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Interferon beta-1b
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Newbie
Hi I have been a 'browser' here for a while but never posted for personal reasons. I am 64 (65 next week) and was 32 when I was diagnosed with ET. I think I must have had every treatment available in the last 32 years; radio active phosphorus injections, interferon, Hydrea, Busulphan, Anagrelide, aspirin
Hi I have been a 'browser' here for a while but never posted for personal reasons. I am 64 (65 next week) and was 32 when I was diagnosed with ET. I think I must have had every treatment available in the last 32 years; radio active phosphorus injections, interferon, Hydrea, Busulphan, Anagrelide, aspirin
Wychwoodbabe
in
MPN Voice
8 years ago
Treatment
Hi my friend has been offered sofsibar and interferon shes got fibroscore of over 75 is there anyone else in this position and is there any alternative remadies that could help with the cirrhosis, she has hep c geno 3a. Thanks x
Hi my friend has been offered sofsibar and interferon shes got fibroscore of over 75 is there anyone else in this position and is there any alternative remadies that could help with the cirrhosis, she has hep c geno 3a. Thanks x
tillycat
in
British Liver Trust
8 years ago
New to listserve: interferon?
Hi Everyone I heard wonderful things about this list-serve and would love to connect with others with MPNs overseas -- I'm from Canada. I was diagnosed with PV one year ago (thought likely had it for almost 3 years) and I'm having a hard time deciding whether or not to go on interferon. I am currently
Hi Everyone I heard wonderful things about this list-serve and would love to connect with others with MPNs overseas -- I'm from Canada. I was diagnosed with PV one year ago (thought likely had it for almost 3 years) and I'm having a hard time deciding whether or not to go on interferon. I am currently
Faye2011
in
MPN Voice
8 years ago
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Hi everyone I got a phone call yesterday from my new hep c nurse as the other one retired only saw her twice lol.. She confirmed that I have geno type 3a .she offered me the nasty interferon treatment I told I couldn't because I know it would definitely affect me mentally. She said that I woudnt be
Hi everyone I got a phone call yesterday from my new hep c nurse as the other one retired only saw her twice lol.. She confirmed that I have geno type 3a .she offered me the nasty interferon treatment I told I couldn't because I know it would definitely affect me mentally. She said that I woudnt be
simon87
in
Hepatitis C Support
8 years ago
Hep c and Lupus ? Is there a connection?
I went to a rheumatologist for my Lupus symptoms (which family dr thought were RA) and was tested for hep c by rheumatologist and found positive.? No needle drug use so a mystery. I was sent immediately to a Gastroenterologist who put me on interferon and ribivirin for hep c. (2002 remember). It didn't
I went to a rheumatologist for my Lupus symptoms (which family dr thought were RA) and was tested for hep c by rheumatologist and found positive.? No needle drug use so a mystery. I was sent immediately to a Gastroenterologist who put me on interferon and ribivirin for hep c. (2002 remember). It didn't
Georgia-11833
in
LUpus Patients Understanding and Support
8 years ago
Cal-reticulin positive
Hi can anyone tell me whatever means to be Cal -reticulin +ve. My platelets having been creeping up, not managed by 2 gm per day hrdroxycarbamide (3 days) with 1.5 gm on alternate days, so have just started peg interferon. My haematologist says nothing to worry about, but of course I can't read enough
Hi can anyone tell me whatever means to be Cal -reticulin +ve. My platelets having been creeping up, not managed by 2 gm per day hrdroxycarbamide (3 days) with 1.5 gm on alternate days, so have just started peg interferon. My haematologist says nothing to worry about, but of course I can't read enough
Bill_E
in
MPN Voice
8 years ago
Switch from IntronA to Peg Interferon? Anyone had experience of this?
