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Involvement Opportunity - PRaCTicAL Research Project (UK)
The British Liver Trust are excited to be working with NHS Lothian, University of Edinburgh, Scottish National Blood Transfusion Services (SNBTS) and Cell and Gene Therapy Catapult as part of a collaboration to create the first ‘Centre for Precision Cell Therapy for the Liver’ in the world. PRaCTicAL
The British Liver Trust are excited to be working with NHS Lothian, University of Edinburgh, Scottish National Blood Transfusion Services (SNBTS) and Cell and Gene Therapy Catapult as part of a collaboration to create the first ‘Centre for Precision Cell Therapy for the Liver’ in the world. PRaCTicAL
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Survivor Season 44 Contestant, Joshua Wilder, Opens Up About Kidney Transplant
Even before joining the show, Josh Wilder was no stranger to overcoming obstacles. Learn about his journey with a rare genetic disease, receiving a kidney transplant at a very young age, and how it all affected his decision to compete on Survivor. https://www.kidney.org/newsletter/survivor-season-44-
Even before joining the show, Josh Wilder was no stranger to overcoming obstacles. Learn about his journey with a rare genetic disease, receiving a kidney transplant at a very young age, and how it all affected his decision to compete on Survivor. https://www.kidney.org/newsletter/survivor-season-44-
JackieJ_NKF
Partner
in
Kidney Transplant
1 year ago
PKD with liver involvement
hi, anyone with PKD community had a liver transplant after a kidney transplant. My liver has grown uncomfortably large and transplant is an option. Jo
hi, anyone with PKD community had a liver transplant after a kidney transplant. My liver has grown uncomfortably large and transplant is an option. Jo
PostivelyJo
in
Kidney Transplant
1 year ago
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Travel insurance within the UK.
I'm travelling from Essex to Belfast next month and am looking for travel insurance. With belfast being in the UK I wonder if I actually need cover anyway. I am over 200 days post stem cell transplant and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering
I'm travelling from Essex to Belfast next month and am looking for travel insurance. With belfast being in the UK I wonder if I actually need cover anyway. I am over 200 days post stem cell transplant and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering
Kraskie1915
in
CLL Support
1 year ago
Husband’s first Docetaxel, day 4 and struggling
Hi all, Is there a posting or other source listing details and ways to victoriously endure 6 rounds of Docetaxel? My husband is 70 stage 4 . He is on immune suppressants due to a prior liver transplant. He was given Neulasta for the day after Docetaxel(D). His biggest struggle right now is sleeplessness
Hi all, Is there a posting or other source listing details and ways to victoriously endure 6 rounds of Docetaxel? My husband is 70 stage 4 . He is on immune suppressants due to a prior liver transplant. He was given Neulasta for the day after Docetaxel(D). His biggest struggle right now is sleeplessness
Newdiag-NC
in
Advanced Prostate Cancer
1 year ago
liver transplant
I got my own last Thursday, waited two and half years and had one faulty call got to the hospital and it wasn’t as we wanted . But it’s been in since Thursday and all good so far 👍🤞. Keeping fingers crossed that it keeps going well, I would like to thank everyone that sent me best wishes. Stay safe
I got my own last Thursday, waited two and half years and had one faulty call got to the hospital and it wasn’t as we wanted . But it’s been in since Thursday and all good so far 👍🤞. Keeping fingers crossed that it keeps going well, I would like to thank everyone that sent me best wishes. Stay safe
Dogbot
in
British Liver Trust
1 year ago
advice
Hi All. First time on here. I’m currently being worked up at Boston VA hospital for a kidney transplant. Being a veteran, the VA will pay for transplant at a community hospital here in Boston. I’m not sure exactly what to expect… any thoughts? Thanks in advance
Hi All. First time on here. I’m currently being worked up at Boston VA hospital for a kidney transplant. Being a veteran, the VA will pay for transplant at a community hospital here in Boston. I’m not sure exactly what to expect… any thoughts? Thanks in advance
Joepl
in
Kidney Disease
1 year ago
Liver issues and leg pain?
Fairly random question but while I wait for a drs appointment I thought I'd ask....I am awaiting a liver transplant for PSC and I'm getting those dulcit aches in my side that usually indicate imminent cholangitis, but! Whenever this happens I get really bad sharp aching down the outside of my upper leg
Fairly random question but while I wait for a drs appointment I thought I'd ask....I am awaiting a liver transplant for PSC and I'm getting those dulcit aches in my side that usually indicate imminent cholangitis, but! Whenever this happens I get really bad sharp aching down the outside of my upper leg
Katt12340
in
British Liver Trust
1 year ago
Kidney transplant and Oteoporsis
female post kidney transplant 1 yr 3 months. would like to know others experience with medication for osteoporosis. THEre are so many type of medication in pill form and injectables. Fear is very crippling when we read side effects of all medication. Must make choice by next month. Thanks.
female post kidney transplant 1 yr 3 months. would like to know others experience with medication for osteoporosis. THEre are so many type of medication in pill form and injectables. Fear is very crippling when we read side effects of all medication. Must make choice by next month. Thanks.
