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Please help us decide on next treatment
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dad’s PSA started going up. He had a PSMA Pet scan and it
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dad’s PSA started going up. He had a PSMA Pet scan and it
Simonapo
in
Advanced Prostate Cancer
5 months ago
Introduction to our newer members
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Wednesday's Word
[u][i]
fibrosis
[/i][/u] https://liverfoundation.org/about-your-liver/how-liver-diseases-progress/fibrosis-scarring/#:~:text=Fibrosis%20can%20be%20reversed%20if,to%20cirrhosis%20and%20liver%20cancer. Just click on the link that appears next for the entire posting from The American Liver
[u][i]
fibrosis
[/i][/u] https://liverfoundation.org/about-your-liver/how-liver-diseases-progress/fibrosis-scarring/#:~:text=Fibrosis%20can%20be%20reversed%20if,to%20cirrhosis%20and%20liver%20cancer. Just click on the link that appears next for the entire posting from The American Liver
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
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Gamma Delta CAR T for Bone Metastatic Prostate Cancer: first trial at Moffit
Another trial of something that targets bone metastasis, and works even better if you are under zolendronate . "Most importantly, gamma delta T cells are unique in that they are most efficient when combined with a drug (zoledronate) that is commonly used to protect the bone in patients with bone metastatic
Another trial of something that targets bone metastasis, and works even better if you are under zolendronate . "Most importantly, gamma delta T cells are unique in that they are most efficient when combined with a drug (zoledronate) that is commonly used to protect the bone in patients with bone metastatic
Maxone73
in
Advanced Prostate Cancer
5 months ago
SPARX3 study of treadmill exercise for Parkinson’s recruiting at 24 sites
Participants in the study, who must have a disease duration shorter than three years, will be randomly assigned to 18 months of treadmill exercise, for 30 minutes four times per week. This aerobic workout will be done either at high intensity — to keep patients’ heart rates at 80% to 85% of maximum
Participants in the study, who must have a disease duration shorter than three years, will be randomly assigned to 18 months of treadmill exercise, for 30 minutes four times per week. This aerobic workout will be done either at high intensity — to keep patients’ heart rates at 80% to 85% of maximum
Farooqji
in
Cure Parkinson's
5 months ago
14 yr old girl with severely underactive thyroid
Just started taking thyroxine (50) for 3 weeks. Legs and back are aching. Continues to be really tired. Advice please.
Just started taking thyroxine (50) for 3 weeks. Legs and back are aching. Continues to be really tired. Advice please.
Danger-Mouse
in
Thyroid UK
8 hours ago
Adrenal Fatigue 😩
Hi everyone,Was diagnosed with Adrenal Fatigue by the late Dr Peatfield - Dr P. I've had problems ( as I'm sure many of you have) with balancing Adrenal and Thyroid Glands. #I have been taking Nutricolgy Adrenal Natural Glandular - 100 mg per day. It states ingredients = Adrenal Tissue (Bovine Lyophilized
Hi everyone,Was diagnosed with Adrenal Fatigue by the late Dr Peatfield - Dr P. I've had problems ( as I'm sure many of you have) with balancing Adrenal and Thyroid Glands. #I have been taking Nutricolgy Adrenal Natural Glandular - 100 mg per day. It states ingredients = Adrenal Tissue (Bovine Lyophilized
Booblet
in
Thyroid UK
9 hours ago
Lupus
In 2021,I was diagnosed with Lupus by my GP at the time based on symptoms principally the "butterfly facial rash".I had a new GP from 2021 due to the other GP leaving.Despite having symptoms of Lupus and two other conditions that I have long term symptoms of.my GP refuses to make any diagnoses because
