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Mylo Fibrosis, et al
Hello. I'm new to this community and frankly new to social networking on health. My abbreviated story is that I transitioned to Mylo Fibrosis (MF) a few years ago, after dealing with Polycythemia Vera (PV) for 25+ years (I'm 66 years old). The PV regimen was inclusive of Phlebotomies, meds such as Agrilyn
Hello. I'm new to this community and frankly new to social networking on health. My abbreviated story is that I transitioned to Mylo Fibrosis (MF) a few years ago, after dealing with Polycythemia Vera (PV) for 25+ years (I'm 66 years old). The PV regimen was inclusive of Phlebotomies, meds such as Agrilyn
luvinretirement
in
MPN Voice
1 year ago
SCT update
Hello everyone, I was admitted to hospital on Saturday 30 th July, & started my chemo. I had my picc line fitted the day before. Transplant day was Friday 4th August, which went well, it was amazing watching the stem cells go through the tube & into my body!! I feel sick & tired but knew it would
Hello everyone, I was admitted to hospital on Saturday 30 th July, & started my chemo. I had my picc line fitted the day before. Transplant day was Friday 4th August, which went well, it was amazing watching the stem cells go through the tube & into my body!! I feel sick & tired but knew it would
SRH55
in
MPN Voice
1 year ago
Is Xtandi Failing?
Background: Diagnosis in Jan/2020, PSA 577, Gleason 9, mets to lymph nodes and bones Started Firmagon immediately as well as chemo, 6 cycles of Docetaxel. Followed this by radiation to the prostate. PSA dropped pretty quick and eventually into the teens and single digits, lowest was 4.5 back in January
Background: Diagnosis in Jan/2020, PSA 577, Gleason 9, mets to lymph nodes and bones Started Firmagon immediately as well as chemo, 6 cycles of Docetaxel. Followed this by radiation to the prostate. PSA dropped pretty quick and eventually into the teens and single digits, lowest was 4.5 back in January
GTTown
in
Advanced Prostate Cancer
1 year ago
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anyone suffering from frequent Nausea
7 yrs. + on firmagon and switched to lupron 8 months ago. Everything stable with the stage 4 PC. Can handle the hot sweats,low energy and no libido. My biggest problem is frequent nausea . Just wondering if anyone else has the same side effect and how they deal with it. I have never had any radiation
7 yrs. + on firmagon and switched to lupron 8 months ago. Everything stable with the stage 4 PC. Can handle the hot sweats,low energy and no libido. My biggest problem is frequent nausea . Just wondering if anyone else has the same side effect and how they deal with it. I have never had any radiation
Dannyboy48
in
Advanced Prostate Cancer
1 year ago
Muscular pain and sciatica
Hello, I have high grade serous OC 3c and i'm on my second round of chemo. My symptoms started at the beginning of April and was diagnosed with cancer in mid-May. By then I had started to develop muscular pains in my body, which have intensified. The second week after my first chemo I developed sciatica
Hello, I have high grade serous OC 3c and i'm on my second round of chemo. My symptoms started at the beginning of April and was diagnosed with cancer in mid-May. By then I had started to develop muscular pains in my body, which have intensified. The second week after my first chemo I developed sciatica
Alentejo
in
My Ovacome
1 year ago
NICE review of first-line olaparib - your comments needed
Hello All NICE are undertaking a Cancer Drugs Fund guidance review for olaparib. The name of the NICE consultation is: Olaparib for maintenance treatment of BRCA-mutated ovarian, fallopian tube and peritoneal cancer after response to first-line platinum-based chemotherapy (Review of TA598) ID6191
Hello All NICE are undertaking a Cancer Drugs Fund guidance review for olaparib. The name of the NICE consultation is: Olaparib for maintenance treatment of BRCA-mutated ovarian, fallopian tube and peritoneal cancer after response to first-line platinum-based chemotherapy (Review of TA598) ID6191
OvacomeSupport
My Ovacome Team
in
My Ovacome
1 year ago
Feeling utterly helpless
Hi, my mum (early 60s) has been diagnosed with glioblastoma on her right side of her brain spreading to her corpus callosum. Surgery was considered too risky so we choose radiotherapy and chemo. However, the oncologist is now saying he thinks radiotherapy will do more harm than good. Her mobility
