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Interstitial lung disease (ILD)
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Unstable Thyroid Function
For over 20 years my underactive thyroid function was stable -taking 125mg of levothyroxine daily. Last Summer it went haywire and became overactive. Medication was reduced to 100mg and by November it was stable. Now,the results of my requested blood test show it's underactive again and my medication
For over 20 years my underactive thyroid function was stable -taking 125mg of levothyroxine daily. Last Summer it went haywire and became overactive. Medication was reduced to 100mg and by November it was stable. Now,the results of my requested blood test show it's underactive again and my medication
doonicle
in
Thyroid UK
5 months ago
Two weeks after ablation and I'm on the list for a cardioversion
It's two weeks today since I had an ablation for AF. I wasn't in AF before or immediately after the procedure but felt bad on day two with racing irregular pulse, dizziness etc. I had an ecg last week which showed me to be in AF and the arrhythmia nurse has called to let me know and tell me that I've
It's two weeks today since I had an ablation for AF. I wasn't in AF before or immediately after the procedure but felt bad on day two with racing irregular pulse, dizziness etc. I had an ecg last week which showed me to be in AF and the arrhythmia nurse has called to let me know and tell me that I've
JoDogBlue
in
Atrial Fibrillation Support
4 months ago
Becoming mCRPC despite falling PSA
Hey guys, I got a question regarding my dad. He was diagnosed in summer 2022 with stage 4, Gleason 4+4, PSA of 122 and many osteoblastic bone metastases throughout the whole skeleton (very high volume) He did the triplet therapy, which lowered his PSA to 0.4 (January 2023). Scans afterwards stated
Hey guys, I got a question regarding my dad. He was diagnosed in summer 2022 with stage 4, Gleason 4+4, PSA of 122 and many osteoblastic bone metastases throughout the whole skeleton (very high volume) He did the triplet therapy, which lowered his PSA to 0.4 (January 2023). Scans afterwards stated
kennycool
in
Advanced Prostate Cancer
7 months ago
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Raynaud's in nipples?
I've posted this in Lupus and the Raynaud's & Scleroderma groups, and no responses. Surely I can't be the only one?
I've posted this in Lupus and the Raynaud's & Scleroderma groups, and no responses. Surely I can't be the only one?
Brychni
in
NRAS
5 months ago
Orgovyx and its side effects on the heart's electrical system
I've been taking Orgovyx for over two years with few side effects. But I have been experiencing episodes of dizziness and light-headedness over the last few months. My cardiologist has diagnosed bradycardia (a slow heart beat that can cause such episodes). I will need a pacemaker. I know a side effect
I've been taking Orgovyx for over two years with few side effects. But I have been experiencing episodes of dizziness and light-headedness over the last few months. My cardiologist has diagnosed bradycardia (a slow heart beat that can cause such episodes). I will need a pacemaker. I know a side effect
Boonster
in
Advanced Prostate Cancer
4 months ago
INR meter
Hi all, I had a stroke when I was 27 years old and 10 years later I got diagnosed with Palindromic Rheumatism, a form or Arthritis. With both, current medication is Warfarin and X is required. I feel limited about the regular INR control lead by coagulation variability. Thinking to get an INR meter
Hi all, I had a stroke when I was 27 years old and 10 years later I got diagnosed with Palindromic Rheumatism, a form or Arthritis. With both, current medication is Warfarin and X is required. I feel limited about the regular INR control lead by coagulation variability. Thinking to get an INR meter
HectorManzanoDiaz
in
Anticoagulation Support
4 months ago
Bevacizumab v Niraparib
I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after). I caught COVID towards the end of
I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after). I caught COVID towards the end of
LovemyJackRussell
in
My Ovacome
4 months ago
All kidney tests normal EXCEPT albumin/ creatinine ratio
hi. Haven't posted in while. My duff went up from 40 to 70!! But now test just came back that my albumin/creatinine ratio is slightly above normal. Should I be concerned?
hi. Haven't posted in while. My duff went up from 40 to 70!! But now test just came back that my albumin/creatinine ratio is slightly above normal. Should I be concerned?
Cobalt2sister
in
Early CKD Support
7 months ago
Basal Cortisol Test Result
I have recently had a basal cortisol test and my serum cortisol level is 296 nmol/L. I have an appointment with my GP on Wednesday to discuss. My test results says that this is normal but on reading information on the Internet I’m not too sure that this is entirely correct. I have found the following
I have recently had a basal cortisol test and my serum cortisol level is 296 nmol/L. I have an appointment with my GP on Wednesday to discuss. My test results says that this is normal but on reading information on the Internet I’m not too sure that this is entirely correct. I have found the following
Floridafan
in
PMRGCAuk
7 months ago
chemo and genetic testing questions
My husband’s genetic testing of the biopsies came back. It’s 19 pages and I am having a super difficult time interpreting. His Oncologist Urologist is overwhelmed with duties and we probably won’t get reviewed at the level we need. attaching the executive summary. They said he tests positive for SPOP
My husband’s genetic testing of the biopsies came back. It’s 19 pages and I am having a super difficult time interpreting. His Oncologist Urologist is overwhelmed with duties and we probably won’t get reviewed at the level we need. attaching the executive summary. They said he tests positive for SPOP
Sunnysailor
in
Advanced Prostate Cancer
4 months ago
Any treatment after Lu-177 (Pluvicto)?
I have metastatic prostate cancer and have taken two Pluvicto infusions, but my PSA has gone UP from 2,000 to 3,000. I understand this is the end of the line...unless anyone online has information on where to go from here. Frank.