In 2021,I was diagnosed with Lupus by my GP at the time based on symptoms principally the "butterfly facial rash".I had a new GP from 2021 due to the other GP leaving.Despite having symptoms of Lupus and two other conditions that I have long term symptoms of.my GP refuses to make any diagnoses because
PURPLECROCUS3
in
LUPUS UK
10 hours ago
infliximab
Hi I’ve recently started on infliximab infushion for my rheumatoid arthritis I also have osteoarthritis and fibromyalgia. Since my first infusion three weeks ago I’ve had an upset stomach for a week which meant a gap of three weeks between infusions instead of two. A week ago from my left knee down to
Hi I’ve recently started on infliximab infushion for my rheumatoid arthritis I also have osteoarthritis and fibromyalgia. Since my first infusion three weeks ago I’ve had an upset stomach for a week which meant a gap of three weeks between infusions instead of two. A week ago from my left knee down to
Fortune7
in
Fibromyalgia Action UK
13 hours ago
infliximab
Hi I’ve recently started on infliximab infushion for my rheumatoid arthritis I also have osteoarthritis and fibromyalgia. Since my first infusion three weeks ago I’ve had an upset stomach for a week which meant a gap of three weeks between infusions instead of two. A week ago from my left knee down to
Hi I’ve recently started on infliximab infushion for my rheumatoid arthritis I also have osteoarthritis and fibromyalgia. Since my first infusion three weeks ago I’ve had an upset stomach for a week which meant a gap of three weeks between infusions instead of two. A week ago from my left knee down to
Fortune7
in
NRAS
13 hours ago
Desperate!
Hello, 👋🏽 I need some advice. I’ve been very poorly for a number of years now .. it all started in 2020. After being gaslit by doctors and suffering with no treatment, I was eventually diagnosed with with a rare neuro disease, Transverse Myelitis (it’s a bit like MS, but lesions are normally just
Hello, 👋🏽 I need some advice. I’ve been very poorly for a number of years now .. it all started in 2020. After being gaslit by doctors and suffering with no treatment, I was eventually diagnosed with with a rare neuro disease, Transverse Myelitis (it’s a bit like MS, but lesions are normally just
Nassy-K
in
LUPUS UK
18 hours ago
Coeliac Diagnosis at 63 Ongoing Symptoms
Hello I’m posting on behalf of my dad and hoping for some advice for him. He was diagnosed with coeliac disease around ten years ago in his early 60s after his whole life suffering symptoms which were always written off as IBS until his eventual diagnosis. He has been on a GF diet since then but he
Hello I’m posting on behalf of my dad and hoping for some advice for him. He was diagnosed with coeliac disease around ten years ago in his early 60s after his whole life suffering symptoms which were always written off as IBS until his eventual diagnosis. He has been on a GF diet since then but he
kikimouse17
in
Gluten Free Guerrillas
22 hours ago
Upcoming Autoimmune Summit
The Autoimmune Association is holding a 2 day summit in October. This a free email I receive telling me of what's new in the autoimmune advances and research. Take a look. autoimmuneassociation.org It's worth your time to take a look and sign up to receive future notifications.
The Autoimmune Association is holding a 2 day summit in October. This a free email I receive telling me of what's new in the autoimmune advances and research. Take a look. autoimmuneassociation.org It's worth your time to take a look and sign up to receive future notifications.
DonnaBoll
Administrator
in
PBC Foundation
1 day ago
Miss MS?
