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Interstitial lung disease (ILD)
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I am 53 and require an ICD
I am 53 and require an ICD and scared but also want and need to continue an active life. Currently in Atrial Fibrillation and a degree of heart block. I also have a cardiac Gene that causes issues with conduction and cardiomyopathy. Looking for reassurance and normality and would like to live till at
I am 53 and require an ICD and scared but also want and need to continue an active life. Currently in Atrial Fibrillation and a degree of heart block. I also have a cardiac Gene that causes issues with conduction and cardiomyopathy. Looking for reassurance and normality and would like to live till at
Pottsgene
in
Heart Rhythm Disorders Support
4 months ago
What to do?
Originally I was diagnosed with lung fibrosis and earlier this year I received confirmation that I have CPFE combined pulmonary fibrosis and emphysema.I suffer from shortness of breath and some everyday tasks are becoming more difficult. Even putting my socks on can leave me short of breath. I have noticed
Originally I was diagnosed with lung fibrosis and earlier this year I received confirmation that I have CPFE combined pulmonary fibrosis and emphysema.I suffer from shortness of breath and some everyday tasks are becoming more difficult. Even putting my socks on can leave me short of breath. I have noticed
Wibble28
in
Lung Conditions Community Forum
4 months ago
atrial fibrillation then high heart rate
I started in AF last week and after 5 days of AF I have now gone into a regular high heart rate for the past 2 days. Under the instruction of the arrhythmia nurse I have increased my bisoprolol but it doesn’t seem to helping much. I have an appointment on Wednesday to discuss treatment plan while I
I started in AF last week and after 5 days of AF I have now gone into a regular high heart rate for the past 2 days. Under the instruction of the arrhythmia nurse I have increased my bisoprolol but it doesn’t seem to helping much. I have an appointment on Wednesday to discuss treatment plan while I
Dizzy3
in
Atrial Fibrillation Support
4 months ago
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Full circle with this disease
Diagnosed 2017 PSA 105 started ADT, 6 rounds Docetaxel and radiation PSA drops to undetectable. Castrate resistant 2022 started Abiraterone and prednisone this failed after 3 months. Start Xgeva and Xofigo 2023. PSA back at 105 November 2023. Start 10 rounds of Docetaxel and PSA starts dropping again
Diagnosed 2017 PSA 105 started ADT, 6 rounds Docetaxel and radiation PSA drops to undetectable. Castrate resistant 2022 started Abiraterone and prednisone this failed after 3 months. Start Xgeva and Xofigo 2023. PSA back at 105 November 2023. Start 10 rounds of Docetaxel and PSA starts dropping again
Islandboy2021
in
Advanced Prostate Cancer
7 months ago
worrying heart rate through the night
I have started to wear my Fitbit to bed after my AF diagnosis but I am very worried that it says, while in AF all night, my heart beat ranges from39 to 169. I take Carvedilol 12.5mg and Apixaban 5mg twice a day. It has taken me ages to be brave enough to wear it at night but I’m thinking I might be
I have started to wear my Fitbit to bed after my AF diagnosis but I am very worried that it says, while in AF all night, my heart beat ranges from39 to 169. I take Carvedilol 12.5mg and Apixaban 5mg twice a day. It has taken me ages to be brave enough to wear it at night but I’m thinking I might be
Wilky57
in
Atrial Fibrillation Support
4 months ago
AbbVie announces EU availability of Parkinson's therapy
A cutting-edge skin patch, equipped with a miniature pump, administers a continuous 24-hour subcutaneous infusion of a therapy based on levodopa. My neurologist recommended this innovative approach as a more convenient alternative to managing our medication, eliminating the need for multiple pills throughout
A cutting-edge skin patch, equipped with a miniature pump, administers a continuous 24-hour subcutaneous infusion of a therapy based on levodopa. My neurologist recommended this innovative approach as a more convenient alternative to managing our medication, eliminating the need for multiple pills throughout
LuckyLuke
in
Cure Parkinson's
7 months ago
Supplements to help liver
I had a blood test that showed raised ALT and then stopped drinking for 3 months and the repeat test had gone down to normal levels. I have heard that various things can help the liver, milk thistle, artichoke, dandelion etc. Is there any merit in any of these. I do not drink a lot but the occasional
