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Interferon beta-1b
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Medical treatment
Hi everyone My 13 year old son has fa.we live in uk but he was diagonised last year while we were on holiday in Ireland. The doctor in Ireland has agreed to treat him with interferon gamma. My question is will he be covered under nhs or will he require an iriah medical card I hope some of you will
Hi everyone My 13 year old son has fa.we live in uk but he was diagonised last year while we were on holiday in Ireland. The doctor in Ireland has agreed to treat him with interferon gamma. My question is will he be covered under nhs or will he require an iriah medical card I hope some of you will
simon111
in
Ataxia UK
8 years ago
FIRST LINE PV SURVEY
We want to hear patients’ views on a new study for patients with polycythaemia vera (PV). Researchers in the UK have teamed up with those in France to design a study for patients with PV who need a drug to lower their blood count. We propose to test Ruxolitinib (a JAK inhibitor approved in MF and patients
We want to hear patients’ views on a new study for patients with polycythaemia vera (PV). Researchers in the UK have teamed up with those in France to design a study for patients with PV who need a drug to lower their blood count. We propose to test Ruxolitinib (a JAK inhibitor approved in MF and patients
Mazcd
MPNVoice
in
MPN Voice
8 years ago
Harvoni, Re FDA Report on adverse effects.
C/P: It is estimated that 150 million people world-wide may have the Hepatitis C Virus. On October 10, 2014, the FDA approved the fixed-dose combination capsule of ledipasvir plus sofosbuvir (Harvoni; Gilead Sciences) for the treatment of patients with chronic HCV genotype 1 infection. Ledipasvir plus
C/P: It is estimated that 150 million people world-wide may have the Hepatitis C Virus. On October 10, 2014, the FDA approved the fixed-dose combination capsule of ledipasvir plus sofosbuvir (Harvoni; Gilead Sciences) for the treatment of patients with chronic HCV genotype 1 infection. Ledipasvir plus
jennyjolly
in
Hepatitis C Support
8 years ago
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Lady DI - I am new to this site .
I was diagnosed with MS 23 years ago. I have had many Exacerbation 's & have used all the Injectable Medications over the years. I can't use Interferons anymore because it gave me Liver Disease. I have even done Novantrone Chemotherapy for 3 1/2 years & had 4 treatments of Tysabri when it first came
I was diagnosed with MS 23 years ago. I have had many Exacerbation 's & have used all the Injectable Medications over the years. I can't use Interferons anymore because it gave me Liver Disease. I have even done Novantrone Chemotherapy for 3 1/2 years & had 4 treatments of Tysabri when it first came
LADYDI0317
in
My MSAA Community
8 years ago
Weight gains & chest pains???
Hey guys... :) It's been almost 5 calendar months since I first learned of my MPN, and what has become increasingly disturbing is my weight gain over this period. I have now gained circa 8kg bringing my mass index to 123kg. This is the heaviest weight I have ever experienced in my short life... (57)
Hey guys... :) It's been almost 5 calendar months since I first learned of my MPN, and what has become increasingly disturbing is my weight gain over this period. I have now gained circa 8kg bringing my mass index to 123kg. This is the heaviest weight I have ever experienced in my short life... (57)
socrates_8
in
MPN Voice
8 years ago
Interferon
Hello I'm just wanting to know if anybody his on Interferon and as it helped them and also how was the side effects of it. They are putting my daughter on it where just waiting for the hospital to approve the funding for it .
Hello I'm just wanting to know if anybody his on Interferon and as it helped them and also how was the side effects of it. They are putting my daughter on it where just waiting for the hospital to approve the funding for it .
