I wondered if there was anyone out there that has experience of switching from IntronA to Peg interferon.
I have PV jak 2 positive. I'm struggling terribly with side effects. Excruciating bone and muscle pain that sometimes takes my breath away.
I have mentioned this to the haematology department consultants but none of them are specislist in MPNs. I had been on it previously but they took me off it for 4 weeks after I had surgery. The 1st time I went on it I never experienced the side effect to this extreme as I was on high dosage of perscription pain killers, which was a result of emergency surgery to clear a clot, which resulted in them finding I have this MPN, the pain killers must have masked the symptoms.
After the 4 weeks being off IntronA I was put back on the 3 times weekly injection again. The side effect started and do not seemed to have eased at all. I don't want to be prescribed codiene again to mask symptoms, which the consultants hinted at last visit, because interonA was controlling blood levels really well, as I has such a hard time getting of them and the withdrawal symptom were awful. I do have take warfarin daily, a hormone tablet and have a 3 monthly hormone injection.
Has anyone experience similar?