I'm new here, so apologies if this is the wrong way to go about things!
My partner has PCV with low iron, we've recently been told his prospects are not very good. He's requested Interferon but they have refused to give it to him because he is only 32. He's been diagnosed since he was 15.
Every time we go to the hospital we see a different Hematologist, there seems to be no consistency of care. One month we were told that if he had another venisection he could die, the following month we were told if he didn't have one he would die.
I'm just wondering if there are any PCV specialists anywhere in the UK that could help or if anyone else has had this problem and how they dealt with it? His symptoms are driving us both nuts! Whilst he has resigned himself to terrible health care and reduced life expectancy I haven't yet!
Any help would be greatly appreciated.