I wondered if there was anyone out there that has experience of switching from IntronA to Peg interferon. I have PV jak 2 positive. I'm struggling terribly with side effects. Excruciating bone and muscle pain that sometimes takes my breath away. I have mentioned this to the haematology department
I wondered if there was anyone out there that has experience of switching from IntronA to Peg interferon. I have PV jak 2 positive. I'm struggling terribly with side effects. Excruciating bone and muscle pain that sometimes takes my breath away. I have mentioned this to the haematology department
1965_SB_2015
in
MPN Voice
8 years ago
Struggling to cope :(
I'm new here, so apologies if this is the wrong way to go about things! My partner has PCV with low iron, we've recently been told his prospects are not very good. He's requested Interferon but they have refused to give it to him because he is only 32. He's been diagnosed since he was 15. Every time
I'm new here, so apologies if this is the wrong way to go about things! My partner has PCV with low iron, we've recently been told his prospects are not very good. He's requested Interferon but they have refused to give it to him because he is only 32. He's been diagnosed since he was 15. Every time
KatQuinzel
in
MPN Voice
8 years ago
Hepatitis C - Doctor - Profound ignorance
I have Hepatitis C from 2011, I was treated with Ribavirin and interferon for 6 months. After this HCV was undetectable. In November 2014, my GP tells me that Hepatitis C is back in my body. They send me to a specialist after 5 months. The specialist, without to do any investigation, told me that took
I have Hepatitis C from 2011, I was treated with Ribavirin and interferon for 6 months. After this HCV was undetectable. In November 2014, my GP tells me that Hepatitis C is back in my body. They send me to a specialist after 5 months. The specialist, without to do any investigation, told me that took
costumespectacol
in
HepNS
8 years ago
Rintatolimod
Chronic fatigue syndrome/ Myalgic encephalomyelitis (CFS/ME) is a poorly understood seriously debilitating disorder in which disabling fatigue is an universal symptom in combination with a variety of variable symptoms. The only drug in advanced clinical development is rintatolimod, a mismatched double
Chronic fatigue syndrome/ Myalgic encephalomyelitis (CFS/ME) is a poorly understood seriously debilitating disorder in which disabling fatigue is an universal symptom in combination with a variety of variable symptoms. The only drug in advanced clinical development is rintatolimod, a mismatched double
Babylon5
in
Ramsays Disease
8 years ago
Itching
The major effect my MPN has on me beside fatigue is itching. I have itched since before first diagnosis in 1994. Have tried so many drugs . Numerous anti-histamines, cimetidine, paroxetine, steroids ,thalidomide, interferon ( made it worse). The only thing that helped was very large doses of PUVA but
The major effect my MPN has on me beside fatigue is itching. I have itched since before first diagnosis in 1994. Have tried so many drugs . Numerous anti-histamines, cimetidine, paroxetine, steroids ,thalidomide, interferon ( made it worse). The only thing that helped was very large doses of PUVA but
skodaguy
in
MPN Voice
8 years ago
Vitamin D & J-/U-Shaped PCa Risk
Aim of this post: - to try to trash the Nordic studies with their J-/U-shaped risk curves. - to look at the only studies that really matter - vitamin D & survival. There are two main sets of PCa vitamin D study findings. Many studies have noted a reduction in PCa risk as blood levels increase. (However
Aim of this post: - to try to trash the Nordic studies with their J-/U-shaped risk curves. - to look at the only studies that really matter - vitamin D & survival. There are two main sets of PCa vitamin D study findings. Many studies have noted a reduction in PCa risk as blood levels increase. (However
pjoshea13
in
Advanced Prostate Cancer
8 years ago
Ian
Hi all, I'm someone who has been interacting with ghe Liver trust for some time. I'm just about to start my 3rd round of interferon, ribravarin based meds covering 2 years of my life. First time I was non detectable at 48weeks but it didn't stick on my 3 month check. Next up I did rib' and int' in conjunction
Hi all, I'm someone who has been interacting with ghe Liver trust for some time. I'm just about to start my 3rd round of interferon, ribravarin based meds covering 2 years of my life. First time I was non detectable at 48weeks but it didn't stick on my 3 month check. Next up I did rib' and int' in conjunction
ianmacdonagh
in
British Liver Trust
8 years ago
Platelets rising whilst on hydroxycarbamide?
