Lupus: In 2021,I was diagnosed with Lupus by my GP... - LUPUS UK

LUPUS UK

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Lupus

PURPLECROCUS3 profile image
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In 2021,I was diagnosed with Lupus by my GP at the time based on symptoms principally the "butterfly facial rash".I had a new GP from 2021 due to the other GP leaving.Despite having symptoms of Lupus and two other conditions that I have long term symptoms of.my GP refuses to make any diagnoses because he -even though a year ago -he agreed that I had symptoms of these conditions and that they can be sero-negative-said blood tests are " normal" I cannot make a diagnosis based on your symptoms"(symptoms which are Lupus.Pagets and Acromegaly.)

Today when I spoke to him on the phone -he reduced me to tears-he refused to accept my symptoms and for the second time-did not take seriously that I could not walk home from a shop carrying a little shopping and had to keep stopping to rest and because of pain and breathlessness.

The majority of the symptoms of the above conditions include facial rash.fatigue,joint and bone pain,weight changes,hearing loss,bone pain and deformities,swelling .

My symptoms match those of these conditions but he won't make diagnoses.

I am at my wits end with this "negligence " by GPs and am fearful I may not be here because my symptoms are NOT being taken seriously.

he recorded in my records -nothing about chest pain. but put "ongoing issues..."

I also struggle to eat due to distended abdomen which also fell on death ears.

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