I had a blood test that showed raised ALT and then stopped drinking for 3 months and the repeat test had gone down to normal levels. I have heard that various things can help the liver, milk thistle, artichoke, dandelion etc. Is there any merit in any of these. I do not drink a lot but the occasional
Catsaresocute
in
British Liver Trust
7 months ago
Please Join Us! Tuesday August 8th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tuesday, August 8th, at 5pm PT/8pm ET. At this
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tuesday, August 8th, at 5pm PT/8pm ET. At this
Michelezeh
Partner
in
Lung Cancer Support
1 year ago
Fibroscan
My Fibroscan score has increased from 5.9 to 7.9 in a year my consultant doesn’t seem concerned as my blood results are normal and a recent ultrasound on my liver hasn’t changed apparently the size is the same. 🤷♀️I also have fatty liver. I was carrying a bit of extra weight but not overly big but
My Fibroscan score has increased from 5.9 to 7.9 in a year my consultant doesn’t seem concerned as my blood results are normal and a recent ultrasound on my liver hasn’t changed apparently the size is the same. 🤷♀️I also have fatty liver. I was carrying a bit of extra weight but not overly big but
kingsnorth
in
PBC Foundation
7 months ago
7 years plus
I was a junior high Science teacher... in 2015 my PKD became so profound that I had to quit teaching and have HD 3 times a week for 4 hours a session. The second time I had dialysis I was infiltrated severely... and wound up in hospital.. I have had a bilateral Nephrectomy and my kidneys were football
I was a junior high Science teacher... in 2015 my PKD became so profound that I had to quit teaching and have HD 3 times a week for 4 hours a session. The second time I had dialysis I was infiltrated severely... and wound up in hospital.. I have had a bilateral Nephrectomy and my kidneys were football
1EPXiii
in
Kidney Dialysis
7 months ago
Elevated Liver Enzymes
Hello everyone, hope you are doing well. I just recently had LFT, 3 enzymes came back a little elevated. Alt was 52, Alp was 121 and GGT at 72. Ast according to the lab was normal at 35. CBC was all good too, ANA was negative, kidney function test was normal as well. All the other protiens and enzymes
Hello everyone, hope you are doing well. I just recently had LFT, 3 enzymes came back a little elevated. Alt was 52, Alp was 121 and GGT at 72. Ast according to the lab was normal at 35. CBC was all good too, ANA was negative, kidney function test was normal as well. All the other protiens and enzymes
Mhalpha
in
British Liver Trust
7 months ago
Pork, Autoimmune Disease, and Parkinson's?
So... I have posted on my belief that PD is an autoimmune disease before: Is Parkinson's Disease an Autoimmune Disorder? https://healthunlocked.com/cure-parkinsons/posts/147142599/is-parkinson-s-disease-an-autoimmune-disorder And... (surprisingly) I have not posted on the fact that the only meat I
So... I have posted on my belief that PD is an autoimmune disease before: Is Parkinson's Disease an Autoimmune Disorder? https://healthunlocked.com/cure-parkinsons/posts/147142599/is-parkinson-s-disease-an-autoimmune-disorder And... (surprisingly) I have not posted on the fact that the only meat I
Bolt_Upright
in
Cure Parkinson's
5 months ago
SOC & PSA
Three months post RT, my RO ordered a non-ultrasensitive PSA test with a lower limit of "<.1". I see posts of folks considering an increase from .02 to .06 a PSA doubling - obviously which would not be observable with my PSA test. This makes me wonder why: 1) Is there any good reason why an ultrasensitive
Three months post RT, my RO ordered a non-ultrasensitive PSA test with a lower limit of "<.1". I see posts of folks considering an increase from .02 to .06 a PSA doubling - obviously which would not be observable with my PSA test. This makes me wonder why: 1) Is there any good reason why an ultrasensitive
SCreader
in
Advanced Prostate Cancer
7 months ago
T3 only and heart rate
Hi all, I was started on liothyronine only 6 months ago and it has been life changing. It has resolved 4 years of debilitating symptoms, including chronic fatigue. I have faulty D102 and am a poor converter. I was finally taken off levothyroxine following abnormal ECG and tachycardia. I had a scan and
Hi all, I was started on liothyronine only 6 months ago and it has been life changing. It has resolved 4 years of debilitating symptoms, including chronic fatigue. I have faulty D102 and am a poor converter. I was finally taken off levothyroxine following abnormal ECG and tachycardia. I had a scan and
Mhaire
in
Thyroid UK
4 months ago
Would you like to know more about your antiarrhythmic medication?
