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Interferon beta-1a
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Will leaving the eu affect our access to myeloproliferative medication?
I have been wondering about this all day. I am on pegasus interferon which is produced in the EU. I understand it is an expensive injection and not always a first choice for MPN patients. Will the NHS still be able to keep hold of it or will it cost them more to receive it from the EU? I am worried
I have been wondering about this all day. I am on pegasus interferon which is produced in the EU. I understand it is an expensive injection and not always a first choice for MPN patients. Will the NHS still be able to keep hold of it or will it cost them more to receive it from the EU? I am worried
noodles26
in
MPN Voice
8 years ago
1 rare disease apparently isn't enough! And considering Interferon
Hi all, I had another appointment yesterday which fell at rather good timing as some of my symptoms were returning, mostly fatigue. Platelet count only at 460 but was down to 230 on Anagrelide. So it's doubled in during the month of not being on Anagrelide. The first 3 weeks I felt amazing but have
Hi all, I had another appointment yesterday which fell at rather good timing as some of my symptoms were returning, mostly fatigue. Platelet count only at 460 but was down to 230 on Anagrelide. So it's doubled in during the month of not being on Anagrelide. The first 3 weeks I felt amazing but have
JLTINA
in
MPN Voice
8 years ago
Anyone with hep c who is thinking of starting a hep c cure. I think this is important to you all.
Yhi I hope this will b read as it could save lives. I have had hep c for 20yrs, no idea how. However I have been with a very good specialist & his team of nurses are lovely. I did have a course of ribavrin & interferon, all seemed well but it didn't cure it. A few yrs down the line we tried again with
Yhi I hope this will b read as it could save lives. I have had hep c for 20yrs, no idea how. However I have been with a very good specialist & his team of nurses are lovely. I did have a course of ribavrin & interferon, all seemed well but it didn't cure it. A few yrs down the line we tried again with
jansue
in
HepNS
8 years ago
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Ribovirin and sofusbivar
Hi all, this morning I started on my twelve week treatment for HCV with Ribovirin and Sofosbuvir. I'm not really feeling any side effects, apart from maybe a slightly low mood and a general feeling of edginess. I have genotype 2. I was wondering if anyone has had any experience of this particular combination
Hi all, this morning I started on my twelve week treatment for HCV with Ribovirin and Sofosbuvir. I'm not really feeling any side effects, apart from maybe a slightly low mood and a general feeling of edginess. I have genotype 2. I was wondering if anyone has had any experience of this particular combination
JackMcG
in
British Liver Trust
8 years ago
Foods/Supplements-Vitamins: Vitamin A (Retinol, Retinoic Acid [RA], Beta Carotene)
This is the first in a series of reviews of the PCa literature for foods & supplements. When I began looking at studies 12 years ago, I started with vitamin A, which I quickly discovered is not an easy topic. It goes on a bit, so for those who want the bottom line: do not supplement with vitamin A (
This is the first in a series of reviews of the PCa literature for foods & supplements. When I began looking at studies 12 years ago, I started with vitamin A, which I quickly discovered is not an easy topic. It goes on a bit, so for those who want the bottom line: do not supplement with vitamin A (
pjoshea13
in
Advanced Prostate Cancer
8 years ago
How Can I Combat Depression Associated With Interferon Therapy?
From our Ask The Expert series, Dr. John Mascarenhas of Mount Sinai School of Medicine, answers Patient Power community member, Kathy’s question about the connection between depression and interferon therapy. Dr. Mascarenhas takes a serious approach to depression, the effect on quality of life, and the
From our Ask The Expert series, Dr. John Mascarenhas of Mount Sinai School of Medicine, answers Patient Power community member, Kathy’s question about the connection between depression and interferon therapy. Dr. Mascarenhas takes a serious approach to depression, the effect on quality of life, and the
mcints
in
Fight MPN
8 years ago
Newbie
Hi I have been a 'browser' here for a while but never posted for personal reasons. I am 64 (65 next week) and was 32 when I was diagnosed with ET. I think I must have had every treatment available in the last 32 years; radio active phosphorus injections, interferon, Hydrea, Busulphan, Anagrelide, aspirin
Hi I have been a 'browser' here for a while but never posted for personal reasons. I am 64 (65 next week) and was 32 when I was diagnosed with ET. I think I must have had every treatment available in the last 32 years; radio active phosphorus injections, interferon, Hydrea, Busulphan, Anagrelide, aspirin
Wychwoodbabe
in
MPN Voice
8 years ago
Treatment
Hi my friend has been offered sofsibar and interferon shes got fibroscore of over 75 is there anyone else in this position and is there any alternative remadies that could help with the cirrhosis, she has hep c geno 3a. Thanks x
Hi my friend has been offered sofsibar and interferon shes got fibroscore of over 75 is there anyone else in this position and is there any alternative remadies that could help with the cirrhosis, she has hep c geno 3a. Thanks x
tillycat
in
British Liver Trust
8 years ago
New to listserve: interferon?