Hi, my mum (early 60s) has been diagnosed with glioblastoma on her right side of her brain spreading to her corpus callosum. Surgery was considered too risky so we choose radiotherapy and chemo. However, the oncologist is now saying he thinks radiotherapy will do more harm than good. Her mobility
Hidden
in
Glioblastoma Support
1 year ago
CEA Fluctuations
My husband has just completed his 3rd cycle of Carboplatin and Etoposide for prostate cancer liver mets. Before the first cycle his CEA was 38 (should be <5) This number is being used as baseline. After 1st cycle it was 30.3 but after his 2nd cycle it rose to 32.7. Is it normal for CEA to fluctuate
My husband has just completed his 3rd cycle of Carboplatin and Etoposide for prostate cancer liver mets. Before the first cycle his CEA was 38 (should be <5) This number is being used as baseline. After 1st cycle it was 30.3 but after his 2nd cycle it rose to 32.7. Is it normal for CEA to fluctuate
Believeit
in
Advanced Prostate Cancer
1 year ago
Abiraterone - alternatives
Only 3 months after completing 6 rounds of Docetaxel my husband was put on Abi as his onco felt the chemo had been unsuccessful. However the onco is now saying he will pull him off the Abi as his PSA has doubled for the each of the 2 months he’s been on it. In the UK once you’ve been on Abi for 3 months
Only 3 months after completing 6 rounds of Docetaxel my husband was put on Abi as his onco felt the chemo had been unsuccessful. However the onco is now saying he will pull him off the Abi as his PSA has doubled for the each of the 2 months he’s been on it. In the UK once you’ve been on Abi for 3 months
NLondon43
in
Advanced Prostate Cancer
1 year ago
Diuretics and maintenance daily potassium?
HiOn a high level of tabletted furosemide. Deep joy. Off and on my potassium has been low and is topped up by fizzy tablets and has always worked so far. The problem is the symptoms are quite similar to low bp and...heart failure...and beta blockers...so I tend to struggle on and this time it's 2.9 and
HiOn a high level of tabletted furosemide. Deep joy. Off and on my potassium has been low and is topped up by fizzy tablets and has always worked so far. The problem is the symptoms are quite similar to low bp and...heart failure...and beta blockers...so I tend to struggle on and this time it's 2.9 and
Penoir53
in
British Heart Foundation
1 year ago
Worried
I was due to have a polyp removed on the day of surgery (4 Jan) I attended for day surgery but the anaesthetist wasn't happy that I had only been diagnosed with angina by my GP. My GP had referred me to cardiology around the middle of 2022, but due to long waiting lists I had not seen a cardiologist
I was due to have a polyp removed on the day of surgery (4 Jan) I attended for day surgery but the anaesthetist wasn't happy that I had only been diagnosed with angina by my GP. My GP had referred me to cardiology around the middle of 2022, but due to long waiting lists I had not seen a cardiologist
Dunandjam
in
British Heart Foundation
1 year ago
Best Arthur description I’ve read!
Found this on the South Wales Police Facebook page, of all places. Describes our illness so well… #HumansOfSWP | 💬 "I suffer with rheumatoid arthritis (RA), which is an autoimmune and inflammatory disease. In basic terms it means my immune system attacks healthy cells in my body by mistake, causing
Found this on the South Wales Police Facebook page, of all places. Describes our illness so well… #HumansOfSWP | 💬 "I suffer with rheumatoid arthritis (RA), which is an autoimmune and inflammatory disease. In basic terms it means my immune system attacks healthy cells in my body by mistake, causing
Llanberisman
in
NRAS
1 year ago
Bowel blockage experience
Dear Women of strength I’m writing this post in case others may find my experience useful in the future. I was diagnosed 3C HGSOC in Nov 2021,(fit aged 57) followed with Carbo/paclitaxol and debulking surgery for 6 months until NED summer 2022. Had good summer then back at work teaching on Niraparib
Dear Women of strength I’m writing this post in case others may find my experience useful in the future. I was diagnosed 3C HGSOC in Nov 2021,(fit aged 57) followed with Carbo/paclitaxol and debulking surgery for 6 months until NED summer 2022. Had good summer then back at work teaching on Niraparib
Narna1
in
My Ovacome
1 year ago
Update on my daddy- 8 years stage four
Hello guys! I wanted to give a little update on my dad. He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately
Hello guys! I wanted to give a little update on my dad. He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately
Lynsi13
in
Advanced Prostate Cancer
1 year ago
Side effects of Zytiga?