A lot of people have asked what my lycra bodysuit is, and what it looks like. I've got the top, bottoms, and socks on. Had my husband take this pic 😁 feeling like I'm a superhero 🤣 just need a proper superhero name! Was thinking "Mrs Autoimmune," but its a bit too long. Then, "Mrs MS," but it's a bit
A lot of people have asked what my lycra bodysuit is, and what it looks like. I've got the top, bottoms, and socks on. Had my husband take this pic 😁 feeling like I'm a superhero 🤣 just need a proper superhero name! Was thinking "Mrs Autoimmune," but its a bit too long. Then, "Mrs MS," but it's a bit
Cwright170994
in
My MSAA Community
2 days ago
HASHIMOTOS AND ADHD
Hello I have underactive thyroid pcos sleep apnoea and adhd now diagnosed.My big question is DOES ELVANSE (adhd meds)wear down an already worn down body that is underactive and whose thyroid is probably shot away by now..I have had incredible tiredness of late and am upping to 175mg of levothyroxine
Hello I have underactive thyroid pcos sleep apnoea and adhd now diagnosed.My big question is DOES ELVANSE (adhd meds)wear down an already worn down body that is underactive and whose thyroid is probably shot away by now..I have had incredible tiredness of late and am upping to 175mg of levothyroxine
Dogsaregods__
in
Thyroid UK
2 days ago
low in iron and B12
found out I’m low in iron and I’ve got pernicious anemia. From my understanding having regular B12 injections has lowered my iron and ferritin. Should I put B12 on hold and increase my iron and ferritin? But when I don’t have regular B12 I feel the side effects. I’m taking heme iron once a day.
found out I’m low in iron and I’ve got pernicious anemia. From my understanding having regular B12 injections has lowered my iron and ferritin. Should I put B12 on hold and increase my iron and ferritin? But when I don’t have regular B12 I feel the side effects. I’m taking heme iron once a day.
qwertystar
in
Pernicious Anaemia Society
2 days ago
Post-COVID
Hi there, I need some advice and help. My mom has multiple sclerosis and recently went through COVID, which led to post-COVID viral meningitis. Her legs are now completely paralyzed. She’s currently in a treatment program, receiving Ocrevus, but now they are giving her Bioven as well. Unfortunately,
Hi there, I need some advice and help. My mom has multiple sclerosis and recently went through COVID, which led to post-COVID viral meningitis. Her legs are now completely paralyzed. She’s currently in a treatment program, receiving Ocrevus, but now they are giving her Bioven as well. Unfortunately,
why_today
in
My MSAA Community
3 days ago
Hi, new here looking for help. seronegative lupus?
Hi all, I am trying to find a lupus specialist in the UK. I have a malar rash, extreme sunlight sensitivity, weird rashes, joint pains, mouth ulcers etc. my GP thinks I have lupus but did some tests and they came back negative so has ruled it out. I have been reading up about seronegative lupus and am
Hi all, I am trying to find a lupus specialist in the UK. I have a malar rash, extreme sunlight sensitivity, weird rashes, joint pains, mouth ulcers etc. my GP thinks I have lupus but did some tests and they came back negative so has ruled it out. I have been reading up about seronegative lupus and am
Wr4ef
in
LUPUS UK
3 days ago
pre lupus
here I pose an interesting question. I currently have suspected myasthenia (relevant to this or not and was also under suspicion of melkerson Rosenthal which from understanding can be pre autoimmune).Anyhow I have also had lupus as a possibility but nit in markers of bloods but fit into the criteria
here I pose an interesting question. I currently have suspected myasthenia (relevant to this or not and was also under suspicion of melkerson Rosenthal which from understanding can be pre autoimmune).Anyhow I have also had lupus as a possibility but nit in markers of bloods but fit into the criteria
stiff19
in
LUPUS UK
3 days ago
McDonald Criteria Revisions Signal Shift Toward MS as a Biologically Based Disease
An upcoming revised version of the McDonald diagnostic criteria for multiple sclerosis (MS) will include new MS biomarkers, a panel of experts said.
https://www.medpagetoday.com/meetingcoverage/ectrims/112070?xid=nl_mpt_DHE_2024-09-23&mh=0e6e03d81e918d3558d68cd10bd874e8&utm_source=Sailthru&utm_medium
An upcoming revised version of the McDonald diagnostic criteria for multiple sclerosis (MS) will include new MS biomarkers, a panel of experts said.
https://www.medpagetoday.com/meetingcoverage/ectrims/112070?xid=nl_mpt_DHE_2024-09-23&mh=0e6e03d81e918d3558d68cd10bd874e8&utm_source=Sailthru&utm_medium
BettysMom
in
My MSAA Community
4 days ago
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