Hi Everyone I heard wonderful things about this list-serve and would love to connect with others with MPNs overseas -- I'm from Canada. I was diagnosed with PV one year ago (thought likely had it for almost 3 years) and I'm having a hard time deciding whether or not to go on interferon. I am currently
Hi Everyone I heard wonderful things about this list-serve and would love to connect with others with MPNs overseas -- I'm from Canada. I was diagnosed with PV one year ago (thought likely had it for almost 3 years) and I'm having a hard time deciding whether or not to go on interferon. I am currently
Faye2011
in
MPN Voice
8 years ago
Update
Hi everyone I got a phone call yesterday from my new hep c nurse as the other one retired only saw her twice lol.. She confirmed that I have geno type 3a .she offered me the nasty interferon treatment I told I couldn't because I know it would definitely affect me mentally. She said that I woudnt be
Hi everyone I got a phone call yesterday from my new hep c nurse as the other one retired only saw her twice lol.. She confirmed that I have geno type 3a .she offered me the nasty interferon treatment I told I couldn't because I know it would definitely affect me mentally. She said that I woudnt be
simon87
in
Hepatitis C Support
8 years ago
Hep c and Lupus ? Is there a connection?
I went to a rheumatologist for my Lupus symptoms (which family dr thought were RA) and was tested for hep c by rheumatologist and found positive.? No needle drug use so a mystery. I was sent immediately to a Gastroenterologist who put me on interferon and ribivirin for hep c. (2002 remember). It didn't
I went to a rheumatologist for my Lupus symptoms (which family dr thought were RA) and was tested for hep c by rheumatologist and found positive.? No needle drug use so a mystery. I was sent immediately to a Gastroenterologist who put me on interferon and ribivirin for hep c. (2002 remember). It didn't
Georgia-11833
in
LUpus Patients Understanding and Support
8 years ago
Cal-reticulin positive
Hi can anyone tell me whatever means to be Cal -reticulin +ve. My platelets having been creeping up, not managed by 2 gm per day hrdroxycarbamide (3 days) with 1.5 gm on alternate days, so have just started peg interferon. My haematologist says nothing to worry about, but of course I can't read enough
Hi can anyone tell me whatever means to be Cal -reticulin +ve. My platelets having been creeping up, not managed by 2 gm per day hrdroxycarbamide (3 days) with 1.5 gm on alternate days, so have just started peg interferon. My haematologist says nothing to worry about, but of course I can't read enough
Bill_E
in
MPN Voice
8 years ago
Switch from IntronA to Peg Interferon? Anyone had experience of this?