My Dad is 73 years old and is currently under generic Zytiga medication for a month now. His latest PSA a week ago was about 9000 and he is experiencing bone pain, nausea and vomiting. He also cannot eat anything and losing weight. His hemoglobin is also low (68) ang got a blood transfusion last week
My Dad is 73 years old and is currently under generic Zytiga medication for a month now. His latest PSA a week ago was about 9000 and he is experiencing bone pain, nausea and vomiting. He also cannot eat anything and losing weight. His hemoglobin is also low (68) ang got a blood transfusion last week
brktym
in
Advanced Prostate Cancer
1 year ago
Cancer breakthrough as groundbreaking pill found to ‘kill tumours’
Scientists at a leading US hospital have developed a “cancer-killing pill” that kills solid tumours through “targeted chemotherapy.” Likened to a “snowstorm that closes a key airline hub, shutting down all flights in and out only in planes carrying cancer cells”, the protein was developed by a research
Scientists at a leading US hospital have developed a “cancer-killing pill” that kills solid tumours through “targeted chemotherapy.” Likened to a “snowstorm that closes a key airline hub, shutting down all flights in and out only in planes carrying cancer cells”, the protein was developed by a research
Kerryd22
in
SHARE Metastatic Breast Cancer
1 year ago
City of Hope scientists develop targeted chemotherapy able to kill all solid tumors in preclinical research
https://www.prnewswire.com/news-releases/city-of-hope-scientists-develop-targeted-chemotherapy-able-to-kill-all-solid-tumors-in-preclinical-research-301888576.html
https://www.prnewswire.com/news-releases/city-of-hope-scientists-develop-targeted-chemotherapy-able-to-kill-all-solid-tumors-in-preclinical-research-301888576.html
No_stone_unturned
in
Advanced Prostate Cancer
1 year ago
An Update - In Part.
As you all know I have Bladder Cancer among my long standing ailments. The cancer is aggressive but not spread yet as far as I know.. It is Cancer in site - None muscle invasive but the cancer can become invasive. I have been on BCG Treatment - The last was a 6 week course direct into my bladder
As you all know I have Bladder Cancer among my long standing ailments. The cancer is aggressive but not spread yet as far as I know.. It is Cancer in site - None muscle invasive but the cancer can become invasive. I have been on BCG Treatment - The last was a 6 week course direct into my bladder
Ern007
in
Lung Conditions Community Forum
1 year ago
Neuropathy foot and hands
Wow i currently have neuropathy in both of my feet when i asked about this with my oncologist i was informed oh it will go away on its own. its a side effect of the chemotherapy i had 1st it was the hands which was pretty bad fingernails turned black and blue and hands were numb all the time. went
Wow i currently have neuropathy in both of my feet when i asked about this with my oncologist i was informed oh it will go away on its own. its a side effect of the chemotherapy i had 1st it was the hands which was pretty bad fingernails turned black and blue and hands were numb all the time. went
Colorpurple521
in
SHARE Metastatic Breast Cancer
1 year ago
Newbie
Hi At age 32 I had a triple negative tumour removed (lumpectomy) followed by chemo and radiotherapy. Fast forward 31 years I have just had a mastectomy after I had an oestrogen positive tumour. No chemo needed-phew! The op was 3 weeks ago & I still have a large haematoma that has already been drained
Hi At age 32 I had a triple negative tumour removed (lumpectomy) followed by chemo and radiotherapy. Fast forward 31 years I have just had a mastectomy after I had an oestrogen positive tumour. No chemo needed-phew! The op was 3 weeks ago & I still have a large haematoma that has already been drained
sissjg
in
SHARE Breast Cancer Support
1 year ago
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