Current heart status

Just a little up date. Went and saw my cardiologist on Thursday. And there was a few positives. Which I need to except in my head. My appointment started with with usual blood pressure check and oxygen stat check. And weight. But I suppose I was still wondering why they wanted an echo which I did not know about. But it did make sense. So had echo, quite thorough. Then an ecg. Made sense again. Weight and height taken. Then my lovely cardiac nurse took me to have a one to one and asked how how I was. I took a photo of ecg. I basically have to take this as it is to inform any one else the differences I have, then she said you are doing OK and pleased iam trying to do my metal health meetings and explained my exercise regime. Happy with that. Then I was taken to see cardiologist, we do have quite a good repor now. Which is nice, puts me at ease. She said she was happy and does not want to see me for a year. We did discuss the heart transplant, quickly, but basically she has to look into everything. Then she checked me over with physical evaluation. She said good, good. She said it is all stable. But and there is always a but. She said I want you to have another stress test on the bike. So this is where we have a little laugh. You need to put alot of effort in, the gauntlet has been put down. So 3 month down the gym to prepare. So I need to improve on my original 7 minutes. Then she sent me to have a full blood test, made sense as the last time was 12 months back. Then off I went home. So all in all a postive. Next day I had a Web chat about anxiety. I tell you one thing setting my computer up caused anxiety. Technology I tell you that causes alot of the problems. Any way just got to move forward.

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hello I totally admire your resolve and positivity to do the best you can with the difficult situation your faced with a very rare defect. Having a good relationship with your medical team helps a lot I think.

From what you’ve said above there are positives you can focus on, they are keeping a good eye on you and supporting you. But you’re also helping yourself.

I also see that life is uncertain and that is such a significant source of anxiety. We like as human beings largely to know how things are going to pan out but the unknown / uncertain is a challenge to deal with.

But again you’re helping yourself by getting support and hope this helps tenfold.

The mental health side of all this is immense Let alone I imagine the condition itself.

Such a positivity that you’re focusing on moving forward. That does take a lot of effort, can’t be underestimated.

Good luck with the training and eventual bike test! Definitely want to know how you get on ❤️

As for the computer that’ll frustrate anyone! 😁

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Thank you for your reply. You are right to say that you try to think that life can be controlled but it carnt and it always throws a curve ball at you. The anxiety is the hard part. But I will just have to keep going and do as they say. And help myself. Moving forward though is hard and it brings challenges. But I will have to except what I was born with, and try my best to look after what I have. Thanks again.

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although it’s all you can do, it’s also the best (but hardest) thing you can do. ❤️

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respect

You are an inspiration your news is positive and you are doing all that you can

My friend’s son had transplant pre the it shall not be mentioned situation he is doing fantastic as you will when the time comes

You are strong you are determined you overcame IT issues 😂 drives me nuts

Good luck keep us all posted

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Thank you for your reply. Glad to hear that your friends son is doing well. It is incredible what they can do today. I have just got to keep helping what I have to continue to work as efficiently as it can. Thanks again.

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How old are you Felly? The aniexity is a huge part of the problem. Actually causes symptoms of heart attacks and heart problems. The amount of times i have jumped out of bed at 3am, ran to toilet, shivering, sweating, pains, emptying my bowels with phone in hand with 999 on the display is crazy. Just the actual thinking of my heart starts chest pains and aniexity.But then i am sat there feeling absolutely great, sun is shining, feel good, calm.... Then Bam. Chest pain. Or i could be walking in the fresh air and swoooshh go all dizzy and triggers it all off.

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Iam 57 going on for 87 the way I feel. The trouble I have is iam an anxious person. Possibly not so much when younger but it all kicked off in 2008. But I was having stress at work. But I still plodded along and had some great holidays and just managed. But then came the lovely pandemic. Had to go to work through it All. Lock down then brought a different way of life. Did not seem too bad as I was away from the hussle and bussle and was home in my happy place. But work was hard doing a physical job with the horrible face masks on, having to work with distancing rules, getting in trouble if you did not have a mask on properly, if you had a cough you where treated like a lepper. and people can say all they want about face masks but they did not help with breathing and at this stage I knew nothing about my congenital heart disease. Then had to have the injections. I say we had to. But if you didn't you could not go anywhere. Again I carnt say if these pushed me further down to the dark place. But I had a collapse at work two months after third injection. However I had been going up and down on my prozac tablets. But I had got fed up with these feelings so decided to ask for an ecg. As my bloods where all OK, And that's when they found my congenital heart disease, which was last year and bingo I hit the jackpot, now on the merry go round. On blood pressure tablets. Fortunately two, lisinopril and spironolactone, but if you read the side effects. I don't know I suppose I need them, but they have worked, then I have got to stick with them but I do get dizzy when standing up from a seated position. Trouble is what else do they do to you.,? But this finding of my congenital heart disease has sent to dark places even though it has kept me going for 57 years. But it's not fun. Like I said on another thread, my cardiologist said I looked well when she saw me and is happy with what she has seen so far over the year. But I carnt have an operation. But I don't have heart failure. So I have got to manage as is. But mentally iam all over the place. I have paid for therapy and have had nhs therapy. But the only person who can change is me. The biggest issue is I keep going back to the good times when I knew nothing. But now as you say any little aches or pains in the chest area I panic. Trouble is if you read the side effects of the drugs iam on they can cause aches and pains muscle weakness. Chest pains, you name it it is on the list. Thanks for you response sorry I waffled on but anxiety is horrible