First recurrance, advice needed

[Skyeplus]

Good evening lovely ladies

I was diagnosed with Ovarian cancer stage 4a in August 2021. Also am BRIP1. I Have had debulking surgery and 8 rounds of chemotherapy and in July 2022 until today was on Niraparib. Today I was told my CT scan in early June 2023 shows a dark spot on my liver and a smaller dark spot on my spleen. Both have appeared since a CT scan in late March 2023. It’s also on my peritoneum but i knew that from day one.

I start 6 sessions chemotherapy again in two weeks.

Stupidly I forgot to ask about the possibility of more surgery. Is this at likely? Or will it just be the chemotherapy? Any advice would be gratefully received thankyou so much

[Goodgirl98]

i do not have an answer to your question. Just wanted to wish you the best and hope the meds do their job without the need for surgery.

[Skyeplus in reply to Goodgirl98]

thankyou, sending you best wishes and a hug xxx

[carrotmunch5]

Hi Skyeplus. I am so sorry to hear your recurrence. I am sure you are feeling gutted that cancer recurred. I have metastatic clear cell OC, and currently waiting for surgery next month. I too have recurrence in my liver, and been offered surgery. There might be possibility, maybe you can ask to your consultant? I had liver ablation there last year, then recurred this year so decided to remove the part of liver. When my cancer spread in my liver( and among other places) a few years ago, I was offered clinical trial drug combined with chemo, I had that about a year. A couple of tumours which they concerned were disappeared. I don't know what works for you, but have a chat with your consultant, see what they say. Hope all goes well, and sending you lots of love 🧡 🩷🙏

[Skyeplus in reply to carrotmunch5]

thankyou, I will do as you say. I was a bit shell shocked at the appointment and didn’t ask the questions that I now need an answer to. Sending a hug and thanks xxx

[carrotmunch5 in reply to Skyeplus]

Yeah, lots to take in. I do often forget to ask, then when I come away, having time to myself then, questions come up. I always note them down questions I want to ask for next meeting or email them. 😄 I am sure they are happy to answer your questions. 🤩 Xxx

[lesleysage]

Hello Skyeplus,

I'm like carrotmunch5 with listing questions as they pop into my head, and then enailing ahead of the appointment; neither the oncologist nor my GP ever minded & may even have appreciated it??!!

Please remember you are entitled to a second opinion; see Ovacome Info sheet: ovacome.org.uk/getting-a-se...

And if it is about the possibility of surgery a number of us on this site have found Prof. Christina Fotopoulou at Queen Charlotte's, London and Prof Gordon Jayson at The Christie in Manchester incredibly valuable. Each of them head up really experiencd teams and have top flight surgical facilities, which can be just as important as the skills of the team.

The Ovacome Support team can be helpful as well on Freephone: 0800 008 7054

Warmest wishes for the next phase of treatment, X

[Skyeplus in reply to lesleysage]

Thankyou so much xxx