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Experiences with
Intravenous chemotherapy
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Queries made with NHS
Q1: Why do my records say 'possible' squamous cell, when I had a biopsy. A: we were told that it had been confirmed to us at a meeting on 11/11/21. but the resulting report still says 'possible' and neither me or my husband recall being told a confirmed diagnosis. Reason given: we were too upset to
Q1: Why do my records say 'possible' squamous cell, when I had a biopsy. A: we were told that it had been confirmed to us at a meeting on 11/11/21. but the resulting report still says 'possible' and neither me or my husband recall being told a confirmed diagnosis. Reason given: we were too upset to
ginkgo
in
The Roy Castle Lung Cancer Foundation
1 year ago
Health tips for first round of radio and chemo
my 76 yrs old mum was recently diagnosed with grade 4 brain tumour which was 90% removed this wk by craniotomy. She tolerated the craniotomy very well and was discharged the next day after surgery. Some numbness to left side but this was there prior to surgery and appears to have stayed the same thankfully
my 76 yrs old mum was recently diagnosed with grade 4 brain tumour which was 90% removed this wk by craniotomy. She tolerated the craniotomy very well and was discharged the next day after surgery. Some numbness to left side but this was there prior to surgery and appears to have stayed the same thankfully
HoJ50
in
Glioblastoma Support
1 year ago
Liquid biopsy
Hello, my dear dad had CT scan in May, took 4 weeks for the results! T4 N3 M0. We ( dad, me and brother) left a little numb after first appt with respiratory consultant, our ‘ lay person’ research meant we thought it was stage3b with regional spread but uncertain about treatment options. The consultant
Hello, my dear dad had CT scan in May, took 4 weeks for the results! T4 N3 M0. We ( dad, me and brother) left a little numb after first appt with respiratory consultant, our ‘ lay person’ research meant we thought it was stage3b with regional spread but uncertain about treatment options. The consultant
Adaughter
in
The Roy Castle Lung Cancer Foundation
1 year ago
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I need help with my attitude
So I haven’t written in a bit because I have been waiting to find out what my next line of treatment is. ( Thank you to everyone who responded to my last post about med change). Ibrance stopped working after a year and a half and Everolimus didn’t work at all. I am waiting to find out if I qualify
So I haven’t written in a bit because I have been waiting to find out what my next line of treatment is. ( Thank you to everyone who responded to my last post about med change). Ibrance stopped working after a year and a half and Everolimus didn’t work at all. I am waiting to find out if I qualify
Ticket123
in
SHARE Metastatic Breast Cancer
1 year ago
First recurrance, advice needed
Good evening lovely ladies I was diagnosed with Ovarian cancer stage 4a in August 2021. Also am BRIP1. I Have had debulking surgery and 8 rounds of chemotherapy and in July 2022 until today was on Niraparib. Today I was told my CT scan in early June 2023 shows a dark spot on my liver and a smaller
Good evening lovely ladies I was diagnosed with Ovarian cancer stage 4a in August 2021. Also am BRIP1. I Have had debulking surgery and 8 rounds of chemotherapy and in July 2022 until today was on Niraparib. Today I was told my CT scan in early June 2023 shows a dark spot on my liver and a smaller
Skyeplus
in
My Ovacome
1 year ago
Thrombocytopenia?
I have APS, Sjogren's, hypothyroidism and a host of other complaints. One of these is easy bruising and bleeding. So much so that I can no longer play with the dogs in case their claws catch me, I can't get to the outdoor tap because it's buried in the hedge that will attack me and wrench off a lump
I have APS, Sjogren's, hypothyroidism and a host of other complaints. One of these is easy bruising and bleeding. So much so that I can no longer play with the dogs in case their claws catch me, I can't get to the outdoor tap because it's buried in the hedge that will attack me and wrench off a lump
Coppernob
in
Hughes Syndrome APS Forum
1 year ago
Another delay
Chemo delayed again for another week as blood work has not recovered again!!! Has anybody else had this ?? Got my self ready for tomorrow as well it just feels never ending x
Chemo delayed again for another week as blood work has not recovered again!!! Has anybody else had this ?? Got my self ready for tomorrow as well it just feels never ending x
Cazy1010
in
My Ovacome
1 year ago
Anxiety about all the immune based meds
HiIt looks like when I do an embryo transfer I will be on quite a large cocktail of medication. Recommendations for me are IVIG, steroids, clexane, asprin and intramuscular progesterone. I had an array of tests done which showed high NK cells and cytokines and an issue with the blood hence this medley
HiIt looks like when I do an embryo transfer I will be on quite a large cocktail of medication. Recommendations for me are IVIG, steroids, clexane, asprin and intramuscular progesterone. I had an array of tests done which showed high NK cells and cytokines and an issue with the blood hence this medley
Skittles11
in
Fertility Network UK
1 year ago
hair care with olaparib
has anyone tried hair colouring or smoothening when on olaparib. My grays have become prominent in the last year and my hairs are growing back curly (never had curls before in my life) after the chemo. It is not super important to me to do the colouring or smoothening, but if there is no danger at all
has anyone tried hair colouring or smoothening when on olaparib. My grays have become prominent in the last year and my hairs are growing back curly (never had curls before in my life) after the chemo. It is not super important to me to do the colouring or smoothening, but if there is no danger at all
Goodgirl98
in
My Ovacome
1 year ago
next treatment Doxil
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
Lna21
in
SHARE Metastatic Breast Cancer
1 year ago
triplet therapy?
Hi, I am looking for success stories from people with bone mets on triplet therapy. My husband is on lupron and nubeqa and will hopefully start chemo soon. Gleason 8, mets to bladder, lymph nodes, and pelvis/hips. Thank you.