shine78
in
Behçet's UK
8 years ago
The Superior Ancient Grain Compared to Whole Wheat
https://draxe.com/einkorn-flour/ ...... A study conducted at the Department of Endocrinology and Internal Medicine at Aarhus University Hospital in Denmark investigated the physiological effects of ancient wheat whole grain flour diets on the development and progression of type 2 diabetes, specifically
https://draxe.com/einkorn-flour/ ...... A study conducted at the Department of Endocrinology and Internal Medicine at Aarhus University Hospital in Denmark investigated the physiological effects of ancient wheat whole grain flour diets on the development and progression of type 2 diabetes, specifically
cure
Administrator
in
Diabetes India
8 years ago
Non- A,Non- B
Hi People, This is my story. I am not sure how I contracted Hep C. When I was a teen, I was going to a Halloween party. My sister was helping me with my clown makeup.Next thing I know she was screaming for my mother to look at my eyes. They were bright yellow, also known as Jaundice. I was taken to Walter
Hi People, This is my story. I am not sure how I contracted Hep C. When I was a teen, I was going to a Halloween party. My sister was helping me with my clown makeup.Next thing I know she was screaming for my mother to look at my eyes. They were bright yellow, also known as Jaundice. I was taken to Walter
trumpet63
in
Hepatitis C Support
8 years ago
Platelets 890, Hcrit 0.49, Low Iron. Treatment options?
I'm posting because I've had a search and can't seem to find many people in a similar situation. I'm only 24, reasonably fit, no other conditions and don't smoke. I used to be in the low risk group but apparently now with high Hcrit and platelets I've been bumped to high risk and they want to start me
I'm posting because I've had a search and can't seem to find many people in a similar situation. I'm only 24, reasonably fit, no other conditions and don't smoke. I used to be in the low risk group but apparently now with high Hcrit and platelets I've been bumped to high risk and they want to start me
MattLovesu
in
MPN Voice
8 years ago
Staying the course
Back in 90s I was diagnosed with HepC and I lucked out I had great NP that understood the disease better than most MDs. I got put on interferon :O( and ribavirin this is before the pegalated form came out. for Year I went through the regime it was a long yr but thanks to my NP and and staying with the
Back in 90s I was diagnosed with HepC and I lucked out I had great NP that understood the disease better than most MDs. I got put on interferon :O( and ribavirin this is before the pegalated form came out. for Year I went through the regime it was a long yr but thanks to my NP and and staying with the
zeroload97
in
Hepatitis C Support
8 years ago
Foods/Supplements-Vitamins: D - Cholecalciferol/Calcidiol/Calcitriol - U-shaped Risk
This is the first of 3 posts on vitamin D. My sense is that many men with PCa in the U.S. are aware that vitamin D might be useful. Dr. Myers, an early adopter, has spoken of its importance, & the difficulty his patients have in raising levels. (Which implies that he tests patient levels. How many
This is the first of 3 posts on vitamin D. My sense is that many men with PCa in the U.S. are aware that vitamin D might be useful. Dr. Myers, an early adopter, has spoken of its importance, & the difficulty his patients have in raising levels. (Which implies that he tests patient levels. How many
pjoshea13
in
Advanced Prostate Cancer
8 years ago
Foods/Supplements-Vitamins: Vitamin C - Oral
This is the other half of the vitamin C topic. (aka ascorbic acid; ascorbate) Oral vitamin C from food or supplements is mostly not associated with reduced PCa risk. Studies mostly looked at vitamin C intake & the risk of a future PCa diagnosis. Is there benefit after diagnosis? The vitamin C gurus
This is the other half of the vitamin C topic. (aka ascorbic acid; ascorbate) Oral vitamin C from food or supplements is mostly not associated with reduced PCa risk. Studies mostly looked at vitamin C intake & the risk of a future PCa diagnosis. Is there benefit after diagnosis? The vitamin C gurus
pjoshea13
in
Advanced Prostate Cancer
8 years ago
How to keep interferon cool when travelling
Hi I would like to introduce myself and ask for your advice. I'm 49 have ET and was diagnosed 6 years ago after a routine blood test showed platelet levels of 1900. Until recently this has been successfully controlled with Hydroxycarbamide. However I'm now on a cocktail of interferon 3 time's a week,
Hi I would like to introduce myself and ask for your advice. I'm 49 have ET and was diagnosed 6 years ago after a routine blood test showed platelet levels of 1900. Until recently this has been successfully controlled with Hydroxycarbamide. However I'm now on a cocktail of interferon 3 time's a week,
Poppy21
in
MPN Voice
8 years ago
Et treatment options
Hi All, I am 46 and have ET jak2+ . I was diag 6 years ago and my platelets have stayed around 600-700. Treatment has been low dose aspirin up to now. Unfortunately 3 months ago I had severe chest pain, went to my local A&E and had lots of tests. The blood results indicated potential pulmonary embolism
Hi All, I am 46 and have ET jak2+ . I was diag 6 years ago and my platelets have stayed around 600-700. Treatment has been low dose aspirin up to now. Unfortunately 3 months ago I had severe chest pain, went to my local A&E and had lots of tests. The blood results indicated potential pulmonary embolism
Loubielou
in
MPN Voice
8 years ago
Will leaving the eu affect our access to myeloproliferative medication?
