
Community Ambassador
in
Blue Faery Liver Cancer
18 days ago
Ttck1825
I had a liver transplant in 2016 now last few years health isn't going great, and Dr wants to change my adoport to envarus, but my story is long. But just for now does envarus stop bad headaches, cause weight gain. Plus suffer low sodium levels and type 3c diabetic. That's me for now
I had a liver transplant in 2016 now last few years health isn't going great, and Dr wants to change my adoport to envarus, but my story is long. But just for now does envarus stop bad headaches, cause weight gain. Plus suffer low sodium levels and type 3c diabetic. That's me for now
Ttck1825
in
British Liver Trust
20 days ago
First Time With Aspergillosis
I had a liver transplant at age 17 due to a severe genetic mitochondrial liver disease. I've had a lot of complications since the. MRSA bacteremia, C.Diff, sepsis x4, Multiple GI bleeds, Lung disease Including COPD, chronic atelectasis, and now aspergillus. I also have a lot of other organ issues due
I had a liver transplant at age 17 due to a severe genetic mitochondrial liver disease. I've had a lot of complications since the. MRSA bacteremia, C.Diff, sepsis x4, Multiple GI bleeds, Lung disease Including COPD, chronic atelectasis, and now aspergillus. I also have a lot of other organ issues due
Diffuse_Confuse
in
Aspergillosis and Rare Fungal Infection Support
23 days ago
Going back to work
I’m 6 weeks post kidney transplant. I’ve been given 8 weeks to return to work from my doctor. I was surprised at the limited time I had. I never really talked about going back till 12 weeks through my FMLA, but he thinks 8 weeks is enough. I work in a clinic with over 30 people and I’m concerned with
I’m 6 weeks post kidney transplant. I’ve been given 8 weeks to return to work from my doctor. I was surprised at the limited time I had. I never really talked about going back till 12 weeks through my FMLA, but he thinks 8 weeks is enough. I work in a clinic with over 30 people and I’m concerned with
Wondr1
in
Kidney Transplant
23 days ago
Help. Icu
Hi all I'm new here but I'm also lost and don't know what to do. My mom currently needs a liver transplant but she has pneumonia and they had her sedated now she's awake but won't listen to orders.
Hi all I'm new here but I'm also lost and don't know what to do. My mom currently needs a liver transplant but she has pneumonia and they had her sedated now she's awake but won't listen to orders.
Joccelyn
in
ICUsteps
24 days ago
Persistent gout in renal transplant.
Hi, As I understand it many of us will have had gout, I have for 30 years since my transplant. The last 3 years it has been relentless and the past few months: constant. I have been given colchicine and allupurinol but it's not seeming to help any longer. The situation is quite serious as I'm unable
Hi, As I understand it many of us will have had gout, I have for 30 years since my transplant. The last 3 years it has been relentless and the past few months: constant. I have been given colchicine and allupurinol but it's not seeming to help any longer. The situation is quite serious as I'm unable
lkni
in
Kidney Transplant
24 days ago
going to be evaluated at another transplant center
My dialysis center sent a referral to VCU Richmond for a kidney transplant evaluation. I been on the waitlist at Sentara Norfolk for 3 years . Question how many of you were on more than one transplant list ? Could they use test they did at other center. Any of you had transplant at Vcu how was your
My dialysis center sent a referral to VCU Richmond for a kidney transplant evaluation. I been on the waitlist at Sentara Norfolk for 3 years . Question how many of you were on more than one transplant list ? Could they use test they did at other center. Any of you had transplant at Vcu how was your
Beachgirl32
in
Kidney Transplant
27 days ago
Living With Liver Disease
Good morning everyone! I'm speaking at this event on Saturday along with an HCC survivor. She received a liver transplant that saved her life. I would love to see you in person if you live in or near the Nashville area. The event is free and sponsored by the Mid-South Liver Alliance. Hope to see you
Good morning everyone! I'm speaking at this event on Saturday along with an HCC survivor. She received a liver transplant that saved her life. I would love to see you in person if you live in or near the Nashville area. The event is free and sponsored by the Mid-South Liver Alliance. Hope to see you
AndreaWilson_Founder
Caregiver
in
Blue Faery Liver Cancer
27 days ago
Recent HF diagnosis
Hi, I was diagnosed with heart failure a couple of months ago when I woke up one morning struggling for breath with fluid in my lungs, having had virtually no previous symptoms. Looking back, maybe I was a bit short of breath over the last few months but did a sprint-distance triathlon 6 months ago so
Hi, I was diagnosed with heart failure a couple of months ago when I woke up one morning struggling for breath with fluid in my lungs, having had virtually no previous symptoms. Looking back, maybe I was a bit short of breath over the last few months but did a sprint-distance triathlon 6 months ago so
izzibear
in
British Heart Foundation
27 days ago
Update
Just thought I would update my situation after being diagnosed with Nash in 2019. After changing my diet and losing 20 kilos I have been told by my surgeon who recently performed an operation to repair a large hiatus hernia that I do not have Nash. My liver has returned to its normal size and it's a
Just thought I would update my situation after being diagnosed with Nash in 2019. After changing my diet and losing 20 kilos I have been told by my surgeon who recently performed an operation to repair a large hiatus hernia that I do not have Nash. My liver has returned to its normal size and it's a
Mizcole
in
Living with Fatty Liver and NASH
1 month ago
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