I wondered if there was anyone out there that has experience of switching from IntronA to Peg interferon. I have PV jak 2 positive. I'm struggling terribly with side effects. Excruciating bone and muscle pain that sometimes takes my breath away. I have mentioned this to the haematology department
I wondered if there was anyone out there that has experience of switching from IntronA to Peg interferon. I have PV jak 2 positive. I'm struggling terribly with side effects. Excruciating bone and muscle pain that sometimes takes my breath away. I have mentioned this to the haematology department
1965_SB_2015
in
MPN Voice
8 years ago
Struggling to cope :(
I'm new here, so apologies if this is the wrong way to go about things! My partner has PCV with low iron, we've recently been told his prospects are not very good. He's requested Interferon but they have refused to give it to him because he is only 32. He's been diagnosed since he was 15. Every time
I'm new here, so apologies if this is the wrong way to go about things! My partner has PCV with low iron, we've recently been told his prospects are not very good. He's requested Interferon but they have refused to give it to him because he is only 32. He's been diagnosed since he was 15. Every time
KatQuinzel
in
MPN Voice
8 years ago
Hepatitis C - Doctor - Profound ignorance
I have Hepatitis C from 2011, I was treated with Ribavirin and interferon for 6 months. After this HCV was undetectable. In November 2014, my GP tells me that Hepatitis C is back in my body. They send me to a specialist after 5 months. The specialist, without to do any investigation, told me that took
I have Hepatitis C from 2011, I was treated with Ribavirin and interferon for 6 months. After this HCV was undetectable. In November 2014, my GP tells me that Hepatitis C is back in my body. They send me to a specialist after 5 months. The specialist, without to do any investigation, told me that took
costumespectacol
in
HepNS
8 years ago
Rintatolimod
Chronic fatigue syndrome/ Myalgic encephalomyelitis (CFS/ME) is a poorly understood seriously debilitating disorder in which disabling fatigue is an universal symptom in combination with a variety of variable symptoms. The only drug in advanced clinical development is rintatolimod, a mismatched double
Chronic fatigue syndrome/ Myalgic encephalomyelitis (CFS/ME) is a poorly understood seriously debilitating disorder in which disabling fatigue is an universal symptom in combination with a variety of variable symptoms. The only drug in advanced clinical development is rintatolimod, a mismatched double
Babylon5
in
Ramsays Disease
8 years ago
Itching
The major effect my MPN has on me beside fatigue is itching. I have itched since before first diagnosis in 1994. Have tried so many drugs . Numerous anti-histamines, cimetidine, paroxetine, steroids ,thalidomide, interferon ( made it worse). The only thing that helped was very large doses of PUVA but
The major effect my MPN has on me beside fatigue is itching. I have itched since before first diagnosis in 1994. Have tried so many drugs . Numerous anti-histamines, cimetidine, paroxetine, steroids ,thalidomide, interferon ( made it worse). The only thing that helped was very large doses of PUVA but
skodaguy
in
MPN Voice
8 years ago
Vitamin D & J-/U-Shaped PCa Risk
Aim of this post: - to try to trash the Nordic studies with their J-/U-shaped risk curves. - to look at the only studies that really matter - vitamin D & survival. There are two main sets of PCa vitamin D study findings. Many studies have noted a reduction in PCa risk as blood levels increase. (However
Aim of this post: - to try to trash the Nordic studies with their J-/U-shaped risk curves. - to look at the only studies that really matter - vitamin D & survival. There are two main sets of PCa vitamin D study findings. Many studies have noted a reduction in PCa risk as blood levels increase. (However
pjoshea13
in
Advanced Prostate Cancer
8 years ago
Ian
Hi all, I'm someone who has been interacting with ghe Liver trust for some time. I'm just about to start my 3rd round of interferon, ribravarin based meds covering 2 years of my life. First time I was non detectable at 48weeks but it didn't stick on my 3 month check. Next up I did rib' and int' in conjunction
Hi all, I'm someone who has been interacting with ghe Liver trust for some time. I'm just about to start my 3rd round of interferon, ribravarin based meds covering 2 years of my life. First time I was non detectable at 48weeks but it didn't stick on my 3 month check. Next up I did rib' and int' in conjunction
ianmacdonagh
in
British Liver Trust
8 years ago
Platelets rising whilst on hydroxycarbamide?
Does anyone have any experience of their platelets rising whilst on a relatively high (1.5g) daily dose of hydroxycarbamide? If so which alternative drug did you go for, & how do you feel (tolerate) it? I suspect I will plump for interferon b (analagride SE's don't sound very nice)? Any help advice would
Does anyone have any experience of their platelets rising whilst on a relatively high (1.5g) daily dose of hydroxycarbamide? If so which alternative drug did you go for, & how do you feel (tolerate) it? I suspect I will plump for interferon b (analagride SE's don't sound very nice)? Any help advice would
Bill_E
in
MPN Voice
8 years ago
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