I have been wondering about this all day. I am on pegasus interferon which is produced in the EU. I understand it is an expensive injection and not always a first choice for MPN patients. Will the NHS still be able to keep hold of it or will it cost them more to receive it from the EU? I am worried
I have been wondering about this all day. I am on pegasus interferon which is produced in the EU. I understand it is an expensive injection and not always a first choice for MPN patients. Will the NHS still be able to keep hold of it or will it cost them more to receive it from the EU? I am worried
noodles26
in
MPN Voice
8 years ago
1 rare disease apparently isn't enough! And considering Interferon
Hi all, I had another appointment yesterday which fell at rather good timing as some of my symptoms were returning, mostly fatigue. Platelet count only at 460 but was down to 230 on Anagrelide. So it's doubled in during the month of not being on Anagrelide. The first 3 weeks I felt amazing but have
Hi all, I had another appointment yesterday which fell at rather good timing as some of my symptoms were returning, mostly fatigue. Platelet count only at 460 but was down to 230 on Anagrelide. So it's doubled in during the month of not being on Anagrelide. The first 3 weeks I felt amazing but have
JLTINA
in
MPN Voice
8 years ago
Anyone with hep c who is thinking of starting a hep c cure. I think this is important to you all.
Yhi I hope this will b read as it could save lives. I have had hep c for 20yrs, no idea how. However I have been with a very good specialist & his team of nurses are lovely. I did have a course of ribavrin & interferon, all seemed well but it didn't cure it. A few yrs down the line we tried again with
Yhi I hope this will b read as it could save lives. I have had hep c for 20yrs, no idea how. However I have been with a very good specialist & his team of nurses are lovely. I did have a course of ribavrin & interferon, all seemed well but it didn't cure it. A few yrs down the line we tried again with
jansue
in
HepNS
8 years ago
Ribovirin and sofusbivar
Hi all, this morning I started on my twelve week treatment for HCV with Ribovirin and Sofosbuvir. I'm not really feeling any side effects, apart from maybe a slightly low mood and a general feeling of edginess. I have genotype 2. I was wondering if anyone has had any experience of this particular combination
Hi all, this morning I started on my twelve week treatment for HCV with Ribovirin and Sofosbuvir. I'm not really feeling any side effects, apart from maybe a slightly low mood and a general feeling of edginess. I have genotype 2. I was wondering if anyone has had any experience of this particular combination
JackMcG
in
British Liver Trust
8 years ago
Foods/Supplements-Vitamins: Vitamin A (Retinol, Retinoic Acid [RA], Beta Carotene)
This is the first in a series of reviews of the PCa literature for foods & supplements. When I began looking at studies 12 years ago, I started with vitamin A, which I quickly discovered is not an easy topic. It goes on a bit, so for those who want the bottom line: do not supplement with vitamin A (
This is the first in a series of reviews of the PCa literature for foods & supplements. When I began looking at studies 12 years ago, I started with vitamin A, which I quickly discovered is not an easy topic. It goes on a bit, so for those who want the bottom line: do not supplement with vitamin A (
pjoshea13
in
Advanced Prostate Cancer
8 years ago
How Can I Combat Depression Associated With Interferon Therapy?
From our Ask The Expert series, Dr. John Mascarenhas of Mount Sinai School of Medicine, answers Patient Power community member, Kathy’s question about the connection between depression and interferon therapy. Dr. Mascarenhas takes a serious approach to depression, the effect on quality of life, and the
From our Ask The Expert series, Dr. John Mascarenhas of Mount Sinai School of Medicine, answers Patient Power community member, Kathy’s question about the connection between depression and interferon therapy. Dr. Mascarenhas takes a serious approach to depression, the effect on quality of life, and the
mcints
in
Fight MPN
8 years ago
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