Hi, I am looking for success stories from people with bone mets on triplet therapy. My husband is on lupron and nubeqa and will hopefully start chemo soon. Gleason 8, mets to bladder, lymph nodes, and pelvis/hips. Thank you.
Jojoteacher
in
Prostate Cancer Caregivers
1 year ago
triplet therapy
Hi, I am looking for success stories from people with bone mets on triplet therapy. My husband is on lupron and nubeqa and will hopefully start chemo soon. Gleason 8, mets to bladder, lymph nodes, and pelvis/hips. Thank you.
Hi, I am looking for success stories from people with bone mets on triplet therapy. My husband is on lupron and nubeqa and will hopefully start chemo soon. Gleason 8, mets to bladder, lymph nodes, and pelvis/hips. Thank you.
Jojoteacher
in
Advanced Prostate Cancer
1 year ago
Starting Keytruda this week
Starting Keytuda on Tuesday, just shy of a year after 1st round of chemo. My profile has the details. I have MSI-high, high TMB, MMR mutations; only thing is PD-L1 is 1%, but very hopeful. Can any comment on side effects they had & when they showed up. How were they handled. I'm expecting fatigue, loss
Starting Keytuda on Tuesday, just shy of a year after 1st round of chemo. My profile has the details. I have MSI-high, high TMB, MMR mutations; only thing is PD-L1 is 1%, but very hopeful. Can any comment on side effects they had & when they showed up. How were they handled. I'm expecting fatigue, loss
rsgdmd
in
Advanced Prostate Cancer
1 year ago
missed the diagnosis?
Hi all! I am at a crossroads. I believe I am not properly diagnosed, will have to find a new Rheumatologist, and have other serious problems that need addressed. Thankfully I have a great Primary care doc, and have an appointment on Monday to see an integrative medicine doctor. right now my health
Hi all! I am at a crossroads. I believe I am not properly diagnosed, will have to find a new Rheumatologist, and have other serious problems that need addressed. Thankfully I have a great Primary care doc, and have an appointment on Monday to see an integrative medicine doctor. right now my health
BeachsideVia
in
NRAS
1 year ago
Broken shattered femur
My husband's femur broke and shattered on Friday afternoon. Rushed to hospital only to be told no surgeon available. They called 5 other hospitals and all declined his admittance due to lack of rooms or no surgeon available. Finally last evening he was transferred to Markham Stouffville Hospital at
My husband's femur broke and shattered on Friday afternoon. Rushed to hospital only to be told no surgeon available. They called 5 other hospitals and all declined his admittance due to lack of rooms or no surgeon available. Finally last evening he was transferred to Markham Stouffville Hospital at
Docker53
in
Advanced Prostate Cancer
1 year ago
hair woe
hi everyone Had my first chemo 2weeks ago My hair seems to be coming out now Just wondering did anyone have scalp pain ? marie
hi everyone Had my first chemo 2weeks ago My hair seems to be coming out now Just wondering did anyone have scalp pain ? marie
Le-gra143
in
My Ovacome
1 year ago
2,000 PSA...suggestions other than chemo?
BACKGROUND:
Have metastatic castrate-resistant prostate cancer. All cancer resides in bones. still have prostate, diagnosed seven years ago PSA diagnosed at 1,666, went as low as undetectable, now up to 2,000. [i]
CHEMO:
[/i] Chemo scheduled to start Friday, 30JUN23. [i]
PLEASE
BACKGROUND:
Have metastatic castrate-resistant prostate cancer. All cancer resides in bones. still have prostate, diagnosed seven years ago PSA diagnosed at 1,666, went as low as undetectable, now up to 2,000. [i]
CHEMO:
[/i] Chemo scheduled to start Friday, 30JUN23. [i]
PLEASE
fsiefert
in
Advanced Prostate Cancer
1 year ago
No scan offered!
I have a recurring ovarian cancer. I'm treatable but not curable.I had radiotherapy in January to reduce a recurrence and my Ca125 went down to 21. It's now 48 ash's I'm told I can't have a scan until I have symptoms which strikes me as odd. I was having 3 monthly scans and was expecting one next month
I have a recurring ovarian cancer. I'm treatable but not curable.I had radiotherapy in January to reduce a recurrence and my Ca125 went down to 21. It's now 48 ash's I'm told I can't have a scan until I have symptoms which strikes me as odd. I was having 3 monthly scans and was expecting one next month
loobilou
in
My Ovacome
1 year ago
A Wish Fulfilled, and a Legacy
A few months ago I posted about entering hospice and received many precious notes from well-wishers across the world. Your kind words mean so much to me that I’ve placed them in a document to look at whenever I need a lift! Words indeed support the healing process, and I am very grateful for being
A few months ago I posted about entering hospice and received many precious notes from well-wishers across the world. Your kind words mean so much to me that I’ve placed them in a document to look at whenever I need a lift! Words indeed support the healing process, and I am very grateful for being
Bestbird
in
SHARE Metastatic Breast Cancer
1 year ago
Severe heart failure and chemo
Hi all, I’m going to follow this up with heart failure team on Monday but just in the interim I wonder if anyone can shed any light on this for me ? I have been diagnosed with stage 3 bowel cancer and have been told by oncology consultant that chemotherapy is not an option for me as it’s too dangerous
Hi all, I’m going to follow this up with heart failure team on Monday but just in the interim I wonder if anyone can shed any light on this for me ? I have been diagnosed with stage 3 bowel cancer and have been told by oncology consultant that chemotherapy is not an option for me as it’s too dangerous
Unlucki
in
British Heart Foundation
1 year ago
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