Does anyone have any experience of their platelets rising whilst on a relatively high (1.5g) daily dose of hydroxycarbamide? If so which alternative drug did you go for, & how do you feel (tolerate) it? I suspect I will plump for interferon b (analagride SE's don't sound very nice)? Any help advice would
Does anyone have any experience of their platelets rising whilst on a relatively high (1.5g) daily dose of hydroxycarbamide? If so which alternative drug did you go for, & how do you feel (tolerate) it? I suspect I will plump for interferon b (analagride SE's don't sound very nice)? Any help advice would
Bill_E
in
MPN Voice
8 years ago
Interferon, low mood and 5htp....
So I've been on interferon for a few months for ET. And whilst the physical side effects are unpleasant they are improving. The mental/emotional ones are really starting to get hard. I am painfully aware that I need to give the whole thing time to settle and work. So quitting (although is an option)
So I've been on interferon for a few months for ET. And whilst the physical side effects are unpleasant they are improving. The mental/emotional ones are really starting to get hard. I am painfully aware that I need to give the whole thing time to settle and work. So quitting (although is an option)
Rochyne
in
MPN Voice
8 years ago
HCV patients should get treatment with or without cirrhosis on NHS
Treatment using Harvoni There are some genotypes that aren't so easy to treat...but, if you have Hepatitis C the NHS are obliged to treat you according to the final guidelines published by NICE November 2015. If you are not aware of this and are waiting treatment & wondering... Read this link: http
Treatment using Harvoni There are some genotypes that aren't so easy to treat...but, if you have Hepatitis C the NHS are obliged to treat you according to the final guidelines published by NICE November 2015. If you are not aware of this and are waiting treatment & wondering... Read this link: http
art4949
in
British Liver Trust
8 years ago
cryoglobunemia
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2569912/pdf/1750-1172-3-25.pdf Had i read this (page 11) before being treated with interferon maybe i would have thought twice. At the least i would have had more blood tests and discussed them with my hep doctor before starting.!
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2569912/pdf/1750-1172-3-25.pdf Had i read this (page 11) before being treated with interferon maybe i would have thought twice. At the least i would have had more blood tests and discussed them with my hep doctor before starting.!
Alvess123
in
British Liver Trust
8 years ago
Harvoni ribavirin
Hi can anyone offer me some reassurance, had hep c 35 years. Stage 4 fibrosis, non respond interferon. Have just completed 12 week Harvoni / Ribavirin VL at start 2.5 million after 2 weeks 100, after 4 weeks 27,after 8 weeks 12, was hoping for undetected, but now kind of worried that the last 4 weeks
Hi can anyone offer me some reassurance, had hep c 35 years. Stage 4 fibrosis, non respond interferon. Have just completed 12 week Harvoni / Ribavirin VL at start 2.5 million after 2 weeks 100, after 4 weeks 27,after 8 weeks 12, was hoping for undetected, but now kind of worried that the last 4 weeks
fenderjazz
in
British Liver Trust
8 years ago
Getting things sorted
Tuesday I go in for an USS on the bile duct & gall bladder. Wednesday retest for diabetes, Tuesday I finally have my dietician appt. Once I have checked all of the boxes I am moving forward on my quest for Harvoni. I do not want to take anything else. I have failed treatment on interferon and my
Tuesday I go in for an USS on the bile duct & gall bladder. Wednesday retest for diabetes, Tuesday I finally have my dietician appt. Once I have checked all of the boxes I am moving forward on my quest for Harvoni. I do not want to take anything else. I have failed treatment on interferon and my
Estiebargle
in
British Liver Trust
8 years ago
HFI Patient Connect Request
In 1981, Wendy F. received a blood transfusion during hip surgery and contracted hepatitis C. She was diagnosed in 1991. Wendy underwent two attempts to rid her body of the virus which included interferon and then interferon plus ribavirin which failed. Wendy continued therapy and a 3rd attempt with
In 1981, Wendy F. received a blood transfusion during hip surgery and contracted hepatitis C. She was diagnosed in 1991. Wendy underwent two attempts to rid her body of the virus which included interferon and then interferon plus ribavirin which failed. Wendy continued therapy and a 3rd attempt with
HFIAdmin
in
HFI Connect - Hepatitis
8 years ago
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