Upon diagnosis of Atrial fibrillation (AF) many are prescribed antiarrhythmic medication(s). These help to restore the normal (sinus) heart rhythm. They work by blocking specific electrical conduction channels in the heart. Some can slow the activation of the heart muscle, and others slow the recovery
Upon diagnosis of Atrial fibrillation (AF) many are prescribed antiarrhythmic medication(s). These help to restore the normal (sinus) heart rhythm. They work by blocking specific electrical conduction channels in the heart. Some can slow the activation of the heart muscle, and others slow the recovery
TracyAdmin
Partner
in
Atrial Fibrillation Support
4 months ago
HRT and B12
So I went to see an actual Doctor, having been diagnosed with PA by the nurses last summer, with a B12 level of 143.His opening gambit, having looked at the September blood results, serum vitamin B12 = 496, was "You do not have Pernicious Anemia!" Stupid me hadn't SId for 4 days, because I wanted the
So I went to see an actual Doctor, having been diagnosed with PA by the nurses last summer, with a B12 level of 143.His opening gambit, having looked at the September blood results, serum vitamin B12 = 496, was "You do not have Pernicious Anemia!" Stupid me hadn't SId for 4 days, because I wanted the
Oneash
in
Pernicious Anaemia Society
5 months ago
Worried
I am a 41 year old male. I have always drank but only ever lager. Maybe 2 cans a night after work each night in the week and 7 or 8 cans on a Friday and a Saturday. Was getting little twinges under my right ribs and in my side so haven't drank for 2 months but the twinges are still there. Not painful
I am a 41 year old male. I have always drank but only ever lager. Maybe 2 cans a night after work each night in the week and 7 or 8 cans on a Friday and a Saturday. Was getting little twinges under my right ribs and in my side so haven't drank for 2 months but the twinges are still there. Not painful
urzz1871
in
British Liver Trust
7 months ago
Atrial Fibrillation
I'm in the process of finding out which blood thinner is best for me. Started with bisoprolol 1.25mg twice daily and feeling ill so have changed to Edoxaban causing cold hands and feet and breathlessness. I feel that my Cardiologist hasn't taken into consideration my other health conditions, i.e. Asthma
I'm in the process of finding out which blood thinner is best for me. Started with bisoprolol 1.25mg twice daily and feeling ill so have changed to Edoxaban causing cold hands and feet and breathlessness. I feel that my Cardiologist hasn't taken into consideration my other health conditions, i.e. Asthma
magriff1
in
Pain Concern
4 months ago
Give your feedback to help us update our "Lupus: A Guide to Pregnancy" booklet
We're updating our "Guide to Pregnancy" booklet with the new medication guidelines, and we want to hear from you about what else we should include or think about to make sure a new version meets the needs of the lupus community. Complete our anonymous survey here: https://forms.gle/iPBShZxtoJdKaEsn7
We're updating our "Guide to Pregnancy" booklet with the new medication guidelines, and we want to hear from you about what else we should include or think about to make sure a new version meets the needs of the lupus community. Complete our anonymous survey here: https://forms.gle/iPBShZxtoJdKaEsn7
Debbie_kinsey
Administrator
in
LUPUS UK
5 months ago
Low O2
CAPS survivor here. Lately my O2 has been consistently between 87% -93% resting and walking. A trip to the ER the other day showed no PE and clear lungs. They want to follow up with pulmonologist but I think it's my blood flow. My lungs feel fine! I'm on warfarin. Anybody else going through this?
CAPS survivor here. Lately my O2 has been consistently between 87% -93% resting and walking. A trip to the ER the other day showed no PE and clear lungs. They want to follow up with pulmonologist but I think it's my blood flow. My lungs feel fine! I'm on warfarin. Anybody else going through this?
grandmagigitovivi
in
Hughes Syndrome APS Forum
4 months ago
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