I have metastatic prostate cancer and have taken two Pluvicto infusions, but my PSA has gone UP from 2,000 to 3,000. I understand this is the end of the line...unless anyone online has information on where to go from here. Frank.
fsiefert
in
Advanced Prostate Cancer
7 months ago
windyway
Hi all I have pernicious anemia How much & how regular do I need B12 injections? I had 6 loading over 2 weeks in December /January and every 3 months ?? I’ve talked my dr into every 2 months is this enough ? I’m having heart palpitations/ irregular fast heart beats is this connected? I’ve read this
Hi all I have pernicious anemia How much & how regular do I need B12 injections? I had 6 loading over 2 weeks in December /January and every 3 months ?? I’ve talked my dr into every 2 months is this enough ? I’m having heart palpitations/ irregular fast heart beats is this connected? I’ve read this
Windyway
in
Pernicious Anaemia Society
5 months ago
Return of Armpit Odor - Yikes!!!
For almost two years, I (and others! 😃) have noticed the absence of male armpit odor. Attributable to full ADT (for metastatic PCa) and suppression of testosterone. (I'm on Triplet Therapy.) This morning I was surprised to notice odor for the first time since diagnosis. Due shortly for blood panel including
For almost two years, I (and others! 😃) have noticed the absence of male armpit odor. Attributable to full ADT (for metastatic PCa) and suppression of testosterone. (I'm on Triplet Therapy.) This morning I was surprised to notice odor for the first time since diagnosis. Due shortly for blood panel including
JohnInTheMiddle
in
Advanced Prostate Cancer
7 months ago
Information required
Hi I have Rheumatoid Arthritis diagnosed last year I take Methotrexate. Recently had feet vibrating sensation and palpitations. I have regular blood tests my ESR has been going up a little my joint issues are not causing me an issue. I went to Walk in centre had range of tests ECG. xrays. Fine. Blòod
Hi I have Rheumatoid Arthritis diagnosed last year I take Methotrexate. Recently had feet vibrating sensation and palpitations. I have regular blood tests my ESR has been going up a little my joint issues are not causing me an issue. I went to Walk in centre had range of tests ECG. xrays. Fine. Blòod
welsh12
in
Thyroid UK
5 months ago
high heart rate at night
Anyone else out there experience something like this at night and have any idea if this is AFib or something else? Currently on 2.5mg bisoprolol daily thanks
Anyone else out there experience something like this at night and have any idea if this is AFib or something else? Currently on 2.5mg bisoprolol daily thanks
Craneguy83
in
Atrial Fibrillation Support
4 months ago
Ischemic Cholangiopathy following liver transplant.
Hi All, I wonder if anyone on this site has been diagnosed or had a family member/friend receive a diagnosis or ischemic changiopathy following liver transplant surgery? I received an urgent transplant in December 2022 and recovered well up until April/May when the problems started. Symptoms have
Hi All, I wonder if anyone on this site has been diagnosed or had a family member/friend receive a diagnosis or ischemic changiopathy following liver transplant surgery? I received an urgent transplant in December 2022 and recovered well up until April/May when the problems started. Symptoms have
KateG94
in
British Liver Trust
7 months ago
Views on study design for lupus nephritis research
A research team are planning a study and want to get the views of people with lupus nephritis so they can make sure they are meeting patients’ needs in the study design. You can read more about the research in our article here: https://lupusuk.org.uk/views-on-study-design-for-lupus-nephritis-research
A research team are planning a study and want to get the views of people with lupus nephritis so they can make sure they are meeting patients’ needs in the study design. You can read more about the research in our article here: https://lupusuk.org.uk/views-on-study-design-for-lupus-nephritis-research
Debbie_kinsey
Administrator
in
LUPUS UK
5 months ago
some PBC general pieces of information
Facts at-a-Glance Primary Biliary Cholangitis (PBC) affects mostly women, but more men are now being diagnosed. Primary Biliary Cholangitis (PBC) is a chronic disease in which the small bile ducts in the liver become injured and inflamed and are eventually destroyed. Researchers estimate that in the
Facts at-a-Glance Primary Biliary Cholangitis (PBC) affects mostly women, but more men are now being diagnosed. Primary Biliary Cholangitis (PBC) is a chronic disease in which the small bile ducts in the liver become injured and inflamed and are eventually destroyed. Researchers estimate that in the
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Fatty liver in biopsy but not scans
Hiya, I’m just curious if anyone has had a similar experience where their liver biopsy results shows signs of fatty liver but ultrasounds/CT show an enlarged liver but no fatty liver signs. I’m wondering if this means it’s extremely early stages maybe?
Hiya, I’m just curious if anyone has had a similar experience where their liver biopsy results shows signs of fatty liver but ultrasounds/CT show an enlarged liver but no fatty liver signs. I’m wondering if this means it’s extremely early stages maybe?
Chaucer89
in
British Liver Trust
7 months ago
How high is high phosphorous??
I just got labs back. I was happy to see the crazy good numbers. Even with 2 hours3 days a week. only. MY creatinine went down from almost 7 to 5.89. My bun, pth, potassium all went down and are in range. Calcium in range. Glucose in range. A1C 5.3. the only number that was bad was phosphorous which
I just got labs back. I was happy to see the crazy good numbers. Even with 2 hours3 days a week. only. MY creatinine went down from almost 7 to 5.89. My bun, pth, potassium all went down and are in range. Calcium in range. Glucose in range. A1C 5.3. the only number that was bad was phosphorous which
Bassetmommer
in
Kidney Dialysis
7 months ago
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