Hydrangea2023
in
Kidney Transplant
1 year ago
Osteoporosis post kidney transplant
Post kidney transplant woman, 1 year 4 months, Has anyone been treated with a particular medication? Reaction? Side effects
Post kidney transplant woman, 1 year 4 months, Has anyone been treated with a particular medication? Reaction? Side effects
Hydrangea2023
in
Osteoporosis Support
1 year ago
liver transplant , I have cirrhosis and liver cancer but when I spoke to the specialist he said I would not be eligible for a transplant, I
I was told by a Harley street Consultant, my best way of a cure was a liver transplant, I have been diagnosed with HCC cancer along with portal vein and cirrhosis , I feel very fit and well and when seeing the specialists they thought I was a lot younger than my 73 years But it seems my age is an
I was told by a Harley street Consultant, my best way of a cure was a liver transplant, I have been diagnosed with HCC cancer along with portal vein and cirrhosis , I feel very fit and well and when seeing the specialists they thought I was a lot younger than my 73 years But it seems my age is an
Willow1950
in
British Liver Trust
1 year ago
Hello from Manchester
Just to say hello - I have had a recent diagnosis of SLE - Lupus and grateful to have discovered Lupus UK - having spent too much time doom=scrolling and reading about Selena Gomez and kidney transplants. Wishing everyone a good day and positive mental health in our personal battles.
Just to say hello - I have had a recent diagnosis of SLE - Lupus and grateful to have discovered Lupus UK - having spent too much time doom=scrolling and reading about Selena Gomez and kidney transplants. Wishing everyone a good day and positive mental health in our personal battles.
ancoats23
in
LUPUS UK
1 year ago
liver transplant
I just thought I’d let you all know I have just been called for my liver transplant, this is the second time I’ve been called so fingers crossed this time 🤞. Stay safe all Dogbot 🐶🌈
I just thought I’d let you all know I have just been called for my liver transplant, this is the second time I’ve been called so fingers crossed this time 🤞. Stay safe all Dogbot 🐶🌈
Dogbot
in
British Liver Trust
1 year ago
You are what you breath - but what you breath varies...
[i]MY reason for writing this is one or two people liked my answers about the strange world of breathing. I am not a clinician, nor a scientist so beware taking me literally. However some things are self-evident dear Watson. [/i] We breath in a mixture of oxygen (20%) , nitrogen (79%) and a tiny amount
[i]MY reason for writing this is one or two people liked my answers about the strange world of breathing. I am not a clinician, nor a scientist so beware taking me literally. However some things are self-evident dear Watson. [/i] We breath in a mixture of oxygen (20%) , nitrogen (79%) and a tiny amount
Timberman
in
Lung Conditions Community Forum
1 year ago
Erectile disfunction
Hi, since I have had a liver transplant I have struggled to maintain an erection.My consultant has sent me for tests, I think they tested my testosterone levels but everything seems okay. Since my transplant in October 2021. I have got cirrhosis again. They are keeping an eye on me as I'm not far off
Hi, since I have had a liver transplant I have struggled to maintain an erection.My consultant has sent me for tests, I think they tested my testosterone levels but everything seems okay. Since my transplant in October 2021. I have got cirrhosis again. They are keeping an eye on me as I'm not far off
Refs
in
British Liver Trust
1 year ago
Miraculous Story of a person who underwent stem cell transplant in 1999
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
Farooqji
in
Cure Parkinson's
1 year ago
Update from a worried mom.
I didn't realise it has been two months when I first posted about my son. It has now been confirmed that he is now terminal .It really bought it home when his gp rang to say he had completed the D1500 form that has to be sent to the government I think he said. Anthony went into a nursing home last Thursday
I didn't realise it has been two months when I first posted about my son. It has now been confirmed that he is now terminal .It really bought it home when his gp rang to say he had completed the D1500 form that has to be sent to the government I think he said. Anthony went into a nursing home last Thursday
Charlieathome
in
British Liver Trust
1 year ago
weight gain
I’m wondering if anyone else having had a kidney transplant is dealing with a large amount of weight gain. If so how are you dealing with it?
I’m wondering if anyone else having had a kidney transplant is dealing with a large amount of weight gain. If so how are you dealing with it?
Shepip51
in
Kidney Dialysis
1 year ago
Help for a loved one
How do we as a family help a loved one awaiting liver transplant assessment, as clearly very unwell.
How do we as a family help a loved one awaiting liver transplant assessment, as clearly very unwell.
Agapanthus20
in
British Liver Trust
1 year ago
Mycophenolate trial?
Hi, I've been invited to take part in a drug trial of mycophenolate in early stage Limited Systemic Scleroderma. It's being overseen by Prof Denton and Royal Free/ UCLH. I understand the drop is commonly used for people receiving organ transplants and in the diffuse cutaneous form of Sac, but the trial
Hi, I've been invited to take part in a drug trial of mycophenolate in early stage Limited Systemic Scleroderma. It's being overseen by Prof Denton and Royal Free/ UCLH. I understand the drop is commonly used for people receiving organ transplants and in the diffuse cutaneous form of Sac, but the trial
LadyTrundle
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
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